Abbreviation | NDSS |
---|---|
Formation | 1979 |
Purpose | Disability Advocate |
Headquarters | Manhattan, New York City, New York, US |
Official language | English, Spanish |
President & CEO | Kandi Pickard |
Affiliations | 375 |
Budget | $2,000,000+ |
Website | www |
The National Down Syndrome Society (NDSS) is an American organization that offers support to people with Down syndrome, their families, friends, teachers, and coworkers, and educates the general public about Down syndrome. The mission of the NDSS is to be the leading human rights organization for all individuals with Down syndrome. [1]
The NDSS was founded by Betsy Goodwin and Arden Moulton. Goodwin's daughter, Carson was born in 1978 with Down Syndrome. [2] [3] The parents soon discovered that the support and resources available to parents with Down syndrome children were very limited. Goodwin and Arden created the NDSS, which gained official nonprofit status in 1979. [4] The National Down Syndrome Society envisions "a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities." [5]
NDSS focuses on four items of programming to enhance the quality of life for those with Down syndrome. [6]
In January 2019, the NDSS offered a free public webinar on facilitated communication held by Christine Ashby. [11] This communication method is based on the theory that many people that are unable to speak and are not cognitively impaired, but are simply unable to produce the sounds for speech. A helper or "facilitator" assists by guiding the non-speaking person's hand over a keyboard. Many masked independent tests and studies have suggested that the facilitator is actually the one doing the typing, and not the person with the disability. Stuart Vyse, reporting for Skeptical Inquirer, commented that "Given NDSS's mission of being 'The leading human rights organization for all individuals with Down syndrome,' it is not surprising the organization supports a communication method that [Christy] Ashby [PhD] described as a 'human right and a civil right.' Nonetheless, it is unfortunate that a leading Down syndrome advocacy group is promoting a belief system over evidence-based methods that work." [11]
Down syndrome or Down's syndrome, also known as trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is usually associated with developmental delays, mild to moderate intellectual disability, and characteristic physical features. There are three types of Down syndrome, the most common being trisomy 21. Mosaic Down syndrome accounts for two per cent of Down syndrome cases, and Translocation Down syndrome accounts for three per cent of cases.
Advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions. Advocacy includes activities and publications to influence public policy, laws and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public. Advocacy can include many activities that a person or organization undertakes, including media campaigns, public speaking, commissioning and publishing research. Lobbying is a form of advocacy where a direct approach is made to legislators on a specific issue or specific piece of legislation. Research has started to address how advocacy groups in the United States and Canada are using social media to facilitate civic engagement and collective action.
Facilitated communication (FC), or supported typing, is a scientifically discredited technique, which claims to allow non-verbal people, such as those with autism, to communicate. The technique involves a facilitator guiding the disabled person's arm or hand in an attempt to help them type on a keyboard or other such device which they are unable to properly use if unfacilitated.
Human Rights in China is a New York–based international, Chinese, non-governmental organization with intentions to promote international human rights and facilitate the institutional protection of these rights in the People's Republic of China. HRIC is a member organization of the International Federation for Human Rights. According to Fang Lizhi, HRIC is committed to an independent, non-political, and intelligent approach
The disability rights movement is a global social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.
HIV-positive people, seropositive people or people who live with HIV are people infected with the human immunodeficiency virus (HIV), a retrovirus which if untreated may progress to acquired immunodeficiency syndrome (AIDS).
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
Deafblindness is the condition of little or no useful hearing and little or no useful sight. Different degrees of vision loss and auditory loss occur within each individual. Because of this inherent diversity, each deafblind individual's needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation, to improve their ability to live independently. In 1994, an estimated 35,000–40,000 United States residents were medically deafblind. Laura Bridgman was the first American deafblind person known to become well educated. Helen Keller was a well-known example of an educated deafblind individual. To further her lifelong mission to help the deafblind community to expand its horizons and gain opportunities, the Helen Keller National Center for Deaf-Blind Youths and Adults, with a residential training program in Sands Point, New York, was established in 1967 by an act of Congress.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services – i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of allistic (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
Christopher Joseph Burke is an American actor. He has become best known for his character Charles "Corky" Thatcher on the television series Life Goes On.
The Association for Behavior Analysis International (ABAI) is a nonprofit organization dedicated to promoting behavior analysis. The organization has over 9,000 members. The group organizes conferences and publishes journals on the topic of applied behavior analysis (ABA). ABAI has issued detailed, specific position papers intended to guide practitioners of ABA. The ABAI publishes six scholarly journals including The Psychological Record and their primary organ, Perspectives on Behavior Science, formerly The Behavior Analyst. They also publish an informational journal, Education and Treatment of Children, describing practical treatment of children with behavioral problems.
Augmentative and alternative communication (AAC) encompasses the communication methods used to supplement or replace speech or writing for those with impairments in the production or comprehension of spoken or written language. AAC is used by those with a wide range of speech and language impairments, including congenital impairments such as cerebral palsy, intellectual impairment and autism, and acquired conditions such as amyotrophic lateral sclerosis and Parkinson's disease. AAC can be a permanent addition to a person's communication or a temporary aid. Stephen Hawking, probably the best-known user of AAC, had amyotrophic lateral sclerosis, and communicated through a speech-generating device.
The following outline is provided as an overview of and topical guide to autism:
The American Institute of Biological Sciences (AIBS) is a nonprofit scientific public charitable organization. The organization's mission is to promote the use of science to inform decision-making and advance biology for the benefit of science and society.
Intersex Peer Support Australia (IPSA), also known as the Androgen Insensitivity Syndrome Support Group Australia, is possibly the oldest known intersex organization, established in 1985. It provides peer and family support, information and advocacy. The group is run by volunteers, for people with intersex variations such as androgen insensitivity syndrome. It changed name from the Androgen Insensitivity Syndrome Support Group Australia (AISSGA) to Intersex Peer Support Australia in 2019.
The rapid prompting method (RPM) is a pseudoscientific technique that attempts to aid communication by people with autism or other disabilities to communicate through pointing, typing, or writing. Also known as Spelling to Communicate, it is closely related to the scientifically discredited technique facilitated communication (FC). Practitioners of RPM have failed to assess the issue of message agency using simple and direct scientific methodologies, saying that doing so would be stigmatizing and that allowing scientific criticisms of the technique robs people with autism of their right to communicate. The American Speech-Language-Hearing Association has issued a statement opposing the practice of RPM.
Stuart Vyse is an American psychologist, teacher, speaker and author who specializes in belief in superstitions and critical thinking. He is frequently invited as a speaker and interviewed by the media as an expert on superstitious behavior. His book Believing in Magic: The Psychology of Superstition won the American Psychological Association's William James Book Award.
Jessica L. Benham is an American politician and disability rights activist serving as a member of the Pennsylvania House of Representatives for the 36th District. She is the first openly LGBTQ+ woman and first openly autistic person elected to the Pennsylvania General Assembly. She cofounded the Pittsburgh Center for Autistic Advocacy in 2014.
John Lee Cronin is an American entrepreneur and advocate who has Down syndrome. He is the co-founder of John's Crazy Socks, a social enterprise with a mission to spread happiness. Cronin is the first entrepreneur with Down syndrome to win the Ernst & Young Entrepreneur of the Year Award and is also the recipient of the Henry Viscardi Achievement Award. He was named an alternate to the U.S. National Snowshoe Team for the Special Olympics World Games in March 2017.