Founded | 1965 |
---|---|
Founders | Bernard Rimland, [1] Ruth C. Sullivan, and others |
Legal status | 501(c)(3) nonprofit organization |
Headquarters | Rockville, Maryland, United States |
Lori A. Ireland [2] | |
Christopher Banks | |
Subsidiaries | Autism Society of America Foundation [3] |
Revenue | $2,396,020 [3] (2013) |
Expenses | $2,378,089 [3] (2013) |
Endowment | $50,000 [3] |
Employees | 27 [3] (2013) |
Volunteers | 20 [3] (2013) |
Website | www |
Formerly called | National Society for Autistic Children [4] |
The Autism Society of America (ASA) was founded in 1965 [5] by Bernard Rimland [1] together with Ruth C. Sullivan and a small group of other parents of children with autism. Its original name was the National Society for Autistic Children; [4] the name was changed to emphasize that autistic children grow up. The ASA's stated goal is to increase public awareness about autism and the day-to-day issues faced by autistic people as well as their families and the professionals with whom they interact. [6] Although the group has promoted the pseudoscientific belief that vaccines cause autism in the past, it now affirms that there is no link between vaccination and autism. [7] In 2021, the ASA launched a new brand including a logo consisting of multicolor lines forming a fabric with a new slogan, "The Connection Is You". [8]
Bernard Rimland (November 15, 1928 – November 21, 2006) was an American research psychologist, writer, lecturer, and influential person in the field of developmental disorders who is known for promoting autism-related pseudoscience. In 1964, Dr. Bernard Rimland wrote a book, Infantile Autism, that convinced others working in the field that autism is a physiological disorder, not a mental or emotional problem. [9] Rimland was a founder of the Autism Society of America in 1965, but left to create the Autism Research Institute in 1967. [10] He later promoted several theories, which have since been disproven, about the causes and treatment of autism, including vaccine denial, facilitated communication, chelation therapy, and false claims of a link between secretin and autism.
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
Ole Ivar Løvaas was a Norwegian-American clinical psychologist and professor at the University of California, Los Angeles. He is most well known for his research on what is now called applied behavior analysis (ABA) to teach autistic children through prompts, modeling, and positive reinforcement. His application of the science was also noted for its use of aversives (punishment) to reduce undesired behavior, which are no longer supported as a part of most ABA treatment plans.
Bernard Rimland was an American research psychologist, writer, lecturer, and influential person in the field of developmental disorders. Rimland's first book, Infantile Autism, sparked by the birth of a son who had autism, was instrumental in changing attitudes toward the disorder. Rimland founded and directed two advocacy groups: the Autism Society of America (ASA) and the Autism Research Institute. He promoted several since disproven theories about the causes and treatment of autism, including vaccine denial, facilitated communication, chelation therapy, and false claims of a link between secretin and autism. He also supported the ethically controversial practice of using aversives on autistic children.
The refrigerator mother theory, also known as Bettelheim's theory of autism, is a largely abandoned psychological theory that the cause of autism is a lack of parental, and in particular, maternal emotional warmth. Evidence against the refrigerator mother theory began in the late 1970s, with twin studies suggesting a genetic etiology, as well as various environmental factors. Modern research generally agrees that there is a largely epigenetic etiology of autism spectrum disorders.
The following outline is provided as an overview of and topical guide to autism:
Concerns about thiomersal and vaccines are commonly expressed by anti-vaccine activists. Claims relating to the safety of thiomersal, a mercury-based preservative used in vaccines, are refuted, but still subject to fearmongering, notably claims it could cause neurological disorders such as autism, leading to its removal from most vaccines in the US childhood schedule. This had no effect on the rates of diagnosis of pervasive developmental defects, including autism. Extensive scientific research shows no credible evidence linking thiomersal to such conditions.
Many causes of autism, including environmental and genetic factors, have been recognized or proposed, but understanding of the theory of causation of autism is incomplete. Attempts have been made to incorporate the known genetic and environmental causes into a comprehensive causative framework. ASD is a neurodevelopmental disorder marked by impairments in communicative ability and social interaction, as well as restricted and repetitive behaviors, interests, or activities not suitable for the individual's developmental stage. The severity of symptoms and functional impairment vary between individuals.
Ruth Christ Sullivan was an American organizer and advocate for education for people with autism.
The Autism Research Institute (ARI) is an organization that created a controversial program, Defeat Autism Now! (DAN!), in 1995. ARI was founded in 1967 by Bernard Rimland.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
Classic autism, also known as childhood autism, autistic disorder, or Kanner's syndrome, is a formerly diagnosed neurodevelopmental disorder first described by Leo Kanner in 1943. It is characterized by atypical and impaired development in social interaction and communication as well as restricted, repetitive behaviors, activities, and interests. These symptoms first appear in early childhood and persist throughout life.
Autism Speaks Inc. is a controversial American non-profit autism awareness organization and the largest autism research organization in the United States. It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. It was founded in February 2005 by Bob Wright and his wife Suzanne, a year after their grandson Christian was diagnosed with autism. The same year as its founding, the organization merged with Autism Coalition for Research and Education. It then merged with the National Alliance for Autism Research in 2006 and Cure Autism Now in 2007.
Autism spectrum disorder (ASD), or simply autism, is a neurodevelopmental disorder characterized by repetitive, restricted, and inflexible patterns of behavior, interests, and activities; deficits in social communication and social interaction; and the presence of high or low sensory sensitivity. A formal diagnosis requires that symptoms cause significant impairment in multiple functional domains, in addition to being atypical or excessive for the person's age and sociocultural context.
Autism spectrum disorders (ASDs) or autism spectrum conditions (ASCs) describe a range of conditions classified as neurodevelopmental disorders in the DSM-5, used by the American Psychiatric Association. As with many neurodivergent people and conditions, the popular image of autistic people and autism itself is often based on inaccurate media representations. Additionally, media about autism may promote pseudoscience such as vaccine denial or facilitated communication.
Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individuals' unique and special needs.
The Association for Science in Autism Treatment (ASAT) is a non-profit organization devoted to autism. It was founded in 1998 and is currently based in Hoboken, New Jersey. Members of its advisory board include Eric Fombonne and Stephen Barrett, Tristam Smith was one of its board members until his death in August 2018. A report by the Association for Behavior Analysis International mentioned ASAT's website as a useful resource for parents of children with autism, as does the website of the University of North Texas and that of the University of Michigan Health System.
Karoly Horvath is a Hungarian-American pediatrician and gastroenterologist who was formerly the director of the Pediatric Gastroenterology and Nutrition Laboratory at the University of Maryland School of Medicine. He is best known for proposing a link between secretin, gastrointestinal disorders and autism and for, as a result, proposing that secretin might be an effective treatment for autism.
The history of autism spans over a century; autism has been subject to varying treatments, being pathologized or being viewed as a beneficial part of human neurodiversity. The understanding of autism has been shaped by cultural, scientific, and societal factors, and its perception and treatment change over time as scientific understanding of autism develops.
Extensive investigation into vaccines and autism spectrum disorder has shown that there is no relationship between the two, causal or otherwise, and that vaccine ingredients do not cause autism. The American scientist Peter Hotez researched the growth of the false claim and concluded that its spread originated with Andrew Wakefield's fraudulent 1998 paper, and that no prior paper supports a link.