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Facilitated communication (FC), or supported typing, is a scientifically discredited technique that attempts to aid communication by people with autism or other communication disabilities who are non-verbal. The facilitator guides the disabled person's arm or hand and attempts to help them type on a keyboard or other device.
Special education is the practice of educating students in a way that accommodates their individual differences, disabilities, and special needs. This involves the individually planned and systematically monitored arrangement of teaching procedures, adapted equipment and materials, and accessible settings. These interventions are designed to help individuals with special needs achieve a higher level of personal self-sufficiency and success in school and in their community, which may not be available if the student were only given access to a typical classroom education.
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
Autism Is a World is an American short subject documentary film allegedly written in 2004 by Sue Rubin, an autistic woman who is purported to have learned to communicate via the discredited technique of facilitated communication. It was nominated in the 77th annual Academy Awards for Best Documentary Short Subject. The film is controversial for promoting the debunked facilitated communication technique.
Augmentative and alternative communication (AAC) encompasses the communication methods used to supplement or replace speech or writing for those with impairments in the production or comprehension of spoken or written language. AAC is used by those with a wide range of speech and language impairments, including congenital impairments such as cerebral palsy, intellectual impairment and autism, and acquired conditions such as amyotrophic lateral sclerosis and Parkinson's disease. AAC can be a permanent addition to a person's communication or a temporary aid. Stephen Hawking used AAC to communicate through a speech-generating device.
Autism therapies include a wide variety of therapies that help people with autism, or their families. Such methods of therapy also seek the increase of functional independence in autistic people. Many therapies marketed towards autistic people and/or their parents claim outcomes that have not been supported by Level of Research (LOE) Level 1. Level 1 research includes evidence from a systematic review or meta-analysis of all relevant RCTs or evidence-based clinical practice guidelines based on systematic reviews of RCTs or three or more RCTs of good quality that have similar results.
Inclusion in education refers to all students being able to access and gain equal opportunities to education and learning. It arose in the context of special education with an individualized education program or 504 plan, and is built on the notion that it is more effective for students with special needs to have the said mixed experience for them to be more successful in social interactions leading to further success in life. The philosophy behind the implementation of the inclusion model does not prioritize, but still provides for the utilization of special classrooms and special schools for the education of students with disabilities. Inclusive education models are brought into force by educational administrators with the intention of moving away from seclusion models of special education to the fullest extent practical, the idea being that it is to the social benefit of general education students and special education students alike, with the more able students serving as peer models and those less able serving as motivation for general education students to learn empathy.
In the U.S. the Individuals with Disabilities Education Act (IDEA) is a special education law that mandates regulation for students with disabilities to protect their rights as students and the rights of their parents. The IDEA requires that all students receive a Free and Appropriate Public Education (FAPE), and that these students should be educated in the least restrictive environment (LRE). To determine what an appropriate setting is for a student, an Individualized Education Plan (IEP) team will review the student's strengths, weaknesses, and needs, and consider the educational benefits from placement in any particular educational setting. By law the team is required to include the student's parent or guardian, a general education teacher, a special education teacher, a representative of the local education agency, someone to interpret evaluation results and, if appropriate, the student. It is the IEP team's responsibility to determine what environment is the LRE for any given student with disabilities, which varies between every student. The goal of an IEP is to create the LRE for that student to learn in. For some students, mainstream inclusion in a standard classroom may be an appropriate setting whereas other students may need to be in a special education classroom full time, but many students fall somewhere within this spectrum. Students may also require supplementary aids and services to achieve educational goals while being placed in a classroom with students without disabilities, these resources are provided as needed. The LRE for a student is less of a physical location, and more of a concept to ensure that the student is receiving the services that they need to be successful.
Inclusion, in relation to persons with disabilities, is defined as including individuals with disabilities in everyday activities and ensuring they have access to resources and opportunities in ways that are similar to their non-disabled peers. Disability rights advocates define true inclusion as results-oriented, rather than focused merely on encouragement. To this end, communities, businesses, and other groups and organizations are considered inclusive if people with disabilities do not face barriers to participation and have equal access to opportunities and resources.
Rosemary Crossley was an Australian author and advocate for disability rights. She was one of the first major advocates for facilitated communication (FC), a scientifically discredited technique which purports to help non-verbal people communicate. Crossley was the director of the Anne McDonald Centre near Melbourne, Victoria, which provides assessment and augmentative communication services in Victoria, Australia. The award-winning 1984 film Annie's Coming Out, known as Test of Love in the USA, was made about her work and life with a woman named Anne McDonald, whom she met at St Nicholas's Hospital in Melbourne in the 1970s and later brought to live with her. Crossley dedicated her life to helping those with little or no functional speech. She died after a short battle with cancer on 10 May 2023, at the age of 78.
Wretches & Jabberers is a 2010 American documentary film directed by Gerardine Wurzburg and produced by Wurzburg and Douglas Biklen that promotes the scientifically discredited facilitated communication technique. The film is about two autistic men, Larry Bissonnette and Tracy Thresher, who travel the world helping other autistic people break out of their isolation. It opened in theaters in New York and California on July 30, 2010.
Community integration, while diversely defined, is a term encompassing the full participation of all people in community life. It has specifically referred to the integration of people with disabilities into US society from the local to the national level, and for decades was a defining agenda in countries such as Great Britain. Throughout recent decades, community integration programs have been increasingly effective in improving healthcare access for people with disabilities. They have been valued for providing a "voice for the voiceless"
The Reason I Jump: One Boy's Voice from the Silence of Autism is a biography attributed to Naoki Higashida, a nonverbal autistic person from Japan. It was first published in Japan in 2007. The English translation, by Keiko Yoshida and her husband, English author David Mitchell, was published in 2013.
Howard C. Shane is director of the Autism Language Program and Communication Enhancement Program at Children's Hospital in Boston, Massachusetts, former director of the Institute on Applied Technology, and associate professor at Harvard Medical School. He is internationally known for his research and development of augmented and alternative communication systems to support the communication needs of people with neuromuscular disorders, autism and other disabilities.
Mark P. Mostert is co-director of the Institute for Disability and Bioethics and professor of Special Education at Regent University, Virginia Beach. He has written about and lectured on Eugenics and Euthanasia, Nazi Germany's state-sanctioned "useless eater" policy to exterminate people with disabilities and others considered less than human, and the fads and pseudoscientific practices found in special education.
The rapid prompting method (RPM) is a pseudoscientific technique that attempts to aid communication by people with autism or other disabilities to communicate through pointing, typing, or writing. Also known as Spelling to Communicate, it is closely related to the scientifically discredited technique facilitated communication (FC). Practitioners of RPM have failed to assess the issue of message agency using simple and direct scientific methodologies, saying that doing so would be stigmatizing and that allowing scientific criticisms of the technique robs people with autism of their right to communicate. The American Speech-Language-Hearing Association has issued a statement opposing the practice of RPM.
The Picture Exchange Communication System (PECS) is an augmentative and alternative communication system developed and produced by Pyramid Educational Consultants, Inc. PECS was developed in 1985 at the Delaware Autism Program by Andy Bondy, PhD, and Lori Frost, MS, CCC-SLP. The developers of PECS noticed that traditional communication techniques, including speech imitation, sign language, and picture point systems, relied on the teacher to initiate social interactions and none focused on teaching students to initiate interactions. Based on these observations, Bondy and Frost created a functional means of communication for individuals with a variety of communication challenges. Although PECS was originally developed for young children with autism spectrum disorder (ASD), its use has become much more widespread. Through the years, PECS has been successfully implemented with individuals with varying diagnoses across the aged span. PECS is an evidence-based practice that has been highly successful with regard to the development of functional communication skills.
Deej is a 2017 documentary about David James (DJ) Savarese, a nonspeaking autistic teenager with disabilities who is depicted as communicating through the scientifically discredited facilitated communication technique. The film's unskeptical depiction of facilitated communication, including the claims that DJ's degree from Oberlin College is legitimate, and that he is the author of the film's script, have been the subject of criticism.
Loving Lampposts is a 2010 documentary film directed by Todd Drezner, exploring the neurodiversity movement and the principle of autism acceptance through a series of interviews and candid footage. Drezner is the father of an autistic child whose attachment to and fascination with lampposts gave the film its title.
References
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- 1 2 The Daily Orange Editorial Board (12 April 2016). "Syracuse University's reinforcement of facilitated communication inexcusable, concerning". The Daily Orange. Archived from the original on 1 December 2021. Retrieved 1 December 2021.
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- 1 2 3 Riggott, Julie. "Pseudoscience in Autism Treatment: Are the News and Entertainment Media Helping or Hurting?". Scientific Review of Mental Health Practice. Archived from the original on 12 November 2013. Retrieved 1 December 2021.
- 1 2 3 4 5 6 7 Mann, Lisa Barrett (February 22, 2005). "Oscar Nominee: Documentary or Fiction?". The Washington Post. Retrieved 1 December 2021.
- 1 2 "Biography". Douglas Biklen Art Photography. Archived from the original on 3 December 2021. Retrieved 3 December 2021.
- ↑ "Alumni Award Recipients". Bowdoin.edu. Archived from the original on 3 December 2021. Retrieved 3 December 2021.
- ↑ "Douglas Biklen". Syracuse University School of Education. Archived from the original on 1 December 2021. Retrieved 1 December 2021.
- 1 2 "Douglas Biklen: "Begin by presuming competence"". UNESCO. 24 February 2012. Archived from the original on 2 December 2021. Retrieved 2 December 2021.
- 1 2 3 4 5 6 "School of Education's Douglas Biklen Announces Retirement from Deanship". Syracuse University News. 20 February 2013. Archived from the original on 1 December 2021. Retrieved 1 December 2021.
- ↑ "Response to CQC Solicitation of Interest" (PDF). Center for Disability Rights. Archived from the original (PDF) on 3 December 2021. Retrieved 3 December 2021.
- ↑ "Dismay over Syracuse Appointment of Dean". SpedPro. Archived from the original on 2007-03-11. Retrieved 2005-11-04.
- ↑ Emory Health Sciences (26 February 2015). "Why debunked autism treatment fads persist". ScienceDaily. Archived from the original on 24 April 2016. Retrieved 1 December 2021.
- ↑ Hall, Genae A. (1993). "Facilitator Control as Automatic Behavior: A Verbal Behavior Analysis". The Analysis of Verbal Behavior. 11: 89–97. doi:10.1007/bf03392890. PMC 2748555 . PMID 22477083.
- ↑ Beals, Katharine (2021). "Book Review: Biklen, D. (2005). Autism and the myth of the person alone". Research on Social Work Practice: 1–5. doi:10.1177/10497315211003952. S2CID 233228576.
