Neurodiversity paradigm |
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Autistic Pride Day is a pride celebration for autistic people held on 18 June each year. [1] [2] Autistic pride [3] recognises the importance of pride for autistic people and its role in bringing about positive changes in the broader society.
Although Autistic Pride Day is 18 June, pride events are often held on the nearest weekend for logistical reasons, or at any other time.
Organisations around the world celebrate Autistic Pride Day with events to connect with one another, and demonstrate to allistic people (those not on the autism spectrum) that autistic people are unique individuals who should not be seen as cases for treatment and autism is not a disability. [1]
Autistic pride points out that autistic people have always been an important part of human society. Being autistic is a form of neurodiversity. As with all forms of neurodiversity, most of the challenges autistic people face come from other people's attitudes about autism and a lack of supports and accommodations (ableism), rather than being essential to the autistic condition. For instance, according to Larry Arnold and Gwen Nelson, many autism-related organizations promote feelings of pity for parents, rather than fostering understanding. [4] [5] Autistic activists have contributed to a shift in attitudes away from the notion that autism is a deviation from the norm that must be treated or cured. Autistic self-advocacy organizations, which are led and run by autistic people, are a key force in the movement for autistic acceptance and autistic pride. [6]
Joseph Redford, an organiser for Autistic Pride at London's Hyde Park, stated in a speech that the concept of autistic pride is not about a single day or event:
For individuals, Autistic Pride doesn't necessarily need to take the form of public events. The organiser of Inverness Autistic Pride, Kabie Brook, told me that she celebrated Autistic Pride day by taking a walk in the park with her family. And enjoying herself. Openly stimming, or vocalising or expressing yourself in your own body language is an example of Autistic Pride in Action. Standing up and passionately defending your own truth, regardless of convention or tone, or social dynamics even if it goes completely against the grain, or others consider it minor or pedantic, is Autistic Pride in Action. Seeking knowledge according to your own logic is Autistic Pride in Action. Completely breaking social rules, if it doesn't cause harm, is Autistic Pride in Action. Demanding to be treated with the same respect and dignity as others is Autistic Pride in Action. Walking away from something if you can't handle it is Autistic Pride in Action. [7]
Autistic Pride Day was first celebrated in 2005 by Aspies For Freedom (AFF), who selected 18 June because it was the birthday of the youngest member of the group at that time. [7] AFF modelled the celebration on the gay pride movement. [4] According to Kabie Brook, the co-founder of Autism Rights Group Highland (ARGH), "the most important thing to note about the day is that it is an autistic community event: it originated from and is still led by autistic people ourselves", i.e. it is not a day for other charities or organisations to promote themselves or stifle autistic people. The rainbow infinity symbol is used as the symbol of this day, representing "diversity with infinite variations and infinite possibilities". [2] New Scientist magazine released an article entitled "Autistic and proud" on the first Autistic Pride Day that discussed the idea. [9]
As autistic pride has continued to develop, autistic advocates have become increasingly professionalised, with Autistic Pride Reading incorporating as a charity in 2018, and holding a pride event which attracted over 700 people. [10] [11]
During the COVID-19 pandemic, with physical events impossible, autistic advocates collaborated under the Autistic Pride Alliance to create an Autistic Pride Online Celebration which hosted speakers from four continents. [12] Autistic Pride Day 2020 [13] was an eleven-hour marathon that was hosted on YouTube and the event was repeated in 2021.
In Australia, an official Autistic Pride Day organization was created in 2023 in partnership with the City of Sydney. [14] The organization released an official logo for the event, featuring three concentric infinity symbols, which are coloured with a gradient of red and green, intentionally avoiding the blue that is associated with Autism Speaks. [14]
There have been a number of Autistic Pride Day events hosted over the years to promote the self-affirmation, identity, dignity and equality of autistic people around the world. Most events happen during the summer months between June and August. [15]
Year | Hosted by | |
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2023 | Autistic Pride London | Joseph Redford & Autistic Empire |
Bath Spa Autistic Pride | AutWell | |
Pic-Nique des Fiertés Autistes (Paris) | Réseau CLE Autistes | |
Autistic Pride at Pride (Kingston upon Hull) | ||
Autistic Pride Day Melbourne [16] | Autistic Pride Day (Australia) | |
2022 | Autistic Pride London | Joseph Redford & Autistic Empire |
2021 | Autistic Pride Alliance Online | Autistic Pride Alliance |
2020 | Autistic Pride Online Celebration | |
2019 | Autistic Pride Picnic at London Charlton House (AIM) | Autistic Inclusive Meets (AIM) |
Autistic Pride Eastbourne | Eastbourne Asperger's Support Group | |
Fifth Annual Autistic Pride Picnic at London Hyde Park | Joseph Redford [17] | |
Autistic Pride Reading | Autistic Pride Reading Charity | |
Autistic Pride Brighton [17] | Adrie van der Meer |
The disability rights movement is a global social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
The neurodiversity paradigm is a framework for understanding human brain function that recognizes the diversity within sensory processing, motor abilities, social comfort, cognition, and focus as neurobiological differences. This diversity falls on a spectrum of neurocognitive differences. The neurodiversity paradigm argues that diversity in human cognition is normal and that some conditions generally classified as disorders, such as autism, are differences and disabilities that are not necessarily pathological.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with the disability rights movement. It emphasizes the neurodiversity paradigm, viewing autism as a set of naturally occurring variations in human cognition rather than as a disease to be cured or a disorder to be treated, diverging from the medical model of disability.
Jim Sinclair is an American autistic activist and writer who helped pioneer the neurodiversity movement. Sinclair, along with Xenia Grant and Donna Williams, formed Autism Network International (ANI). Sinclair became the original coordinator of ANI. Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured. Sinclair is intersex and uses Xe/Xem/Xyr pronouns.
Aspies For Freedom (AFF) is a solidarity and campaigning group that aimed at raising public awareness of the autism rights movement. The aim of Aspies For Freedom is to educate the public that the autism spectrum is not always a disability, and that there are advantages as well as disadvantages. For this purpose, the group organizes an annual Autistic Pride Day. AFF provides support for the autistic community and protests attempts to cure autism.
The following outline is provided as an overview of and topical guide to autism:
Wrong Planet is an online community for "individuals with Autism, Asperger's Syndrome, ADHD, PDDs, and other neurological differences". The site was started in 2004 by Dan Grover and Alex Plank and includes a chatroom, a forum, and articles describing how to deal with daily issues. Wrong Planet has been referenced by the mainstream U.S. media. Wrong Planet comes up in the special education curriculum of many universities in the United States. A page is dedicated to Wrong Planet and its founder in Exceptional Learners: Introduction to Special Education.
Mad Pride is a mass movement of current and former users of mental health services, as well as those who have never used mental health services but are aligned with the Mad Pride framework. The movement advocates that individuals with mental illness should be proud of their 'mad' identity. In recent years, Mad Pride has increasingly aligned with the neurodiversity movement, recognizing the interconnected nature of mental health advocacy and neurodivergent experiences.
Mel Baggs, was an American non-binary blogger who predominantly wrote on the subject of autism and disability. At times, Baggs used a communication device to speak and referred to themself as a low-functioning autistic. Revelations about Baggs's past created some uncertainty about their diagnosis.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
World Autism Awareness Day is an internationally recognized day annually on 2 April, encouraging Member States of the United Nations to take measures to raise awareness about autistic individuals throughout the world. It was designated by the United Nations General Assembly resolution (A/RES/62/139), passed in council on 1 November 2007, and adopted on 18 December 2007. It was proposed by Moza bint Nasser Al-Missned, the United Nations Representative from Qatar, and supported by all member states.
Ari Daniel Ne'eman is an American disability rights activist and researcher who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee making him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. He is currently an Assistant Professor at the Department of Health Policy and Management of Harvard University.
Autism, also called autism spectrum disorder (ASD), is a neurodevelopmental disorder characterized by symptoms of deficient reciprocal social communication and the presence of restricted, repetitive, and inflexible patterns of behavior. Autism generally affects a person's ability to understand and connect with others, as well as their adaptability to everyday situations, with its severity and support needs varying widely across the underlying spectrum. For example, some are nonverbal, while others have proficient spoken language.
Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individuals' unique and special needs.
Diagnosis, treatment, and experiences of autism varies globally. Although the diagnosis of autism is rising in post-industrial nations, diagnosis rates are much lower in developing nations.
Loving Lampposts is a 2010 documentary film directed by Todd Drezner, exploring the neurodiversity movement and the principle of autism acceptance through a series of interviews and candid footage. Drezner is the father of an autistic child whose attachment to and fascination with lampposts gave the film its title.
Morénike Giwa Onaiwu is an American educator, author, and autism and HIV advocate. Alongside E. Ashkenazy and Lydia Brown, Onaiwu is an editor of All the Weight of Our Dreams, an anthology of art and writing entirely by autistic people of color published by the Autism Women's Network in June 2017.
Kassiane A. Asasumasu is an American autism rights activist who is credited for coining several terms related to the Neurodiversity Movement, including caregiver benevolence. As stated in the text Neurodiversity for Dummies, "Asasumasu's work set the stage for a broader understanding and acceptance of neurological differences", which "continue[s] to be shared, shaped and formed by all sorts of people who recogniz[e] that our world should be accepting, inclusive, and accommodating of people regardless of their neurotype".
Ari Ne'eman and Kristina Chew say they are the faces and voices of autism's future. They're part of a controversial group hoping to radically change the way others look at autism. Their message: Stop the search for a cure and begin celebrating autistic people for their differences.