Neurodiversity

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Autistic art depicting the natural diversity of human minds Neurodiversity Crowd 2.png
Autistic art depicting the natural diversity of human minds

The neurodiversity paradigm is a framework for understanding human brain function that considers the diversity within sensory processing, motor abilities, social comfort, cognition, and focus as neurobiological differences. This diversity falls on a spectrum of neurocognitive differences. [1] The neurodiversity paradigm argues that diversity in neurocognition is part of humanity and that some neurodivergences generally classified as disorders, such as autism, are differences with strengths and weaknesses as well as disabilities that are not necessarily pathological. Neurotypical individuals are those who fall within the average range of functioning and thinking.

Contents

The neurodiversity movement started in the late 1980s and early 1990s with the start of Autism Network International. Much of the correspondence that led to the formation of the movement happened over autism conferences, namely the autistic-led autreat, penpal lists, and Usenet. The framework grew out of the disability rights movement and builds on the social model of disability, arguing that disability partly arises from societal barriers and person-environment mismatch, rather than attributing disability purely to inherent deficits. [2] [3] It instead situates human cognitive variation in the context of biodiversity and the politics of minority groups. [4] [5] [6] Some neurodiversity advocates and researchers including Judy Singer and Patrick Dwyer argue that the neurodiversity paradigm is the middle ground between a strong medical model and a strong social model. [7] [8] [9]

Neurodivergent individuals face unique challenges in education and the workplace. The efficacy of accessibility and support programs in career development and higher education depends on the individual. [10] [11] Social media has introduced a platform where neurodiversity awareness and support has emerged, further promoting the neurodiversity movement. [12]

The neurodiversity paradigm has been controversial among disability advocates, especially proponents of the medical model of autism, with opponents arguing it risks downplaying the challenges associated with some disabilities (e.g., in those requiring little support becoming representative of the challenges caused by the disability, thereby making it more difficult to seek desired treatment [13] ), and that it calls for the acceptance of things some wish to be treated for. [13] [14] [15] [16] [17] In recent years, to address these concerns, some neurodiversity advocates and researchers have attempted to reconcile what they consider different seemingly contradictory but arguably partially compatible perspectives. Some researchers have advocated for mixed or integrative approaches that involve both neurodiversity approaches and biomedical interventions or advancements, for example teaching functional communication (whether it be spoken or not) and treating self-injurious behaviors or co-occurring conditions like anxiety and depression with biomedical approaches. [18] [19] [20] [21] [22] [23] [24]

History

The word neurodiversity first appeared in publication in 1998, in an article by American journalist Harvey Blume, [25] as a portmanteau of the words neurological diversity, which had been used as early as 1996 in online spaces such as InLv to describe the growing concept of a natural diversity in humanity's neurological expression. [3] The same year, it was published in Judy Singer's sociology honors thesis, [26] [27] drawing on discussions on the independent living mailing list that included Blume. [28] Singer has described herself as "likely somewhere on the autistic spectrum". [26]

Blume was an early advocate who predicted the role the Internet would play in fostering the international neurodiversity movement. [29] In a New York Times piece on June 30, 1997, Blume described the foundation of neurodiversity using the term neurological pluralism. [30] Some authors [31] [32] [33] also credit the earlier work of autistic advocate Jim Sinclair in laying the foundation for the movement. Sinclair's 1993 speech "Don't Mourn For Us" emphasized autism as a way of being, claiming "it is not possible to separate the person from the autism." [34]

The Neurodiversity Movement grew largely from online interaction. The internet's design lent well to the needs of many autistic people. [35] People socialized over listservs and IRCs. Some of the websites used for organizing in the Neurodiversity Movement's early days include sites like Autistics.Org [36] [37] and Autistic People Against Neuroleptic Abuse. [38] [39] Core principles were developed from there. Principles such as advocating for the rights and autonomy of all people with brain disabilities with a focus on autism. The main conflicts from the beginning were about who the real experts on autism are, what causes autism, what interventions are appropriate, and who gets to call themselves autistic. [40] During the 2000s, people started blogs such as Mel Baggs' Ballastexistenz [41] and Kevin Leitch's Left Brain Right Brain. [42] Eventually, Autistic Self Advocacy Network (ASAN) was started by Ari Ne'eman and Scott Robertson to further align the Neurodiversity Movement with the greater disability rights movement. ASAN led the Ransom Notes Campaign [43] [44] to successfully remove stigmatizing disability ads posted by the NYU Child Study Center. This was a massive turning point for the Neurodiversity Movement. [45]

From there, the Neurodiversity Movement continued to grow with the formation of more organizations in the early 2010s such as Autistic Women & Nonbinary Network [46] and The Thinking Person's Guide to Autism. [47] More autistic people were appointed to federal advisory boards like Interagency Autism Coordinating Committee and National Council on Disability. There were various campaigns like the ongoing #StopTheShock related to the use of aversive treatment at Judge Rotenberg Center and various protests against Autism Speaks. Various flashblogs [48] [49] popped up during the 2010s to support campaigns. Annual traditions were formed such as Disability Day of Mourning [50] and Autistics Speaking Day. [51]

Damian Milton notes that, in 2014, Nick Walker attempted to define neurodiversity, the neurodiversity movement, and the neurodiversity paradigm. Walker tied neurodiversity to the idea that "all brains are to a degree unique". She also defined the movement as a rights movement, and the paradigm as a broader discussion of diversity, cultural constructions and social dynamics. [52] [53]

In recent years, the concept of neurodiversity and many related findings have gained traction among many members of the scientific community, [54] [55] who have argued that autism researchers have sometimes been too ready to interpret differences as deficits. [55] [56] [57] It has also been suggested that there are both ethical issues and practical risks in attempting to reduce or suppress some autistic traits (e.g. some stimming behaviors that do not cause harm to self or others, focused interests) that can sometimes be adaptive or instilling neurotypical behaviors (e.g. eye contact, body language) through interventions. [58] [59] Researchers and advocates are concerned about such issues and risks as most recent studies and multiple systematic reviews have indicated that higher levels of masking, passing as neurotypical, or camouflaging are generally associated with poorer mental health outcomes including depression, clinical anxiety, and suicidality among autistic people (including children, adolescents, and adults) and across various regions or cultures. [60] [61] [62] [63] [64] [65] [66] [67] [68] [69] [70] [71] [72] [73] [74] In addition, two reviews published in 2024 indicated some forms of repetitive behaviors can be adaptive for sensory regulation and emotional regulation of some autistic people, and masking or suppressing some autistic repetitive behaviors that can be adaptive may risk worsening mental health and well-being. [75] [76] One multiple-year longitudinal study found that autistic children who showed decrease in repetitive behaviors experienced more severe and worsening in mental health symptoms, whereas autistic children who showed increase in repetitive behaviors experienced less severe mental health symptoms. [77] Relatedly, qualitative studies have shown some forms of behavioral interventions increase camouflaging or masking of autistic traits (e.g. stimming) for some autistic people, with negative effects on mental health. [78] [71] [79] In addition, quantitative evidence regarding adverse effects (e.g. in terms of trauma and reinforcement of masking) of some behavioral interventions is limited but emerging. [80] [81]

Moreover, researchers have found that psychoeducation based on the medical model is associated with higher stigma. [82] Another study found that endorsements of normalization and curative goals (goals of some medical models) are associated with heightened stigma. [83] Similarly, some researchers and advocates also argue that a medicalizing approach can contribute to stigma and ableism, [84] [85] and that the persistent focus on biological research in autism based on deficit-based medical model is at odds with the priorities of those in the autism community. [55] [86] [87] [88] [89]

Autistic self-advocate and researcher Ari Ne'eman has suggested a trait-based approach, where elements of the medical (or pathology) model can be applied in treating certain traits, behaviors, or conditions that are intrinsically harmful (e.g. self-injury behaviors, epilepsy, or other co-occurring health conditions), while neurodiversity approaches can be applied to non-harmful or sometimes adaptive autistic traits (e.g. some stimming behaviors that do not result in self-injury, intense interests) of the same individual. [90] [91] Relatedly, some neurodiversity researchers, as well as autistic people, advocates and researchers, have advocated for application and sometimes integration or combination of both neurodiversity approaches and biomedical research plus practice. [18] [19] [20] [92] [21] [22] [93]

In recent years, researchers and neurodivergent people have advocated for more neurodiversity-affirming interventions, with both new intervention strategies being developed and advancements or reforms of existing intervention strategies (e.g. social skills training, ABA interventions) informed by experiences, strengths, interests, preferences, and feedback of autistic people as well as neurodiversity approaches, with some emerging evidence. [94] [95] [96] [97] [98] [99] [100] [101] [102] [70] [103] [104] [105] [106] [107] In addition, some researchers and advocates have called for more neurodiversity-affirming psychoeducation and stigma reduction methods. [108] [109] [110] [111] [112]

Neurodivergent

A hypothetical radar plot of spikey cognitive profile. Similar details can be found in Doyle, Nancy. "Neurodiversity at work: a biopsychosocial model and the impact on working adults." British medical bulletin 135, no. 1 (2020): 108-125. Spikey cognitive profile.png
A hypothetical radar plot of spikey cognitive profile. Similar details can be found in Doyle, Nancy. "Neurodiversity at work: a biopsychosocial model and the impact on working adults." British medical bulletin 135, no. 1 (2020): 108-125.

Following the rise of the autism rights movement in the 1990s, many autistic advocates, including Kassiane Asasumasu, recognized that a wide variety of people experienced the world in ways similar to autistic people, despite not being autistic. As a result, Asasumasu coined the related terms neurodivergent and neurodivergence circa 2000. [53] [114]

According to Asasumasu, neurodivergent/neurodivergence refers to those "whose neurocognitive functioning diverges from dominant societal norms in multiple ways". [53] She intended for these terms to apply to a broad variety of people, [53] [115] [116] not just people with neurodevelopmental differences, such as autism, attention-deficit hyperactivity disorder, and dyslexia. She further emphasized that it should not be used to exclude people but rather to include them. [117] This term provided activists a way to advocate increased rights and accessibility for non-autistic people who do not have typical neurocognitive functioning. [118]

Neurodivergent has been used in multiple ways since Asasumasu's conception, especially to refer specifically to individuals diagnosed with neurodevelopmental differences. [53] It is also used as an umbrella term to describe people with atypical mental and behavioral traits, such as mood, [119] personality, [120] and eating disorders. [121] Under the neurodiversity framework, these conditions are often referred to as "neurodivergencies", in an effort to move away from the medical model of disability (sometimes referred to in the neurodiversity community as the "pathology paradigm" [122] ).

Neurotypical or neuroconforming

Neurotypical (an abbreviation of neurologically typical, sometimes NT) is a neologism widely used in the neurodiversity movement as a label for anyone who has a neurotype that fits into the norm of thinking patterns. Thus, the term "neurotypical" includes anyone who is not autistic, and does not have ADHD, dyslexia, anxiety, or any other condition that would be considered neurodivergent. [123] [124] [125] The term has been adopted by both the neurodiversity movement and some members of the scientific community. [126] [127]

In contrast to some of the shortcomings of terms like "neurotypical" (such as its underlying assumption that neurodivergent experiences are an anomaly, i.e. not typical), a growing group of advocates in the neurodivergent movement prefer other terms such as "neuroconforming". [128] The term "allistic" is also used, meaning "not autistic". [129]

Neuroscience writer Mo Costandi views terms like "neurotypical" as not being of use in neuroscience [130] , while others, including Uta Frith and Francesca Happé, [131] use the term freely. Ginny Russell mentions that there is no clear bimodal distribution separating autistic and non-autistic people because many non-autistic people have some autistic traits. [132] Another criticism, that "neurotypical" was a dubious construct, because there is nobody who could be considered truly neurotypical [132] , has been said by Nick Walker to reflect a misunderstanding of the term. [133]

Early definitions described neurotypicals as individuals who do not have autism and do not meet the criteria to be diagnosed with autism. [134] [135] Early uses of NT were often satirical, as in the Institute for the Study of the Neurologically Typical, [136] [137] but it has been adopted by the neurodiversity movement too, and is now used in a serious manner. [138]

People with any form of neurocognitive or mental disorder or difference, whether congenital or acquired, have also sometimes been excluded from the neurotypical label, particularly in academic studies for specific disorders or differences that use neurotypical control groups. [139] In this sense, the term is now contrasted to neurodivergent.

Double empathy theory

Both autistic and non-autistic people can find it difficult to empathize with each other. The fact that both people in the interaction have trouble with understanding and empathy is why the theory is called the "double empathy problem". Double empathy problem image.jpg
Both autistic and non-autistic people can find it difficult to empathize with each other. The fact that both people in the interaction have trouble with understanding and empathy is why the theory is called the "double empathy problem".

The theory of the double empathy problem argues that autistic people do not inherently lack empathy as often supposed by people who see autism as pathological, but most autistic people may struggle in understanding and empathizing for non-autistic people whereas most non-autistic people also lack understanding and empathy for autistic people. It was originally conceived in 2012 by autistic scholar Damian Milton. [141] The theory argues that characteristics and experiences of autistic and non-autistic people are so different that it is hard for one to understand how the other thinks and empathize with each other; for example, non-autistic people may not understand when an autistic person is overwhelmed. [142]

An increasing number of studies in the 2010s and 2020s found support for double empathy theory and related concepts such as bidirectional social interaction. [143] [144] [145] One study comparing the conversations and socialization of autistic groups, non-autistic groups, and mixed groups found that autistic people were more able to build rapport with other autistic people than with non-autistic people, and at a level similar to the purely non-autistic group. [146] A systematic review published in 2024 found that most autistic people have good interpersonal relations and social-communication experiences with most autistic people, and interactions between autistic people are associated with better quality of life across multiple domains, including mental health and emotional well-being. [144]

The double empathy problem theory implies there is no simple fix that can help each group better empathize with each other, but it is worthwhile to bridge the double empathy gap through more equal contact and enhancing public understanding and empathy about autistic people based on neurodiversity-affirming approaches. [147] The advantage of the theory is reducing pathologization of autistic people by identifying that most people struggle to empathize with people with different neurotypes. It can also help neurotypical individuals to better understand how neurodivergent people think and empathize and to recognize their own limitations in empathizing with autistic people. [148] Jaswal and Akhtar (2019) highlight the difference between being socially uninterested and appearing socially uninterested, and challenge preconceived notions of a lack of social motivation. For example, testimonies from autistic individuals report that avoiding eye contact serves an important function of helping them to concentrate during conversation, and should not be interpreted as expressing social disinterest. [149]

Within disability rights movements

The neurodiversity paradigm was developed and embraced first by autistic people, [150] [151] but has been applied to other conditions such as attention deficit hyperactivity disorder (ADHD), developmental speech disorders, dyslexia, dysgraphia, dyspraxia, [152] dyscalculia, dysnomia, intellectual disability, obsessive–compulsive disorder (OCD), Tourette syndrome, [153] and sometimes mental illnesses such as schizophrenia, [9] [154] bipolar disorder, [155] schizoaffective disorder, and, somewhat more controversially, personality disorders such as antisocial personality disorder. [156] Neurodiversity advocates and organizations like the Autistic Self Advocacy Network (ASAN) do not agree with using medical interventions as a way to remove neurodevelopmental differences. [157] Rather, they promote support systems such as inclusion-focused services, accommodations, communication and assistive technologies, occupational training, and independent living support. [158] [157] The intention is for individuals to receive support that honors human diversity and feel that they are able to freely express themselves. Other forms of interventions may cause them to feel as though they are being coerced or forced to adapt to social norms, or to conform to a behavioral standard or clinical ideal. [159] [160]

Proponents of neurodiversity strive to reconceptualize autism and related conditions in society by acknowledging that neurodivergence is not something that needs to be cured, changing the language from the current "condition, disease, disorder, or illness"-based nomenclature, "broadening the understanding of healthy or independent living", acknowledging new types of autonomy, and giving neurodivergent individuals more control over their interventions, including the type, timing, and whether there should be interventions at all. [33] [9]

Activists such as Jennifer White-Johnson have helped bring attention to the neurodiversity movement, by creating symbols of protest and recognition, including a combination of the black power fist and infinity symbol. [161]

A 2009 study [162] separated 27 students with conditions including autism, dyslexia, developmental coordination disorder, ADHD, and having suffered a stroke into two categories of self-view: "A 'difference' view—where neurodiversity was seen as a difference incorporating a set of strengths and weaknesses, or a 'medical/deficit' view—where neurodiversity was seen as a disadvantageous medical condition". They found that, although all of the students reported uniformly difficult schooling careers involving exclusion, abuse, and bullying, those who viewed themselves from the "difference" view (41% of the study cohort) "indicated higher academic self-esteem and confidence in their abilities and many (73%) expressed considerable career ambitions with positive and clear goals". [162] Many of these students reported gaining this view of themselves through contact with neurodiversity advocates in online support groups. [162]

A 2013 online survey which aimed to assess conceptions of autism and neurodiversity suggested that conception of autism as a difference, and not a deficit, is developmentally beneficial and "transcend[s] a false dichotomy between celebrating differences and ameliorating deficit". [163]

Neurodiversity advocate John Elder Robison argues that the disabilities and strengths conferred by neurological differences may be mutually inseparable. "When 99 neurologically identical people fail to solve a problem, it's often the 1% fellow who's different who holds the key. Yet that person may be disabled or disadvantaged most or all of the time. To neurodiversity proponents, people are disabled because they are at the edges of the bell curve, not because they are sick or broken." [164]

Higher education

There are several models that are used to understand disability. There is the medical model of disability that views people as needing to be treated or cured. [165] Another model is the social model of disability, which puts emphasis on the way that society treats people with disabilities. [165] Through the social model of disability, the experiences of neurodivergent students in higher education are partially influenced by the reactions and attitudes of other students and the institution itself. [10]

Experiences of neurodivergent students

The emotional experiences of neurodivergent students in higher education depend on a combination of factors, including the type of disability, the level of support needs, and the student's access to resources and accommodations. [10] A common difficulty for neurodivergent students is maintaining social relationships, which can give rise to loneliness, anxiety, and depression. [10] There is also the added stress and difficulty of transitioning into higher education, as well as the responsibilities and task management required in college. [10] Many neurodivergent students may find that they need added support. [10] As for academics, neurodivergent students may experience difficulties in learning, executive function, managing peer relationships in the classroom or in group work, and other difficulties that can affect academic performance and success in higher education. [10] However, neurodivergent students may find that their differences are a strength and an integral part of their new social roles as adults. [10]

Higher education institutions

The typical curriculum and format of higher education may pose as a challenge for neurodivergent students, and a lack of support and flexibility from staff may further complicate the university experience. [10] Thus, reasonable adjustments are available to students who disclose their disabilities. [10] However, these adjustments or accommodations may put an emphasis on academics, and less on the various challenges of higher education on neurodivergent students. [10] For instance, neurodivergent students in higher education also report a need for non-academic supports, such as social mentorships and resources for strength-based interventions in order to further assist neurodivergent students in the social aspects of college life. [10] Similarly, career preparation that is specifically targeted for neurodivergent students is lacking. There are several programs, such as supported employment, that exist to help assist neurodivergent individuals in finding and obtaining a job. However, many of these programs do not exist in schools. This can make it difficult for neurodivergent students to find a career path that they feel is attainable for them. [165] Another consideration is the implementation of a universal design approach (UDL) when building learning spaces or communal areas that considers the needs of neurodivergent students. A UDL design incorporates a design that accommodates the needs of all students, including the neurodivergent population. [11]

According to an article published in 2023, universities and post-secondary establishments would show more tolerance towards neurodivergent people. A tolerant environment can increase autonomy, leading to kindness and understanding among students. [166] Higher education institutions offer counseling and support services to students. However, neurodivergent students face particular challenges that impair their ability to receive consistent support and care. Additionally, counseling and support services face a lack of funding, personnel, and specialists that can adequately support neurodivergent students. Overall, these services work for some students and not for others. [10]

Nachman and colleagues reviewed several articles published by two-year community colleges and found some discrepancies in the way that they perceived and categorized "disabled" students and "non-disabled" students. They found that all of the articles were attempting to normalize disability. Many of them put distinct separation between typical and atypical learners as well as their potential academic achievement. Nachman also found that many of the articles showed a lack of autonomy for neurodivergent students. They had little power in regard to academic choices and classroom management. [167]

In the workplace

Neurodivergent individuals are subjected to bias when applying and interviewing for job positions. [168] Specifically, neurodivergent individuals can have their social engagement style compared to neurotypical individuals, which can affect their ability to obtain a job position. [168] Stigmas against neurodivergence (especially against autistic individuals) and cognition challenges in social situations can hinder an individual's ability to perform well in a traditional job interview. [169] Organizations such as Specialisterne aim to use neurodivergent employees' particular skills – such as pattern recognition, detection of deviations, attention to detail, analytical thinking, and extended focus – in the workforce, as well as educate companies on supporting neurodivergent employees. [170] [171] [172]

In a systematic review that considered developmental dyslexia as "an expression of neurodiversity", it was suggested that neurodiversity is not yet an established concept in the workplace, and therefore, support from social relationships and work accommodations is minimal. [173] Furthermore, another systematic review that focused on pharmacological and combined pharmacological/psychosocial interventions for adults with attention deficit hyperactivity disorder found that there were few workplace-based intervention studies, and suggested that additional research needs to be conducted to figure out how to best support neurodivergent employees in the workplace. [174]

A study conducted during the COVID-19 pandemic suggested that neurodivergent individuals would benefit from remote work as it allowed them to engage in their interests, but that social engagement is still necessary for productivity and performance. [175] Another study supported these findings and stressed the need for redesigned work and social conditions to be more inclusive for autistic individuals. [176]

In social media

The increase of representation of the neurodiversity movement in the media came about with changes in the technology of the media platforms themselves. [102] The recent addition of text-based options on various social media sites allow disabled users to communicate, enjoy, and share at a more accessible rate. [102] Social media has a two-fold benefit to the neurodivergent community: it can help spread awareness and pioneer the neurodiversity movement, and it can also allow members of the communities themselves to connect. [177] [178]

Social media as a platform

Media platforms allow the connection of individuals of similar backgrounds to find a community of support with one another. [177] Online networking and connections allows for the user to decide their level of comfort with interactions, and allow them to retain control of a relationship with another user. For the neurodivergent community, the use of social media to create relationships has proven a useful tool for those with difficulty in social situations. [179] By connecting neurodivergent users, media platforms provide "safe spaces" that are helpful in forming relationships. [179] Some media developers have created platforms such as Blossom, which are designed specifically to connect neurodivergent users and families. [180]

Social media as a driving force

Social media also allows users to spread awareness about the neurodiversity movement. [181] Increasing awareness about mental conditions has been shown to increase the amount of factual information spread. [181] The spread of information through social media exposure can assist the neurodiversity movement in educating the public about understanding disabilities such as autism and sifting out misinformation. [178] By sharing neurodivergent experiences from a first hand perspective, social media can educate the public and destigmatize certain conditions, but negative portrayals of neurodivergence can have an obstructive impact on members of the community. [181] [182]

Challenges within media

Although representation of the neurodivergent community has grown with the help of social media platforms, those users are often criticized and misunderstood. [183] Social media has not entirely removed the social barriers that restrict inclusion of neurodivergent people. Some have reported needing to conform to the mainstream view of their disability to be seen as "authentic" users. [183] Doing so has indirectly made it more difficult for neurodivergent users to grow platforms. [183] [184] Non-disabled users evaluating the authenticity of neurodivergent users based on stereotypes shows that the neurodiversity movement has not reached its goal of inclusion. [183]

Clinical setting

Medicine and healthcare

Medical and healthcare professionals have begun to acknowledge neurodivergence among employees. [185] [186] Specifically, more groups are being created that are centered around advocacy and peer support among medical and healthcare professionals who associate themselves with neurodiversity, such as the Autistic Doctors International created by Dr. Mary Doherty. [185] Another approach is the implementation of a 5-minute video summary (5MVS) for medical learners and physicians who have attention deficit hyperactivity disorder (ADHD). [186] It consists of a 5-minute recorded video summary in which an engaging speaker presents the relevant information from a scientific article about ADHD using a brief PowerPoint presentation shared using videoconferencing technology. The researchers state that providing this educational tool for helping medical learners and physicians with ADHD acquire relevant information from scientific articles could help in addressing their inattention, impulsivity or hyperactivity, and improve their development of critical appraisal skills when working in healthcare. [186]

Similarly, healthcare systems may benefit from hiring neurodivergent individuals to gain a unique perspective when caring for patients. [187] Some healthcare staff agree that inviting neurodivergent individuals to join patient advisory groups or hiring them as staff are essential steps to acceptance and integration in the workforce. Neurodivergent people's unique strengths can be vital to health system innovation and improvement efforts. [187] One example of the push toward this is the Stanford Neurodiversity Project, in which one of their goals is to discover the strengths of neurodivergent individuals and make use of their talents to increase innovation and productivity of their society, such as working in the field of healthcare and medicine. [188]

Neurodiversity has also recently been investigated as a new way of working within neurodevelopmental clinics in the UK. [189] A team of researchers in Portsmouth, England, have created an approach in aiding neurodivergent individuals known as PANDA, or the Portsmouth Alliance Neurodiversity Approach. This approach may help medical and healthcare professionals facilitate understanding, communication and early support for children who may identify as being neurodivergent. [189]

Therapy

Neurodiversity and the role it plays in therapeutic settings has been a central focal point in recent years. Many therapists and mental health professionals have pushed for more inclusive psychotherapeutic frameworks appropriate for neurodivergent individuals. [190] [191] One example is neurodivergence-informed therapy, which reframes dysfunction as interconnectedness among society rather than strictly individual, advocating for acceptance and pride in the neurodiversity community, and the push for therapists to pursue humility regarding the knowledge and education associated with individuals who identify as neurodivergent. [190] Similarly, neurodiversity affirming therapy supports neurodivergent differences, rather than viewing them as something that should be eliminated, and to offer ways to support the individual with difficult areas, while still appreciating their needs and strengths. [191]

Therapeutic programs and interventions are also being investigated for the neurodivergent community. [192] [193] Self-determination programs to help neurodivergent individuals achieve goals in their life have been found to be successful, with neurodivergent participants finding it to be "appropriate, acceptable, and feasible". [192] Various approaches (e.g., eye-tracking, longitudinal data, computational modeling) in understanding perceptual decision-making in neurodivergent individuals are also being studied and the implications it may have in the therapeutic environment in working with the neurodivergent population. [193]

Another form of therapeutic intervention in that has been investigated in neurodivergent individuals is the use of Naturalistic Developmental Behavioral Interventions (NDBIs). [70] NDBIs have been shown to have positive effects on language and social-communication while, at the same time, respecting individuals' needs and autonomy. One of the key goals in this type of intervention is putting the focus of therapy on the neurodivergent individual themselves in the creation of intervention goals, procedures, and outcomes. In doing so, they are likely to be seen as more acceptable, useful, and effective to that individual. [70]

In addition to support from neurodiversity advocates for affirming therapies, concerns have been raised about the role of certain approaches such as applied behavior analysis. Neurodivergent individuals and activists tend to emphasize that these interventions aim to enforce conformity with expectations of society rather than addressing the needs of the person receiving the intervention. [194] While a large body of research on the role of ABA seems to support its efficacy in cognitive and behavioral outcomes, a meta-analysis by Sandbank et al. challenges the evidence. [195] Additionally, there are concerns regarding long-term mental health impacts and with the measures used in determining social validity by those who have raised these concerns. In addition to advocates from within the neurodivergent community, some behavioral analysts have begun to reconsider the role of these therapies with the context of a neurodiversity framework. [196] [194]

Reception and controversies

The neurodiversity paradigm is controversial in autism advocacy. The dominant paradigm, the medical model of disability holds that neurodivergent individuals have medical conditions which should be treated. The neurodiversity paradigm, under the understanding that differences in neural function are natural variations in function, suggests that not all neurodivergences currently classified as conditions need medical intervention. A prevalent criticism about application of the neurodiversity paradigm to autism comes from the understanding that –even with a framework of natural variance that neurodiversity includes –individuals with functional difficulties would continue to have challenges. Some critics of the neurodiversity paradigm, such as family members that are responsible for the care of an autistic individual, consider it detached from the needs of individuals that would continue to be functionally disabled through the frame of natural variation. [197]

A common criticism is that the neurodiversity paradigm is too widely encompassing and that its conception should exclude those whose functioning is more severely impaired. In response, autistic advocate Nick Walker suggested that neurodiversity refers specifically to "pervasive neurocognitive differences [...] intimately related to the formation and constitution of the self", in contrast to medical conditions such as epilepsy.

See also

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<span class="mw-page-title-main">Autism rights movement</span> Disability rights movement for autistic people

The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with the disability rights movement. It emphasizes the neurodiversity paradigm, viewing autism as a set of naturally occurring variations in human cognition, a disability with both strengths and weaknesses, rather than as a disease to be cured or a medical disorder. This paradigm contradicts and diverges from the medical model of disability, without opposing all aspects of it.

Ole Ivar Løvaas was a Norwegian-American clinical psychologist and professor at the University of California, Los Angeles. He is most well known for his research on what is now called applied behavior analysis (ABA) to teach autistic children through prompts, modeling, and positive reinforcement. His application of the science was also noted for its use of aversives (punishment) to reduce undesired behavior, which are no longer supported as a part of most ABA treatment plans.

The following outline is provided as an overview of and topical guide to autism:

<span class="mw-page-title-main">Masking (behavior)</span> Social process

In psychology and sociology, masking, also known as social camouflaging, is a defensive behavior in which an individual conceals their natural personality or behavior in response to social pressure, abuse, or harassment. Masking can be strongly influenced by environmental factors such as authoritarian parents, social rejection, and emotional, physical, or sexual abuse.

<span class="mw-page-title-main">Stimming</span> Repetitive self-stimulatory behaviour common in neurodevelopmental disorders

Self-stimulatory behavior, also known as "stimming" and self-stimulation, is the repetition of physical movements, sounds, words, moving objects, or other behaviors. Stimming is a type of restricted and repetitive behavior (RRB). Such behaviors are found to some degree in all people, but is especially intense and frequent in those with developmental disabilities, attention deficit hyperactivity disorder (ADHD) or autism. People diagnosed with sensory processing disorder are also known to potentially exhibit more stimming behaviors.

<span class="mw-page-title-main">Societal and cultural aspects of autism</span>

Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps: the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.

<span class="mw-page-title-main">Classic autism</span> Former neurodevelopmental disorder now classified under autism spectrum disorder

Classic autism, also known as childhood autism, autistic disorder, or Kanner's syndrome, is a formerly diagnosed neurodevelopmental disorder first described by Leo Kanner in 1943. It is characterized by atypical and impaired development in social interaction and communication as well as restricted, repetitive behaviors, activities, and interests. These symptoms first appear in early childhood and persist throughout life.

Autism spectrum disorder (ASD), or simply autism, is a neurodevelopmental disorder "characterized by persistent deficits in social communication and social interaction across multiple contexts" and "restricted, repetitive patterns of behavior, interests, or activities". Sensory abnormalities are also included in the diagnostic manuals. Common associated traits such as motor coordination impairment are typical of the condition but not required for diagnosis. A formal diagnosis requires that symptoms cause significant impairment in multiple functional domains; in addition, the symptoms must be atypical or excessive for the person's age and sociocultural context.

Diagnosis, treatment, and experiences of autism varies globally. Although the diagnosis of autism is rising in post-industrial nations, diagnosis rates are much lower in developing nations.

Sex and gender differences in autism exist regarding prevalence, presentation, and diagnosis.

Discrimination against autistic people involves any form of discrimination, persecution, or oppression against people who are autistic.

<span class="mw-page-title-main">Autistic masking</span> Suppression of autistic behaviors

Autistic masking, also referred to as camouflaging, is the conscious or subconscious suppression of autistic behaviors and compensation of difficulties in social interaction by autistic people, with the goal of being perceived as neurotypical. Masking behavior is a learned coping strategy that can be successful from the perspective of some autistic people, but can also lead to adverse mental health outcomes.

Current research indicates that autistic people have higher rates of LGBTQ identities and feelings than the general population. A variety of explanations for the increased prevalence of LGBTQ identities have been proposed, such as prenatal hormonal exposure, which has been linked with sexual orientation, gender dysphoria and autism. Alternatively, autistic people may be less reliant on social norms and thus are more open about their orientation or gender identity. A narrative review published in 2016 stated that while various hypotheses have been proposed for an association between autism and gender dysphoria, they lack strong evidence.

<span class="mw-page-title-main">Double empathy problem</span> Psychological theory regarding individuals on the autism spectrum

The theory of the double empathy problem is a psychological and sociological theory first coined in 2012 by Damian Milton, an autistic autism researcher. This theory proposes that many of the difficulties autistic individuals face when socializing with non-autistic individuals are due, in part, to a lack of mutual understanding between the two groups, meaning that most autistic people struggle to understand and empathize with non-autistic people, whereas most non-autistic people also struggle to understand and empathize with autistic people. This lack of mutual understanding may stem from bidirectional differences in dispositions, and experiences between autistic and non-autistic individuals, as opposed to always being an inherent deficit.

Autistic burnout is a prolonged state of intense fatigue, decreased executive functioning or life skills, and increased sensory processing sensitivity experienced by autistic people. Autistic burnout is thought to be caused by stress arising from masking or living in a neurotypical environment that is not autism-friendly. While not formally recognized as a medical condition, autistic burnout has become increasingly recognized within the autistic community and has gained attention among researchers, clinicians, and autistic people themselves as a significant aspect of the autistic experience.

Neurodivergent people present distinct issues in labor rights. They may individually or as a demographic have occupational preferences or requests for accommodation which differ from neurotypical workers. While some neurodivergent people may need workplace support in a medical model of disability, other people may only want cultural understanding in a social model of disability.

Neuroqueer theory is a framework that intersects the fields of neurodiversity and queer theory. It examines the ways society constructs and defines normalcy, particularly concerning gender, sexual orientation, and dis/ability, and challenges those constructions. It critiques the pathologization of neurodivergent individuals and the ways in which it intersects with the marginalization of queer individuals. Neuroqueer theory is reliant on a deep understanding of intersectionality, the way in which people's social, cultural, and political identities combine and result in unique combinations of privilege and discrimination.

Kassiane A. Asasumasu is an American autism rights activist who is credited for coining several terms related to the Neurodiversity Movement, including neurodivergent, neurodivergence, and caregiver benevolence. As stated in the text Neurodiversity for Dummies, "Asasumasu's work set the stage for a broader understanding and acceptance of neurological differences", which "continue[s] to be shared, shaped and formed by all sorts of people who recogniz[e] that our world should be accepting, inclusive, and accommodating of people regardless of their neurotype".

References

  1. ↑ Kapp SK, ed. (2020). Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0. ISBN   978-981-13-8436-3.[ page needed ]
  2. ↑ Dwyer P (May 2022). "The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers?". Human Development. 66 (2): 73–92. doi:10.1159/000523723. PMC   9261839 . PMID   36158596.
  3. 1 2 Botha M, Chapman R, Giwa Onaiwu M, Kapp SK, Stannard Ashley A, Walker N (March 12, 2024). "The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory". Autism. 28 (6): 1591–1594. doi: 10.1177/13623613241237871 . PMID   38470140.
  4. ↑ Manalili MA, Pearson A, Sulik J, Creechan L, Elsherif M, Murkumbi I, et al. (February 2023). "From Puzzle to Progress: How Engaging With Neurodiversity Can Improve Cognitive Science". Cognitive Science. 47 (2): e13255. doi:10.1111/cogs.13255. PMC   7616419 . PMID   36807910.
  5. ↑ "Reflections on the Neurodiversity Paradigm: What is Neurodiversity?". Reflections on the Neurodiversity Paradigm. Archived from the original on April 1, 2023. Retrieved April 12, 2022.
  6. ↑ Singer J (July 3, 2016). NeuroDiversity: The Birth of an Idea (2nd ed.). Kindle Ebook. ISBN   978-0-6481547-0-9.[ self-published source? ]
  7. ↑ Dwyer P (May 2022). "The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers?". Human Development. 66 (2): 73–92. doi:10.1159/000523723. PMC   9261839 . PMID   36158596.
  8. ↑ Oliver M, Sapey B (2006). Social work with disabled people (3rd ed.). Basingstoke, Hampshire: Palgrave Macmillan. ISBN   1-4039-1838-4. OCLC   62326930.
  9. 1 2 3 Chapman R (January 10, 2019). "Neurodiversity Theory and Its Discontents: Autism, Schizophrenia, and the Social Model of Disability". In Tekin S, Bluhm R (eds.). The Bloomsbury Companion to Philosophy of Psychiatry. Bloomsbury. pp. 371–387. ISBN   978-1-350-02406-9. Archived from the original on July 19, 2023. Retrieved May 12, 2020.
  10. 1 2 3 4 5 6 7 8 9 10 11 12 13 Clouder L, Karakus M, Cinotti A, Ferreyra MV, Fierros GA, Rojo P (October 2020). "Neurodiversity in higher education: a narrative synthesis" (PDF). Higher Education. 80 (4): 757–778. doi:10.1007/s10734-020-00513-6.
  11. 1 2 Densberger K (2021). "Book Review: Supporting Neurodiverse College Student Success: A Guide for Librarians, Student Support Services, and Academic Learning Environments". The Learning Assistance Review. 26 (2). Gale   A679898761.
  12. ↑ Akhmedova A, Sutcliffe J, Greenhow C, Fisher MH, Sung C. "Social media use among neurodivergent college students: benefits, harms and implications for education". Information and Learning Sciences. 125 (10): 850–876. doi:10.1108/ILS-01-2024-0005.
  13. 1 2 Opar A (May 6, 2019). "A medical condition or just a difference? The question roils autism community". The Washington Post . Archived from the original on December 9, 2019. Retrieved May 12, 2019.
  14. ↑ Robison JE. "The Controversy Around Autism and Neurodiversity". Psychology Today. Archived from the original on March 22, 2023. Retrieved May 14, 2019.
  15. ↑ Mcgee M (August 2012). "Neurodiversity". Contexts. 11 (3): 12–13. doi: 10.1177/1536504212456175 .
  16. ↑ Sarrett JC (April 2016). "Biocertification and Neurodiversity: the Role and Implications of Self-Diagnosis in Autistic Communities". Neuroethics. 9 (1): 23–36. doi:10.1007/s12152-016-9247-x.
  17. ↑ Bailin A. "Clearing Up Some Misconceptions about Neurodiversity". Scientific American Blog Network. Archived from the original on June 29, 2019. Retrieved April 12, 2022.
  18. 1 2 Dwyer P (2022). "The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers?". Human Development. 66 (2): 73–92. doi:10.1159/000523723. PMC   9261839 . PMID   36158596.
  19. 1 2 Dwyer P, Gurba AN, Kapp SK, Kilgallon E, Hersh LH, Chang DS, et al. (September 18, 2024). "Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions". Autism. doi:10.1177/13623613241273029. PMID   39291753.
  20. 1 2 Heraty S, Lautarescu A, Belton D, Boyle A, Cirrincione P, Doherty M, et al. (August 2023). "Bridge-building between communities: Imagining the future of biomedical autism research". Cell. 186 (18): 3747–3752. doi:10.1016/j.cell.2023.08.004. PMID   37657415.
  21. 1 2 Bölte S, Lawson WB, Marschik PB, Girdler S (September 2021). "Reconciling the seemingly irreconcilable: The WHO's ICF system integrates biological and psychosocial environmental determinants of autism and ADHD: The International Classification of Functioning (ICF) allows to model opposed biomedical and neurodiverse views of autism and ADHD within one framework". BioEssays. 43 (9): e2000254. doi: 10.1002/bies.202000254 . PMID   33797095.
  22. 1 2 Fletcher-Watson S (October 28, 2022). "Its time to embrace autistic expertise". Medium.[ self-published source? ]
  23. ↑ Leblond CS, Rolland T, Barthome E, Mougin Z, Fleury M, Ecker C, et al. (2024). "A Genetic Bridge Between Medicine and Neurodiversity for Autism". Annual Review of Genetics. 58 (1): 487–512. doi: 10.1146/annurev-genet-111523-102614 . PMID   39585908.
  24. ↑ "In Defense of the Medical Model of Neurodiversity". Forbes .
  25. ↑ Blume H (September 30, 1998). "Neurodiversity". The Atlantic. Archived from the original on January 5, 2013. Retrieved March 12, 2024.
  26. 1 2 "Meet Judy Singer Neurodiversity Pioneer". My Spectrum Suite. Archived from the original on June 6, 2019. Retrieved May 14, 2019.
  27. ↑ Singer J (February 1, 1999). "'Why can't you be normal for once in your life?' From a 'problem with no name' to the emergence of a new category of difference". In Corker M, French S (eds.). Disability Discourse. McGraw-Hill Education (UK). pp. 59–67. ISBN   978-0-335-20222-5. Archived from the original on May 13, 2024. Retrieved May 12, 2020. For me, the key significance of the 'autism spectrum' lies in its call for and anticipation of a politics of neurological diversity, or neurodiversity.
  28. ↑ Dekker M (November 8, 2019). "From Exclusion to Acceptance: Independent Living on the Autistic Spectrum". Autistic Community and the Neurodiversity Movement. Singapore: Springer Singapore. pp. 41–49. doi: 10.1007/978-981-13-8437-0_3 . ISBN   978-981-13-8436-3.
  29. ↑ Blume H (July 1, 1997). ""Autism & The Internet" or "It's The Wiring, Stupid"". Media In Transition. Massachusetts Institute of Technology. Archived from the original on April 27, 2018. Retrieved November 8, 2007. A project called CyberSpace 2000 is devoted to getting as many people as possible in the autistic spectrum hooked up by the year 2000, the reason being that "the Internet is an essential means for autistic people to improve their lives because it is often the only way they can communicate effectively."
  30. ↑ Blume H (June 30, 1997). "Autistics, freed from face-to-face encounters, are communicating in cyberspace". The New York Times. Archived from the original on January 26, 2008. Retrieved November 8, 2007. Yet, in trying to come to terms with [a neurotypical-dominated] world, autistics are neither willing nor able to give up their own customs. Instead, they are proposing a new social compact, one emphasizing neurological pluralism. [...] The consensus emerging from the Internet forums and Web sites where autistics congregate [...] is that NT is only one of many neurological configurations – the dominant one certainly, but not necessarily the best.
  31. ↑ Dinh A (2024). Don't Mourn for Us: The Autistic Life of Jim Sinclair and an Extraordinary Story of Neurodiversity. Independently published. ISBN   979-8338157381.
  32. ↑ Solomon A (May 25, 2008). "The autism rights movement". New York. Archived from the original on May 27, 2008. Retrieved May 27, 2008.
  33. 1 2 Fenton A, Krahn T (2007). "Autism, neurodiversity and equality beyond the 'normal'". Journal of Ethics in Mental Health. 2 (2): 1–6.
  34. ↑ Sinclair, Jim. Don't Mourn For Us. Archived November 9, 2019, at the Wayback Machine Autism Network International. Retrieved May 7, 2013.
  35. ↑ Dekker M (1999). "On Our Own Terms: Emerging autistic culture" (PDF). Autscape99. Archived from the original (PDF) on April 24, 2024.
  36. ↑ "Autistics.Org". 1998. Archived from the original on June 25, 2004.
  37. ↑ Tisoncik LA (2020), Kapp SK (ed.), "Autistics.Org and Finding Our Voices as an Activist Movement", Autistic Community and the Neurodiversity Movement: Stories from the Frontline, Singapore: Springer, pp. 65–76, doi: 10.1007/978-981-13-8437-0_5 , ISBN   978-981-13-8437-0
  38. ↑ Andrews D (1998). "Autistic People Against Neuroleptic Abuse". Archived from the original on April 3, 2005.
  39. ↑ Murray D (2020), Kapp SK (ed.), "Autistic People Against Neuroleptic Abuse", Autistic Community and the Neurodiversity Movement: Stories from the Frontline, Singapore: Springer, pp. 51–63, doi: 10.1007/978-981-13-8437-0_4 , ISBN   978-981-13-8437-0
  40. ↑ Ira Eidle (August 12, 2021). Introduction to the Neurodiversity Movement . Retrieved May 17, 2024– via YouTube.
  41. ↑ "Ballastexistenz". Ballastexistenz. March 9, 2018. Retrieved May 17, 2024.
  42. ↑ Leitch K (2003). "Left Brain Right Brain". Archived from the original on May 12, 2024. Retrieved May 16, 2024.
  43. ↑ "Victory! The End of the Ransom Notes Campaign - Autistic Self Advocacy Network". autisticadvocacy.org/. December 19, 2007. Retrieved May 17, 2024.
  44. ↑ Kaufman J (December 20, 2007). "Ransom-Note Ads About Children's Health Are Canceled". The New York Times. Retrieved May 17, 2024.
  45. ↑ Kras JF (December 14, 2009). "The 'Ransom Notes' Affair: When the Neurodiversity Movement Came of Age". Disability Studies Quarterly. 30 (1). doi: 10.18061/dsq.v30i1.1065 .
  46. ↑ "Autistic Women & Nonbinary Network (AWN)". awnnetwork.org/. Retrieved May 17, 2024.
  47. ↑ "THINKING PERSON'S GUIDE TO AUTISM". THINKING PERSON'S GUIDE TO AUTISM. May 12, 2024. Retrieved May 17, 2024.
  48. ↑ "#IAmNOTKelliStapleton #WalkInIssysShoes Flash Blog". iamnotkellistapletonflashblog.blogspot.com. Retrieved May 17, 2024.
  49. ↑ "Crusading Against Hate: Why I #BoycottAutismspeaks". Crusading Against Hate: Why I #BoycottAutismspeaks. July 18, 2015. Retrieved May 17, 2024.
  50. ↑ "Disability Day of Mourning – Remembering the Disabled Murdered by Caregivers" . Retrieved May 17, 2024.
  51. ↑ "Autistics Speaking Day". autisticsspeakingday.blogspot.com. Retrieved May 17, 2024.
  52. ↑ Milton D (2020). "Neurodiversity past and present – an introduction to the neurodiversity reader.". In Milton D, Ridout S, Martin N, Mills R, Murray D (eds.). The Neurodiversity Reader. Pavilion. pp. 3–6. ISBN   978-1-912755-39-4.
  53. 1 2 3 4 5 Walker N (2021). "Neurodiversity: Some Basic Terms & Definitions". Neuroqueer heresies: notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities. Fort Worth: Autonomous Press. ISBN   978-1-945955-27-3.
  54. ↑ Happé F, Frith U (March 2020). "Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research". Journal of Child Psychology and Psychiatry, and Allied Disciplines. 61 (3): 218–232. doi:10.1111/jcpp.13176. PMID   31994188.
  55. 1 2 3 Pellicano E, den Houting J (April 2022). "Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science". Journal of Child Psychology and Psychiatry, and Allied Disciplines. 63 (4): 381–396. doi:10.1111/jcpp.13534. PMC   9298391 . PMID   34730840.
  56. ↑ Dinishak J (December 2, 2016). "The Deficit View and Its Critics". Disability Studies Quarterly. 36 (4). doi:10.18061/dsq.v36i4.5236.
  57. ↑ Mottron L (November 2011). "Changing perceptions: The power of autism". Nature. 479 (7371): 33–35. Bibcode:2011Natur.479...33M. doi: 10.1038/479033a . PMID   22051659.
  58. ↑ Ne'eman A (July 2021). "When Disability Is Defined by Behavior, Outcome Measures Should Not Promote 'Passing'". AMA Journal of Ethics. 23 (7): E569 –E575. doi:10.1001/amajethics.2021.569. PMC   8957386 . PMID   34351268.
  59. ↑ Ne'eman A, Richman KA, McCarthy AM, Wilkenfeld D (November 2023). "A Passing Problem: Evaluating Harm and Benefit in Autism Research". Ethics & Human Research. 45 (6): 2–18. doi:10.1002/eahr.500188. PMID   37988276.
  60. ↑ Radulski EM (2022). "Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity" (PDF). Human Development. 66 (2): 113–127. doi:10.1159/000524122.
  61. ↑ McKinney A, o'Brien S, Maybin JA, Chan SW, Richer S, Rhodes S (2024). "Camouflaging in neurodivergent and neurotypical girls at the transition to adolescence and its relationship to mental health: A participatory methods research study". JCPP Advances. 4 (4): e12294. doi:10.1002/jcv2.12294. PMC   11669776 . PMID   39734921.
  62. ↑ Kuo YC, Ni HC, Liu CH (October 3, 2024). "The associations between self-rated autistic traits, social camouflaging, and mental health outcomes in Taiwanese anime, comics and games (ACG) doujin creators: an exploratory study". BMC Psychology. 12 (1): 531. doi: 10.1186/s40359-024-02019-7 . PMC   11451212 . PMID   39363367.
  63. ↑ Hongo M, Oshima F, Guan S, Takahashi T, Nitta Y, Seto M, et al. (June 2024). "Reliability and validity of the Japanese version of the camouflaging autistic traits questionnaire". Autism Research. 17 (6): 1205–1217. doi:10.1002/aur.3137. PMID   38661257.
  64. ↑ Lu M, Pang F, Peng T, Liu Y, Wang R (2024). "'Struggling to appear normal': A moderated mediational analysis of empathy and camouflaging in the association between autistic traits and depressive symptoms". International Journal of Developmental Disabilities. 70 (8): 1422–1432. doi:10.1080/20473869.2023.2181273. PMC   11660420 . PMID   39713512.
  65. ↑ Libsack EJ, Keenan EG, Freden CE, Mirmina J, Iskhakov N, Krishnathasan D, et al. (December 2021). "A Systematic Review of Passing as Non-autistic in Autism Spectrum Disorder". Clinical Child and Family Psychology Review. 24 (4): 783–812. doi:10.1007/s10567-021-00365-1. PMC   10613328 . PMID   34505231.
  66. ↑ Khudiakova V, Russell E, Sowden-Carvalho S, Surtees AD (October 2024). "A systematic review and meta-analysis of mental health outcomes associated with camouflaging in autistic people". Research in Autism Spectrum Disorders. 118: 102492. doi:10.1016/j.rasd.2024.102492.
  67. ↑ Keating CT, Hickman L, Geelhand P, Takahashi T, Leung J, Monk R, et al. (March 20, 2024). "Cross-cultural variation in experiences of acceptance, camouflaging and mental health difficulties in autism: A registered report". PLOS ONE. 19 (3): e0299824. Bibcode:2024PLoSO..1999824K. doi: 10.1371/journal.pone.0299824 . PMC   10954134 . PMID   38507392.
  68. ↑ Zhuang S, Tan DW, Reddrop S, Dean L, Maybery M, Magiati I (November 2023). "Psychosocial factors associated with camouflaging in autistic people and its relationship with mental health and well-being: A mixed methods systematic review". Clinical Psychology Review. 105: 102335. doi: 10.1016/j.cpr.2023.102335 . PMID   37741059.
  69. ↑ Klein J, Krahn R, Howe S, Lewis J, McMorris C, Macoun S (October 7, 2024). "A systematic review of social camouflaging in autistic adults and youth: Implications and theory". Development and Psychopathology: 1–15. doi: 10.1017/S0954579424001159 . PMID   39370528.
  70. 1 2 3 4 Schuck RK, Tagavi DM, Baiden KM, Dwyer P, Williams ZJ, Osuna A, et al. (October 2022). "Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework". Journal of Autism and Developmental Disorders. 52 (10): 4625–4645. doi:10.1007/s10803-021-05316-x. PMC   9508016 . PMID   34643863.
  71. 1 2 McGill O, Robinson A (October 26, 2021). "'Recalling hidden harms': autistic experiences of childhood applied behavioural analysis (ABA)" (PDF). Advances in Autism. 7 (4): 269–282. doi:10.1108/aia-04-2020-0025.
  72. ↑ Cook J, Hull L, Crane L, Mandy W (November 2021). "Camouflaging in autism: A systematic review". Clinical Psychology Review. 89: 102080. doi:10.1016/j.cpr.2021.102080. PMID   34563942.
  73. ↑ Ai W, Cunningham WA, Lai MC (August 2022). "Reconsidering autistic 'camouflaging' as transactional impression management". Trends in Cognitive Sciences. 26 (8): 631–645. doi:10.1016/j.tics.2022.05.002. PMID   35641372.
  74. ↑ Ne'eman A (July 2021). "When Disability Is Defined by Behavior, Outcome Measures Should Not Promote 'Passing'". AMA Journal of Ethics. 23 (7): E569 –E575. doi:10.1001/amajethics.2021.569. PMC   8957386 . PMID   34351268.
  75. ↑ Collis E, Dark E, Russell A, Brosnan M (August 30, 2024). "Self-Report of Restricted Repetitive Behaviors in Autistic Adults: A Systematic Review". Autism in Adulthood. doi:10.1089/aut.2023.0111.
  76. ↑ Lung SL, Picard È, Soulières I, Bertone A (September 2024). "Identifying the functions of restricted and repetitive behaviours and interests in Autism: A scoping review". Research in Autism Spectrum Disorders. 117: 102458. doi: 10.1016/j.rasd.2024.102458 .
  77. ↑ Waizbard-Bartov E, Ferrer E, Heath B, Andrews DS, Rogers S, Kerns CM, et al. (May 2024). "Changes in the severity of autism symptom domains are related to mental health challenges during middle childhood". Autism. 28 (5): 1216–1230. doi:10.1177/13623613231195108. PMC  10924781. PMID   37691349.
  78. ↑ McCormack L, Wong SW, Campbell LE (September 2023). "'If I don't Do It, I'm Out of Rhythm and I Can't Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood". Journal of Autism and Developmental Disorders. 53 (9): 3435–3448. doi:10.1007/s10803-022-05644-6. PMC   10465631 . PMID   35781855.
  79. ↑ Anderson LK (April 2023). "Autistic experiences of applied behavior analysis". Autism. 27 (3): 737–750. doi:10.1177/13623613221118216. PMID   35999706.
  80. ↑ https://www.liebertpub.com/doi/abs/10.1089/aut.2022.0115
  81. ↑ https://papers.ssrn.com/sol3/Delivery.cfm?abstractid=5060229
  82. ↑ Bury SM, Haschek A, Wenzel M, Spoor JR, Hedley D (November 2024). "Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma". Journal of Autism and Developmental Disorders. 54 (11): 4346–4353. doi:10.1007/s10803-022-05823-5. PMID   36443495.
  83. ↑ Gillespie-Lynch K, Kapp SK, Brooks PJ, Pickens J, Schwartzman B (2017). "Whose Expertise is It? Evidence for Autistic Adults as Critical Autism Experts". Frontiers in Psychology. 8: 438. doi: 10.3389/fpsyg.2017.00438 . PMC   5368186 . PMID   28400742.
  84. ↑ Botha M, Cage E (2022). "'Autism research is in crisis': A mixed method study of researcher's constructions of autistic people and autism research". Frontiers in Psychology. 13. doi: 10.3389/fpsyg.2022.1050897 . PMC   9730396 . PMID   36506950.
  85. ↑ Bottema-Beutel K, Kapp SK, Lester JN, Sasson NJ, Hand BN (March 2021). "Avoiding Ableist Language: Suggestions for Autism Researchers". Autism in Adulthood . 3 (1): 18–29. doi:10.1089/aut.2020.0014. PMC   8992888 . PMID   36601265.
  86. ↑ Pearson A, Surtees A, Crompton CJ, Goodall C, Pillai D, Sedgewick F, et al. (2022). "Editorial: Addressing community priorities in autism research". Frontiers in Psychology. 13. doi: 10.3389/fpsyg.2022.1040446 . hdl: 20.500.11820/1f5ee35e-4a42-4e75-9d77-aa51644d7784 . PMC   9552333 . PMID   36237673.
  87. ↑ den Houting J, Pellicano E (November 2019). "A Portfolio Analysis of Autism Research Funding in Australia, 2008–2017". Journal of Autism and Developmental Disorders. 49 (11): 4400–4408. doi:10.1007/s10803-019-04155-1. PMID   31375971.
  88. ↑ Frazier TW, Dawson G, Murray D, Shih A, Sachs JS, Geiger A (November 2018). "Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders". Journal of Autism and Developmental Disorders. 48 (11): 3965–3971. doi:10.1007/s10803-018-3642-6. PMID   29948533.
  89. ↑ Jose C, George-Zwicker P, Tardif L, Bouma A, Pugsley D, Pugsley L, et al. (2020). ""We are the stakeholders with the most at stake": scientific and autism community co-researchers reflect on their collaborative experience in the CONNECT project". Research Involvement and Engagement. 6: 58. doi: 10.1186/s40900-020-00233-2 . PMC   7520966 . PMID   33005439.
  90. ↑ Ne'eman A, Pellicano E (May 2022). "Neurodiversity as Politics". Human Development. 66 (2): 149–157. doi: 10.1159/000524277 . PMC   9881465 . PMID   36714278.
  91. ↑ Charlton RA, Entecott T, Belova E, Nwaordu G (2021). "'It feels like holding back something you need to say': Autistic and Non-Autistic Adults accounts of sensory experiences and stimming" (PDF). Research in Autism Spectrum Disorders. 89: 101864. doi:10.1016/j.rasd.2021.101864.
  92. ↑ Kapp SK, ed. (2020). Autistic Community and the Neurodiversity Movement. doi:10.1007/978-981-13-8437-0. hdl:20.500.12657/23177. ISBN   978-981-13-8436-3.[ page needed ]
  93. ↑ Kwok K, Kwok DK (November 2020). "More than comfort and discomfort: Emotion work of parenting children with autism in Hong Kong". Children and Youth Services Review. 118: 105456. doi:10.1016/j.childyouth.2020.105456.
  94. ↑ Lee EA, Black MH, Falkmer M, Tan T, Sheehy L, Bölte S, et al. (September 2020). "'We Can See a Bright Future': Parents' Perceptions of the Outcomes of Participating in a Strengths-Based Program for Adolescents with Autism Spectrum Disorder". Journal of Autism and Developmental Disorders. 50 (9): 3179–3194. doi:10.1007/s10803-020-04411-9. PMID   32076957.
  95. ↑ McDonald TA, Lalani S, Chen I, Cotton CM, MacDonald L, Boursoulian LJ, et al. (August 2023). "Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults". Journal of Autism and Developmental Disorders. 53 (8): 2933–2953. doi:10.1007/s10803-022-05598-9. PMC   9934918 . PMID   35618972.
  96. ↑ Afsharnejad B, Lee EA, Hayden-Evans M, Black MH, Alach T, Fridell A, et al. (January 2024). "Adaptation and Feasibility of KONTAKT™ Social Skills Toolbox Group Program for Australian Autistic Children". Scandinavian Journal of Child and Adolescent Psychiatry and Psychology. 12 (1). doi:10.2478/sjcapp-2024-0011. PMC   11622807 . PMID   39649127.
  97. ↑ Harrop C, Amsbary J, Towner-Wright S, Reichow B, Boyd BA (January 2019). "That's what I like: The use of circumscribed interests within interventions for individuals with autism spectrum disorder. A systematic review". Research in Autism Spectrum Disorders. 57: 63–86. doi:10.1016/j.rasd.2018.09.008.
  98. ↑ Murthi K, Chen YL, Shore S, Patten K (March 2023). "Strengths-Based Practice to Enhance Mental Health for Autistic People: A Scoping Review". The American Journal of Occupational Therapy. 77 (2). doi:10.5014/ajot.2023.050074.
  99. ↑ Allen LL, Mellon LS, Syed N, Johnson JF, Bernal AJ (March 25, 2024). "Neurodiversity-Affirming Applied Behavior Analysis". Behavior Analysis in Practice. doi: 10.1007/s40617-024-00918-0 .
  100. ↑ Hull L, Rane S, Lee SH, Sedgewick F (March 22, 2024). "'Just Ask What Support We Need': Autistic Adults' Feedback on Social Skills Training". Autism in Adulthood. doi:10.1089/aut.2023.0136.
  101. ↑ Lee EA, Scott M, Black MH, D'Arcy E, Tan T, Sheehy L, et al. (May 2024). "'He Sees his Autism as a Strength, Not a Deficit Now': A Repeated Cross-Sectional Study Investigating the Impact of Strengths-Based Programs on Autistic Adolescents". Journal of Autism and Developmental Disorders. 54 (5): 1656–1671. doi:10.1007/s10803-022-05881-9. PMC   9900207 . PMID   36745275.
  102. 1 2 3 Leadbitter K, Buckle KL, Ellis C, Dekker M (2021). "Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice". Frontiers in Psychology. 12: 635690. doi: 10.3389/fpsyg.2021.635690 . PMC   8075160 . PMID   33912110.
  103. ↑ Schuck RK, Geng A, Doss Y, Lin F, Crousore H, Baiden KM, et al. (January 2024). "A qualitative investigation into autistic adults' perspectives on intervention goals for autistic children". Neurodiversity. 2. doi:10.1177/27546330241266718.
  104. ↑ Cullingham T, Rennard U, Creswell C, Milton D, Buckle KL, Godber L, et al. (August 13, 2024). "The process of co-design for a new anxiety intervention for autistic children". JCPP Advances. doi:10.1002/jcv2.12255.
  105. ↑ Bernhardt JB, Lam GY, Thomas T, Cubells JF, Bohlke K, Reid M, et al. (September 1, 2020). "Meaning in Measurement: Evaluating Young Autistic Adults' Active Engagement and Expressed Interest in Quality-of-Life Goals". Autism in Adulthood. 2 (3): 227–242. doi:10.1089/aut.2019.0081. PMC   8992872 . PMID   36601444.
  106. ↑ Dallman AR, Williams KL, Villa L (April 15, 2022). "Neurodiversity-Affirming Practices are a Moral Imperative for Occupational Therapy". The Open Journal of Occupational Therapy. 10 (2): 1–9. doi: 10.15453/2168-6408.1937 .
  107. ↑ Dallman A, Williams K, Boheler J, Boheler G (October 15, 2024). "Moving Toward Neurodiversity-Affirming Occupational Therapy for Autistic People: Key Questions and Next Steps". The Open Journal of Occupational Therapy. 12 (4): 1–7. doi: 10.15453/2168-6408.2244 .
  108. ↑ Scheerer NE, Ng CS, Gurba AN, McNair ML, Lerner MD, Hargreaves A (December 4, 2024). "Editorial: Break the stigma: autism". Frontiers in Psychiatry. 15. doi: 10.3389/fpsyt.2024.1513447 . PMC   11653068 . PMID   39698208.
  109. ↑ Gurba AN, McNair ML, Hargreaves A, Scheerer NE, Ng CS, Lerner MD (November 6, 2024). "Editorial: Break the stigma: autism. The future of research on autism stigma - towards multilevel, contextual & global understanding". Frontiers in Psychiatry. 15. doi: 10.3389/fpsyt.2024.1504429 . PMC   11576309 . PMID   39568760.
  110. ↑ Van Den Plas L, Vanaken GJ, Steyaert J, Hens K, Noens I (June 2024). "Towards a neurodiversity-affirmative conceptualisation of psycho-education in the context of autism". Research in Autism Spectrum Disorders. 114: 102391. doi:10.1016/j.rasd.2024.102391.
  111. ↑ Schuck RK, Fung LK (January 10, 2024). "A dual design thinking – universal design approach to catalyze neurodiversity advocacy through collaboration among high-schoolers". Frontiers in Psychiatry. 14. doi: 10.3389/fpsyt.2023.1250895 . PMC   10806093 . PMID   38268559.
  112. ↑ Cheng Y, Dwyer P, Keating CT (November 2, 2024). "Factors underlying differences in knowledge, explicit stigma and implicit biases towards autism across Hong Kong, the United Kingdom and the United States". Autism. doi: 10.1177/13623613241290565 . PMID   39487729.
  113. ↑ Doyle N (October 14, 2020). "Neurodiversity at work: a biopsychosocial model and the impact on working adults". British Medical Bulletin. 135 (1): 108–125. doi:10.1093/bmb/ldaa021. PMC   7732033 . PMID   32996572.
  114. ↑ Thompson R (September 3, 2020). "Disability Justice Advocate and Writer Lydia X. Z. Brown on Autism and Neurodivergence". ROOM Magazine . Archived from the original on March 4, 2024. Retrieved March 4, 2024.
  115. ↑ "Neurodivergence". University of Massachusetts Office of the President. Archived from the original on March 4, 2024. Retrieved March 4, 2024.
  116. ↑ Coates S (October 25, 2022). "Neurodiversity in the Voice Studio, Clinic, and Performance Space: Using a Neurodiversity Affirming Lens to Build More Inclusive Spaces for Singers. Part 1, Current Understanding of Neurodiversity". Journal of Singing. 79 (2): 213–219. doi:10.53830/VHSX6387. Project MUSE   867856.
  117. ↑ Chapman R (August 18, 2021). "Negotiating the Neurodiversity Concept". Psychology Today . Archived from the original on March 8, 2024. Retrieved March 4, 2024.
  118. ↑ Liebowitz C (March 4, 2016). "Here's What Neurodiversity Is – And What It Means For Feminism". Everyday Feminism. Archived from the original on March 4, 2024. Retrieved March 8, 2024.
  119. ↑ Adams D, Kaliss N, Missner A, Valentine MM (2021). "The Interplay of Nicotine and Social Stress Mediate Dopaminergic Neuron Firing in the Ventral Tegmental Area - Nucleus Accumbens Pathway, Contributing to Stress andDepressive Mood Disorder". Georgetown Scientific Research Journal: 70–83. doi: 10.48091/SUVN5250 .
  120. ↑ Homan P, Reddan MC, Brosch T, Koenigsberg HW, Schiller D (November 2017). "Aberrant link between empathy and social attribution style in borderline personality disorder". Journal of Psychiatric Research. 94: 163–171. doi: 10.1016/j.jpsychires.2017.07.012 . PMID   28735169.
  121. ↑ Corsi E, Cardi V, Sowden S, Coll MP, Cascino G, Ricca V, et al. (August 2021). "Socio-cognitive processing in people with eating disorders: Computerized tests of mentalizing, empathy and imitation skills". The International Journal of Eating Disorders. 54 (8): 1509–1518. doi:10.1002/eat.23556. PMC   8453969 . PMID   34056730.
  122. ↑ Simpson E, Dalal S, Semaan B (April 14, 2023). "'Hey, Can You Add Captions?': The Critical Infrastructuring Practices of Neurodiverse People on TikTok". Proceedings of the ACM on Human-Computer Interaction. 7 (CSCW1): 1–27. arXiv: 2212.06204 . doi: 10.1145/3579490 .
  123. ↑ "Advice | He's been diagnosed with autism. Is it too late to keep his job?". Washington Post. Archived from the original on March 14, 2023. Retrieved March 30, 2023.
  124. ↑ "Neurotypical". Cambridge English Dictionary. Archived from the original on February 21, 2023. Retrieved May 23, 2022.
  125. ↑ Walker N (2021). Neuroqueer Heresies. Autonomous Press. p. 40. ISBN   978-1-945955-26-6.
  126. ↑ Hare DJ, Jones S, Evershed K (November 2006). "A comparative study of circadian rhythm functioning and sleep in people with Asperger syndrome". Autism. 10 (6): 565–575. doi:10.1177/1362361306068509. PMID   17088273.
  127. ↑ O'Connor K, Hamm JP, Kirk IJ (October 2005). "The neurophysiological correlates of face processing in adults and children with Asperger's syndrome". Brain and Cognition. 59 (1): 82–95. doi:10.1016/j.bandc.2005.05.004. PMID   16009478.
  128. ↑ Legault M, Bourdon JN, Poirier P (December 2021). "From neurodiversity to neurodivergence: the role of epistemic and cognitive marginalization". Synthese. 199 (5–6): 12843–12868. doi:10.1007/s11229-021-03356-5.
  129. ↑ "Allistic". Cambridge English Dictionary. Archived from the original on November 30, 2022. Retrieved April 18, 2022.
  130. ↑ Timberlake H (October 10, 2019). "Why there is no such thing as a 'normal' brain". BBC.
  131. ↑ Happé F, Frith U (2020). "Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research". Journal of Child Psychology and Psychiatry. 61 (3): 218–232. doi:10.1111/jcpp.13176. ISSN   1469-7610.
  132. 1 2 Russell G (2020). "Critiques of the Neurodiversity Movement". Autistic Community and the Neurodiversity Movement. pp. 287–303. doi:10.1007/978-981-13-8437-0_21. ISBN   978-981-13-8436-3.
  133. ↑ Walker N (2021). "Defining Neurotypicality & Neurodivergence". Neuroqueer heresies: notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities. Fort Worth: Autonomous Press. ISBN   978-1-945955-27-3.
  134. ↑ "Language and abbreviations". June 6, 2008. Archived from the original on June 6, 2008. Retrieved April 19, 2022.[ self-published source? ]
  135. ↑ Arnold L (October 7, 2017). "A brief history of "Neurodiversity" as a concept and perhaps a movement". Autonomy, the Critical Journal of Interdisciplinary Autism Studies. 1 (5). Archived from the original on December 1, 2022. Retrieved December 30, 2022.
  136. ↑ Tisoncik LA (2020). "Autistics.Org and Finding Our Voices as an Activist Movement". In Kapp SK (ed.). Autistic Community and the Neurodiversity Movement. Singapore: Springer. pp. 65–76. doi: 10.1007/978-981-13-8437-0_5 . ISBN   978-981-13-8437-0.
  137. ↑ Blume H (September 30, 1998). "Neurodiversity". The Atlantic. Archived from the original on January 5, 2013. Retrieved April 19, 2022.
  138. ↑ Walker N (2021). Neuroqueer heresies: notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities. Autonomous Press. pp. 33–46. ISBN   978-1-945955-26-6. OCLC   1287945422. Archived from the original on December 30, 2022. Retrieved December 30, 2022.
  139. ↑ McNaughton R, Pieper C, Sakai O, Rollins JV, Zhang X, Kennedy DN, et al. (August 2022). "Quantitative MRI Characterization of the Extremely Preterm Brain at Adolescence: Atypical versus Neurotypical Developmental Pathways". Radiology. 304 (2): 419–428. doi:10.1148/radiol.210385. PMC   9340244 . PMID   35471112.
  140. ↑ Crompton CJ, DeBrabander K, Heasman B, Milton D, Sasson NJ (May 11, 2021). "Double Empathy: Why Autistic People Are Often Misunderstood". Frontiers for Young Minds . 9: 554875. doi: 10.3389/frym.2021.554875 . hdl: 20.500.11820/94ee032a-6103-470a-bc06-08337dd6b512 .
  141. ↑ Milton DE (October 2012). "On the ontological status of autism: the 'double empathy problem'" (PDF). Disability & Society. 27 (6): 883–887. doi:10.1080/09687599.2012.710008.
  142. ↑ DeThorne LS (April 2020). "Revealing the Double Empathy Problem: It's not that autistic* people lack empathy. Rather, their different neurotypes and experiences may make it harder for nonautisic people to understand them—and vice versa". The ASHA Leader. 25 (3): 58–65. doi: 10.1044/leader.FTR2.25042020.58 .
  143. ↑ Mezzenzana F, Peluso D, eds. (2023). "Autism and the 'double empathy problem'". Conversations on Empathy. pp. 83–87. doi:10.4324/9781003189978. ISBN   978-1-003-18997-8.
  144. 1 2 Watts G, Crompton C, Grainger C, Long J, Botha M, Somerville M, et al. (June 3, 2024). "'A certain magic' – autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis". Autism. doi:10.1177/13623613241255811. PMID   38829019.
  145. ↑ Mitchell P, Sheppard E, Cassidy S (March 2021). "Autism and the double empathy problem: Implications for development and mental health". British Journal of Developmental Psychology. 39 (1): 1–18. doi:10.1111/bjdp.12350. PMID   33393101.
  146. ↑ Rifai OM, Fletcher-Watson S, Jiménez-Sánchez L, Crompton CJ (March 2022). "Investigating Markers of Rapport in Autistic and Nonautistic Interactions". Autism in Adulthood . 4 (1): 3–11. doi:10.1089/aut.2021.0017. PMC   8992924 . PMID   36600904.
  147. ↑ Schuck RK, Fung LK (2024). "A dual design thinking – universal design approach to catalyze neurodiversity advocacy through collaboration among high-schoolers". Frontiers in Psychiatry. 14. doi: 10.3389/fpsyt.2023.1250895 . PMC   10806093 . PMID   38268559.
  148. ↑ "The double empathy problem". www.autism.org.uk. Archived from the original on March 30, 2023. Retrieved June 3, 2023.
  149. ↑ Jaswal VK, Akhtar N (June 2018). "Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism". The Behavioral and Brain Sciences. 42: e82. doi:10.1017/s0140525x18001826. PMID   29914590.
  150. ↑ Jaarsma P, Welin S (March 2012). "Autism as a natural human variation: reflections on the claims of the neurodiversity movement". Health Care Analysis. 20 (1): 20–30. doi:10.1007/s10728-011-0169-9. PMID   21311979.
  151. ↑ Woodford G (2006). "'We Don't Need to be Cured' Autistics Say". National Review of Medicine. 3 (8). Archived from the original on March 3, 2016.
  152. ↑ Arnold L (2020). "Autonomy, the Critical Journal of Interdisciplinary Autism Studies". In Kapp SK (ed.). Autistic Community and the Neurodiversity Movement: Stories from the Frontline. Singapore: Springer. pp. 211–220. doi:10.1007/978-981-13-8437-0_15. ISBN   978-981-13-8437-0.
  153. ↑ Mackenzie R, Watts J (January 31, 2011). "Is our legal, health care and social support infrastructure neurodiverse enough? How far are the aims of the neurodiversity movement fulfilled for those diagnosed with cognitive disability and learning disability?". Tizard Learning Disability Review. 16 (1): 30–37. doi:10.5042/tldr.2011.0005. We recommend, therefore, that the term neurodiverse include the conditions ASD, ADHD, OCD, language disorders, developmental coordination disorder, dyslexia and Tourette's syndrome.
  154. ↑ Morrice P (January 29, 2006). "Otherwise Minded". The New York Times. Archived from the original on November 21, 2015. Retrieved February 11, 2017. review of A Mind Apart: Travels in a Neurodiverse World
  155. ↑ Antonetta S (2005). A mind apart: travels in a neurodiverse world. New York: Jeremy P. Tarcher/Penguin. ISBN   1-58542-382-3. OCLC   60671914.[ page needed ]
  156. ↑ Anton AL (2014). "The Virtue of Sociopaths: how to appreciate the neurodiversity of sociopathy without becoming a victim". In Perry A, Yankowski A (eds.). Ethics and Neurodiversity. Cambridge Scholars Publishing. pp. 111–130. ISBN   978-1-4438-6759-7.
  157. 1 2 "What We Believe - Autistic Self Advocacy Network". 2021. Archived from the original on February 12, 2022. Retrieved September 30, 2023.
  158. ↑ Leadbitter K, Buckle KL, Ellis C, Dekker M (April 12, 2021). "Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice". Frontiers in Psychology. 12: 635690. doi: 10.3389/fpsyg.2021.635690 . PMC   8075160 . PMID   33912110.
  159. ↑ "What is Neurodiversity?". National Symposium on Neurodiversity at Syracuse University. 2011. Archived from the original on April 16, 2019. Retrieved October 2, 2012.
  160. ↑ Subramanyam AA, Mukherjee A, Dave M, Chavda K (January 2019). "Clinical Practice Guidelines for Autism Spectrum Disorders". Indian Journal of Psychiatry. 61 (Suppl 2): 254–269. doi: 10.4103/psychiatry.IndianJPsychiatry_542_18 . PMC   6345133 . PMID   30745701.
  161. ↑ Lupton E, Kafei F, Tobias J, Halstead JA, Sales K, Xia L, et al. (2021). Extra bold: a feminist inclusive anti-racist nonbinary field guide for graphic designers (First ed.). Hudson, NY: Princeton Architectural Press. ISBN   978-1-61689-918-9.[ page needed ]
  162. 1 2 3 Griffin E, Pollak D (February 2009). "Student experiences of neurodiversity in higher education: insights from the BRAINHE project". Dyslexia. 15 (1): 23–41. doi:10.1002/dys.383. PMID   19140120.
  163. ↑ Kapp SK, Gillespie-Lynch K, Sherman LE, Hutman T (January 2013). "Deficit, difference, or both? Autism and neurodiversity". Developmental Psychology. 49 (1): 59–71. doi:10.1037/a0028353. PMID   22545843.
  164. ↑ Robison JE (October 7, 2013). "What Is Neurodiversity?". Psychology Today. Archived from the original on May 13, 2024.
  165. 1 2 3 Kwon Ck, Guadalupe SS, Archer M, Groomes DA (August 2023). "Understanding career development pathways of college students with disabilities using crip theory and the theory of whole self". Journal of Diversity in Higher Education. 16 (4): 520–525. doi:10.1037/dhe0000464.
  166. ↑ Hamilton LG, Petty S (February 16, 2023). "Compassionate pedagogy for neurodiversity in higher education: A conceptual analysis". Frontiers in Psychology. 14. doi: 10.3389/fpsyg.2023.1093290 . PMC   9978378 . PMID   36874864.
  167. ↑ Nachman BR, Brown KR (August 2024). "Crip places: Dismantling disability discourse in the 2-year college literature". Journal of Diversity in Higher Education. 17 (4): 634–647. doi:10.1037/dhe0000443.
  168. 1 2 Whelpley CE, May CP (April 2023). "Seeing is Disliking: Evidence of Bias Against Individuals with Autism Spectrum Disorder in Traditional Job Interviews". Journal of Autism and Developmental Disorders. 53 (4): 1363–1374. doi:10.1007/s10803-022-05432-2. PMID   35294714.
  169. ↑ Willis C, Powell-Rudy T, Colley K, Prasad J (November 2021). "Examining the Use of Game-Based Assessments for Hiring Autistic Job Seekers". Journal of Intelligence. 9 (4): 53. doi: 10.3390/jintelligence9040053 . PMC   8628896 . PMID   34842751.
  170. ↑ "Specialisterne & SAP: A partnership for access to markets, multiple countries/ Denmark". Boosting Social Enterprise Development. Local Economic and Employment Development (LEED). 2017. pp. 215–223. doi:10.1787/9789264268500-22-en. ISBN   978-92-64-26849-4.
  171. ↑ Moran G (December 7, 2019). "Companies Like Microsoft and Goldman Sachs Are Hiring More Neurodiverse Talent". Fortune . Retrieved July 7, 2024.
  172. ↑ "Neurodiversity inclusion projects". Specialisterne Brasil. Retrieved July 7, 2024.
  173. ↑ de Beer J, Heerkens Y, Engels J, van der Klink J (May 2022). "Factors relevant to work participation from the perspective of adults with developmental dyslexia: a systematic review of qualitative studies". BMC Public Health. 22 (1): 1083. doi: 10.1186/s12889-022-13436-x . PMC   9158268 . PMID   35642026.
  174. ↑ Lauder K, McDowall A, Tenenbaum HR (2022). "A systematic review of interventions to support adults with ADHD at work – Implications from the paucity of context-specific research for theory and practice". Frontiers in Psychology. 13: 893469. doi: 10.3389/fpsyg.2022.893469 . PMC   9443814 . PMID   36072032.
  175. ↑ Goldfarb Y, Gal E, Golan O (January 2022). "Implications of Employment Changes Caused by COVID-19 on Mental Health and Work-Related Psychological Need Satisfaction of Autistic Employees: A Mixed-Methods Longitudinal Study". Journal of Autism and Developmental Disorders. 52 (1): 89–102. doi:10.1007/s10803-021-04902-3. PMC   7908957 . PMID   33635422.
  176. ↑ Tomczak MT, Mpofu E, Hutson N (September 2022). "Remote Work Support Needs of Employees with Autism Spectrum Disorder in Poland: Perspectives of Individuals with Autism and Their Coworkers". International Journal of Environmental Research and Public Health. 19 (17): 10982. doi: 10.3390/ijerph191710982 . PMC   9518488 . PMID   36078696.
  177. 1 2 Wang T, Garfield M, Wisniewski P, Page X (October 17, 2020). "Conference Companion Publication of the 2020 on Computer Supported Cooperative Work and Social Computing". Conference Companion Publication of the 2020 on Computer Supported Cooperative Work and Social Computing. New York: Association for Computing Machinery. pp. 419–424. doi:10.1145/3406865.3418322. ISBN   978-1-4503-8059-1.
  178. 1 2 Gabarron E, Dechsling A, Skafle I, Nordahl-Hansen A (March 2022). "Discussions of Asperger Syndrome on Social Media: Content and Sentiment Analysis on Twitter". JMIR Formative Research. 6 (3): e32752. doi: 10.2196/32752 . PMC   8938830 . PMID   35254265.
  179. 1 2 Brownlow C, Bertilsdotter Rosqvist H, O'Dell L (November 2, 2015). "Exploring the potential for social networking among people with autism: challenging dominant ideas of 'friendship'". Scandinavian Journal of Disability Research. 17 (2): 188–193. doi: 10.1080/15017419.2013.859174 .
  180. ↑ "Blossom: An App for the Neurodiverse Community". The Lakshmi Mittal and Family South Asia Institute. January 26, 2022. Archived from the original on May 29, 2022. Retrieved April 11, 2022.
  181. 1 2 3 Calhoun AJ, Gold JA (April 2020). "'I Feel Like I Know Them': the Positive Effect of Celebrity Self-disclosure of Mental Illness". Academic Psychiatry. 44 (2): 237–241. doi: 10.1007/s40596-020-01200-5 . PMID   32100256.
  182. ↑ Stuart H (February 1, 2006). "Media portrayal of mental illness and its treatments: what effect does it have on people with mental illness?". CNS Drugs. 20 (2): 99–106. doi:10.2165/00023210-200620020-00002. PMID   16478286.
  183. 1 2 3 4 Bitman N (February 2022). "'Authentic' digital inclusion? Dis/ability performances on social media by users with concealable communicative disabilities". New Media & Society. 24 (2): 401–419. doi:10.1177/14614448211063183.
  184. ↑ Salisbury M, Pooley J (January 20, 2017). "The #nofilter Self: The Contest for Authenticity among Social Networking Sites, 2002–2016". Social Sciences. 6 (1): 10. doi: 10.3390/socsci6010010 .
  185. 1 2 Duong D, Vogel L (July 2022). "Untapped potential: embracing neurodiversity in medicine". CMAJ. 194 (27): E951 –E952. doi:10.1503/cmaj.1096006. PMC   9299741 . PMID   35851534.
  186. 1 2 3 Im DS, Tamarelli CM (2023). "Attention Deficit Hyperactivity Disorder in Medical Learners and Physicians and a Potentially Helpful Educational Tool". Advances in Medical Education and Practice. 14: 435–442. doi: 10.2147/AMEP.S398196 . PMC   10149068 . PMID   37131931.
  187. 1 2 "Embracing Neurodiversity in Our Health Systems". www.aap.org. Retrieved October 26, 2023.
  188. ↑ "Stanford Neurodiversity Project". Stanford Neurodiversity Project (in Samoan). Retrieved October 26, 2023.
  189. 1 2 Dunn ZD, Gowda A, Horsfall Turner IC (January 2024). "The viability of a proposed psychoeducational neurodiversity approach in children services: The PANDA (the Portsmouth alliance's neuro-diversity approach)". Clinical Child Psychology and Psychiatry. 29 (1): 198–212. doi:10.1177/13591045231184121. PMID   37311174.
  190. 1 2 Chapman R, Botha M (March 2023). "Neurodivergence-informed therapy". Developmental Medicine and Child Neurology. 65 (3): 310–317. doi:10.1111/dmcn.15384. PMID   36082483.
  191. 1 2 Healey G (2023). "What is neurodiversity affirming therapy?". Lawson Clinical Psychology. Archived from the original on November 28, 2023. Retrieved October 22, 2023.
  192. 1 2 McDonald TA, Lalani S, Chen I, Cotton CM, MacDonald L, Boursoulian LJ, et al. (August 2023). "Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults". Journal of Autism and Developmental Disorders. 53 (8): 2933–2953. doi:10.1007/s10803-022-05598-9. PMC   9934918 . PMID   35618972.
  193. 1 2 Manning C, Scerif G (August 2023). "Understanding perceptual decisions by studying development and neurodiversity". Current Directions in Psychological Science. 32 (4): 300–306. doi:10.1177/09637214231162369. PMC   7614885 . PMID   37547284.
  194. 1 2 Leaf JB, Cihon JH, Leaf R, McEachin J, Liu N, Russell N, et al. (June 2022). "Concerns About ABA-Based Intervention: An Evaluation and Recommendations". Journal of Autism and Developmental Disorders. 52 (6): 2838–2853. doi:10.1007/s10803-021-05137-y. PMC   9114057 . PMID   34132968.
  195. ↑ Sandbank M, Bottema-Beutel K, Crowley S, Cassidy M, Dunham K, Feldman JI, et al. (January 2020). "Project AIM: Autism intervention meta-analysis for studies of young children". Psychological Bulletin. 146 (1): 1–29. doi:10.1037/bul0000215. ISSN   1939-1455. PMC   8783568 . PMID   31763860.
  196. ↑ Shkedy G, Shkedy D, Sandoval-Norton AH (June 2021). "Long-term ABA Therapy Is Abusive: A Response to Gorycki, Ruppel, and Zane". Advances in Neurodevelopmental Disorders. 5 (2): 126–134. doi: 10.1007/s41252-021-00201-1 . ISSN   2366-7532.
  197. ↑ Dwyer P (2022). "The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers?". Human Development. 66 (2): 73–92. doi:10.1159/000523723. PMC   9261839 . PMID   36158596.

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