Damian Milton

Last updated

Damian Milton
BornAugust 1973 (age 50)
CitizenshipBritish
Alma mater
Known for Autism research, double empathy problem
Scientific career
Fields
Institutions University of Kent
Thesis Educational Discourse and the Autistic Student: A Study Using Q-sort Methodology  (2015)

Damian Elgin Maclean Milton (born August 1973 [1] ) is a British sociologist and social psychologist who specialises in autism research and an autism rights advocate. He is a lecturer at the University of Kent as well as a consultant for the United Kingdom's National Autistic Society and has academic qualifications in sociology, psychology, philosophy, and education. [2] [3] :13

Contents

Milton's interest in autism began when his son was diagnosed as autistic in 2005 at two years old. Milton himself was diagnosed with Asperger syndrome in 2009 at the age of 36. [3] :13 [4]

Milton is best known for his "double empathy problem" theory first published in 2012, [5] [6] [7] which is the idea that, contrary to what previous studies in the late 20th century had concluded, autistic people are not inherently deficient in empathy but rather that autistic and non-autistic people bidirectionally struggle with empathy and communicating with one another. [8] [9] [10] While the concept had existed in earlier discourse, dating back to arguments voiced by activists like Jim Sinclair since the 1990s, Milton named and significantly expanded on it. [3] :10 [10]

Milton has co-authored over 250 publications [2] related to autism. His work is influenced by the social model of disability, [3] :10–12 [7] and many of his publications deconstruct and critically analyse past theories. For example, he has argued that self-stimulatory behavior (stimming) should be viewed positively and may help autistic people achieve flow states. [11] His work has been favourably received by the academic [9] [10] [12] as well as the autistic community. [6] [13]

He has spoken out against the Spectrum 10K project, questioning whether it truly was contributing to the well-being of autistic people. [14]

Selected works

Journal articles

Books

Related Research Articles

<span class="mw-page-title-main">Asperger syndrome</span> Neurodevelopmental diagnosis now categorized under Autism Spectrum Disorder

Asperger syndrome (AS), also known as Asperger's syndrome, formerly described a neurodevelopmental disorder characterized by significant difficulties in social interaction and nonverbal communication, along with restricted and repetitive patterns of behavior, interests, and activities. The syndrome has been merged with other disorders into autism spectrum disorder (ASD) and is no longer considered a stand-alone diagnosis. It was considered milder than other diagnoses that were merged into ASD by relatively unimpaired spoken language and intelligence.

<span class="mw-page-title-main">Controversies in autism</span> Controversies about both the cause of autism and the nature of the diagnoses themselves

Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.

<span class="mw-page-title-main">Simon Baron-Cohen</span> British psychologist and author

Sir Simon Philip Baron-Cohen is a British clinical psychologist and professor of developmental psychopathology at the University of Cambridge. He is the director of the university's Autism Research Centre and a Fellow of Trinity College.

<span class="mw-page-title-main">Neurodiversity</span> Non-pathological explanation of variations in mental functions

Neurodiversity is a framework for understanding human brain function and mental illness. It argues that diversity in human cognition is normal and that some conditions classified as mental disorders are differences and disabilities that are not necessarily pathological.

<span class="mw-page-title-main">Autism rights movement</span> Disability rights movement for autistic people

The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services - i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of neurotypical (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.

Mind-blindness, mindblindness or mind blindness is a theory initially proposed in 1990 that claims that all autistic people have a lack or developmental delay of theory of mind (ToM), meaning they are unable to attribute mental states to others. According to the theory, a lack of ToM is considered equivalent to a lack of both cognitive and affective empathy. In the context of the theory, mind-blindness implies being unable to predict behavior and attribute mental states including beliefs, desires, emotions, or intentions of other people. The mind-blindness theory asserts that children who delay in this development will often develop autism.

<span class="mw-page-title-main">Autism therapies</span> Therapy aimed at autistic people

Autism therapies include a wide variety of therapies that help people with autism, or their families. Such methods of therapy seek to aid autistic people in dealing with difficulties and increase their functional independence.

<span class="mw-page-title-main">Societal and cultural aspects of autism</span>

Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the Pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.

<span class="mw-page-title-main">Autism spectrum</span> Neurodevelopmental disorder

Autism, formally called autism spectrum disorder (ASD) or autism spectrum condition (ASC), is a neurodevelopmental disorder marked by deficits in reciprocal social communication and the presence of restricted and repetitive patterns of behavior. Other common signs include difficulty with social interaction, verbal and nonverbal communication, along with perseverative interests, stereotypic body movements, rigid routines, and hyper- or hyporeactivity to sensory input. Autism is clinically regarded as a spectrum disorder, meaning that it can manifest very differently in each person. For example, some are nonspeaking, while others have proficient spoken language. Because of this, there is wide variation in the support needs of people across the autism spectrum.

Gunilla Gerland is a Swedish author and lecturer on the topic of autism. Her written works include Secrets to Success for Professionals in the Autism Field: An Insider's Guide to Understanding the Autism Spectrum, the Environment and Your Role and her autobiography A Real Person: Life on the Outside.

Fred Robert Volkmar is a psychiatrist, psychologist, and the Irving B. Harris Professor of Child Psychiatry, Pediatrics, and Psychology at the Yale School of Medicine. From 2006 to 2014, he was the director of the Yale Child Study Center and the head of child psychiatry at Yale New Haven Hospital. Prior to these appointments, he was the director of the Autism Program at the Yale Child Study Center since 1983.

The history of autism spans over a century; autism has been subject to varying treatments, being pathologized or being viewed as a beneficial part of human neurodiversity. The understanding of autism has been shaped by cultural, scientific, and societal factors, and its perception and treatment change over time as scientific understanding of autism develops.

Discrimination against autistic people is the discrimination, persecution, and oppression that autistic people have been subjected to. Discrimination against autistic people is a form of ableism.

Caetextia is a term and concept first coined by psychologists Joe Griffin and Ivan Tyrrell to describe a chronic disorder that manifests as a context blindness in people on the autism spectrum. It was specifically used to designate the most dominant manifestation of autistic behaviour in higher-functioning individuals. Griffin and Tyrell also suggested that caetextia "is a more accurate and descriptive term for this inability to see how one variable influences another, particularly at the higher end of the spectrum, than the label of 'Asperger's syndrome'".

Autistic masking, also referred to as camouflaging or neurodivergent masking, is the conscious or subconscious suppression of autistic behaviors and compensation of difficulties in social interaction by autistic people with the goal of being perceived as neurotypical. Masking is a learned coping strategy that can be successful from the perspective of autistic people, but can also lead to adverse mental health outcomes.

Spectrum 10K is a paused study of autistic people intended to be the largest of its kind in the United Kingdom. The name refers to the autism spectrum and the putative number of subjects. Led by Simon Baron-Cohen under the aegis of the Autism Research Centre (ARC), the study included researchers at the University of Cambridge, the Wellcome Sanger Institute, and the University of California at Los Angeles (UCLA). Participants were asked to contribute their DNA samples via swabs of saliva, as well as information on their overall mental and physical health. Overall, 10,000 autistic people and their families were to be involved in the study, which aimed to study genetic and environmental factors contributing to autism and co-occurring conditions.

<span class="mw-page-title-main">Autism and LGBT identities</span>

Current research indicates that autistic people have higher rates of LGBT identities and feelings than the general population. A variety of explanations for this have been proposed, such as prenatal hormonal exposure, which has been linked with both sexual orientation, gender dysphoria and autism. Alternatively, autistic people may be less reliant on social norms and thus are more open about their orientation or gender identity. A narrative review published in 2016 stated that while various hypotheses have been proposed for an association between autism and gender dysphoria, they lack strong evidence.

<span class="mw-page-title-main">Double empathy problem</span> Psychological theory regarding individuals on the autism spectrum

The theory of the double empathy problem is a psychological and sociological theory first coined in 2012 by Damian Milton, an autistic autism researcher. This theory proposes that many of the difficulties autistic individuals face when socializing with non-autistic individuals are due, in part, to a lack of mutual understanding between the two groups, meaning that most autistic people struggle to understand and empathize with non-autistic people, whereas most non-autistic people also struggle to understand and empathize with autistic people. This lack of understanding may stem from bidirectional differences in communication style, social-cognitive characteristics, and experiences between autistic and non-autistic individuals, but not necessarily an inherent deficiency. Recent studies have shown that most autistic individuals are able to socialize, communicate effectively, empathize well, and display social reciprocity with most other autistic individuals. This theory and subsequent findings challenge the commonly held belief that the social skills of autistic individuals are inherently impaired, as well as the theory of "mind-blindness" proposed by prominent autism researcher Simon Baron-Cohen in the mid-1980s, which suggested that empathy and theory of mind are universally impaired in autistic individuals.

Devon Price is an American social psychologist, blogger, and author focusing on autism. He is best known for his books, Unmasking Autism: Discovering the New Faces of Neurodiversity and Laziness Does Not Exist, as well as for publishing shorter pieces on Medium and Psychology Today.

Critical autism studies (CAS) is an interdisciplinary research field within autism studies led by autistic people.

References

  1. "Damian Elgin Maclean MILTON personal appointments". find-and-update.company-information.service.gov.uk. Companies House . Retrieved 11 May 2023.
  2. 1 2 "Dr Damian Milton - Senior Lecturer in Intellectual and Developmental Disabilities". University of Kent. 2 February 2022. Retrieved 4 August 2022.
  3. 1 2 3 4 Milton, Damian (2012). "So what exactly is autism?" (PDF). Autism Education Trust. Retrieved 11 May 2023 via Kent Academic Repository (University of Kent).
  4. "Dr Damian Milton". Transform Autism Education. Retrieved 11 May 2023.
  5. 1 2 Milton, Damian E.M. (1 October 2012). "On the ontological status of autism: the 'double empathy problem'" (PDF). Disability & Society. 27 (6): 883–887. doi:10.1080/09687599.2012.710008. S2CID   54047060 via Kent Academic Repository (University of Kent).
  6. 1 2 Rozsa, Matthew (6 June 2021). "Being autistic may amount to a language difference — not an impairment". Salon. Retrieved 4 August 2022.
  7. 1 2 Love, Shayla (29 March 2022). "What Does Neurodiversity Even Mean?". Motherboard . Vice Media . Retrieved 11 May 2023.
  8. Milton, Damian Elgin Maclean; Heasman, Brett; Sheppard, Elizabeth (2020). "Double Empathy". In Volkmar, Fred R. (ed.). Encyclopedia of Autism Spectrum Disorders. New York, NY: Springer. pp. 1–9. doi:10.1007/978-1-4614-6435-8_102273-2. ISBN   978-1-4614-6435-8.
  9. 1 2 Askham, Angie Voyles (8 April 2022). "'Theory of mind' in autism: A research field reborn". Spectrum. Simons Foundation. doi: 10.53053/GXNC7576 . S2CID   248030107.
  10. 1 2 3 Zamzow, Rachel (22 July 2021). "Double empathy, explained". Spectrum. Simons Foundation. doi: 10.53053/MMNL2849 . S2CID   243309008.
  11. Damian Milton (2014). "Going with the flow: reconsidering 'repetitive behaviour' through the concept of 'flow states'". In Glenys Jones and Elizabeth Hurley (ed.). Good Autism Practice: autism, happiness and wellbeing. Birmingham, UK: BILD. pp. 38–47. ISBN   978-1-905218-35-6.
  12. Woods, Richard; Waltz, Mitzi (21 June 2019). "The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton" (PDF). Autonomy, the Critical Journal of Interdisciplinary Autism Studies. 1 (6). Retrieved 11 May 2023 via Sheffield Hallam University Research Archive.
  13. "Milton's 'double empathy problem': A summary for non-academics". Reframing Autism. 17 December 2020. Retrieved 11 May 2023.
  14. Askham, Angie Voyles; Dattaro, Laura (18 October 2021). "Backlash from autistic community pauses research, exposes communication gaps". Spectrum. Simons Foundation. doi: 10.53053/ZQIJ5133 . S2CID   244599958.
  15. Milton, Damian; Moon, Lyte (2012). "The normalisation agenda and the psycho-emotional disablement of autistic people" (PDF). Autonomy, the Critical Journal of Interdisciplinary Autism Studies. 1 (1): 1–12 via Kent Academic Repository (University of Kent).
  16. Milton, Damian; Bracher, Mike (June 2013). "Autistics speak but are they heard?" (PDF). Medical Sociology Online. 7 (2): 61–69 via Kent Academic Repository (University of Kent).
  17. Milton, Damian EM (17 March 2014). "Autistic expertise: A critical reflection on the production of knowledge in autism studies" (PDF). Autism . 18 (7): 794–802. doi:10.1177/1362361314525281. PMID   24637428. S2CID   206715678 via Kent Academic Repository (University of Kent).
  18. Milton, Damian; Sims, Tara (20 April 2016). "How is a sense of well-being and belonging constructed in the accounts of autistic adults?" (PDF). Disability & Society . 31 (4): 520–534. doi:10.1080/09687599.2016.1186529. S2CID   148279014 via Kent Academic Repository (University of Kent).
  19. Fletcher-Watson, Sue; Adams, Jon; Brook, Kabie; Charman, Tony; Crane, Laura; Cusack, James; Leekam, Susan; Milton, Damian; Parr, Jeremy R; Pellicano, Elizabeth (2018). "Making the future together: Shaping autism research through meaningful participation". Autism . 23 (4): 943–953. doi:10.1177/1362361318786721. PMC   6512245 . PMID   30095277.
  20. Woods, Richard; Milton, Damian; Arnold, Larry; Graby, Steve (3 July 2018). "Redefining Critical Autism Studies: a more inclusive interpretation". Disability & Society . 33 (6): 974–979. doi: 10.1080/09687599.2018.1454380 . S2CID   150275912.