Ganfyd

Last updated

Ganfyd
Type of site
Wiki
Available inEnglish
URL ganfyd.org
CommercialNo
RegistrationRequired
LaunchedNovember 2005;18 years ago (2005-11)
Current statusDefunct (still selectively accessible)

Ganfyd was a medical wiki and online medical wiki encyclopedia, created in November 2005 by a group of doctors and medical students working in the United Kingdom. [1] The site has been the subject of academic exposition into emerging methods of disseminating medical information and more specifically, the restricting of editors within an open collaborative wiki environment. [2] [3] [4] This model has subsequently been copied by other medical wikis, but some attempts to improve on the model, such as Medpedia have failed. In 2010, Paula Younger noted it as a laudable attempt to make medical information freely accessible and authoritative. [5]

Contents

The Wiki went offline early in 2019 but is available as a selective article read only version as of 2023. A bias towards selecting articles frozen in time that political decision makers on healthcare, both then and now could do with reading appears to have occurred.

Authorship

Only registered medical practitioners or persons working under their direction, and a small number of invited non-medical specialists, could edit ganfyd articles, and its license specifically prohibited editing by people who are not registered medical practitioners, but permitted reproduction and distribution. The intention is to make the articles reliable enough for professional medical use. An audit trail was publicly available for each article. Registration was by a variety of mechanisms, including a GMC Certificate or equivalent. [6]

History

Ganfyd was intended to become a large online textbook of human medicine. By October 2010 there were over 2,000 page hits a day and it had reached 7,000 topic pages with over double that number of pages including stubs and redirects and 449 editors from six countries (United Kingdom, Australia, New Zealand, Canada, Ireland, United States). As of 2016 it had over 10,000 topic pages. [7]

In December 2006, the Ganfyd site was noted as a specific example of a wiki being used as a low cost alternative to commercial point of care tools like UpToDate with the search portal Trip already indexing it. This may be the first example of a medical wiki being indexed by an independent medical search engine. [8]

In 2011 Ganfyd wiki was compared to Wikipedia, and described as a wiki written by the doctors for the doctors, unlike Wikipedia, which is targeted to a broader audience. [9]

This Medical Wiki went offline on 27 March 2019 due to an unrecoverable server issue. Although backups existed, in the context of the rebuild necessary to maintain high quality web content for a similar period of time to the initial build given the success of the site in terms of web hits, it was decided to suspend operations and return operating expenses donations. In the context of the later COVID-19 pandemic a former editor still involved in accurate health care information dissemination noted that "it would have been quite impossible personally to maintain both effective editorial oversight of GANFYD during this evolving crisis and the more important for NHS patients dissemination of accurate and timely information through official NHS channels" . GANFYD has apparently commenced the process of resurfacing as an historical archive as of November 2022. Its content with regard to SARS and MERS for example is believed to represent good evidence of the key knowledge decision makers in democracies should have considered in their public health and health care resilience plans. [10] [11] [12] [13] [14] Its comments on vaccination were disregarded or distorted by some anti vaccination groups to their ends. [15] The failure of politicians to understand or promote such understanding of the evidence based whole system changes needed to mitigate a post pandemic winter pressure or nursing resource issue as such changes would not deliver on short term goals could be noted. [16] [17] [18] might have similar resonance to some.

Meaning

"Ganfyd" is an acronym meaning "Get a note from your doctor." [19] This phrase is known to be used by employers, insurance underwriters, and sports instructors to their respective employees/clients. In some cases, this may be intended to absolve the employer/instructor from liability in the event that the client suffers physical harm.

Some medical practitioners regard this as a cynical use of their time and skill, thus they use the term "ganfyd" pejoratively.

Related Research Articles

<span class="mw-page-title-main">Chiropractic</span> Form of pseudoscientific alternative medicine

Chiropractic is a form of alternative medicine concerned with the diagnosis, treatment and prevention of mechanical disorders of the musculoskeletal system, especially of the spine. It has esoteric origins and is based on several pseudoscientific ideas.

<span class="mw-page-title-main">Wiki</span> Type of website that visitors can edit

A wiki is a form of online hypertext publication, collaboratively edited and managed by its own audience, using a web browser. A typical wiki contains multiple pages for the subjects or scope of the project, and could be either open to the public or limited to use within an organization for maintaining its internal knowledge base.

<span class="mw-page-title-main">Naturopathy</span> Form of alternative medicine

Naturopathy, or naturopathic medicine, is a form of alternative medicine. A wide array of pseudoscientific practices branded as "natural", "non-invasive", or promoting "self-healing" are employed by its practitioners, who are known as naturopaths. Difficult to generalize, these treatments range from the thoroughly discredited, like homeopathy, to the widely-accepted, like certain forms of psychotherapy. The ideology and methods of naturopathy are based on vitalism and folk medicine rather than evidence-based medicine, although practitioners may use techniques supported by evidence. The ethics of naturopathy have been called into question by medical professionals and its practice has been characterized as quackery.

<span class="mw-page-title-main">Quackery</span> Promotion of fraudulent or ignorant medical practices

Quackery, often synonymous with health fraud, is the promotion of fraudulent or ignorant medical practices. A quack is a "fraudulent or ignorant pretender to medical skill" or "a person who pretends, professionally or publicly, to have skill, knowledge, qualification or credentials they do not possess; a charlatan or snake oil salesman". The term quack is a clipped form of the archaic term quacksalver, from Dutch: kwakzalver a "hawker of salve". In the Middle Ages the term quack meant "shouting". The quacksalvers sold their wares at markets by shouting to gain attention.

<span class="mw-page-title-main">Cochrane (organisation)</span> British nonprofit for reviews of medical research (formed 1993)

Cochrane is a British international charitable organisation formed to synthesize medical research findings to facilitate evidence-based choices about health interventions involving health professionals, patients and policy makers. It includes 53 review groups that are based at research institutions worldwide. Cochrane has approximately 30,000 volunteer experts from around the world.

<span class="mw-page-title-main">Primary care</span> Day-to-day health care given by a health care provider

Primary care is the day-to-day healthcare given by a health care provider. Typically this provider acts as the first contact and principal point of continuing care for patients within a healthcare system, and coordinates other specialist care that the patient may need. Patients commonly receive primary care from professionals such as a primary care physician, a physician assistant, a physical therapist, or a nurse practitioner. In some localities, such a professional may be a registered nurse, a pharmacist, a clinical officer, or an Ayurvedic or other traditional medicine professional. Depending on the nature of the health condition, patients may then be referred for secondary or tertiary care.

<span class="mw-page-title-main">Quackwatch</span> American alternative medicine watchdog website

Quackwatch is a United States-based website, self-described as a "network of people" founded by Stephen Barrett, which aims to "combat health-related frauds, myths, fads, fallacies, and misconduct" and to focus on "quackery-related information that is difficult or impossible to get elsewhere". Since 1996 it has operated the alternative medicine watchdog website quackwatch.org, which advises the public on unproven or ineffective alternative medical remedies. The site contains articles and other information criticizing many forms of alternative medicine.

<span class="mw-page-title-main">Vaccine hesitancy</span> Reluctance or refusal to be vaccinated or have ones children vaccinated

Vaccine hesitancy is a delay in acceptance, or refusal, of vaccines despite the availability of vaccine services and supporting evidence. The term covers refusals to vaccinate, delaying vaccines, accepting vaccines but remaining uncertain about their use, or using certain vaccines but not others. The scientific consensus that vaccines are generally safe and effective is overwhelming. Vaccine hesitancy often results in disease outbreaks and deaths from vaccine-preventable diseases. Therefore, the World Health Organization characterizes vaccine hesitancy as one of the top ten global health threats.

<span class="mw-page-title-main">Systematic review</span> Comprehensive review of research literature using systematic methods

A systematic review is a scholarly synthesis of the evidence on a clearly presented topic using critical methods to identify, define and assess research on the topic. A systematic review extracts and interprets data from published studies on the topic, then analyzes, describes, critically appraises and summarizes interpretations into a refined evidence-based conclusion. For example, a systematic review of randomized controlled trials is a way of summarizing and implementing evidence-based medicine.

Anthroposophic medicine is a form of alternative medicine based on pseudoscientific and occult notions. Devised in the 1920s by Rudolf Steiner (1861–1925) in conjunction with Ita Wegman (1876–1943), anthroposophical medicine draws on Steiner's spiritual philosophy, which he called anthroposophy. Practitioners employ a variety of treatment techniques based upon anthroposophic precepts, including massage, exercise, counselling, and substances.

Claims of a link between the MMR vaccine and autism have been extensively investigated and found to be false. The link was first suggested in the early 1990s and came to public notice largely as a result of the 1998 Lancet MMR autism fraud, characterised as "perhaps the most damaging medical hoax of the last 100 years". The fraudulent research paper authored by Andrew Wakefield and published in The Lancet falsely claimed the vaccine was linked to colitis and autism spectrum disorders. The paper was retracted in 2010 but is still cited by anti-vaxxers.

Throughout its history, chiropractic has been the subject of internal and external controversy and criticism. According to magnetic healer Daniel D. Palmer, the founder of chiropractic, "vertebral subluxation" was the sole cause of all diseases and manipulation was the cure for all disease. A 2003 profession-wide survey found "most chiropractors still hold views of Innate Intelligence and of the cause and cure of disease consistent with those of the Palmers". A critical evaluation stated "Chiropractic is rooted in mystical concepts. This led to an internal conflict within the chiropractic profession, which continues today." Chiropractors, including D.D. Palmer, were jailed for practicing medicine without a license. D.D. Palmer considered establishing chiropractic as a religion to resolve this problem. For most of its existence, chiropractic has battled with mainstream medicine, sustained by antiscientific and pseudoscientific ideas such as vertebral subluxation.

The Ministry of Ayush, a ministry of the Government of India, is responsible for developing education, research and propagation of traditional medicine and alternative medicine systems in India. Ayush is a name devised from the names of the alternative healthcare systems covered by the ministry: Ayurveda, Yoga & Naturopathy, Unani, Siddha, Sowa Rigpa, and Homeopathy.

Meningococcal vaccine refers to any vaccine used to prevent infection by Neisseria meningitidis. Different versions are effective against some or all of the following types of meningococcus: A, B, C, W-135, and Y. The vaccines are between 85 and 100% effective for at least two years. They result in a decrease in meningitis and sepsis among populations where they are widely used. They are given either by injection into a muscle or just under the skin.

<span class="mw-page-title-main">Health information on Wikipedia</span>

The Wikipedia online encyclopedia has, since the late 2000s, served as a popular source for health information for both laypersons and, in many cases, health care practitioners. Health-related articles on Wikipedia are popularly accessed as results from search engines, which frequently deliver links to Wikipedia articles. Independent assessments have been made of the number and demographics of people who seek health information on Wikipedia, the scope of health information on Wikipedia, and the quality and reliability of the information on Wikipedia.

<span class="mw-page-title-main">Friends of Science in Medicine</span> Australian association which supports science-based medicine

The Friends of Science In Medicine (FSM) is an Australian association which supports evidence-based medicine and strongly opposes the promotion and practice of unsubstantiated therapies that lack a scientifically plausible rationale. They accomplish this by publicly raising their concerns either through direct correspondence or through media outlets. FSM was established in December 2011 by Loretta Marron, John Dwyer, Alastair MacLennan, Rob Morrison and Marcello Costa, a group of Australian biomedical scientists and clinical academics.

<span class="mw-page-title-main">James Heilman</span> Emergency physician and Wikipedia editor

James M. Heilman is a Canadian emergency physician, Wikipedian, and advocate for the improvement of Wikipedia's health-related content. He encourages other clinicians to contribute to the online encyclopedia.

A WikiProject, or Wikiproject, is an affinity group for contributors with shared goals within the Wikimedia movement. WikiProjects are prevalent within the largest wiki, Wikipedia, and exist to varying degrees within sibling projects such as Wiktionary, Wikiquote, Wikidata, and Wikisource. They also exist in different languages, and translation of articles is a form of their collaboration.

Misinformation related to immunization and the use of vaccines circulates in mass media and social media in spite of the fact that there is no serious hesitancy or debate within mainstream medical and scientific circles about the benefits of vaccination. Unsubstantiated safety concerns related to vaccines are often presented on the internet as being scientific information. A high proportion of internet sources on the topic are "inaccurate on the whole" which can lead people searching for information to form "significant misconceptions about vaccines".

References

  1. Ginn S (August 2010). "Evidence based mental health and Web 2.0". Evidence-Based Mental Health. 13 (3): 69–72. doi:10.1136/ebmh.13.3.69. PMID   20682812. S2CID   36358650.
  2. Moturu, Sai T.; Liu, Huan; Johnson, William G. (20 August 2008). "Trust evaluation in health information on the World Wide Web". 2008 30th Annual International Conference of the IEEE Engineering in Medicine and Biology Society. Vol. 2008. 30th Annual International IEEE EMBS Conference. pp. 1525–8. doi:10.1109/IEMBS.2008.4649459. ISBN   978-1-4244-1814-5. PMID   19162962. S2CID   14562548.
  3. McLean, Rick; Richards, Brian H; Wardman, Janet I (6 August 2007). "The effect of Web 2.0 on the future of medical practice and education: Darwikinian evolution or folksonomic revolution?". Medical Journal of Australia. 187 (3): 174–7. doi:10.5694/j.1326-5377.2007.tb01180.x. PMID   17680746. S2CID   320469.
  4. Barsky, Eugene; Giustini, Dean (2007). "Introducing Web 2.0: wikis for health librarians". Journal of the Canadian Health Libraries Association. 28 (4): 147–150. doi: 10.5596/c07-036 . hdl: 2429/497 .
  5. Younger, Paula (2010). "Beyond Wikipedia: how good a reference source are medical wikis?". Reference Reviews. 24 (1): 7–9. doi:10.1108/09504121011019899.
  6. "WayBack Machine:Ganfyd.org:Help:Contribute". Archived from the original on 6 June 2017. Retrieved 21 January 2023.
  7. "WayBack Machine:Ganfyd.org:Statistics". Archived from the original on 5 July 2017. Retrieved 21 January 2023.
  8. Dean Giustini, British Medical Journal , "How Web 2.0 is Changing Medicine"
  9. Jenkinson, M. L. (16 August 2011). "Audience issues were not considered in editorial on WikiProject Medicine". BMJ. 343 (aug16 2): d5233. doi:10.1136/bmj.d5233. ISSN   0959-8138. PMID   21846708. S2CID   41741296.
  10. "WayBack Machine:Ganfyd.org:Disaster planning". Archived from the original on 26 June 2017. Retrieved 21 January 2023.
  11. "WayBack Machine:Ganfyd.org:Medical ethics in an epidemic or pandemic". Archived from the original on 19 July 2017. Retrieved 21 January 2023.
  12. "WayBack Machine:Ganfyd:Outbreaks of infectious disease". Archived from the original on 16 July 2017. Retrieved 21 January 2023.
  13. "WayBack Machine:Ganfyd.org:Severe acute respiratory syndrome". Archived from the original on 13 July 2017. Retrieved 21 January 2023.
  14. "WayBack Machine:Ganfyd.org:Mitigation strategy". Archived from the original on 26 June 2017. Retrieved 21 January 2023.
  15. "Ganfyd:Vaccination" . Retrieved 21 January 2023.
  16. "Ganfyd:Winter crisis" . Retrieved 21 January 2023.
  17. "Ganfyd:Weekend morbidity and mortality experiments" . Retrieved 21 January 2023.
  18. "WayBack Machine:Image on Ganfyd:Weekend morbidity and mortality experiments". Archived from the original on 6 December 2017. Retrieved 21 January 2023.
  19. Thoeny, Peter; Woods, Dan (2007). Wikis for dummies . New York: Wiley. pp.  68. ISBN   978-0-470-04399-8.