Hearing Health Foundation

Last updated


Hearing Health Foundation
Founded1958 [1]
FounderCollette Ramsey Baker
Type Public Charity- 501(c)(3)
FocusTo prevent and cure hearing loss and tinnitus through research and to promote hearing health.
Location
Area served
United States
MethodPrivate Donations
Key people
Jay Grushkin (Chair)
Paul E. Orlin (Vice Chair)
Elizabeth Keithley, Ph.D. (Chair Emerita)
Robert Boucai (Treasurer)
Judy Dubno, Ph.D. (Secretary)
Timothy Higdon (CEO)
Employees
6
Website hearinghealthfoundation.org
Formerly called
Deafness Research Foundation (1958–2011) [2]

Hearing Health Foundation (HHF) is a 501(c)(3) nonprofit organization. In 2011, the Deafness Research Foundation changed its name to Hearing Health Foundation. [3]

Contents

HHF was founded as the Deafness Research Foundation in 1958, by Collette Ramsey Baker, a woman who lived with a substantial hearing loss. Since then, HHF has worked to provide funding for basic, clinical and translational research in hearing and balance science, and worked towards research and treatments for people with hearing loss, tinnitus, and other hearing conditions. This includes funding research that led to the development of cochlear implants and treatments for otosclerosis (abnormal bone growth in the ear) and ear infections. In the 1990s HHF advocated in Washington, D.C., for universal neonatal hearing screening legislation, to detect hearing loss at birth.

The primary aims of the foundation are to promote awareness of hearing health and the prevention of noise induced hearing loss, provide seed money to researchers focused on hearing and balance science through grants, and to find better therapies and cures for hearing loss and tinnitus through the Hearing Restoration Project (HRP) and Emerging Research Grants (ERG) programs.

History

The Deafness Research Foundation (DRF) was founded by Collette Ramsey Baker on February 1, 1958. [4] Born in Waverly, Tennessee, Ramsey Baker lived with substantial hearing loss for many years before she had her hearing completely restored at age 35, with an early fenestration operation. She then founded the DRF. A recurrent model for the renowned painter Howard Chandler Christy and an avid golfer, she received letters of commendation from US Presidents Herbert Hoover and Dwight Eisenhower, Helen Keller and Cardinal Francis Spellman. [5]

In 1960, DRF and the American Academy of Otolaryngology created the National Temporal Bone Banks Program, to collect and study the human temporal bone, and to encourage temporal bone donation. In 1992 the NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry was founded as a nonprofit organization by the National Institute of Deafness and other Communication Disorders (NIDCD) of the National Institutes of Health to continue and expand on the activities of the former National Temporal Bone Banks Program. [6]

By 1972, the DRF was funding research on cochlear implants, with later grants in single channel to multi-channel implants, speech perception among cochlear implant users, and implants in children. Substantial research and significant contribution in the prevention and treatment of middle ear infection was made by researchers who were awarded grants. In 1977 the DRF funded research in outer ear hair cell motility that led to a new method for measuring the health of a newborn's ear, and began funding research to understand how sensory cells transmit sounds from the world to the brain.

The DRF funded research led, in 1987, to the discovery of spontaneous regeneration of hair cells in chickens, thus igniting the field of hair cell regeneration in humans. Research on the regrowth of cochlea cells may lead to medical treatments that restore hearing. Unlike birds and reptiles, humans and other mammals are normally unable to regrow the cells of the inner ear that convert sound into neural signals when those cells are damaged by age or disease. [7]

In 1989 the DRF funded Meniere's Disease Study Center for improved evaluation and better treatments of Ménière's disease.

In celebration of its 50th anniversary, the DRF rang the opening bell at the New York Stock Exchange in 2008. [8]

The organization decided to change its name from The Deafness Research Foundation to Hearing Health Foundation. On September 14, 2011, the Chair of the Board, Clifford P. Tallman, Jr., announced the name change of the DRF to Hearing Health Foundation and presented a new research consortium, the Hearing Restoration Project. [3]

Research programs

Emerging Research Grants

Through its Emerging Research Grants (ERG), HHF provides seed money to researchers, particularly those whose work is focused on areas of otology that have been under-researched and under-represented through traditional funding mechanisms. Through ERG, HHF has awarded over millions of dollars through more than 2,200 scientific research grants to researchers.

Many of HHF's grantees have also received federal grants. Former grantees make up 20 percent of recipients of the Association for Research in Otolaryngology Award of Merit. Many researchers we funded go on to obtain National Institutes of Health (NIH) funding for their work.

Hearing Health Foundation supports research in the following areas:

Hearing Restoration Project

The Hearing Restoration Project (HRP) is a consortium of 14 senior scientists working collaboratively on scientific research towards inner ear hair cell regeneration and accelerate the time frame for developing a cure for hearing loss. The HRP brings together researchers from Harvard University, Stanford University, the University of Washington and elsewhere with the goal of researching and developing a genuine cure for most forms of acquired hearing loss by regenerating the inner ear hair cells that enable hearing.

Strategic research plan

  • Phase 1 – Discovery research: Scientists have identified various pathways for hair cell regeneration. Since there are many potential gene targets, they continually utilize bioinformatics methods to winnow down and determine which are most relevant. Researchers have shown in the mouse neighboring supporting cells remain after deafening.
  • Phase 2 – Recent technological advances have enabled researchers to examine single hair cells rather than entire clusters. This aids in the study of gene expression immediately after a single hair cell is damaged. Researchers are examining early events that occur in the hair cells of zebrafish and chicks, but not in mice. The genes not undergoing the same expression in the mouse as in the other two animal models will be targets for manipulation.
  • Phase 3 – Develop treatments: Experimental models from Phase 2 will be used to screen for possible treatments.

Cell regeneration summit and webinars

  • In 2011, Hearing Health Foundation hosted a public-focused health conference bringing together leaders in the field of cell regeneration research in the ear to discuss current research and potential therapies to restore hearing as part of the HRP. [9]
  • On May 21, 2015, Hearing Health Foundation hosted at live-video research briefing to provide updates on research programs and progress. Dr. Peter Barr-Gillespie, then Scientific Director, Hearing Restoration Project presented on the Hearing Restoration Project.

Prevention and education

Hearing Health Foundation publishes the Hearing Health magazine, Hearing Health E-News, and a weekly blog to supply information about current research and technologies related to hearing loss, tinnitus, and other hearing conditions, as well as provides general information about the Foundation's work, education, and prevention efforts.

In 2011 HHF demonstrated how sound travels and educated approximately 18,000 children at Nickelodeon's "Day of Play" at the Mall in Washington, D.C. [10]

In 2021 HHF launched its Keep Listening [11] prevention campaign to promote hearing health and safe listening practices to prevent noise-induced hearing loss.

Related Research Articles

<span class="mw-page-title-main">Hearing loss</span> Partial or total inability to hear

Hearing loss is a partial or total inability to hear. Hearing loss may be present at birth or acquired at any time afterwards. Hearing loss may occur in one or both ears. In children, hearing problems can affect the ability to acquire spoken language, and in adults it can create difficulties with social interaction and at work. Hearing loss can be temporary or permanent. Hearing loss related to age usually affects both ears and is due to cochlear hair cell loss. In some people, particularly older people, hearing loss can result in loneliness.

This is a glossary of medical terms related to communication disorders which are psychological or medical conditions that could have the potential to affect the ways in which individuals can hear, listen, understand, speak and respond to others.

<span class="mw-page-title-main">Ménière's disease</span> Disorder of the inner ear

Ménière's disease (MD) is a disease of the inner ear that is characterized by potentially severe and incapacitating episodes of vertigo, tinnitus, hearing loss, and a feeling of fullness in the ear. Typically, only one ear is affected initially, but over time, both ears may become involved. Episodes generally last from 20 minutes to a few hours. The time between episodes varies. The hearing loss and ringing in the ears can become constant over time.

<span class="mw-page-title-main">Cochlear implant</span> Prosthesis

A cochlear implant (CI) is a surgically implanted neuroprosthesis that provides a person who has moderate-to-profound sensorineural hearing loss with sound perception. With the help of therapy, cochlear implants may allow for improved speech understanding in both quiet and noisy environments. A CI bypasses acoustic hearing by direct electrical stimulation of the auditory nerve. Through everyday listening and auditory training, cochlear implants allow both children and adults to learn to interpret those signals as speech and sound.

<span class="mw-page-title-main">Otosclerosis</span> Condition characterized by an abnormal bone growth in the middle ear

Otosclerosis is a condition of the middle ear where portions of the dense enchondral layer of the bony labyrinth remodel into one or more lesions of irregularly-laid spongy bone. As the lesions reach the stapes the bone is resorbed, then hardened (sclerotized), which limits its movement and results in hearing loss, tinnitus, vertigo or a combination of these. The term otosclerosis is something of a misnomer: much of the clinical course is characterized by lucent rather than sclerotic bony changes, so the disease is also known as otospongiosis.

Ototoxicity is the property of being toxic to the ear (oto-), specifically the cochlea or auditory nerve and sometimes the vestibular system, for example, as a side effect of a drug. The effects of ototoxicity can be reversible and temporary, or irreversible and permanent. It has been recognized since the 19th century. There are many well-known ototoxic drugs used in clinical situations, and they are prescribed, despite the risk of hearing disorders, for very serious health conditions. Ototoxic drugs include antibiotics, loop diuretics, and platinum-based chemotherapy agents. A number of nonsteroidal anti-inflammatory drugs (NSAIDS) have also been shown to be ototoxic. This can result in sensorineural hearing loss, dysequilibrium, or both. Some environmental and occupational chemicals have also been shown to affect the auditory system and interact with noise.

<span class="mw-page-title-main">Ear</span> Organ of hearing and balance

An ear is the organ that enables hearing and body balance using the vestibular system. In mammals, the ear is usually described as having three parts: the outer ear, the middle ear and the inner ear. The outer ear consists of the pinna and the ear canal. Since the outer ear is the only visible portion of the ear in most animals, the word "ear" often refers to the external part alone. The middle ear includes the tympanic cavity and the three ossicles. The inner ear sits in the bony labyrinth, and contains structures which are key to several senses: the semicircular canals, which enable balance and eye tracking when moving; the utricle and saccule, which enable balance when stationary; and the cochlea, which enables hearing. The ear is a self cleaning organ through its relationship with earwax and the ear canals. The ears of vertebrates are placed somewhat symmetrically on either side of the head, an arrangement that aids sound localization.

<span class="mw-page-title-main">Sensorineural hearing loss</span> Hearing loss caused by an inner ear or vestibulocochlear nerve defect

Sensorineural hearing loss (SNHL) is a type of hearing loss in which the root cause lies in the inner ear, sensory organ, or the vestibulocochlear nerve. SNHL accounts for about 90% of reported hearing loss. SNHL is usually permanent and can be mild, moderate, severe, profound, or total. Various other descriptors can be used depending on the shape of the audiogram, such as high frequency, low frequency, U-shaped, notched, peaked, or flat.

Auditory neuropathy (AN) is a hearing disorder in which the outer hair cells of the cochlea are present and functional, but sound information is not transmitted sufficiently by the auditory nerve to the brain. The cause may be several dysfunctions of the inner hair cells of the cochlea or spiral ganglion neuron levels. Hearing loss with AN can range from normal hearing sensitivity to profound hearing loss.

Unilateral hearing loss (UHL) is a type of hearing impairment where there is normal hearing in one ear and impaired hearing in the other ear.

Presbycusis, or age-related hearing loss, is the cumulative effect of aging on hearing. It is a progressive and irreversible bilateral symmetrical age-related sensorineural hearing loss resulting from degeneration of the cochlea or associated structures of the inner ear or auditory nerves. The hearing loss is most marked at higher frequencies. Hearing loss that accumulates with age but is caused by factors other than normal aging is not presbycusis, although differentiating the individual effects of distinct causes of hearing loss can be difficult.

<span class="mw-page-title-main">Otology</span> Branch of medicine for the ear

Otology is a branch of medicine which studies normal and pathological anatomy and physiology of the ear as well as their diseases, diagnosis and treatment. Otologic surgery generally refers to surgery of the middle ear and mastoid related to chronic otitis media, such as tympanoplasty, or ear drum surgery, ossiculoplasty, or surgery of the hearing bones, and mastoidectomy. Otology also includes surgical treatment of conductive hearing loss, such as stapedectomy surgery for otosclerosis.

<span class="mw-page-title-main">The House Institute Foundation</span> Californian non-profit to advance hearing science

The House Institute Foundation (HIF), formerly the House Ear Institute, is a non-profit 501(c)(3) organization, based in Los Angeles, California, and dedicated to advancing hearing science through research, education, and global hearing health to improve quality of life.

<span class="mw-page-title-main">Noise-induced hearing loss</span> Medical condition

Noise-induced hearing loss (NIHL) is a hearing impairment resulting from exposure to loud sound. People may have a loss of perception of a narrow range of frequencies or impaired perception of sound including sensitivity to sound or ringing in the ears. When exposure to hazards such as noise occur at work and is associated with hearing loss, it is referred to as occupational hearing loss.

The Ear Research Foundation, located in Sarasota, Florida, is a center for research and development and medical education. Herbert Silverstein, M.D., is the president and founder of the non-profit corporation.

Neurotology or neuro-otology is a subspecialty of otolaryngology—head and neck surgery, also known as ENT medicine. Neuro-otology is closely related to otology, clinical neurology and neurosurgery.

<span class="mw-page-title-main">Henryk Skarżyński</span> Polish surgeon (born 1954)

Henryk Skarzynski is a Polish doctor otolaryngologist, audiologist and phoniatrist, creator and director of Warsaw Institute of Physiology and Pathology of Hearing and World Hearing Center in Kajetany.

<span class="mw-page-title-main">Bionics Institute</span>

The Bionics Institute is an Australian medical research institute focusing on medical device development. It is located in Melbourne, Australia.

Inner ear regeneration is the biological process by which the hair cells and supporting cells of the ear proliferate and regrow after hair cell injury. This process depends on communication between supporting cells and the brain. Because of the volatility of the inner ear's hair cells, regeneration is crucial to the functioning of the inner ear. It is also a limited process, which contributes to the irreversibility of hearing loss in humans and other mammals.

Cochlear hydrops is a condition of the inner ear involving a pathological increase of fluid affecting the cochlea. This results in swelling that can lead to hearing loss or changes in hearing perception. It is a form of endolymphatic hydrops and related to Ménière's disease. Cochlear hydrops refers to a case of inner-ear hydrops that only involves auditory symptoms and does not cause vestibular issues.

References

  1. "Hearing Health Foundation History". Hearing Health Foundation. Retrieved 22 August 2017.
  2. "Deafness Research Foundation Announces New Name and Reaffirms its Unwavering Dedication to..." New York: Prnewswire.com. 2011-09-14. Retrieved 2012-07-16.
  3. 1 2 "Deafness Research Foundation Announces New Name". PRNewswire. 14 September 2011. Retrieved 7 January 2013.
  4. "Hearing Health Foundation History". Hearinghealthfoundation.org. 1958-02-01. Retrieved 2017-08-22.
  5. "Collette Ramsey Baker". TC Palm. 12 May 2010. Retrieved 7 January 2013.
  6. "What is the Registry?". National Temporal Bone Registry. Retrieved 7 January 2013.
  7. Edge AS, Chen ZY (2008). "Hair cell regeneration". Current Opinion in Neurobiology. 18 (4): 377–82. doi:10.1016/j.conb.2008.10.001. PMC   5653255 . PMID   18929656.
  8. "Hearing Health Foundation History". Hearinghealthfoundation.org. 1958-02-01. Retrieved 2017-08-22.
  9. "Hearing Health Summit 2011". hyperacusisresearch.org. 14 December 2011. Retrieved 2017-08-22.
  10. "Safe and Sound Prevention Program". Hearinghealthfoundation.org. Retrieved 2013-10-28.
  11. "Keep Listening". Hearinghealthfoundation.org. Retrieved 2024-05-23.