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Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individual's unique and special needs.
Individuals on the autism spectrum take in information from their senses as do allistic (non-autistic) people. The difference is they are not able to process it in the same manner as their neurotypical peers and can become overwhelmed by the amount of information that they are receiving and withdraw as a coping mechanism. [1] Additionally, it may be that an autistic person is actually taking in more sensory information and is merely overwhelmed by the sheer amount of input. As such, they may experience difficulty in public settings due to inhibited communication, social interaction or flexibility of thought development. Knowing about these differences and how to react effectively helps to create a more inclusive society. It also better suits the needs of autistic individuals. [2]
Being autism friendly means being understanding and flexible in interpersonal conversation, public programs and public settings. For example, a person might think that someone is being rude if they will not look them in the eyes or does not understand cliches like "it's a piece of cake", when in fact there may be a reason for this. Depending upon the individual's degree of language ability, a person who hears "it's a piece of cake" may take that literally and not understand that what is really meant is "it will be easy". [2] For someone on the autism spectrum, being in an autism-friendly environment means they will have a manageable degree of sensory stimuli, which will make them calmer, better able to process the sensory stimulation they receive, and better able to relate to others. [3]
Organizations interested in spreading awareness about autism and how to be autism friendly, such as The Autism Directory, have created training programs for communities to illustrate how autistic people may communicate or interact differently from neurotypical people, or people without autism. There are also suggestions for how to modify one's reaction to improve communication. [2] Some training examples are: [2]
Other pointers are: avoid making loud sounds; do not surprise them, let them know your plans; limit or avoid vigorous activities; and talk or engage in activities that they care about. [2] [4] [5]
Some autistic people may be hypersensitive to changes in sight, touch, smell, taste and sound; The sensory stimulus could be very distracting or they could result in pain or anxiety. There are other people who are hyposensitive and may not feel extreme changes in temperature or pain. Each of these has implications for making an autism-friendly environment. [6]
There are several factors in creating a supportive environment. One of them is adherence to a standard routine and structure. Since change of routine can be quite anxiety-producing for many autistic people, a structured, predictable routine makes for calmer and happier transitions during the day. Another important factor is creating a low-arousal space. Environments with the least amount of disruption will help autistic people remain calm. It is important to speak in quiet, non-disruptive tones and to use a physical space that has a low level of disruption. Having a positive, empathetic attitude and ensuring consistent habits in work, school and recreational activities also help to minimize anxiety and distress and help an autistic person succeed. This is the SPELL approach: Structure –Positive –Empathy –Low arousal –Links. [4] [7] Social Stories can be used to communicate ways in which an autistic person can prepare themselves for social interaction. [8]
There are several ways that the physical space can be designed and organized to be autism friendly. It is important for rooms to be decorated with serenity in mind, like painting the walls with calming colors. Thick carpeting and double-paned glass help to minimize distracting noise (e.g., noise pollution). Materials within the rooms may be organized, grouped and labeled with words or symbols to make items easier to locate. [9]
Autism friendliness can have a significant impact on an individual's interpersonal life and work life, benefited by consistency across all areas of one's life. [4]
As the break of routine in family vacations causes distress to some autistic people, many families may avoid taking vacations. Steps can be taken to help make for a successful family vacation. One is sharing information like pictures or internet web pages. There are organizations that will make accommodations, if requested, to better manage common stressors such as uncertainty, crowds and noise disruption. This includes theme parks that allow autistic people to skip long lines and airlines or airports that may allow for a dry-run prior to the trip. Another tip is to prepare prior to the trip so that there is a plan for managing boredom. [10]
In the United States, the Theatre Development Fund (TDF) created a program in 2011 to "make theatre accessible to children and adults on the autism spectrum". Called the Autism Theatre Initiative, it is part of their Accessibility Programs, and was done in conjunction with Autism Speaks, Disney and experts who reviewed the performance for areas of modification. Adjustments that have been named for the initiative include: quiet areas in theatre lobby, performance changes that reduced strobe light use and noise, and areas where people can go perform an activity if they leave the theatre. Social stories, which explain what the experience will be like (such as loud noises, needing a break and moving through a crowd), were made available prior to the performance. These performances included Lion King and Mary Poppins . [11] [12] [13] [14] [15]
On London's West End theatre was the premiere of the first autism-friendly performance of Wicked, on 14 May 2016. [16]
Going to a movie theater can be an overwhelming experience for someone on the autism spectrum. Crowding as people queue up to buy tickets, loud movie volume, and dark theater lighting can all be sensory overload triggers that keep some autistic people from ever seeing movies at the cinema. Some movie theaters are becoming more autism friendly: the lighting is adjusted so it is not so dark, the volume is reduced and queues are managed to prevent crowding. Odeon Cinemas in London has implemented such "sensory-friendly" nights. [17]
In the United States there are also "sensory-friendly" moviegoing experiences to be had through collaboration with the Autism Society of America. Monthly, AMC Theatres (AMC) will provide nights when people on the autism spectrum and their families may experience an autism-friendly movie night. The program is also intended for people with other disabilities whose moviegoing experience will also be improved in such a setting. [18] [19]
In Canada, malls operated by Oxford Properties established a process by which autistic children could visit Santa Claus at the mall without having to contend with crowds. [20] The malls open early to allow entry only to families with autistic children, who have a private visit with Santa Claus. In 2012, the Southcentre Mall in Calgary was the first mall to offer this service. [21] The children are given a booklet explaining the process, and upon arrival at the mall are placed in a waiting area near Santa Claus before their visit "to ensure their comfort". [20]
Providing the best outcomes for a child on the autism spectrum may be difficult, complicated by each child's unique way of managing communication and interaction with others, associated disorders that make each child's situation unique, and emerging understandings of neurodiversity. Teacher effectiveness can be optimized based upon their awareness of the differences along the autism spectrum, acceptance that each child is unique, engagement of the child in social and educational activities and employment of teaching methods that are found to be helpful with people with developmental disability. [22]
Teachers play a key role in the success of a student on the autism spectrum by helping them to understand directions, organize tasks and support their achievements. [23] One example is organizing and grouping materials together for activities in specific ways. [24]
Teachers give autistic students extra time to answer when they ask them a question. Autistic children take time to process information but they are listening and will respond.
Schools dedicated to being autism friendly, like Pathlight School in Singapore, designed their campus to offer students "dignity" in an autism-friendly environment. There the campus was architecturally designed, landscaped and the interior created with a simple color scheme. All of this helps to avoid triggering sensory overload. There is a high teacher to student ratio, a focus on nurturing, and a comprehensive life-skills training and education program. [25] [26]
In regards to students who show a significant delay in acquiring academic and verbal communication skills, one available option is Applied Behavior Analysis (ABA)-style placement for their child. There is evidence, however, that ABA's methods may lead to autistic people developing PTSD. [27]
Empathizing-systemizing theory with video technology can be used to present information in an autism-friendly way that promotes understanding. For instance, computer applications or DVDs of actors making facial expressions to inform how body language provides clues about how someone might be feeling. Or, in the case of The Transporters , interesting items like trains are used to wear faces, drawing in the viewer into the faces. [28]
Being met with an individual in a dark uniform can be intimidating to an autistic person, particularly when they have been a crime victim or are injured. Police and emergency responders may become frustrated, not knowing a person that they are talking to is autistic. The responders may not be communicating in a way that will create understanding and make the situation less stressful. A program has been launched in London, Ontario, Canada to enter information into a database about autistic people so that responding police and emergency personnel are notified when they will be meeting an autistic person and may then communicate in a way that increases understanding and makes the situation less stressful. [29] Autism Alert Cards, for example, are available for autistic people in London, England, UK so that police and emergency personnel will recognize autistic individuals and respond appropriately. The cards, which encourage autism-friendly interaction, have a couple of key points about interacting with autistic people. [30]
Neurotypical people and those on the autism spectrum may have very different ways of communicating their feelings about life events, including:
Just because people may process and communicate their feelings differently, though, does not mean it is right or wrong. It is best to be honest and literal to help an autistic person to manage major life events. Providing information, and allowing them time to process it, are other important factors. Lastly, communication tools will also help to process and manage the event. [32]
People on the autism spectrum can help themselves manage situations by being aware of what they are feeling and thinking — and expressing their thoughts to important people in their life. Other tools are being aware of when they need help and asking for it — and thanking people when they have received assistance or a gift. [33]
Educational technological applications for people with autism include:
Digital talking books are used to assist people with disabilities, commonly people who are blind, and also for autistic people. One such use is for taped church programs. [34]
As the prevalence of autism increases, it becomes increasingly important to ensure that customer-facing organizations have basic tools for communicating with people on the autism spectrum. Tesco, a multinational supermarket chain, has implemented training for its employees to meet the needs of its customers who are on the autism spectrum, which is estimated to be one of every 100 people in the United Kingdom. Employees use an online training site and respond to a questionnaire to assess the extent to which they became more aware of autism spectrum disorders (ASD). Tesco is the first company to participate in an awareness program led by the Welsh Local Government Association (WLGA). The online training and questionnaire tool is intended to be used by many organizations in Wales to identify and commend businesses that are "ASD Aware". [37]
The SERVICE principles[ definition needed ] have been developed to guide businesses in making no-cost or low-cost changes to their premises and practices. [38] The principles address common challenges that people on the autism spectrum face when they are out in the community. By applying as many principles as possible, businesses can address the most frequently occurring challenges reported by autistic people. Corrimal, New South Wales, Australia is working towards being the first autism-friendly community in Australia. [39]
Inclusive recreation, also called adaptive recreation, is when recreational activities are modified to accommodate disabled people.
Organizations or programs that promote autism-friendly efforts are:
The autism rights movement encourages autistic people to "embrace their neurodiversity" and encourages society to accept autistics as they are. The movement advocates giving children more tools to cope with the non-autistic world instead of trying to change them into neurotypicals, and says society should learn to tolerate harmless behaviours such as tics and stims like hand-flapping or humming. [41] Autism rights activists say that "tics, like repetitive rocking and violent outbursts" can be managed if others make an effort to understand autistic people, while other autistic traits, "like difficulty with eye contact, with grasping humor or with breaking from routines", would not require corrective efforts if others were more tolerant. [42]
Autistic pride refers to pride in autism and shifting views of autism from "disease" to "difference". Autistic pride emphasizes the innate potential in all human phenotypic expressions and celebrates the diversity various neurological types express.
Autistic pride asserts that autistic people are not sick; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers. [43] [44] [45]
Asperger syndrome (AS), also known as Asperger's syndrome or Asperger's, is a term formerly used to describe a neurodevelopmental condition characterized by significant difficulties in social interaction and nonverbal communication, along with restricted, repetitive patterns of behavior and interests. Asperger syndrome has been merged with other conditions into autism spectrum disorder (ASD) and is no longer considered a stand-alone diagnosis. It was considered milder than other diagnoses which were merged into ASD due to relatively unimpaired spoken language and intelligence.
Childhood disintegrative disorder (CDD), also known as Heller's syndrome and disintegrative psychosis, is a rare condition characterized by late onset of developmental delays—or severe and sudden reversals—in language, social engagement, bowel and bladder, play and motor skills. Researchers have not been successful in finding a cause for the disorder. CDD has some similarities to autism and is sometimes considered a low-functioning form of it. In May 2013, CDD, along with other sub-types of PDD, was fused into a single diagnostic term called "autism spectrum disorder" under the new DSM-5 manual.
Neurodiversity is a framework for understanding human brain function that recognizes the diversity within sensory processing, motor abilities, social comfort, cognition, and focus as neurobiological differences. The neurodiversity paradigm argues that diversity in human cognition is normal and that some conditions generally classified as disorders, such as autism, are differences and disabilities that are not necessarily pathological.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with disability rights that emphasizes a neurodiversity paradigm, viewing autism as a disability with variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; reforms of services – i.e. services that focus on improving quality of life and well-being instead of suppression and masking of autistic traits that are adaptive or not harmful or imitations of social behaviors of allistic (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
High-functioning autism (HFA) was historically an autism classification where a person exhibits no intellectual disability, but may experience difficulty in communication, emotion recognition, expression, and social interaction.
The following outline is provided as an overview of and topical guide to autism:
The University of North Carolina TEACCH Autism Program creates and disseminates community-based services, training programs, and research for individuals of all ages and skill levels with autism spectrum disorder (ASD), to enhance the quality of life for them and their families across the lifespan.
Self-stimulatory behavior, also known as "stimming" and self-stimulation, is the repetition of physical movements, sounds, words, moving objects, or other behaviors. Such behaviors are found to some degree in all people, especially those with developmental disabilities such as ADHD, as well as autistic people. People diagnosed with sensory processing disorder are also known to potentially exhibit stimming behaviors.
Social Stories were devised as a tool to help autistic individuals better understand the nuances of interpersonal communication so that they could "interact in an effective and appropriate manner". Although the prescribed format was meant for high functioning people with basic communication skills, the format was adapted substantially to suit individuals with poor communication skills and low level functioning. The evidence shows that there has been minimal improvement in social interaction skills. However, it is difficult to assess whether the concept would have been successful if it had been carried out as designed.
Eric Schopler was a German born American psychologist whose pioneering research into autism led to the foundation of the TEACCH program.
Autistic art is artwork created by autistic artists that captures or conveys a variety of autistic experiences. According to a 2021 article in Cognitive Processing, autistic artists with improved linguistic and communication skills often show a greater degree of originality and attention to detail than their neurotypical counterparts, with a positive correlation between artistic talent and high linguistic functioning. Autistic art is often considered outsider art. Art by autistic artists has long been shown in separate venues from artists without disabilities. The works of some autistic artists have featured in art publications and documentaries and been exhibited in mainstream galleries. Although autistic artists seldom received formal art education in the past, recent inclusivity initiatives have made it easier for autistic artists to get a formal college education. The Aspergers/Autism Network's AANE Artist Collaborative is an example of an art organization for autistic adults.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
Within the study of human behavior, the Low Arousal Approach was developed by Professor Andrew McDonnell in the 1990s, and is now an internationally recognized model of behavior support. A low arousal approach to managing behavior of concern or challenging behavior focuses on stress and well-being, as well as how care givers respond in moments of crisis. Arousal refers to physiological arousal in response to stress, as opposed to sexual arousal. A low arousal approach to supporting individuals with additional needs aims to avoid confrontational situations and instead walk the path of least resistance.
Classic autism, also known as childhood autism, autistic disorder, (early) infantile autism, infantile psychosis, Kanner's autism, Kanner's syndrome, or (formerly) just autism, is a neurodevelopmental condition first described by Leo Kanner in 1943. It is characterized by atypical and impaired development in social interaction and communication as well as restricted, repetitive behaviors, activities, and interests. These symptoms first appear in early childhood and persist throughout life.
Autism, also called autism spectrum disorder (ASD) or autism spectrum condition (ASC), is a neurodevelopmental disorder characterized by symptoms of deficient reciprocal social communication and the presence of restricted, repetitive, and inflexible patterns of behavior that are impairing in multiple contexts and excessive or atypical to be developmentally and socioculturally inappropriate. Other common signs include difficulty with social interaction, verbal and nonverbal communication, along with perseverative interests, stereotypic body movements, rigid routines, and hyper- or hypo-reactivity to sensory input. Autism is clinically regarded as a spectrum disorder, meaning that it can manifest very differently in each person. For example, some are nonspeaking, while others have proficient spoken language. Because of this, there is wide variation in the support needs of people across the autism spectrum.
Autism Cymru was Wales' national charity for autism with offices in Cardiff, Wrexham, and Aberystwyth. The charity was established in May 2001 through an initial 3-year grant provided by The Shirley Foundation. The founder chair of the Trustees was Dame Stephanie Shirley of the Shirley Foundation.
Gary B. Mesibov is a licensed psychologist, psychology professor, editor and an author.
Gunilla Gerland is a Swedish author and lecturer on the topic of autism. Her written works include Secrets to Success for Professionals in the Autism Field: An Insider's Guide to Understanding the Autism Spectrum, the Environment and Your Role and her autobiography A Real Person: Life on the Outside.
The history of autism spans over a century; autism has been subject to varying treatments, being pathologized or being viewed as a beneficial part of human neurodiversity. The understanding of autism has been shaped by cultural, scientific, and societal factors, and its perception and treatment change over time as scientific understanding of autism develops.
Caetextia is a term and concept first coined by psychologists Joe Griffin and Ivan Tyrrell to describe a chronic disorder that manifests as a context blindness in people on the autism spectrum. It was specifically used to designate the most dominant manifestation of autistic behaviour in higher-functioning individuals. Griffin and Tyrell also suggested that caetextia "is a more accurate and descriptive term for this inability to see how one variable influences another, particularly at the higher end of the spectrum, than the label of 'Asperger's syndrome'".
