Center for Autism and Related Disorders

Last updated
Center for Autism and Related Disorders
Company type Incorporation
Founded1990
Founder Doreen Granpeesheh
Headquarters,
Area served
Worldwide
ServicesABA-based therapies, including early intensive behavioral intervention (EIBI) and social skills training
Divisions CARD Academy
Website centerforautism.com

The Center for Autism and Related Disorders, Inc. (CARD) is a business that administers applied behavior analysis (ABA) to autistic people. [1]

Contents

History

CARD was founded in 1990 by Doreen Granpeesheh, a former graduate student of Ole Ivar Løvaas, the UCLA psychology professor who popularized the use of ABA on autistic children. [1] [2] [3] [4]

Acquisition by Blackstone (2018–2019)

In May 2018, the Blackstone Group acquired CARD in a leveraged buyout valued at approximately US$600–700 million, one of the largest transactions in the behavioral-health sector. [5] [6] [7] Granpeesheh stepped down as CEO in 2019 but remained on the company’s board. Blackstone planned to scale CARD to over 500 clinics using data analytics and centralized management. [8] [9] [10]

Former staff later reported that after the acquisition, corporate leadership reduced centralized clinical training and replaced experienced clinicians with managers from outside behavioral health, leading to concerns about quality of care and high employee turnover. [7] [10]

Private equity era: growth and decline (2019–2023)

Growth and labor issues

By 2020, CARD operated around 230–250 centers nationwide. However, employees reported high turnover (over 150% annually) and low wages relative to workload. [10]

Unionization efforts

In May 2019, while it was still under the ownership of Blackstone, employees at CARD's Portland East location voted to unionize, the first ABA clinic in the United States to do so. Prior to the vote, Granpeesheh appeared in person to plead with workers to vote against unionizing, and CARD hired anti-union consultants to intimidate staff. CARD permanently closed the Portland East location in January 2021, citing the impact of the COVID-19 pandemic. The company subsequently dismissed employee speculation that the Portland East location was targeted for closure because it had unionized. [11]

Ethical and clinical concerns

The COVID-19 pandemic disrupted in-person services, and CARD’s telehealth expansion proved unsustainable. Critics and former staff alleged that under private equity ownership, clinical practices were increasingly standardized and profit-driven, reducing individualized care. CARD’s practices under private equity ownership were criticized for:

  • Inflating treatment hours to maximize billing.
  • Reducing supervision ratios (1 BCBA per 25–30 clients).
  • Prioritizing preschool-age clients with higher insurance reimbursement.

These trends reflected a broader pattern of “financialization of care” identified by a CEPR report [7] [10]

The 2023 Center for Economic and Policy Research (CEPR) report concluded that private equity buyouts in autism services, exemplified by CARD, resulted in “reduced staffing, increased debt loads, and lower quality of care.” [10]

Clinic closures and bankruptcy (2022–2023)

Beginning in mid-2022, CARD abruptly closed operations in ten states—including Oregon, Michigan, Missouri, and Rhode Island—citing “unsustainable reimbursement rates.” [12]

In June 2023, CARD filed for Chapter 11 bankruptcy protection, reporting US$82 million in losses and US$245 million in debt. [13] [14] [10] Under a court-approved stalking horse agreement, Granpeesheh’s company Pantogran LLC repurchased CARD’s remaining 130 centers for about US$25 million—less than 10% of its 2018 valuation. [15]

The CEPR report concluded that Blackstone’s debt-loading and overexpansion turned CARD from a sustainable clinic network into “a cautionary example of financialized health care.” [10]

Legacy

CARD is widely recognized for establishing ABA as the predominant evidence-based treatment for autism. Its research initiatives and software platforms, such as Skills, influenced global clinical training and insurance models. [10] [16] [17] [18]

While CARD’s model is credited with expanding access to autism treatment, it has been criticized by neurodiversity advocates for promoting intensive behavioral modification and neglecting autistic self-advocacy perspectives. [7] The organization’s financial collapse under private equity ownership has become a case study in debates about ethics and oversight in the corporatization of health care. [10]

Following the 2023 bankruptcy proceedings of CARD, founder Doreen Granpeesheh reacquired the organization and resumed leadership of a smaller, downsized CARD network. [19] [20] [7]

Documentary

CARD co-produced (with Granpeesheh) and distributed Recovered: Journeys Through the Autism Spectrum and Back, a 2008 documentary about four children that the organization claims completely "recovered" from autism and co-occurring intellectual disability as a result of the intensive, longterm ABA they administered, [21] despite the fact that there is no known cure for autism. [22] [23] In the film, Granpeesheh stated, "There's a lot of scientific research that shows children recover from autism, and yet, still, the medical community in general is not aware of how prevalent recovery is. More than half of the children receiving intervention at an early age recover completely." [21] The film was directed and edited by Michele Jaquis in collaboration with Granpeesheh and won the Best Documentary award at the 2008 Director's Chair Film Festival. [24]

References

  1. 1 2 "Pocketing Money Meant for Kids: Private Equity in Autism Services". CEPR. 2023-06-14. Retrieved 2025-05-25.
  2. "Families cling to hope of autism 'recovery'". Los Angeles Times. 2013-01-09. Retrieved 2025-05-17.
  3. Bowman, Rachel A.; Baker, Jeffrey P.; on behalf of Duke University School of Medicine (2014-03-01). "Screams, Slaps, and Love: The Strange Birth of Applied Behavior Analysis" . Pediatrics. 133 (3): 364–366. doi:10.1542/peds.2013-2583. ISSN   0031-4005.
  4. Gibson, Margaret F.; Douglas, Patty (2018-10-16). "Disturbing Behaviours: Ole Ivar Lovaas and the Queer History of Autism Science". Catalyst: Feminism, Theory, Technoscience. 4 (2): 1–28. doi: 10.28968/cftt.v4i2.29579 . ISSN   2380-3312.
  5. "Blackstone to Buy Center for Autism and Related Disorders". Wall Street Journal. 13 April 2018. Retrieved 19 November 2019.
  6. Yuk, Pan Kwan (13 April 2018). "Blackstone acquires autism care specialist CARD". Financial Times. Retrieved 19 November 2019.
  7. 1 2 3 4 5 "Autism and Private Equity: A Cautionary Tale". proto.life. 2024-02-01. Retrieved 2025-08-11.
  8. Bryant, Bailey (2020-10-22). "Bolstered by Recent Tech Investments, CARD Gears Up for Growth in 2021". Behavioral Health Business. Retrieved 2022-05-18.
  9. "Center for Autism and Related Disorders Announces Senior Leadership Changes". finance.yahoo.com. 2 February 2022. Retrieved 2022-05-18.
  10. 1 2 3 4 5 6 7 8 9 Rosemary Batt; Eileen Appelbaum; Quynh Trang Nguyen (21 June 2023). Pocketing Money Meant for Kids: Private Equity in Autism Services (Report). Center for Economic and Policy Research. pp. 43–49.{{cite report}}: CS1 maint: multiple names: authors list (link)
  11. "Autism and Private Equity: A Cautionary Tale". proto.life. 2024-02-01. Retrieved 2025-08-11.
  12. "Centers for Autism and Related Disorders Closing Clinics in Oregon". KEZI 9 News. 14 July 2022.
  13. "Blackstone-Owned Autism Treatment Provider Files for Bankruptcy". Wall Street Journal. June 12, 2023. Retrieved June 12, 2023.
  14. "Autism treatment center gets US bankruptcy court approval for $48.5 million sale". Reuters. 26 July 2023. Retrieved 30 August 2023.
  15. "Autism Treatment Center Files for Bankruptcy, Plans Sale to Founder". Yahoo! News. 12 June 2023.
  16. Zarembo, Alan (December 13, 2009). "Selling success: Autism therapy gains ground". Los Angeles Times. Granpeesheh, a former graduate student of Ivar Lovaas, founded the Center for Autism and Related Disorders (CARD), which has become one of the largest ABA-based treatment providers and a key player in expanding insurance coverage for applied behavior analysis.
  17. Batt, Rosemary; Eileen Appelbaum (June 21, 2023). Pocketing Money Meant for Kids: Private Equity in Autism Services (Report). Center for Economic and Policy Research. Blackstone's buyout of the Center for Autism and Related Disorders (CARD) in 2018 illustrates how CARD—one of the largest ABA providers in the U.S.—played a pivotal role in expanding applied behavior analysis as the dominant evidence-based autism therapy and in developing major software tools like Skills™ to support individualized treatment and insurance compliance.
  18. Ponsford, Matthew; Ruairí Casey (July 2023). "What the bankruptcy of CARD teaches us about private equity in autism care". Proto.life. Founded by psychologist Doreen Granpeesheh, CARD helped establish applied behavior analysis (ABA) as the gold-standard intervention for autism through its research, training, and software systems such as Skills™, which influenced clinical and insurer protocols worldwide.
  19. Knauth, Dietrich (June 12, 2023). "Autism Treatment Center Files for Bankruptcy, Plans Sale To Founder". Reuters via Yahoo! News. The Center for Autism and Related Disorders filed for Chapter 11 bankruptcy protection in June 2023. The filing followed an agreement under which founder Doreen Granpeesheh's Pantogran LLC would assume $245 million in debt and repurchase CARD's assets for $25 million.
  20. Batt, Rosemary; Eileen Appelbaum (June 21, 2023). Pocketing Money Meant for Kids: Private Equity in Autism Services (Report). Center for Economic and Policy Research. By June 2023, Blackstone's leveraged buyout had culminated in CARD's bankruptcy. Founder Doreen Granpeesheh subsequently reacquired the company, assuming its liabilities and reorganizing it as a smaller network of clinics.
  21. 1 2 Autism Live (2021-12-05). Recovered: Journeys Through the Autism Spectrum and Back . Retrieved 2025-05-17 via YouTube.
  22. Myers SM, Johnson CP (November 2007). "Management of children with autism spectrum disorders". Pediatrics . 120 (5): 1162–1182. doi: 10.1542/peds.2007-2362 . PMID   17967921.
  23. Levy SE, Mandell DS, Schultz RT (November 2009). "Autism". The Lancet . 374 (9701): 1627–1638. doi:10.1016/S0140-6736(09)61376-3. PMC   2863325 . PMID   19819542. (Erratum:  doi:10.1016/S0140-6736(11)61666-8,  )
  24. "The Director's Chair Film Festival 2008". Archived from the original on 2009-01-07. Retrieved 2009-04-11.