Lorna Gladys Wing was an English psychiatrist. She was a pioneer in the field of childhood developmental disorders, who advanced understanding of autism worldwide, introduced the term Asperger syndrome in 1976 and was involved in founding the National Autistic Society (NAS) in the UK.
The neurodiversity paradigm is a framework for understanding human brain function that recognizes the diversity within sensory processing, motor abilities, social comfort, cognition, and focus as neurobiological differences. The neurodiversity paradigm argues that diversity in human cognition is normal and that some conditions generally classified as disorders, such as autism, are differences and disabilities that are not necessarily pathological.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes the Neurodiversity Paradigm, viewing autism as a set of naturally-occuring variations in human cognition rather than as a disease to be cured or a disorder to be treated. The movement aligns itself with broader disability rights and uses a human rights framework. Central to most human rights frameworks is a belief that the relevant community, in this instance the Autistic Community, should be able to self-determine who is in that community, what language should be used in discussing the community, and should be seen as the primary voice whenever discussions of interest to the community are held. One of the common mottos used, which was borrowed from the Disability Rights movement is the phrase "nothing about us without us."
Jim Sinclair is an American autistic activist and writer who is widely considered the founder of the autism rights movement. Sinclair, along with Kathy Lissner Grant and Donna Williams, formed Autism Network International. Sinclair became the original coordinator of ANI. Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured.
Autistic Pride Day is a pride celebration for autistic people held on 18 June each year. Autistic pride recognises the importance of pride for autistic people and its role in bringing about positive changes in the broader society.
The refrigerator mother theory, also known as Bettelheim's theory of autism, is a largely abandoned psychological fringe theory that the cause of autism is a lack of parental, and in particular, maternal emotional warmth. Evidence against the refrigerator mother theory began in the late 1970s, with twin studies suggesting a genetic etiology, as well as various environmental factors. Modern research generally agrees that there is a largely epigenetic etiology of autism spectrum disorders.
John Donvan is a journalist, broadcaster and debate moderator whose bestselling book, In a Different Key: The Story of Autism, was a Pulitzer Prize Finalist. He serves as host of Open to Debate, a debate series dedicated to raising the level of public discourse in America.
Manuel F. Casanova is the SmartState Endowed Chair in Childhood Neurotherapeutics and a professor of Biomedical Sciences at the University of South Carolina School of Medicine Greenville. He is a former Gottfried and Gisela Kolb Endowed Chair in Outpatient Psychiatry and a Professor of Anatomical Sciences and Neurobiology at the University of Louisville.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
Johann Friedrich Karl Asperger was an Austrian physician. Noted for his early studies on atypical neurology, specifically in children, he is the namesake of the former autism spectrum disorder Asperger syndrome. He wrote more than 300 publications on psychological disorders that posthumously acquired international renown in the 1980s. His diagnosis of autism, which he termed "autistic psychopathy," garnered controversy. Further controversy arose in the late 2010s over allegations that Asperger referred children to the Am Spiegelgrund children's clinic in Vienna during the Nazi period. The clinic was responsible for murdering hundreds of disabled children, although the extent of Asperger's knowledge of this fact and his intentions in referring patients to the clinic remains unknown.
Ari Daniel Ne'eman is an American disability rights activist and researcher who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee making him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. As of 2019, he also is a Ph.D. candidate in Health Policy at Harvard University.
Autism spectrum disorders (ASDs) or autism spectrum conditions (ASCs) describe a range of conditions classified as neurodevelopmental disorders in the DSM-5, used by the American Psychiatric Association. As with many neurodivergent people and conditions, the popular image of autistic people and autism itself is often based on inaccurate media representations. Additionally, media about autism may promote pseudoscience such as vaccine denial or facilitated communication.
Steve Silberman was an American writer for Wired magazine and was an editor and contributor there for more than two decades. In 2010, Silberman was awarded the AAAS "Kavli Science Journalism Award for Magazine Writing." His featured article, known as "The Placebo Problem", discussed the impact of placebos on the pharmaceutical industry.
The history of autism spans over a century; autism has been subject to varying treatments, being pathologized or being viewed as a beneficial part of human neurodiversity. The understanding of autism has been shaped by cultural, scientific, and societal factors, and its perception and treatment change over time as scientific understanding of autism develops.
Jodi DiPiazza is an American musician, composer, vocalist, and autism advocate. She was diagnosed with autism some time before her second birthday. A musical prodigy, she has absolute pitch. She learned to play the piano at age three, being able to hear a song and reproduce it. She also plays other instruments and performs in a number of genres.
NeuroTribes: The Legacy of Autism and the Future of Neurodiversity is a book by Steve Silberman that discusses autism and neurodiversity from historic, scientific, and advocacy-based perspectives. Neurotribes was awarded the Samuel Johnson Prize in 2015, and has received wide acclaim from both the scientific and the popular press. It was named to a number of "best books of 2015" lists, including The New York Times Book Review and The Guardian.
Donald Gray Triplett was an American banker known for being the first person diagnosed with autism. He was first diagnosed by Leo Kanner in 1943 and was labeled as "Case 1". Triplett was noted for his savant abilities, particularly the ability to name musical notes played on a piano and the ability to perform rapid mental multiplication.
Alison Singer is the president of the Autism Science Foundation (ASF). She has also served on the IACC. She was formerly an executive vice president of Autism Speaks and as a vice president at NBC.
Jonathan "Jon" Shestack is a film producer. He has produced well-known movies such as Air Force One. Additionally, he was one of the founders of Cure Autism Now, an autism organization that merged with Autism Speaks in 2006. His father is Jerome J. Shestack, a well-known lawyer from Philadelphia and his mother is Marciarose Shestack a trailblazing broadcast journalist, hailed by McCall’s Magazine as the outstanding woman tv broadcaster in the United States, in 1971.
