Leonard A. Jason is a professor of psychology at DePaul University in Chicago, Illinois, where he also directs the Center for Community Research. [1] [2] His chief professional interests include the study of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), violence prevention, smoking cessation, and Oxford House recovery homes for substance abuse. [2] Jason's interest in ME/CFS began when he was diagnosed with the condition in 1990 after having mononucleosis. [3]
Leonard A. Jason is the son of Jay Jason, a well known comedian who entertained in the Catskills Mountains. Jason received a B.A. in psychology from Brandeis University in Waltham, Massachusetts in 1971 and a Ph.D. in psychology from the University of Rochester in Rochester, New York in 1975.
Jason is a former president of the Division of Community Psychology of the American Psychological Association (APA) and a past editor of The Community Psychologist. [4] Jason has edited or written 28 books, and he has published over 800 articles and 100 book chapters on CFS, ME, recovery homes, the prevention of alcohol, tobacco, and other drug abuse, media interventions and program evaluation. He has served on 92 Thesis Committees (of which he chaired 64), and 102 Dissertation Committees (of which he chaired 52). He has served on the editorial boards of ten psychological journals. Jason has served on review committees of the National Institutes of Health, and he has received over $36,000,000 in federal research grants. [2] He was also a board member and vice-president for a scientific professional organization called the International Association of CFS/ME. [5]
He was a member the Chronic Fatigue Syndrome Advisory Committee. [6] In 1999, Jason published an epidemiological study of ME/CFS among United States adults. [7] Jason helped organize two major American Psychological Association sponsored conferences on research methods for community psychology [8] [9] and co-edited a book on this topic. [10]
Jason has served on the editorial boards of journals including:
In 1991, Jason was provided the Ethnic Minority Mentorship Award from the Society for Community Research and Action. [20] He received in 1997 the Distinguished Contributions to Theory and Research Award from the Society for Community Research and Action. [21] He was presented the 1997 CFIDS Support Network ACTION Champion Award by the Chronic Fatigue Immune Dysfunction Syndrome Association of America. He was presented in 1998 with DePaul University's Cortelyou–Lowery Award for Excellence. [22] He received the Dutch ME Foundation International ME Award in 2003. [23] In 2007, he received the Special Contribution to Public Policy Award from the Society for Community Research and Action. [24] He was awarded the 2011 Perpich Award by the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) for distinguished community service. [25] Also in 2011, he was presented with the Tom Fellows Award by the Oxford House Organization for 20 years of research documenting the process of long term recovery from addiction. [26] In 2013, Jason was presented with the DePaul University's College of Science and Health's Excellence in Research Award. [27] In 2015, he was presented the American Psychological Association’s award for Distinguished Professional Contributions to Applied Research. [28]
The ME Association is a UK health charitable organization that provides information, advocacy, and services to persons and families affected by ME/CFS, and raises funds for research into ME/CFS. It has been reported to be one of the two largest UK charities for ME/CFS.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has a long history with an evolution in medical understanding, diagnoses and social perceptions.
Management of ME/CFS focusses on symptoms management, as no treatments that address the root cause of the illness are available. Pacing, or regulating one's activities to avoid triggering worse symptoms, is the most common management strategy for post-exertional malaise. Clinical management varies widely, with many patients receiving combinations of therapies.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness with a history of controversy. Although it is classified as an organic disease, it was historically assumed to be psychosocial, and a minority of medical professionals still hold this view. The pathophysiology of ME/CFS remains unclear, there exists many competing diagnostic criteria, and some proposed treatments are controversial. There have been substantiated accusations of patient neglect and harm.
Clinical descriptions of ME/CFS vary. Different groups have produced sets of diagnostic criteria that share many similarities. The biggest differences between criteria are whether post-exertional malaise (PEM) is required, and the number of symptoms needed.
The Lightning Process (LP) is a three-day personal training programme developed and trademarked by British osteopath Phil Parker. It makes unsubstantiated claims to be beneficial for various conditions, including chronic fatigue syndrome, depression and chronic pain.
Patricia A. Fennell is the chief executive officer of Albany Health Management Associates. She is a clinician, research scientist, educator, and author specializing in chronic illness, chronic and post-viral syndromes, trauma, forensics, hospice, global health care concerns, autoimmune and post-viral disease, clinical education, and training.
Graded exercise therapy (GET) is a programme of physical activity that starts very slowly and gradually increases over time, intended as a treatment for chronic fatigue syndrome. Most public health bodies, including the CDC and NICE, consider it ineffective, and its safety is disputed. However, GET still enjoys support among a minority of clinicians and organizations.
David Sheffield Bell is an American physician who has done extensive research on the clinical aspects of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). He has also conducted evaluations and research in pediatric ME/CFS and written numerous articles about the condition.
Daniel Peterson is an American physician in private practice in the state of Nevada, and has been described as a "pioneer" in the treatment of chronic fatigue syndrome (CFS). He graduated from the University of Rochester School of Medicine, Rochester, New York, in 1976 and was an intern and resident at the University of Utah Medical Center from 1976 to 1979. In 1979, he became a diplomate of the American Board of Internal Medicine. He is president of Sierra Internal Medicine of Incline Village, established in 1981.
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) was formed in response to the use of funds by the United States Centers for Disease Control and Prevention in the study of chronic fatigue syndrome (CFS). The CFSAC was charted under the Public Health Service Act of the US and funded by the United States Department of Health and Human Services (HHS). The CFSAC advises the Secretary of Health and Human Services on issues related to its mandate, including issues related to access and care for individuals with CFS, research, public health, clinical care and education regarding CFS. In November, 2008, support for CFSAC activities was changed to the Office on Women's Health, a division of the Office of Public Health and Science. It held it first meeting in 2003.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating long-term medical condition. People with ME/CFS experience delayed worsening of the illness after minor physical or mental activity, which is the hallmark symptom of the illness. Other core symptoms are a greatly reduced ability to do tasks that were previously routine, severe fatigue that does not improve much with rest, and sleep disturbances. Further common symptoms include dizziness or nausea when sitting or standing, along with memory and concentration issues and pain.
Jennifer Brea is an American documentary filmmaker and activist. Her debut feature, Unrest, premiered at the 2017 Sundance Film Festival and received the US Documentary Special Jury Award For Editing. Brea also co-created a virtual reality film which premiered at Tribeca Film Festival.
Rosamund Vallings is a medical doctor, known as one of the leading authorities on Chronic Fatigue Syndrome (ME/CFS) in New Zealand.
Post-exertional malaise (PEM), sometimes referred to as post-exertional symptom exacerbation (PESE) or post-exertional neuroimmune exhaustion (PENE), is a worsening of symptoms that occurs after minimal exertion. It is the hallmark symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and common in long COVID and fibromyalgia PEM is often severe enough to be disabling, and is triggered by ordinary activities that healthy people tolerate. Typically, it begins 12–48 hours after the activity that triggers it, and lasts for days, but this is highly variable and may persist much longer. Management of PEM is symptom-based, and patients are recommended to pace their activities to avoid triggering PEM.
International May 12th Awareness Day, also known as International ME/CFS Awareness Day is held every year to raise awareness of myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity, Gulf War syndrome and other chronic immunological and neurological diseases (CIND).
Idiopathic chronic fatigue (ICF) or chronic idiopathic fatigue or insufficient/idiopathic fatigue is a term used for cases of unexplained fatigue that have lasted at least six consecutive months and which do not meet the criteria for Myalgic Encephalomyelitis/chronic fatigue syndrome. Such fatigue is widely understood to have a profound effect on the lives of patients who experience it.
DecodeME is an ongoing genome-wide association study searching for genetic risk factors for ME/CFS. With a planned recruitment of 25,000 patients, it is expected to be the largest such study to date. Recruitment closed on 15 November 2023 and results are expected in 2024.
A 2-day CPET is a cardiopulmonary exercise test given on two successive days to measure the effect of post-exertional malaise (PEM) on a patient's ability to exercise. PEM is a cardinal symptom of myalgic encephalomyelitis/chronic fatigue syndrome and is common in long COVID as well.
Andrew Melvin Ramsay (1901–1990) was a British physician, who is known for his research and advocacy on myalgic encephalomyelitis (ME), a chronic disease causing muscle weakness and cognitive dysfunction. Ramsay worked as a consultant at the Royal Free Hospital in London during a mysterious 1955 disease outbreak of what later became known as ME. He studied the disease and similar outbreaks elsewhere. Work by Ramsay showed that although ME seldom caused death, the disease could be highly disabling.