A health system, health care system or healthcare system is an organization of people, institutions, and resources that delivers health care services to meet the health needs of target populations.
The Children's Tumor Foundation (CTF) is a 501(c)(3) foundation dedicated to improving the health and well-being of individuals and families affected by NF, a group of genetic conditions known as neurofibromatosis or schwannomatosis. Their four-part mission includes propelling drug research and development through a series of strategic investments, strengthening patient support, increasing public awareness of NF and establishing best practices in clinical care for affected individuals. The Foundation is incorporated in all 50 states with active chapters and affiliates in 37 states. CTF is the largest private funder of all forms of NF research.
The Hastings Center is an independent, nonpartisan bioethics research institute and think tank based in Garrison, New York. It was instrumental in establishing the field of bioethics and is among the most prestigious bioethics and health policy institutes in the world.
A patient safety organization (PSO) is a group, institution, or association that improves medical care by reducing medical errors. Common functions of patient safety organizations are data collection, analysis, reporting, education, funding, and advocacy. A PSO differs from a Federally designed Patient Safety Organization (PSO), which provides health care providers in the U.S. privilege and confidentiality protections for efforts to improve patient safety and the quality of patient care delivery
Health services research (HSR) became a burgeoning field in North America in the 1960s, when scientific information and policy deliberation began to coalesce. Sometimes also referred to as health systems research or health policy and systems research (HPSR), HSR is a multidisciplinary scientific field that examines how people get access to health care practitioners and health care services, how much care costs, and what happens to patients as a result of this care. HSR utilizes all qualitative and quantitative methods across the board to ask questions of the healthcare system. It focuses on performance, quality, effectiveness and efficiency of health care services as they relate to health problems of individuals and populations, as well as health care systems and addresses wide-ranging topics of structure, processes, and organization of health care services; their use and people's access to services; efficiency and effectiveness of health care services; the quality of healthcare services and its relationship to health status, and; the uses of medical knowledge.
The Global Alliance for Improved Nutrition (GAIN) is a non-profit foundation based in Geneva, Switzerland. GAIN was developed during the UN 2002 Special Session of the General Assembly on Children. GAIN’s activities include improving the consumption of nutritious and safe foods for all. The foundation is supported by over 30 donors and works closely with international organisations and United Nations agencies. It has a 20-year history of food system programmes with a focus on adolescent and child nutrition, food system research, fortification, small and medium enterprise assistance, biofortification of crops, and reducing post-harvest losses.
One Health Trust, formerly the Center for Disease Dynamics, Economics & Policy, is a public health research organization with offices in Washington, D.C., New Delhi, and Bangalore, India.
The Institute for Health Metrics and Evaluation (IHME) is a national and international public health agency and research institute working in the area of global health statistics and impact evaluation, located at the University of Washington in Seattle. IHME is headed by Christopher J.L. Murray, a physician, health economist, and global health researcher, and professor at the University of Washington Department of Global Health, which is part of the School of Medicine. IHME conducts research and trains scientists, policymakers, and the public in health metrics concepts, methods, and tools. Its mission includes judging the effectiveness and efficacy of health initiatives and national health systems. IHME also trains students at the post-baccalaureate and post-graduate levels.
The Electronic Healthcare Network Accreditation Commission (EHNAC) is a voluntary, self-governing standards development organization (SDO) in the United States established to develop standard criteria and accredit organizations that electronically exchange healthcare data. These entities include electronic health networks, payers, financial services firms, health information exchanges (HIEs), management service organizations and e-prescribing solution providers.
Informatics for Consumer Health (ICH) is a government initiative coordinated by the National Cancer Institute (NCI) within the National Institutes of Health (NIH). ICH focuses on a coordination of health information, technology, and health care delivery that empowers providers to manage care and increases the ability of consumers to gain mastery over their own health. The ICH online initiative involved stakeholders from various sectors—commercial IT, government, health care, education, research, and advocacy—exchanging ideas and resources to bridge information technology and health care with the goal of improving behavioral support for all consumers. The Informatics for Consumer Health field is related to health informatics, medical informatics, consumer health informatics, eHealth, and health information technology.
The Reagan-Udall Foundation for the Food and Drug Administration is a private nonprofit (501c3) organization, created to support the mission of the U.S. Food and Drug Administration (FDA) to help equip FDA staff with the highest caliber, regulatory science and technology in order to enhance the safety and effectiveness of FDA regulated products. Although it was mandated by Congress in the Food and Drug Administration Amendments Act of 2007 to help support and promote FDA's regulatory science priorities, it is independent of the agency, with its own Board of Directors, staff and research agenda. The Reagan-Udall Foundation creates public–private partnerships to advance research in regulatory science, enhance medical decision making, and promote innovation. It also advances regulatory science through fellowships and other training programs, both for private scientists and for FDA staff.
AcademyHealth is a nonpartisan, nonprofit professional organization dedicated to advancing the fields of health services research and health policy. It is a professional organization for health services researchers, health policy analysts, and health practitioners, and it is a nonpartisan source for health research and policy. The organization was founded in 2000, in a merger between the Alpha Center and the Association for Health Services Research (AHSR). In 2008, the organization had approximately 4000 health services researcher members.
The Blue Button is a system for patients to view online and download their own personal health records. Several Federal agencies, including the Departments of Defense, Health and Human Services, and Veterans Affairs, implemented this capability for their beneficiaries. In addition, Blue Button has pledges of support from numerous health plans and some vendors of personal health record vendors across the United States. Data from Blue Button-enabled sites can be used to create portable medical histories that facilitate dialog among health care providers, caregivers, and other trusted individuals or entities.
Todd Park is a Korean American entrepreneur and government executive. He served as Chief Technology Officer of the United States and technology advisor for U.S. President Barack Obama.
Multistakeholder governance is a practice of governance that employs bringing multiple stakeholders together to participate in dialogue, decision making, and implementation of responses to jointly perceived problems. The principle behind such a structure is that if enough input is provided by multiple types of actors involved in a question, the eventual consensual decision gains more legitimacy, and can be more effectively implemented than a traditional state-based response. While the evolution of multistakeholder governance is occurring principally at the international level, public-private partnerships (PPPs) are domestic analogues.
The Foundation for the National Institutes of Health (FNIH) is a not-for-profit, 501(c)(3) charitable organization established by the US Congress in 1990. Located in North Bethesda, MD, the FNIH raises private-sector funds, and creates and manages alliances with public and private institutions in support of the mission of the National Institutes of Health (NIH).
National Quality Forum (NQF) is a United States-based non-profit membership organization that promotes patient protections and healthcare quality through measurement and public reporting. It was established in 1999 based on recommendations by the President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry. NQF’s membership comprises over 400 organizations, representing consumers, health plans, medical professionals, employers, government and other public health agencies, pharmaceutical and medical device companies, and other quality improvement organizations. NQF has helped develop guidelines on palliative care.
The Health Datapalooza is an annual conference which exists to promote access to open data in the United States for the purpose of improving public health. Since its inception in 2010, Health Datapalooza has become the gathering place for people and organizations creating knowledge from data and pioneering innovations that drive health policy and practice.
The COVID-19 Genomics UK (COG-UK) consortium was a group of academic institutions and public health agencies in the United Kingdom created in April 2020 to collect, sequence and analyse genomes of SARS-CoV-2 at scale, as part of COVID-19 pandemic response.
Data collaboratives are a form of collaboration in which participants from different sectors—including private companies, research institutions, and government agencies—can exchange data and data expertise to help solve public problems.
