The Autism Diagnostic Interview-Revised (ADI-R) is a structured interview conducted with the parents of individuals who have been referred for the evaluation of possible autism or autism spectrum disorders. The interview, used by researchers and clinicians for decades, can be used for diagnostic purposes for anyone with a mental age of at least 24 months and measures behavior in the areas of reciprocal social interaction, communication and language, and patterns of behavior. [1]
Useful for diagnosing autism, planning treatment, and distinguishing autism from other developmental disorders. The interview covers the referred individual's full developmental history, is usually conducted in an office, home or other quiet setting by a psychologist, and generally takes one to two hours. The caregivers are asked 93 questions, spanning the three main behavioral areas, about either the individual's current behavior or behavior at a certain point in time. [1] The interview is divided into five sections: opening questions, communication questions, social development and play questions, repetitive and restricted behavior questions, and questions about general behavior problems. [2] Because the ADI-R is an investigator-based interview, the questions are very open-ended and the investigator is able to obtain all of the information required to determine a valid rating for each behavior. [3] For this reason, parents and caretakers usually feel very comfortable when taking part in this interview because what they have to say about their children is valued by the interviewer. Also, taking part in this interview helps parents obtain a better understanding of autism spectrum disorder and the factors that lead to a diagnosis. [2]
The first section of the interview is used to assess the quality of social interaction and includes questions about emotional sharing, offering and seeking comfort, social smiling, and responding to other children. The communication and language behavioral section investigates stereotyped utterances, pronoun reversal, and social usage of language. Stereotyped utterances are the few words or sounds that the individual uses and repeats most often. The restricted and repetitive behaviors section includes questions about unusual preoccupations, hand and finger mannerisms, and unusual sensory interests. [1] Finally, the assessment contains questions about behaviors such as self-injury, aggression, and over activity which would help in developing treatment plans. [3]
After the interview is completed, the interviewer determines a rating score for each question based on their evaluation of the caregiver's response.
A total score is then calculated for each of the interview's content areas. When applying the algorithm, a score of 3 drops to 2 and a score of 7, 8, or 9 drops to 0 because these scores do not indicate autistic behaviors and, therefore, should not be factored into the totals. In order to create the algorithm for diagnosis, the writers chose questions from the interview that were most closely related to the criteria for diagnosis of Autism Spectrum Disorder in the DSM-IV and the ICD-10. [2] An autism diagnosis is indicated when scores in all three behavioral areas meet or exceed the specified minimum cutoff scores. [4] These cutoff scores were determined using the results of many years of extensively reviewed research.
Extensive training and knowledge about autism spectrum disorder and the ADI-R is required for both conducting and scoring the interview. [5] Training usually takes 2 or more months to complete depending on the person's clinical experience and interviewing skills. [3] There are separate training procedures based on whether the ADI-R will be conducted for clinical or research purposes. To use the instrument as a clinician, there are training videos and workshops for administration and scoring. The ADI-R DVD Training Package offered by WPS provides clinical training in the use of the ADI-R. [6] Researchers are required to attend specific research training and establish their reliability in using the ADI-R in order to use it for research purposes. [5] The standard of practice is to attend an in-person ADI-R research training workshop and establish research reliability with the authors or their colleagues. Information about ADI-R research training workshops, including current dates and locations, can be found Center for Autism and the Developing Brain (CADB): http://cornellpsychiatry.org/education/autism.html [6]
The ADI-R was written by Michael Rutter, MD FRS, Ann LeCouteur, MBBS and Catherine Lord, PhD. and published by Western Psychological Services in 2003. The original version of the Autism Diagnostic Interview, written in 1989, was used mainly for research purposes. The ADI was developed in response to four major developments in the field of diagnosing autism which led to a need for updated diagnostic tools. These developments included improvements in the diagnostic criteria, the need to differentiate between autism and other developmental disorders that appear similar early in life, and the desire, in the area of psychology, for standardized diagnostic instruments. [7] The original ADI could be used on individuals with a chronological age of at least five years and a mental age of at least two years, but autism spectrum disorder is usually diagnosed much earlier than this age. This finding led Rutter, LeCouteur, and Lord to revise the ADI in 1994 so that it could be used to determine a diagnosis in individuals with a mental age of at least 18 months. This would enable clinicians to use the interview to differentiate autism from other disorders which can appear in early childhood. [2]
The writers' main goals in revising the ADI were to make the interview more efficient, shorter, and more appropriate for younger children. The majority of the revisions made involved the organization of the interview. The questions were divided into five distinct sections and early and current behavior were consolidated in each section. Research led to some modifications of specific interview questions. Modifications included both making some questions focus more on autism-specific aspects of behaviors and making other questions more generalized to improve efficiency. Also, some additional questions were added to the interview, including more specific questions about ages when abnormal behaviors began. Other irrelevant items were removed in order to increase the interview's ability to diagnose autism at a younger age. These question revisions also led the writers to revise the scoring algorithm and cut-off scores as there were more questions added to some sections. [2]
Questions from the original version of the ADI that were found, through research, to be unreliable or not applicable were removed when the interview was revised. [2] The ADI-R has also been tested thoroughly for reliability and validity using inter-rater reliability, test-retest reliability and internal validity tests. [1] The results of this research have led to the ADI's acceptance among both researchers and clinicians for decades. The ADI-R is often used in conjunction with other related instruments to determine an autism diagnosis.
The writers have published psychometric results that indicate both reliability and validity of the ADI-R. Both inter-rater reliability and internal consistency were good across all behavioral areas investigated in the interview. The interview was also found to have adequate reliability across time. Research comparing ADI-R results of autistic children and children with other developmental disorders suggested that individual questions on the interview were slightly more valid when discriminating autism from intellectual disability than the algorithm as a whole. However, further research has led to overall acceptance of the ADI-R algorithm. [2]
The social communication questionnaire (SCQ) is a brief, 40-item, true/false questionnaire, completed by parents regarding the behavior of their child. It parallels the ADI-R in content and is used for brief screening to determine the need to conduct a full ADI-R interview.
The autism diagnostic observation schedule (ADOS), is a companion instrument by the same core authors. It is a semi-structured set of observations and is conducted in an office setting as a series of activities involving the referred individual and a psychologist or other trained and licensed examiner.
Asperger syndrome (AS), also known as Asperger's, was the name of a neurodevelopmental disorder no longer recognised as a diagnosis in itself, having been merged into autism spectrum disorder (ASD). It was characterized by significant difficulties in social interaction and nonverbal communication, along with restricted and repetitive patterns of behaviour and interests. It was said to differ from other diagnoses that were merged into ASD by relatively unimpaired language and intelligence. The syndrome was named after the Austrian pediatrician Hans Asperger, who, in 1944, described children in his care who struggled to form friendships, did not understand others' gestures or feelings, engaged in one-sided conversations about their favourite interests, and were clumsy.
The diagnostic category pervasive developmental disorders (PDD), as opposed to specific developmental disorders (SDD), is a group of disorders characterized by delays in the development of multiple basic functions including socialization and communication. The pervasive developmental disorders include autism, Asperger syndrome, pervasive developmental disorder not otherwise specified, childhood disintegrative disorder (CDD), overactive disorder associated with mental retardation and stereotyped movements, and Rett syndrome. The first four of these disorders are commonly called the autism spectrum disorders; the last disorder is much rarer, and is sometimes placed in the autism spectrum and sometimes not.
Relationship Development Intervention (RDI) is a trademarked proprietary treatment program for autism spectrum disorders (ASD), based on the belief that the development of dynamic intelligence is the key to improving the quality of life for autistic people. The program's core philosophy is that autistic people can participate in authentic emotional relationships if they are exposed to them in a gradual, systematic way. The goal of treatment is to systematically build up the motivation and tools for successfully interacting in social relationships, to correct deficits in this area that are thought to be common to all autistic people.
Developmental disorders comprise a group of psychiatric conditions originating in childhood that involve serious impairment in different areas. There are several ways of using this term. The most narrow concept is used in the category "Specific Disorders of Psychological Development" in the ICD-10. These disorders comprise developmental language disorder, learning disorders, motor disorders, and autism spectrum disorders. In broader definitions ADHD is included, and the term used is neurodevelopmental disorders. Yet others include antisocial behavior and schizophrenia that begins in childhood and continues through life. However, these two latter conditions are not as stable as the other developmental disorders, and there is not the same evidence of a shared genetic liability.
A pervasive developmental disorder not otherwise specified (PDD-NOS) is one of the four autistic spectrum disorders in the DSM-5 and also was one of the five disorders classified as a pervasive developmental disorder (PDD) in the DSM-IV. According to the DSM-4, PDD-NOS is a diagnosis that is used for "severe or pervasive impairment in the development of reciprocal social interaction and/or verbal and nonverbal communication skills, or when stereotyped behavior, interests, and/or activities are present, but the criteria are not met for a specific PDD" or for several other disorders. PDD-NOS includes atypical autism, because the criteria for autistic disorder are not met, for instance because of late age of onset, atypical symptomatology, or subthreshold symptomatology, or all of these. Even though PDD-NOS is considered milder than typical autism, this is not always true. While some characteristics may be milder, others may be more severe.
The following outline is provided as an overview of and topical guide to autism:
The Autism Diagnostic Observation Schedule (ADOS) is a standardized diagnostic test for diagnosing and assessing autism, now in its second edition as of 2012. It is considered to be a "gold standard" in diagnosing Autism Spectrum Disorder (ASD).
The Shedler-Westen Assessment Procedure (SWAP-200) is a psychological test for personality diagnosis and clinical case formulation, developed by psychologists Jonathan Shedler and Drew Westen. SWAP-200 is completed by a mental health professional based on their observations and knowledge of a patient, client, or assessment subject. The person being assessed does not interact with the test. Because SWAP-200 is completed by the clinician, diagnostic findings do not depend on the accuracy of information people disclose about themselves and test results can not be faked. The SWAP instruments are based on over two decades of empirical research described in more than 100 articles in peer-reviewed scientific journals. SWAP-200 has been translated into fifteen languages. Other SWAP instruments include the revised SWAP-II and the SWAP-II-A for adolescents.
The autism-spectrum quotient (AQ) is a questionnaire published in 2001 by Simon Baron-Cohen and his colleagues at the Autism Research Centre in Cambridge, UK. Consisting of fifty questions, it aims to investigate whether adults of average intelligence have symptoms of autism spectrum conditions. More recently, versions of the AQ for children and adolescents have also been published.
The floortime or Developmental, Individual-differences, Relationship-based (DIR) model is a developmental model for assessing and understanding any child's strengths and weaknesses. It has become particularly effective at identifying the unique developmental profiles and developing programs for children experiencing developmental delays due to autism, autism spectrum disorders, or other developmental disorders. This Model was developed by Dr. Stanley Greenspan and first outlined in 1979 in his book Intelligence and Adaptation. Evidence for the efficacy of DIR/Floortime includes results from randomized controlled trials of DIR/Floortime and the DIR/Floortime-based P.L.A.Y. Project; because of various limitations in these studies, the existing evidence is deemed to "weakly support" the efficacy of Floortime.
Kanner autism, or classic autism, is an outdated neurodevelopmental diagnosis which is now considered part of autism spectrum disorder. The term 'autism' was historically used to refer specifically to classic autism, but it is now more commonly used for the spectrum at large.
Several factors complicate the diagnosis of Asperger syndrome (AS), an autism spectrum disorder (ASD). Like other ASD forms, Asperger syndrome is characterized by impairment in social interaction accompanied by restricted and repetitive interests and behavior; it differs from the other ASDs by having no general delay in language or cognitive development. Problems in diagnosis include disagreement among diagnostic criteria, the controversy over the distinction between AS and other ASD forms or even whether AS exists as a separate syndrome, and over- and under-diagnosis for non-technical reasons. As with other ASD forms, early diagnosis is important, and differential diagnosis must consider several other conditions.
The autism spectrum is a range of neurodevelopmental conditions generally characterized by difficulties in social interactions and communication, repetitive behaviors, intense interests, and unusual responses to sensory stimuli. It is commonly referred to as autism or, in the context of a professional diagnosis, as autism spectrum disorder (ASD), but the latter term remains controversial among neurodiversity advocates, neurodiversity researchers, and many autistic people due to the use of the word disorder and due to questions about its utility outside of diagnostic contexts.
The Diagnostic Classification of Mental Health and Developmental Disorders of Infancy and Early Childhood-Revised is a developmentally based diagnostic manual that provides clinical criteria for categorizing mental health and developmental disorders in infants and toddlers. It is organized into a five-part axis system. The book has been translated into several languages and its model is widely adopted for the assessment of children of up to five years in age.
Diagnosis, treatment, and experiences of autism varies globally. Although the diagnosis of autism is rising in post-industrial nations, diagnosis rates are much lower in developing nations.
The Modified Checklist for Autism in Toddlers (M-CHAT) is a psychological questionnaire that evaluates risk for autism spectrum disorder in children ages 16–30 months. The 20-question test is filled out by the parent, and a follow-up portion is available for children who are classified as medium- to high-risk for autism spectrum disorder. Children who score in the medium to high-risk zone may not necessarily meet criteria for a diagnosis. The checklist is designed so that primary care physicians can interpret it immediately and easily. The M-CHAT has shown fairly good reliability and validity in assessing child autism symptoms in recent studies.
The Kiddie Schedule for Affective Disorders and Schizophrenia (K-SADS) is a semi-structured interview aimed at early diagnosis of affective disorders such as depression, bipolar disorder, and anxiety disorder. There are different versions of the test that have use different versions of diagnostic criteria, cover somewhat different diagnoses and use different rating scales for the items. All versions are structured to include interviews with both the child and the parents or guardians, and all use a combination of screening questions and more comprehensive modules to balance interview length and thoroughness.
The Ritvo Autism & Asperger Diagnostic Scale (RAADS) is a psychological self-rating scale developed by Dr. Riva Ariella Ritvo. An abridged and translated 14 question version was then developed at the Department of Clinical Neuroscience at the Karolinska Institute, to aid in the identification of patients who may have undiagnosed ASD.
Catherine Lord is an American autism researcher. She is Distinguished Professor-in-Residence at the School of Medicine at the University of California, Los Angeles; a member of the Scientific Research Council of the Child Mind Institute, and a Senior Research Scientist at the Semel Institute for Neuroscience and Human Behavior.
Social (pragmatic) communication disorder (SPCD) - previously called semantic-pragmatic disorder (SPD) or pragmatic language impairment (PLI) - is a disorder in understanding pragmatic aspects of language. People with SCD have special challenges with the semantic aspect of language and the pragmatics of language. Individuals have difficulties with verbal and nonverbal social communication.