Damian Milton | |
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Born | August 1973 (age 50) |
Citizenship | British |
Alma mater |
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Known for | Autism research, double empathy problem |
Scientific career | |
Fields | |
Institutions | University of Kent |
Thesis | Educational Discourse and the Autistic Student: A Study Using Q-sort Methodology (2015) |
Neurodiversity paradigm |
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Damian Elgin Maclean Milton (born August 1973 [1] ) is a British sociologist and social psychologist who specialises in autism research and is an autism rights advocate. He is a lecturer at the University of Kent as well as a consultant for the United Kingdom's National Autistic Society and has academic qualifications in sociology, psychology, philosophy, and education. [2] [3] : 13
Milton's interest in autism began when his son was diagnosed as autistic in 2005 at two years old. Milton himself was diagnosed with Asperger syndrome in 2009 at the age of 36. [3] : 13 [4]
Milton is best known for his "double empathy problem" theory first published in 2012, [5] [6] [7] which is the idea that, contrary to what previous studies in the late 20th century had concluded, autistic people are not inherently deficient in empathy but rather that autistic and non-autistic people bidirectionally struggle with empathy and communicating with one another. [8] [9] [10] While the concept had existed in earlier discourse, dating back to arguments voiced by activists like Jim Sinclair since the 1990s, Milton named and significantly expanded on it. [3] : 10 [10]
Milton has co-authored over 250 publications [2] related to autism. His work is influenced by the social model of disability, [3] : 10–12 [7] and many of his publications deconstruct and critically analyse past theories. For example, he has argued that self-stimulatory behavior (stimming) should be viewed positively and may help autistic people achieve flow states. [11] His work has been favourably received by the academic [9] [10] [12] as well as the autistic community. [6] [13]
He has spoken out against the Spectrum 10K project, questioning whether it truly was contributing to the well-being of autistic people. [14]
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: CS1 maint: location missing publisher (link)Asperger syndrome (AS), also known as Asperger's syndrome, formerly described a neurodevelopmental disorder characterized by significant difficulties in social interaction and nonverbal communication, along with restricted and repetitive patterns of behavior, interests, and activities. The syndrome has been merged with other disorders into autism spectrum disorder (ASD) and is no longer considered a stand-alone diagnosis. It was considered milder than other diagnoses that were merged into ASD due to relatively unimpaired spoken language and intelligence.
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
Sir Simon Philip Baron-Cohen is a British clinical psychologist and professor of developmental psychopathology at the University of Cambridge. He is the director of the university's Autism Research Centre and a Fellow of Trinity College.
Neurodiversity is a framework for understanding human brain function and mental illness. It argues that diversity in human cognition is normal and that some conditions classified as mental disorders are differences and disabilities that are not necessarily pathological.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services - i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of allistic (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
Mind-blindness, mindblindness or mind blindness is a theory initially proposed in 1990 that claims that all autistic people have a lack or developmental delay of theory of mind (ToM), meaning they are unable to attribute mental states to others. According to the theory, a lack of ToM is considered equivalent to a lack of both cognitive and affective empathy. In the context of the theory, mind-blindness implies being unable to predict behavior and attribute mental states including beliefs, desires, emotions, or intentions of other people. The mind-blindness theory asserts that children who delay in this development will often develop autism.
Autism therapies include a wide variety of therapies that help people with autism, or their families. Such methods of therapy seek to aid autistic people in dealing with difficulties and increase their functional independence.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the Pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
Pathological demand avoidance (PDA) or extreme demand avoidance (EDA) is a proposed disorder, and sub-type of autism spectrum disorder, defined by characteristics such as a demand avoidance—which is a greater-than-typical refusal to comply with requests or expectations—and extreme efforts to avoid social demands. Any expectation, even routine activities or highly desired activities, such as getting ready to leave home to visit a playground, can trigger avoidant behavior. If the demand cannot be avoided, a panic attack or a meltdown may ensue. Depending on an individual's trigger, the intensity of their reactions may differ. Looking at a PDA profile can help determine explanations for the demand avoidance, whether it is internalized or externalized.
Autism, formally called autism spectrum disorder (ASD) or autism spectrum condition (ASC), is a neurodevelopmental disorder marked by deficits in reciprocal social communication and the presence of restricted and repetitive patterns of behavior. Other common signs include difficulties with social interaction, verbal and nonverbal communication, along with perseverative interests, stereotypic body movements, rigid routines, and hyper- or hyporeactivity to sensory input. Autism is clinically regarded as a spectrum disorder, meaning that it can manifest very differently in each person. For example, some are nonspeaking, while others have proficient spoken language. Because of this, there is wide variation in the support needs of people across the autism spectrum.
Gunilla Gerland is a Swedish author and lecturer on the topic of autism. Her written works include Secrets to Success for Professionals in the Autism Field: An Insider's Guide to Understanding the Autism Spectrum, the Environment and Your Role and her autobiography A Real Person: Life on the Outside.
Fred Robert Volkmar is a psychiatrist, psychologist, and the Irving B. Harris Professor of Child Psychiatry, Pediatrics, and Psychology at the Yale School of Medicine. From 2006 to 2014, he was the director of the Yale Child Study Center and the head of child psychiatry at Yale New Haven Hospital. Prior to these appointments, he was the director of the Autism Program at the Yale Child Study Center since 1983.
The history of autism spans over a century; autism has been subject to varying treatments, being pathologized or being viewed as a beneficial part of human neurodiversity. The understanding of autism has been shaped by cultural, scientific, and societal factors, and its perception and treatment change over time as scientific understanding of autism develops.
Discrimination against autistic people is the discrimination, persecution, and oppression that autistic people have been subjected to. Discrimination against autistic people is a form of ableism.
Caetextia is a term and concept first coined by psychologists Joe Griffin and Ivan Tyrrell to describe a chronic disorder that manifests as a context blindness in people on the autism spectrum. It was specifically used to designate the most dominant manifestation of autistic behaviour in higher-functioning individuals. Griffin and Tyrell also suggested that caetextia "is a more accurate and descriptive term for this inability to see how one variable influences another, particularly at the higher end of the spectrum, than the label of 'Asperger's syndrome'".
Autistic masking, also referred to as camouflaging or neurodivergent masking, is the conscious or subconscious suppression of autistic behaviors and compensation of difficulties in social interaction by autistic people with the goal of being perceived as neurotypical. Masking is a learned coping strategy that can be successful from the perspective of autistic people, but can also lead to adverse mental health outcomes.
Spectrum 10K is a paused study of autistic people intended to be the largest of its kind in the United Kingdom. The name refers to the autism spectrum and the putative number of subjects. Led by Simon Baron-Cohen under the aegis of the Autism Research Centre (ARC), the study included researchers at the University of Cambridge, the Wellcome Sanger Institute, and the University of California at Los Angeles (UCLA). Participants were asked to contribute their DNA samples via swabs of saliva, as well as information on their overall mental and physical health. Overall, 10,000 autistic people and their families were to be involved in the study, which aimed to study genetic and environmental factors contributing to autism and co-occurring conditions.
The theory of the double empathy problem is a psychological and sociological theory first coined in 2012 by Damian Milton, an autistic autism researcher. This theory proposes that many of the difficulties autistic individuals face when socializing with non-autistic individuals are due, in part, to a lack of mutual understanding between the two groups, meaning that most autistic people struggle to understand and empathize with non-autistic people, whereas most non-autistic people also struggle to understand and empathize with autistic people. This lack of understanding may stem from bidirectional differences in communication style, social-cognitive characteristics, and experiences between autistic and non-autistic individuals, but not necessarily an inherent deficiency. Recent studies have shown that most autistic individuals are able to socialize, communicate effectively, empathize well, and display social reciprocity with most other autistic individuals. This theory and subsequent findings challenge the commonly held belief that the social skills of autistic individuals are inherently impaired, as well as the theory of "mind-blindness" proposed by prominent autism researcher Simon Baron-Cohen in the mid-1980s, which suggested that empathy and theory of mind are universally impaired in autistic individuals.
Devon Price is an American social psychologist, blogger, and author focusing on autism. He is best known for his books, Unmasking Autism: Discovering the New Faces of Neurodiversity and Laziness Does Not Exist, as well as for publishing shorter pieces on Medium and Psychology Today.
Critical autism studies (CAS) is an interdisciplinary research field within autism studies led by autistic people.