Simon Duffy (born 13 February, 1965) is a British welfare rights researcher, philosopher, activist and co-founder of Citizen Network and the Centre for Welfare Reform (now Citizen Network Research).
His academic work has focused on the welfare state, means-tested benefits, Universal Basic Income and personalisation in social care.
After graduating with an MA in Philosophy & Politics from the University of Edinburgh in 1987, Duffy led development of early work on individualised funding and brokerage at Southwark Consortium (now Choice Support) between 1990 and 1994. In 1996 he published the book Unlocking the Imagination, which called for new forms of support for people with learning disabilities.
Between 1996 and 2002 he founded and worked for Inclusion Glasgow, which provided personalised support to people with learning disabilities leaving Lennox Castle Hospital. Duffy was award a PhD in Philosophy from the University of Edinburgh in 2001.
From 2003 and 2009, Duffy was a co-founder and chief executive of social enterprise company In Control, [1] where he developed the concept of Personal Budgets. This later became central to government policy on social care in England from 2005, [2] though Duffy left the organisation before the idea was piloted. [3] The Guardian described Duffy as "the guiding inspiration behind what many see as a revolution in social care", [4] but some academics have criticised the concept of Personal Budgets as "consistent with a neoliberal social and economic agenda". [5]
In 2008 he was awarded the Albert Medal by the Royal Society for Arts for his work on personalisation in social care, [6] and in 2011 received a Social Policy Association Award for Outstanding Contribution to Social Policy. [7]
Since leaving In Control, Duffy has criticised the UK government's approach to personalisation in social care, [8] writing that the idea had become "an excuse to cut costs". [9]
He has also published research [10] and written extensively on the effects of austerity on people in poverty and people with disabilities. [11] [12] [13] He has criticised the approach taken by the Department for Work and Pensions to supporting disabled people and has called for the department to be closed down, [14] arguing that disabled people were "hit 19 times harder than the average person" under the 2010-2015 coalition government. [15]
In 2009, Duffy established the Centre for Welfare Reform (now Citizen Network Research), an independent think tank based in Sheffield. The Centre has published on a wide-range of topics, focused primarily on social, economic and political reforms to promote the concept of citizenship. [16] He has since criticised cuts to social care [17] and the system of sanctions within the UK's welfare state. [18]
The Centre called for a new model of social care based around Local Area Co-ordination (LAC) in 2011, which Duffy said would "deliver savings, increase the numbers receiving support and reduces reliance on expensive services". [19]
In 2013, the Centre advised the Government of South Australia on personal budgets and self-directed support. [20] [21]
In 2014, Duffy co-founded the Learning Disability Alliance, which campaigns on behalf of people with learning disabilities in the UK. [22]
The Centre published a report in 2020 about the hostility and isolation experienced by people with chronic health conditions in the UK, based on research with 2,300 people. [23] [24] [25]
The Centre for Welfare Reform's publication People, Places, Possibilities, written by Ralph Broad in 2015, has been widely discussed as a contribution to the debate about the future of social work in the UK. [26]
In 2016, he became one of the co-founders of the UBI Lab Network, a global political movement campaigning for Universal Basic Income. [27] [28] [29]
Duffy co-founded Citizen Network in 2016, an international cooperative which "connects people together, from all around the world, to create a world where everyone matters". [30]
As president of Citizen Network, Duffy has called for constitutional reform and an 'End Westminster Rule' charter inspired by the Chartist movement. [31]
Welfare is a type of government support intended to ensure that members of a society can meet basic human needs such as food and shelter. Social security may either be synonymous with welfare, or refer specifically to social insurance programs which provide support only to those who have previously contributed, as opposed to social assistance programs which provide support on the basis of need alone. The International Labour Organization defines social security as covering support for those in old age, support for the maintenance of children, medical treatment, parental and sick leave, unemployment and disability benefits, and support for sufferers of occupational injury.
Welfare reforms are changes in the operation of a given welfare system, with the goals of reducing the number of individuals dependent on government assistance, keeping the welfare systems affordable, and assisting recipients to become self-sufficient. Classical liberals, libertarians, and conservatives generally argue that welfare and other tax-funded services reduce incentives to work, exacerbate the free-rider problem, and intensify poverty. On the other hand, socialists generally criticize welfare reform because it usually minimizes the public safety net and strengthens the capitalist economic system. Welfare reform is constantly debated because of the varying opinions on the government's determined balance of providing guaranteed welfare benefits and promoting self-sufficiency.
The Department for Work and Pensions (DWP) is the British Government department responsible for welfare, pensions and child maintenance policy. As the UK's biggest public service department it administers the State Pension and a range of working age, disability and ill health benefits to around 20 million claimants and customers. It is the second largest governmental department in terms of employees, and the largest in terms of expenditure (£187bn).
Jobseeker's Allowance (JSA) is an unemployment benefit paid by the Government of the United Kingdom to people who are unemployed and actively seeking work. It is part of the social security benefits system and is intended to cover living expenses while the claimant is out of work.
Macmillan Cancer Support is one of the largest British charities and provides specialist health care, information and financial support to people affected by cancer. It also looks at the social, emotional and practical impact cancer can have, and campaigns for better cancer care. Macmillan Cancer Support's goal is to reach and improve the lives of everyone who has cancer in the UK.
Person-centred planning (PCP) is a set of approaches designed to assist an individual to plan their life and supports. It is most often used for life planning with people with learning and developmental disabilities, though recently it has been advocated as a method of planning personalised support with many other sections of society who find themselves disempowered by traditional methods of service delivery, including children, people with physical disabilities, people with mental health issues and older people. PCP is accepted as evidence based practice in many countries throughout the world.
Employment and Support Allowance (ESA) is a United Kingdom welfare payment for adults younger than the State Pension age who are having difficulty finding work because of their long-term medical condition or a disability. It is a basic income-replacement benefit paid in lieu of wages. It is currently being phased out and replaced with Universal Credit for claimants on low incomes, although the contribution-based element remains available.
Turning Point is a health and social care organisation that works across mental health, learning disability, substance misuse, primary care, the criminal justice system and employment. In 2017, Turning Point won the contract to deliver sexual health services across 3 London boroughs and Autism Plus joined the Turning Point group. Many of Turning Point services are regulated by the Care Quality Commission.
Special educational needs (SEN), also known as special educational needs and disabilities (SEND) in the United Kingdom refers to the education of children with disabilities.
In England, social care is defined as the provision of social work, personal care, protection or social support services to children or adults in need or at risk, or adults with needs arising from illness, disability, old age or poverty. The main legal definitions flow from the National Health Service and Community Care Act 1990, with other provisions covering disability and responsibilities to informal carers. That provision may have one or more of the following aims: to protect people who use care services from abuse or neglect, to prevent deterioration of or promote physical or mental health, to promote independence and social inclusion, to improve opportunities and life chances, to strengthen families and to protect human rights in relation to people's social needs.
Brandon Trust is a United Kingdom charitable organisation working with and for people with learning disabilities.
Caroline Julia Dinenage, Baroness Lancaster of Kimbolton,, also styled as Dame Caroline Dinenage, is a British Conservative Party politician who was elected as Member of Parliament (MP) for Gosport at the 2010 general election. and re-elected in 2015, 2017 and 2019.
Professor Paul Gregg is a British academic, and expert on labour markets and welfare reform. He is currently a Commissioner on the Social Mobility and Child Poverty Commission
KeyRing is a charity based in The United Kingdom. Their main focus is to support vulnerable adults to live independently. This is done by assisting their integration into a community as well as teaching them skills that promote self-support. KeyRing focus on connection, flexible support and skill-builidng. During 2019/20 KeyRing provided support to 1609 people in Networks and community-based services, alongside 460 people using the Ancora project and 143 people connected with the North Yorkshire Engagement and Participation Service totalling 2213 individuals, an increase of 9.5% from 2018/19.
The under-occupancy penalty results from a reform contained in the British Welfare Reform Act 2012 whereby tenants living in public housing with rooms deemed "spare" face a reduction in Housing Benefit, resulting in them being obliged to fund this reduction from their incomes or to face rent arrears and potential eviction by their landlord. The under-occupancy penalty is more commonly referred to as the Bedroom Tax; especially by critics of the changes who argue that they amount to a tax because of the lack of social housing for affected tenants to downsize to.
Professor Lord Darzi's review of the NHS in 2008 introduced the idea of personal health budgets (PHBs) in the English National Health Service. Since October 2014 people eligible for NHS Continuing Healthcare were given the legal right to have a personal health budget. NHS England’s Five Year Forward View called for a ‘major expansion’ of the scheme. NHS Choices describes personal health budgets as a way "to give people with long-term conditions and disabilities greater choice and control over the healthcare and support they receive."
Peter Beresford OBE, FAcSS, FRSA is a British academic, writer, researcher and activist best known for his work in the field of citizen participation and user involvement, areas of study he helped to create and develop. He is currently visiting professor and senior research fellow in the School of Health & Social Sciences at the University of East Anglia, emeritus professor of citizen participation at the University of Essex and emeritus professor of social policy at Brunel University London. Much of his work has centred on including the viewpoints, lived experience and knowledge of disabled people, mental health and other long term service users in public policy, practice and learning, and working for a more participatory politics.
Social Security Scotland is an executive agency of the Scottish Government with responsibility for social security provision.
Dimensions UK is a British not-for-profit charitable registered society and housing association that supports people with learning disabilities, autism and complex needs.
The Centre for Welfare Reform is a Sheffield-based think tank which works globally on advancing citizenship for all. It was launched in 2009 and has published a range of materials offering progressive innovations in welfare reform. It is not linked to any particular political party but is aligned with progressive politics in the UK and also works internationally. The Director and founder is Dr Simon Duffy.