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Data care refers to treating people and their private information fairly and with dignity. [1] Data has progressively become more and more utilized in our society all over the world. When it comes to securely storing a medical patient's data, an employee's data, or a citizen's private data. The concept of data care emerged from the increase of data usage over the years, it is a term used to describe the act of treating people and their data with care and respect. This concept elaborates on how caring for people's data is the responsibility of those who govern data, for example, businesses and policy makers. Along with how to care for it in an ethical manner, while keeping in mind the people that the data belongs to. And discussing the concept of 'slow computing' on how this can be properly utilized to help in creating and maintaining proper data care. [2]
To define data care means treating people and their private information fairly and with dignity in terms of their data. [1] Data care is a term used by the cybersecurity industry, to teach people to be more careful with their data on social media and their mobile devices. [3] Such information could be their banking information, address, and other personal information. [3] In 2019, a United States bill required social media platforms to be more responsible with their users' private data, which will help in ensuring proper data care. [3] This is one example in how implementing proper data care policy will help put pressure on these companies to achieve data justice. Data care aims to allow data navigation while countering data power, and encourages "slow computing" (see below), all of which will help in reducing datafication, and making it more difficult for people's data to become traceable. [1] This will also encourage open source alternatives for data to become more difficult to trace. This is something the cybersecurity industry has been working toward for some time, as a means to help protect people's privacy. [3] Proper data care will help those with weaker data literacy, it will help manage data in political campaigns, and help place pressure on companies to be more ethical in their data use. This can help in producing open source apps, and creating technology that prioritizes the public's private information. [1] Proper data care will help achieve data justice, and lead to data sovereignty. [1]
Prioritizing proper care and respect towards people's data is of utmost importance, requiring good morals and proper ethical choices to protect people's privacy. Data care involves protecting people's data in medical practices, law, politics, the organization of society, war, and international relations. [4] Hospitals keep their patient's data secure, data such as; routine healthcare data and patient contact. Data is now being kept electronically, replacing paper files. Data obtained from hospitals will often be subject to research, the results cannot be traced to individual participants, and the patients are informed beforehand in case they want to opt out of having their data used in research. [5] Data care is seen as a form of ethics, considering moralities of justice and rights. [4]
The global rise in digital data has led to billions of consumers worldwide, this could allow corporations to utilize this data in an unethical way. [6] Data can be used by authority figures to access, use, or manage people's data, data could also be used to discriminate against low income individuals. Digital data is also being used to track and monitor people. [6] With the rise of smart cities, the increase in digital and biometric registration are becoming the norm around the world. [6] The concept of "data justice" brings awareness to this phenomenon, and encourages data to be used morally and ethically by establishing rules of law. [6] Methods that can be used to enhance data care are to utilize tools such as ad blockers, cookie blockers, proper malware detection and interception, site blocking, encryption tools, and services to opt out of databases controlled by data brokers. [2]
Data care calls for "slow computing," which is an ethical way to morally utilize people's data that intends to protect their privacy in regards to data-driven systems. [1] In other words, slow computing prioritizes protecting people's private information on digital and mobile devices, so they may use these devices without feeling harassed, stressed, or exploited in any way. [1] Then people will be able to enjoy using these devices in conjunction with the slow living movement of enjoyment, patience, sovereignty, authenticity, responsibility, and sustainability. [1] Enforcing the idea of slow computing would involve encouraging corporations to employ market-led regulations on data, and promoting practices such as privacy-by-design. [2] Also encouraging political parties to implement slow computing ideologies into their systems as policy proposals. [2] Governments could also implement their own forms of slow computing for better data care, encouraging fair information principles, privacy-by-design, enacting new legislation that protects people's rights, while also employing other methods of slow computing in their programs and practices. [2] Avoiding data extraction will also help improve data care; industry-led moves, government and policy makers employing new regulations, and data sovereignty agreed upon by communities. [2] A digital society and economy that focuses on a slow computing world would focus on fairness, equity, and justice. [2]
In cryptography, encryption is the process of encoding information. This process converts the original representation of the information, known as plaintext, into an alternative form known as ciphertext. Ideally, only authorized parties can decipher a ciphertext back to plaintext and access the original information. Encryption does not itself prevent interference but denies the intelligible content to a would-be interceptor.
Medical ethics is an applied branch of ethics which analyzes the practice of clinical medicine and related scientific research. Medical ethics is based on a set of values that professionals can refer to in the case of any confusion or conflict. These values include the respect for autonomy, non-maleficence, beneficence, and justice. Such tenets may allow doctors, care providers, and families to create a treatment plan and work towards the same common goal. It is important to note that these four values are not ranked in order of importance or relevance and that they all encompass values pertaining to medical ethics. However, a conflict may arise leading to the need for hierarchy in an ethical system, such that some moral elements overrule others with the purpose of applying the best moral judgement to a difficult medical situation. Medical ethics is particularly relevant in decisions regarding involuntary treatment and involuntary commitment.
Medical privacy, or health privacy, is the practice of maintaining the security and confidentiality of patient records. It involves both the conversational discretion of health care providers and the security of medical records. The terms can also refer to the physical privacy of patients from other patients and providers while in a medical facility, and to modesty in medical settings. Modern concerns include the degree of disclosure to insurance companies, employers, and other third parties. The advent of electronic medical records (EMR) and patient care management systems (PCMS) have raised new concerns about privacy, balanced with efforts to reduce duplication of services and medical errors.
Human subject research is systematic, scientific investigation that can be either interventional or observational and involves human beings as research subjects, commonly known as test subjects. Human subject research can be either medical (clinical) research or non-medical research. Systematic investigation incorporates both the collection and analysis of data in order to answer a specific question. Medical human subject research often involves analysis of biological specimens, epidemiological and behavioral studies and medical chart review studies. On the other hand, human subject research in the social sciences often involves surveys which consist of questions to a particular group of people. Survey methodology includes questionnaires, interviews, and focus groups.
The ethics of technology is a sub-field of ethics addressing the ethical questions specific to the Technology Age, the transitional shift in society wherein personal computers and subsequent devices provide for the quick and easy transfer of information. Technology ethics is the application of ethical thinking to the growing concerns of technology as new technologies continue to rise in prominence.
Computer ethics is a part of practical philosophy concerned with how computing professionals should make decisions regarding professional and social conduct.
Health technology is defined by the World Health Organization as the "application of organized knowledge and skills in the form of devices, medicines, vaccines, procedures, and systems developed to solve a health problem and improve quality of lives". This includes pharmaceuticals, devices, procedures, and organizational systems used in the healthcare industry, as well as computer-supported information systems. In the United States, these technologies involve standardized physical objects, as well as traditional and designed social means and methods to treat or care for patients.
Information ethics has been defined as "the branch of ethics that focuses on the relationship between the creation, organization, dissemination, and use of information, and the ethical standards and moral codes governing human conduct in society". It examines the morality that comes from information as a resource, a product, or as a target. It provides a critical framework for considering moral issues concerning informational privacy, moral agency, new environmental issues, problems arising from the life-cycle of information. It is very vital to understand that librarians, archivists, information professionals among others, really understand the importance of knowing how to disseminate proper information as well as being responsible with their actions when addressing information.
Protected health information (PHI) under U.S. law is any information about health status, provision of health care, or payment for health care that is created or collected by a Covered Entity, and can be linked to a specific individual. This is interpreted rather broadly and includes any part of a patient's medical record or payment history.
Cyber ethics is the philosophic study of ethics pertaining to computers, encompassing user behavior and what computers are programmed to do, and how this affects individuals and society. For years, various governments have enacted regulations while organizations have defined policies about cyberethics.
Digital health is a discipline that includes digital care programs, technologies with health, healthcare, living, and society to enhance the efficiency of healthcare delivery and to make medicine more personalized and precise. It uses information and communication technologies to facilitate understanding of health problems and challenges faced by people receiving medical treatment and social prescribing in more personalised and precise ways. The definitions of digital health and its remits overlap in many ways with those of health and medical informatics.
Health care analytics is the health care analysis activities that can be undertaken as a result of data collected from four areas within healthcare; claims and cost data, pharmaceutical and research and development (R&D) data, clinical data, and patient behavior and sentiment data (patient behaviors and preferences,. Health care analytics is a growing industry in the United States, expected to grow to more than $31 billion by 2022. The industry focuses on the areas of clinical analysis, financial analysis, supply chain analysis, as well as marketing, fraud and HR analysis.
Critical data studies is the exploration of and engagement with social, cultural, and ethical challenges that arise when working with big data. It is through various unique perspectives and taking a critical approach that this form of study can be practiced. As its name implies, critical data studies draws heavily on the influence of critical theory, which has a strong focus on addressing the organization of power structures. This idea is then applied to the study of data.
Contextual integrity is a theory of privacy developed by Helen Nissenbaum and presented in her book Privacy In Context: Technology, Policy, and the Integrity of Social Life. It comprises four essential descriptive claims:
Privacy in education refers to the broad area of ideologies, practices, and legislation that involve the privacy rights of individuals in the education system. Concepts that are commonly associated with privacy in education include the expectation of privacy, the Family Educational Rights and Privacy Act (FERPA), the Fourth Amendment, and the Health Insurance Portability and Accountability Act of 1996 (HIPAA). Most privacy in education concerns relate to the protection of student data and the privacy of medical records. Many scholars are engaging in an academic discussion that covers the scope of students’ privacy rights, from student in K-12 and even higher education, and the management of student data in an age of rapid access and dissemination of information.
Data sovereignty is the idea that data are subject to the laws and governance structures of the nation where they are collected. The concept of data sovereignty is closely linked with data security, cloud computing, network sovereignty and technological sovereignty. Unlike technological sovereignty, which is vaguely defined and can be used as an umbrella term in policymaking, data sovereignty is specifically concerned with questions surrounding the data itself. Data sovereignty as the idea that data is subject to the laws and governance structures within one nation is usually discussed in two ways: in relation to Indigenous groups and Indigenous autonomy from post-colonial states or in relation to transnational data flow. With the rise of cloud computing, many countries have passed various laws around the control and storage of data, which all reflect measures of data sovereignty. More than 100 countries have some sort of data sovereignty laws in place. With self-sovereign identity (SSI) the individual identity holders can fully create and control their credentials, although a nation can still issue a digital identity in that paradigm.
Post-mortem privacy is a person's ability to control the dissemination of personal information after death. An individual's reputation and dignity after death is also subject to post-mortem privacy protections. In the US, no federal laws specifically extend post-mortem privacy protection. At the state level, privacy laws pertaining to the deceased vary significantly, but in general do not extend any clear rights of privacy beyond property rights. The relative lack of acknowledgment of post-mortem privacy rights has sparked controversy, as rapid technological advancements have resulted in increased amounts of personal information stored and shared online.
Internet universality is a concept and framework adopted by UNESCO in 2015 to summarize their position on the Internet. The concept recognizes that "the Internet is much more than infrastructure and applications, it is a network of economic and social interactions and relationships, which has the potential to enable human rights, empower individuals and communities, and facilitate sustainable development. The concept is based on four principles stressing the Internet should be human rights-based, open, accessible, and based on the multi-stakeholder participation. These have been abbreviated as the R-O-A-M principles. Understanding the Internet in this way helps to draw together different facets of Internet development, concerned with technology and public policy, rights and development."
The Artificial Intelligence of Things (AIoT) is the combination of Artificial intelligence (AI) technologies with the Internet of things (IoT) infrastructure to achieve more efficient IoT operations, improve human-machine interactions and enhance data management and analytics.
Data sanitization involves the secure and permanent erasure of sensitive data from datasets and media to guarantee that no residual data can be recovered even through extensive forensic analysis. Data sanitization has a wide range of applications but is mainly used for clearing out end-of-life electronic devices or for the sharing and use of large datasets that contain sensitive information. The main strategies for erasing personal data from devices are physical destruction, cryptographic erasure, and data erasure. While the term data sanitization may lead some to believe that it only includes data on electronic media, the term also broadly covers physical media, such as paper copies. These data types are termed soft for electronic files and hard for physical media paper copies. Data sanitization methods are also applied for the cleaning of sensitive data, such as through heuristic-based methods, machine-learning based methods, and k-source anonymity.