My Health Record

Last updated

My Health Record
My Health Record logo.png
My Health Record screenshot, 29 September 2020.png
Type of site
Health records
Available in17 languages
List of languages
English, Punjabi, Urdu, Hindi, Swahili, Persian, Tigrinya, Malayalam, Arabic, Cantonese, Mandarin, Greek, Italian, Korean, Spanish, Thai, Vietnamese
Country of originAustralia
Owner Australian Digital Health Agency
URL myhealthrecord.gov.au
CommercialNo
Users 22.8 million (August 2020)
Launched2016;8 years ago (2016)
Current statusOnline
Content licence

My Health Record (MHR) is the national digital health record platform for Australia, and is managed by the Australian Digital Health Agency. It was originally established as the Personally Controlled Electronic Health Record (PCEHR), a shared electronic health summary set up by the Australian government with implementation overseen by the National Electronic Health Transition Authority (NEHTA). The purpose of the MHR is to provide a secure electronic summary of people's medical history [1] which will eventually include information such as current medications, adverse drug reactions, allergies and immunisation history in an easily accessible format. This MHR is stored in a network of connected systems with the ability to improve the sharing of information amongst health care providers to improve patient outcomes no matter where in Australia a patient presents for treatment. [2] [3] PCEHR was an opt-in system with a unique individual healthcare identifier (IHI) being assigned to participants and the option of masking and limiting information available for viewing controlled by the patient or a nominated representative; MHR uses an opt-out system.

Contents

History

Background

In 2013 it was reported that on average, each Australian has 22 health system interactions annually. This includes General practitioner (GP) visits, specialists, or prescriptions. All of these interactions are held in individual, separate, paper-based records making the entire health picture of an individual difficult to ascertain. [4] It is also reported that up to 10% of hospital admissions are due to adverse drug events, 18% are due to medical errors relating to lack of adequate available patient information, [5] and an estimated 25% of clinicians time is spent collecting information regarding the patient than actually treating them. [6] These facts combined with the ageing Australian population, vast geographic expanse, and ever increasing population, drove the implementation of an electronic health record in an effort to bring the medical record into the 21st century.

PCEHR

As part of the 2010/11 Australian federal budget the Hon. Nicola Roxon (Minister for Health and Ageing) announced the PCEHR as a "key building block of the National Health and Hospitals Network". [7] The system went live on 1 July 2012 [8]

The Australian Government had a policy to develop a lifetime electronic health record for all its citizens. PCEHR was the major national EHR initiative in Australia, being delivered through territory, state, and federal governments. This electronic health record was initially deployed in July 2012, and underwent active development and extension by the Australian Digital Health Agency. [9]

It was budgeted to cost $466.7m but had surpassed this to $766m before the actual launch date with the final figure still to be calculated. [10]

In contrast a recent study published by Deloitte [11] projected the PCEHR to save approximately $11.5 billion over the 2010 to 2025 period. This consists of approximately $9.5 billion in net direct benefits to the Australian Government and $2.0 billion in net direct benefits to the private sector. [12]

As of 17 February 2013, 1233 healthcare organisations had registered for the PCEHR with NEHTA CEO Peter Fleming estimating 98% of GP-specific software was PCEHR compatible. [13]

At the 7-month mark 56,761 patients had registered with the 12-month target at 500,000 patients. The target figure was still considered achievable according to the DoHA deputy secretary Rosemary Huxtable who had released this information to a Senate Estimates committee. [14]

My Health Record

The name of PCEHR has changed to My Health Record in 2015 with an opt-out model. The Australian government budgeted around $485million for this system which potentially could save nearly 5,000 lives per year when functional. [15] [16] [17] [18]

e-health

The Australian standards organisation, Standards Australia, and federal Department of Health have created an electronic health website, "e-health" [19] relating to information not only about Australia and what is currently going on about EHRs but also globally. Many key stakeholders contribute to the process of integrating EHRs within Australia. They range from each States Departments of Health to Universities around Australia and National E-Health Transition Authority to name a few.

Registration

Patients were able to opt into the PCEHR by providing personal details such as full name, date of birth, Medicare/Department of Veteran Affairs number, and sex. Currently there are several mediums for consumers to register via:

Identity Verification Code (IVC)

If a consumer registered over the phone, in writing, or in person an identity verification code IVC is issued to enable access to the e-Health record online for the first time. After this first log, or post 30 days from issuance the IVC becomes obsolete. There are four steps in the registration process:

  1. Read the essential information
  2. Create a new or log into your australia.gov.au account
  3. Verify your identity
  4. Set up your e-Health record [21]

Healthcare Identifiers Service (HI Service)

The Healthcare Identifiers Service (HI Service) was established by the federal, state and territory governments to create unique identifiers for healthcare providers and individuals seeking healthcare. It was designed and implemented by Medicare Australia under the control of the NEHTA. The HI Service allocates three types of Healthcare Identifiers: [22] [23]

Individual healthcare identifier (i.e., who received the service)
The Individual Healthcare Identifier (IHI) is a unique 16 digit reference number that is used to identify individuals within the healthcare system.
The healthcare provider can retrieve a registered patients IHI via the Healthcare Identifier Service by entering in the correct name, DOB, and Medicare number which will automatically retrieve the patients unique IHI from the system. This then links the patients with their PCEHR, allowing the healthcare provider to view all the uploaded material. [24]
Health Provider Identifier-Individual (i.e., who provided the service)
The Health Provider Identifier-Individual (HPI-I) is allocated to healthcare providers involved in providing patient care. Healthcare providers belonging to the Australian Health Practitioner Regulation Agency (AHPRA) have automatically been registered for their HPI-I. [25] This unique number allows healthcare providers to access patients PCEHR and also acts as a tracking tool of who has accessed what, what edits were made etc.
Health Provider Identifier-Organisation (i.e., where the service was provided)
The Health Provider Identifier-Organisation (HPI-O) is a unique code for organisations that provide healthcare services. An HPI-O may be linked to several HPI-I's, but an organisation can not have more than one HPI-O. [22]

eHealth Practice Incentives Program (ePIP)

The eHealth Practice Incentives Program (ePIP) aims to encourage GP's to adopt and embrace the latest technology and developments within the eHealth industry as they occur. GP's are only eligible for ePIP if they are already registered in the Practice Incentives Program (PIP) administered by the Australian Government Department of Human Services (Human Services) on behalf of the Department of Health and Ageing(DoHA). [26] There are five further requirements for this incentive:

  1. Integrating Healthcare Identifiers into Electronic Practice Records
  2. Secure Messaging Capability
  3. Data Records and Coding
  4. Electronic Transfer of Prescriptions
  5. Personally Controlled Electronic Health (eHealth) Record System [27]

The benefits of participation in this incentive is practices can receive a maximum of $12,500 per quarter, based on $6.50 per Standardised Whole Patient Equivalent (SWPE) per year.

System Operator

The System Operator is the entity that is responsible for creating and operating the PCEHR. This position was held by the Secretary of the Department of Health and Ageing. The System Operator during their duties must have regard to the advice and recommendations (if any) given by the PCEHR Jurisdictional Advisory Committee and the PCEHR Independent Advisory Council. [28]

Software

PCEHC was based on the XDS (Cross Enterprise Document Sharing) Profile published by Integrating the Healthcare Enterprise (IHE). However, the usual IHE Patient Management system (PIX/PDQ) has been replaced by the National Health Identity (HI) Service. In addition the usual authentication and security IHE profiles have been replaced by, or significantly modified to work with, existing infrastructure.[ citation needed ] HL7 CDA format is used to transfer information between different healthcare clinical systems whilst still allowing information to be accessed and viewed.

National Authentication Service for Health Public Key Infrastructure (NASH PKI)

National Authentication Service for Health Public Key Infrastructure (PKI) is a certificate that authenticates healthcare professionals accessing the eHealth records system. These certificates can be loaded onto smart cards which are then used in combination with the healthcare professionals HPI-I to log on to patients who have a PCEHR using the patients IHI. This system also facilitates secure electronic communications with other healthcare provider organisations. [29]

The PKI allows users to know:

These benefits allow users to securely and confidently relay patient information to trustworthy sources.

For the PKI to work there must be a Chain of Trust on your computer. This Chain of Trust is composed of three certificates, namely:

  1. Medicare Australia Root CA
  2. Medicare Australia Organisation CA
  3. Medicare Australia Organisation CA2 [30]

The PKI Certificates are based on the Australian Gatekeeper framework and met the International Organization for Standardization (ISO) Health Informatics-Public Key Infrastructure technical specification (ISO/TS 17090). [31]

Vendors

The six GP Desktop Vendor Panel members are :-

Legality

On 16 August 2012 the Hon. Tanya Plibersek, the then Minister for Health announced the Personally Controlled Electronic Health Records Act 2012 (PCEHR) [34] The legislation was amended in late 2015 to be known as the My Health Records Act 2012 (Cth) [35]

Patients can read in full everything that is added to their eHealth record. They may choose to include additional information in their own local clinical information system that is not included in the eHealth record. In any event, patients have a right under the Privacy Act 1988 (Cth) to access the personal information that healthcare professionals hold about them. [36]

From November 2015 the My Health Records Act 2012 (Cth) was amended to reflect that representatives of persons who require decision-making support related to the Act must support the person to make decisions, or make decisions on their behalf, reflecting the individual's "will and preferences". This reflects the principle that people with disability or varied capacity have an equal right to have their decisions respected. [37]

Healthcare Identifiers Act 2010 [38] This Act outlines how unique identifying numbers are allocated to each health provider and individuals as healthcare recipients to provide a way of ensuring that health information is correctly matched to the individual that received healthcare or the entity that provides healthcare.

Healthcare Identifiers Regulations 2010 [39] regulates the collection, use and disclosure of healthcare record identifiers and information.

PCEHR Jurisdictional Advisory Committee (PCEHR JAC)

The PCEHR Act established the PCEHR Jurisdictional Advisory Committee (PCEHR JAC) to advise the System Operator on matters relating to the interests of the Commonwealth, States and Territories in the PCEHR system. The PCEHR JAC meets at least four times per year, or more frequently as agreed between the System Operator and the Chair. The PCEHR JAC has nine members, a member to represent the Commonwealth and a member to represent each State and Territory. [40]

PCEHR Independent Advisory Council (PCEHR IAC)

The PCEHR Independent Advisory Council (PCEHR IAC) was established under the PCEHR Act to advise on the operation and participation in the PCEHR system, clinical, privacy and security matters relating to PCEHR system operations. The PCEHR IAC meets at least four times per year. [40]

Criticism

Security and privacy concerns have been raised about the platform. Originally, participation of the system was to opt-in by each person giving consent, however due to low participation rates, the platform moved to become opt-out instead. Each Australian had until 31st of Jan 2019 to opt-out. After 31st of Jan 2019, however, any user can delete their My Health Record, as well as restrict access to providers. In a life-threatening emergency, certain providers (like hospital emergency departments) can access a patient's My Health Record without being given explicit access. [41] There are 13,000 health providers involved, from specialists and general practice doctors to pharmacies and hospitals.[ needs update ]

Additional concerns have been raised around warrant-less law enforcement access to health data. The health minister Greg Hunt requested the deletion of advice indicating that police would have access to health record data, before promising a redraft of the legislation to explicitly curtail warrant-less access. [42] [43] [44] [45] Additionally cybersecurity audits have remained incomplete. [46] Further concerns have surrounded the inappropriate access of health record data. [47] [48] [49]

Additionally uptake amongst health care providers has remained low with half of all records standing empty, and with poor uptake and usage by health care providers. [50] [51]


Similar initiatives

MediConnect was an early program that provides an electronic medication record to keep track of patient prescriptions and provide stakeholders with drug alerts to avoid errors in prescribing. [52]

Patent Issues

MyMedicalRecords.com, a subsidiary of MMRGlobal began investigations about the PCEHR use of its intellectual property. [53]

See also

Related Research Articles

Medicare is the publicly funded universal health care insurance scheme in Australia operated by the nation's social security agency, Services Australia. The scheme either partially or fully covers the cost of most health care, with services being delivered by state and territory governments or private enterprises. All Australian citizens and permanent residents are eligible to enrol in Medicare, as well as international visitors from 11 countries that have reciprocal agreements for medically necessary treatment.

Medical privacy, or health privacy, is the practice of maintaining the security and confidentiality of patient records. It involves both the conversational discretion of health care providers and the security of medical records. The terms can also refer to the physical privacy of patients from other patients and providers while in a medical facility, and to modesty in medical settings. Modern concerns include the degree of disclosure to insurance companies, employers, and other third parties. The advent of electronic medical records (EMR) and patient care management systems (PCMS) have raised new concerns about privacy, balanced with efforts to reduce duplication of services and medical errors.

<span class="mw-page-title-main">Health Insurance Portability and Accountability Act</span> United States federal law concerning health information

The Health Insurance Portability and Accountability Act of 1996 is a United States Act of Congress enacted by the 104th United States Congress and signed into law by President Bill Clinton on August 21, 1996. It aimed to alter the transfer of healthcare information, stipulated the guidelines by which personally identifiable information maintained by the healthcare and healthcare insurance industries should be protected from fraud and theft, and addressed some limitations on healthcare insurance coverage. It generally prohibits healthcare providers and businesses called covered entities from disclosing protected information to anyone other than a patient and the patient's authorized representatives without their consent. The bill does not restrict patients from receiving information about themselves. Furthermore, it does not prohibit patients from voluntarily sharing their health information however they choose, nor does it require confidentiality where a patient discloses medical information to family members, friends or other individuals not employees of a covered entity.

<span class="mw-page-title-main">Medicare card (Australia)</span>

A Medicare card is a plastic card, the same size as a typical credit card, issued to Australian citizens and permanent residents and their families. The card or the Medicare number is required to be provided to enable the cardholder to receive a rebate of medical expenses under Australia's Medicare system, as well as subsidised medications under the Pharmaceutical Benefits Scheme (PBS). The card is usually green in colour, although interim cards are light blue and cards for Reciprocal Health Care Agreement visitors are light yellow. The cards are issued by a government agency called Services Australia.

<span class="mw-page-title-main">Medical record</span> Medical term

The terms medical record, health record and medical chart are used somewhat interchangeably to describe the systematic documentation of a single patient's medical history and care across time within one particular health care provider's jurisdiction. A medical record includes a variety of types of "notes" entered over time by healthcare professionals, recording observations and administration of drugs and therapies, orders for the administration of drugs and therapies, test results, X-rays, reports, etc. The maintenance of complete and accurate medical records is a requirement of health care providers and is generally enforced as a licensing or certification prerequisite.

<span class="mw-page-title-main">Electronic health record</span> Digital collection of patient and population electronically stored health information

An electronic health record (EHR) is the systematized collection of patient and population electronically stored health information in a digital format. These records can be shared across different health care settings. Records are shared through network-connected, enterprise-wide information systems or other information networks and exchanges. EHRs may include a range of data, including demographics, medical history, medication and allergies, immunization status, laboratory test results, radiology images, vital signs, personal statistics like age and weight, and billing information.

The eHealth Exchange, formerly known as the Nationwide Health Information Network, is an initiative for the exchange of healthcare information. It was developed under the auspices of the U.S. Office of the National Coordinator for Health Information Technology (ONC), and now managed by a non-profit industry coalition called Sequoia Project. The exchange is a web-services based series of specifications designed to securely exchange healthcare related data. The NwHIN is related to the Direct Project which uses a secure email-based approach. One of the latest goals is to increase the amount of onboarding information about the NwHIN to prospective vendors of health care systems.

A National Provider Identifier (NPI) is a unique 10-digit identification number issued to health care providers in the United States by the Centers for Medicare and Medicaid Services (CMS). The NPI has replaced the Unique Physician Identification Number (UPIN) as the required identifier for Medicare services, and is used by other payers, including commercial healthcare insurers. The transition to the NPI was mandated as part of the Administrative Simplifications portion of the Health Insurance Portability and Accountability Act of 1996 (HIPAA).

A patient safety organization (PSO) is a group, institution, or association that improves medical care by reducing medical errors. Common functions of patient safety organizations are data collection, analysis, reporting, education, funding, and advocacy. A PSO differs from a Federally designed Patient Safety Organization (PSO), which provides health care providers in the U.S. privilege and confidentiality protections for efforts to improve patient safety and the quality of patient care delivery

<span class="mw-page-title-main">Health care in Australia</span>

Health care in Australia operates under a shared public-private model underpinned by the Medicare system, the national single-payer funding model. State and territory governments operate public health facilities where eligible patients receive care free of charge. Primary health services, such as GP clinics, are privately owned in most situations, but attract Medicare rebates. Australian citizens, permanent residents, and some visitors and visa holders are eligible for health services under the Medicare system. Individuals are encouraged through tax surcharges to purchase health insurance to cover services offered in the private sector, and further fund health care.

Patient portals are healthcare-related online applications that allow patients to interact and communicate with their healthcare providers, such as physicians and hospitals. Typically, portal services are available on the Internet at all hours of the day and night. Some patient portal applications exist as stand-alone web sites and sell their services to healthcare providers. Other portal applications are integrated into the existing website of a healthcare provider. Still others are modules added onto an existing electronic medical record (EMR) system. What all of these services share is the ability of patients to interact with their medical information via the Internet. Currently, the lines between an EMR, a personal health record, and a patient portal are blurring. For example, Intuit Health and Microsoft HealthVault describe themselves as personal health records (PHRs), but they can interface with EMRs and communicate through the Continuity of Care Record standard, displaying patient data on the Internet so it can be viewed through a patient portal.

Mukesh Chandra Haikerwal is a British-Australian medical doctor practising in Melbourne. From 2005 to 2007, he was the Federal President of the Australian Medical Association (AMA), and in 2011 became a Companion of the Order of Australia. Through his involvement in several not-for-profit organisations, Haikerwal is a strong advocate for better working conditions for medical staff. Early in 2020, Haikerwal coordinated and led ongoing lobbying for the provision of adequate supplies of protective equipment for those dealing with COVID-19 pandemic.

Health information technology (HIT) is health technology, particularly information technology, applied to health and health care. It supports health information management across computerized systems and the secure exchange of health information between consumers, providers, payers, and quality monitors. Based on a 2008 report on a small series of studies conducted at four sites that provide ambulatory care – three U.S. medical centers and one in the Netherlands, the use of electronic health records (EHRs) was viewed as the most promising tool for improving the overall quality, safety and efficiency of the health delivery system.

The Office of the National Coordinator for Health Information Technology (ONC) is a staff division of the Office of the Secretary, within the U.S. Department of Health and Human Services. ONC leads national health IT efforts. It is charged as the principal federal entity to coordinate nationwide efforts to implement the use of advanced health information technology and the electronic exchange of health information.

An accountable care organization (ACO) is a healthcare organization that ties provider reimbursements to quality metrics and reductions in the cost of care. ACOs in the United States are formed from a group of coordinated health-care practitioners. They use alternative payment models, normally, capitation. The organization is accountable to patients and third-party payers for the quality, appropriateness and efficiency of the health care provided. According to the Centers for Medicare and Medicaid Services, an ACO is "an organization of health care practitioners that agrees to be accountable for the quality, cost, and overall care of Medicare beneficiaries who are enrolled in the traditional fee-for-service program who are assigned to it".

The Health Information Technology for Economic and Clinical Health Act, abbreviated the HITECH Act, was enacted under Title XIII of the American Recovery and Reinvestment Act of 2009. Under the HITECH Act, the United States Department of Health and Human Services resolved to spend $25.9 billion to promote and expand the adoption of health information technology. The Washington Post reported the inclusion of "as much as $36.5 billion in spending to create a nationwide network of electronic health records." At the time it was enacted, it was considered "the most important piece of health care legislation to be passed in the last 20 to 30 years" and the "foundation for health care reform."

The National Electronic Health Transition Authority (NEHTA) was established in July 2005 as a joint enterprise between the Australian Government and state and territory governments to identify, and develop the necessary foundations for electronic health (eHealth).

The Physician Quality Reporting System (PQRS), formerly known as the Physician Quality Reporting Initiative (PQRI), is a health care quality improvement incentive program initiated by the Centers for Medicare and Medicaid Services (CMS) in the United States in 2006. It is an example of a "pay for performance" program which rewards providers financially for reporting healthcare quality data to CMS. PQRS ended in 2016, beginning with the 2018 payment adjustment. The Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) replaced this and other CMS quality programs with a new umbrella program called the Quality Payment Program (QPP), under which clinicians formerly reporting under PQRS would instead report quality data under one of two QPP program tracks: the Merit-based Incentive Payment System (MIPS) or the Advanced Alternative Payment Model (APMs) track.

Federal and state governments, insurance companies and other large medical institutions are heavily promoting the adoption of electronic health records. The US Congress included a formula of both incentives and penalties for EMR/EHR adoption versus continued use of paper records as part of the Health Information Technology for Economic and Clinical Health (HITECH) Act, enacted as part of the, American Recovery and Reinvestment Act of 2009.

The Australian Digital Health Agency is the Australian Government statutory agency responsible for My Health Record, Australia's digital prescriptions and health referral system, and other e-health programs under the national digital health strategy. The agency replaces the former National E-Health Transition Authority which ceased on 1 July 2016. The agency is led by its chief executive officer, board, and is subject to directions issued by the minister for health and aged care on the approval of all state and territory health ministers.

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