Kanner autism, or classic autism, is a neurodevelopmental disorder characterized by challenges with social communication, and by restricted and repetitive behaviors. It is now considered part of the wider autism spectrum. The term 'autism' was historically used to refer specifically to Kanner autism, which is the convention used in this entry, but it is now more commonly used for the spectrum at large.
Asperger syndrome (AS), also known as Asperger's, refers to a sub-category of the autism spectrum which is no longer diagnosed, having been merged into 'autism spectrum disorder' (ASD). It is a neurodevelopmental disorder characterized by significant difficulties in social interaction and nonverbal communication, along with restricted and repetitive patterns of behavior and interests. It was said to differ from other forms of ASD by relatively unimpaired language and intelligence. The syndrome was named after the Austrian pediatrician Hans Asperger, who, in 1944, described children in his care who struggled to form friendships, did not understand others' gestures or feelings, engaged in one-sided conversations about their favourite interests, and were clumsy.
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
Neurodiversity, or ND, refers to variation in the human brain and cognition, for instance in sociability, learning, attention, mood and other mental functions. It was coined in 1998 by sociologist Judy Singer, who helped popularize the concept along with journalist Harvey Blume, and situates human cognitive variation in the context of biodiversity. This view arose out of the autism rights movement, as a challenge to prevailing views that certain things currently classified as neurodevelopmental disorders are inherently pathological. It builds on the social model of disability, in which disability arises out of societal barriers interacting with individual differences, rather people being disabled simply as a result of having impairments.. The subsequent neurodiversity paradigm has been controversial among disability advocates, with opponents arguing it risks downplaying the suffering associated with some disabilities, and calls for the acceptance of things some would wish to see treated.
The autism rights movement, also known as the autistic acceptance movement, is a social movement within the context of disability rights that emphasizes a neurodiversity paradigm, viewing the autism spectrum as a result of natural variations in the human brain rather than a "disease" to be cured. The movement advocates for several goals, including greater acceptance of autistic behaviors; services that focus on improving quality of life rather than on imitating the behaviors of neurotypical (non-autistic) peers; and the recognition of the autistic community as a minority group.
The term self-advocacy, which means speaking up for oneself and one's interests, is used as a name for civil rights movements and mutual aid networks for disabled people. The term arose in the broader civil rights movements of the 1960s and 1970s, and is part of the disability rights movement. In North America the self-advocacy movement is led by a national organization called Self Advocates Becoming Empowered (SABE) and is supported by organizations such as ACT in the United States, LiveWorkPlay in Canada and internationally through the organization People First.
Manuel F. Casanova is the SmartState Endowed Chair in Childhood Neurotherapeutics and a professor of Biomedical Sciences at the University of South Carolina School of Medicine Greenville. He is a former Gottfried and Gisela Kolb Endowed Chair in Outpatient Psychiatry and a Professor of Anatomical Sciences and Neurobiology at the University of Louisville.
Social Stories were devised as a tool to help individuals with ASD better understand the nuances of interpersonal communication so that they could "interact in an effective and appropriate manner". Although the prescribed format was meant for high functioning people with basic communication skills, the format was adapted substantially to suit individuals with poor communication skills and low level functioning. The evidence shows that there has been minimal improvement in social interaction skills. However, it is difficult to assess whether the concept would have been successful if it had been carried out as designed.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the neurodiversity movement and the Pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals afflicted with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against treatments, therapies or a cure, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular within autism advocacy and autism rights organizations.
The Autistic Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
Autism Speaks Inc. (AS) is an autism advocacy charity and the largest autism research organization in the United States. It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. It was founded in February 2005 by Bob Wright, vice chairman of General Electric, and his wife Suzanne, a year after their grandson Christian was diagnosed with autism.
World Autism Awareness Day is an internationally recognized day on April 2 every year, encouraging Member States of the United Nations to take measures to raise awareness about people with autism spectrum disorder throughout the world. It was designated by the United Nations General Assembly resolution (A/RES/62/139). World Autism Awareness Day", passed in council on 1 November 2007, and adopted on 18 December 2007. It was proposed by Mozah Bint Nasser Al-Missned, the United Nations Representative from Qatar and consort to Emir Hamad Bin Khalifa Al-Thani, and supported by all member states.
Ari Daniel Ne'eman is an American disability rights activist who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the Council's Policy & Program Evaluation Committee. Ne'eman has a diagnosis of Asperger syndrome, which made him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. As of 2019, he also is a Ph.D. candidate in Health Policy at Harvard University.
The autism spectrum is the range of neurodevelopmental conditions referred to under the umbrella of autism spectrum disorder (ASD), which are characterised by impairments in social interaction and communication, and restricted and repetitive behaviour. The term spectrum covers a wider group of conditions and differences in the type and perceived severity of symptoms, a trend which developed in the 1980s; conditions previously considered separate, such as Asperger syndrome and classic autism, are now considered part of the same autism spectrum. An alternative term, autism spectrum conditions, has been used by some to avoid perceived negativity associated with the word disorder. Related to ASD is the broad autism phenotype (BAP), in which individuals have some of the symptoms of ASD, but an insufficient number or intensity of symptoms to justify an ASD diagnosis; BAP is particularly prevalent in close blood relatives of diagnosed autistic individuals.
The Autism Science Foundation (ASF) is a non-profit organization that funds evidence-based autism research and supports autism families. The organization was founded in April 2009 by Alison Tepper Singer, a former senior executive of Autism Speaks and the longest-serving public member of the Interagency Autism Coordinating Committee (IACC), and Karen Margulis London, co-founder of the National Alliance for Autism Research. Both Singer and London are parents of autistic children.
Jonathan Mitchell is an American author and autistic blogger who writes about autism including the neuroscience of the disorder and neurodiversity movement. His novel The Mu Rhythm Bluff is about a 49-year-old autistic man who undergoes transcranial magnetic stimulation.
Thomas A. McKean is an American autistic author and lecturer. He is a poet, a singer-songwriter, an international speaker and a writer. He is the author of Soon Will Come the Light: A View From Inside the Autism Puzzle and Light On the Horizon: A Deeper View From Inside the Autism Puzzle. McKean has claimed that he did not speak until he was 16, but was able to describe how autism was like to him. He constantly fights various symptoms such as making strange noises, and says that perception of the senses causes low-intensity pain. McKean at one time earned a living traveling about and doing conferences and consulting work on autism. He has been described as having the unusual ability to be in the world of autism, yet also possesses the communication skills to describe what that world is like.
All in a Row Live is a play by Alex Oates about a family with an 11-year-old child on the autism spectrum. The play explores the experiences of the parents of a nonverbal, sometimes violent, autistic boy and the emotions that they experience on the night before he is taken to a residential school for children with disabilities.
Jill Escher is a former attorney and real estate developer. She is the head of the Escher Fund for Autism, the immediate past president of the Autism Society of America San Francisco Bay Area chapter, and the president of the National Council on Severe Autism. Escher is a graduate of Stanford University and the UC Berkeley School of Law.
Alison Singer is the president of the Autism Science Foundation (ASF). She has also served on the IACC. She was formerly an executive vice president of Autism Speaks and as a vice president at NBC.
