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Abbreviation | ASC |
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Formation | 1978 |
Type | Alzheimer's disease charity |
Legal status | Active |
Headquarters | Toronto, Ontario, Canada |
Region served | Canada |
Official languages | English, French |
Key people | Kevin Noel, CEO (Interim) |
Staff | 20 to 25 |
Website | www.alzheimer.ca |
The Alzheimer Society of Canada (ASC) is a Canadian health charity for people living with Alzheimer's disease and other dementias. Active in communities right across Canada, the Society partners with Alzheimer Societies in every Canadian province to offer information, support and education programs for people with dementia, their families and caregivers. The Alzheimer Society of Canada acts as the national voice for the thousands of Canadians living with dementia and advocates on their behalf for positive change. The Society also funds young and established Canadian researchers working to find the causes and a cure through the Alzheimer Society Research Program. [1]
The Society's vision is a world without Alzheimer's disease and other dementias. [2]
It was founded in 1978 and is based in Toronto, Ontario, Canada.
In 1977, the Alzheimer Society began as a group of researchers concerned about the lack of support for people with Alzheimer's disease. Their focus was family support, education and research. The next year, the organization was incorporated federally under the name Société Alzheimer Society, the first organization of its kind in the world. [3]
In 1984, the Society was one of the eight founding members of Alzheimer's Disease International.
In 1989, the Alzheimer Society Research Program was launched, offering upcoming researchers as well as established ones an opportunity to receive grants to further their work. [4]
Since 2003, the Alzheimer Society of Canada has appointed a person living with dementia to its board of directors. The Society also includes people living with dementia in their work through their Advisory Group, which supports and guides the Society's initiatives in dementia research, education and advocacy. [5]
In 2010, the Society released Rising Tide: The Impact of Dementia on Canadian Society, describing the health and economic burden of dementia in Canada over the next 30 years, and alerting the Canadian public and all levels of government to the need for policies and approaches to address the looming dementia crisis. [6]
Starting with the release in 2011 of Guidelines for Care: Person-centred care of people with dementia living in care homes, the Alzheimer Society of Canada has led a multi-phased project to conduct studies and develop resources promoting the practice of person-centred care in all stages of the disease. [7]
In 2018, the Alzheimer Society of Canada launched the first-ever Canadian Charter of Rights for People with Dementia, written by and for people living with dementia. The Charter's intention is to empower people living with dementia in situations where they experience stigma, are treated unfairly, discriminated against or are denied access to appropriate care. The Charter is the culmination of over a year’s work by the Society’s Advisory Group of people with dementia. [8]
In their 2016 registered charity information return filed with the Canada Revenue Agency, the Alzheimer Society of Canada listed their ongoing programs as:
Canadians looking for individual and family support for dementia are referred to provincial and local Societies for access to programs and services in their region. [10]
MedicAlert Safely Home is a joint program of the Alzheimer Society of Canada and the Medic Alert Foundation to help people living with dementia who may go missing. The program provides a MedicAlert identification bracelet and a registry of information that helps first responders reconnect the person with family and get them safely home. [11]
The Society offers First Link, a program that connects people diagnosed with dementia to their local Alzheimer Society and other community resources as early in the disease process as possible. [12]
The Alzheimer Society of Canada, with the provincial Alzheimer Societies and the local Alzheimer Societies in Ontario and Quebec, are registered as separate charities and operate in cooperation using a federated model. [13]
Together with its partners, as of 2020 the Alzheimer Society of Canada has contributed over $64 million to dementia research in Canada, supporting projects that investigate the causes, treatments and an eventual cure for the disease, as well as quality-of-life research that leads to improvements in care. [14]
In September 2022, the Alzheimer Society of Canada released a new report called "Navigating the Path Forward for Dementia in Canada." This report is the first volume of the Society's Landmark Study. [15]
The Society estimates that there are over 500,000 Canadians living with dementia today. By 2030, if nothing changes in Canada, this figure will increase to nearly a million. [16]
Alzheimer's Awareness Month
Every January, the Alzheimer Society of Canada launches a campaign to raise awareness about Alzheimer's disease and other dementias and to reduce stigma. [17]
IG Wealth Management Walk for Alzheimer's
The IG Wealth Management Walk for Alzheimer's is Canada's biggest fundraiser for Alzheimer's disease and other dementias. Monies raised support programs and services to improve the quality of life for people living with dementia and their families, and support other activities like education and public awareness. Walks take place every year in over 400 communities across Canada. [18]
Dementia is the general name for a decline in cognitive abilities that impacts a person's ability to perform everyday activities. This typically involves problems with memory, thinking, and behavior. Aside from memory impairment and a disruption in thought patterns, the most common symptoms include emotional problems, difficulties with language, and decreased motivation. The symptoms may be described as occurring in a continuum over several stages. Dementia ultimately has a significant effect on the individual, caregivers, and on social relationships in general. A diagnosis of dementia requires the observation of a change from a person's usual mental functioning and a greater cognitive decline than what is caused by normal aging.
Alzheimer's Society is a United Kingdom care and research charity for people with dementia and their carers. It operates in England, Wales and Northern Ireland, while its sister charities Alzheimer Scotland and Alzheimer Society of Ireland cover Scotland and the Republic of Ireland respectively.
Diabetes Canada is a registered national charity whose mission includes serving the 11 million Canadians living with diabetes or prediabetes. Diabetes Canada programs include:
The Alzheimer's Association was founded by Jerome H. Stone with the help of several family members in Chicago, Illinois. Incorporated on April 10, 1980, as the Alzheimer's Disease and Related Disorders Association, Inc., it is a non-profit American volunteer health organization which focuses on care, support and research for Alzheimer's disease.
The Alzheimer Society of Ontario (ASO) is a care and research charity committed to helping people living with Alzheimer's disease and other dementias by:
Alzheimer’s Disease International (ADI) is a not-for-profit, international federation of Alzheimer and dementia associations from around the world. The organization is in official relations with the World Health Organization (WHO). ADI advocates for people living with Alzheimer’s disease and all other types of dementia.
Alzheimer's Research UK (ARUK) is a dementia research charity in the United Kingdom, founded in 1992 as the Alzheimer's Research Trust.
As populations age, caring for people with dementia has become more common. Elderly caregiving may consist of formal care and informal care. Formal care involves the services of community and medical partners, while informal care involves the support of family, friends, and local communities. In most mild-to-medium cases of dementia, the caregiver is a spouse or an adult child. Over the period of time, more professional care in the form of nursing and other supportive care may be required medically, whether at home or in a long-term care facility. There are evidence to show that case management can improve care for individuals with dementia and the experience of their caregivers. Furthermore, case management may reduce overall cost and institutional care in the medium term. Millions of people living in the United States take care of a friend or family member with Alzheimer’s disease or a related dementia.
Alzheimer's disease (AD) is a neurodegenerative disease that usually starts slowly and progressively worsens, and is the cause of 60–70% of cases of dementia. The most common early symptom is difficulty in remembering recent events. As the disease advances, symptoms can include problems with language, disorientation, mood swings, loss of motivation, self-neglect, and behavioral issues. As a person's condition declines, they often withdraw from family and society. Gradually, bodily functions are lost, ultimately leading to death. Although the speed of progression can vary, the typical life expectancy following diagnosis is three to nine years.
Wandering occurs when a person with dementia roams around and becomes lost or confused about their location. It is a common behavior that can cause great risk for the person, and is often the major priority for caregivers. It is estimated to be the most common form of disruption from people with dementia within institutions. Although it occurs in several types of dementia, wandering is especially common in people with Alzheimer's disease (AD). People with dementia often wander because they are stressed, looking for someone or something, attending to basic needs, engaging in past routines, or with visual-spatial problems. Other times, they may wander without aim at all.
Memory Bridge, founded in 2004 as The Foundation for Alzheimer's and Cultural Memory, is an American nonprofit organization that creates programs that connect people with Alzheimer's disease to family, friends, and other people in their local community.
The Alzheimer's Association, Central New York Chapter, incorporated on August 1, 1982, as the Alzheimer's Disease and Related Disorders Association, Inc., is a non-profit voluntary health organization which focuses on care, support and research for Alzheimer's disease. The organization is a chapter affiliated with the national Alzheimer's Association.
The ALS Society of Canada is a registered, not-for-profit Canadian organization. ALS Canada, founded in 1977, is a national voluntary health organization dedicated to the fight against amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, and to providing support for those living with ALS.
The Society for the Arts in Dementia Care is a non-profit organisation, with branches in Canada and Australia, dedicated to knowledge dissemination and education that focuses on improving the quality of lives of seniors living with dementia by using the visual and performing arts.
The Canadian Lung Association is a national organization and volunteer-based health charity that supports lung health research, education, prevention of disease/disorders and advocacy in Canada.
For patients with Alzheimer's disease, music therapy provides a beneficial interaction between a patient and an individualized musical regimen and has been shown to increase cognition and slow the deterioration of memory loss. Music therapy is a clinical and evidence-based intervention that involves music in some capacity and includes both a participant and a music therapist who have completed an accredited music therapy program.
The Alzheimer's Foundation of America (AFA) is an American nonprofit organization based in New York City whose mission is to provide support, services and education to individuals, families and caregivers affected by Alzheimer's disease and related dementias nationwide, and fund research for better treatment and a cure. AFA unites more than 2,000 member organizations from coast-to-coast that are dedicated to meeting the educational, social, emotional and practical needs of individuals with Alzheimer's disease and related illnesses, and their caregivers and families. Member organizations include grassroots Alzheimer's agencies, senior centers, adult daycare center, home healthcare agencies, long-term care residences, research facilities, and other dementia-related groups. AFA holds Charity Navigator's highest rating of 4 stars.
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The registered offices are located at Blackrock, County Dublin. The Alzheimer Society of Ireland works across the country in the heart of local communities providing dementia specific services and supports and advocating for the rights and needs of all people living with dementia and their carers.
Dementia and Alzheimer's disease in Australia is a major health issue. Alzheimer's disease is the most common type of dementia in Australia. Dementia is an ever-increasing challenge as the population ages and life expectancy increases. As a consequence, there is an expected increase in the number of people with dementia, posing countless challenges to carers and the health and aged care systems. In 2018, an estimated 376,000 people had dementia; this number is expected to increase to 550,000 by 2030 and triple to 900,000 by 2050. The dementia death rate is increasing, resulting in the shift from fourth to second leading cause of death from 2006 to 2015. It is expected to become the leading cause of death over the next number of years. In 2011, it was the fourth leading cause of disease burden and third leading cause of disability burden. This is expected to remain the same until at least 2020.
Dementia UK is a charitable organisation in the United Kingdom. It aims to support those living with dementia and their families, primarily through their specialists nurses, called Admiral Nurses.