Communication Shutdown is a global fundraiser on behalf of autism-related organizations in more than 40 countries. [1] Beginning in 2010, the day is commemorated by individuals voluntarily refraining from using social media such as Facebook or Twitter for one day on 1 November. [2]
The concept of the event is based on the idea that social communication is difficult for autistic people. Going without social networks for one day is therefore a perspective-taking exercise for people not on the spectrum. [3]
The aim of the event is to raise awareness about autism and also drive donations for autism services via the purchase of a social network app.
The Communication Shutdown charity app provides a shutdown badge to wear online, adds participants to a global mosaic next to high-profile supporters, as well as other ways to show support.
High-profile supporters in 2010 included Buzz Aldrin, Fran Drescher, Miranda Kerr, Holly Robinson-Peete, Steven Seagal, Deepak Chopra and Temple Grandin. [4]
Global autism partners include members of Autism Europe, Autism Initiatives UK, Autism Awareness Australia, The ASHA Foundation India and grassroots organisations in America including the HollyRod Foundation, Giant Steps and the Autism Society of Colorado.
A movement initiated by Corina Lynn Becker [5] prior to the first Communication Shutdown event advocates for renaming the day as Autistics Speaking Day. [6] The focus is shifted to autistic individuals, who are encouraged to become more active on social media and to describe their experiences during a time when there are fewer neurotypical voices in the mix. Notable participants include Lydia Brown [7] and Ari Ne'eman. [8]
Neurodiversity refers to diversity in the human brain and cognition, for instance in sociability, learning, attention, mood and other mental functions.
The autism rights movement, also known as the autistic acceptance movement, is a social movement within the context of disability rights that emphasizes a neurodiversity paradigm, viewing the autism spectrum as a result of natural variations in the human brain rather than as a disease to be cured. The movement advocates for several goals, including greater acceptance of autistic traits and behaviors; services that focus on improving quality of life and well-being rather than on suppression and masking of autistic traits, or imitations of the behaviors of neurotypical (non-autistic) peers ; the creation of social networks and events that allow autistic people to socialize on their own terms; and the recognition of the autistic community as a minority group.
Jim Sinclair is an autism-rights movement activist who, with fellow autistics Kathy Lissner Grant and Donna Williams, formed Autism Network International (ANI) in 1992. Sinclair became the original coordinator of ANI.
Autistic Pride Day is a pride celebration for autistic people held on 18 June each year. Autistic pride recognises the importance of pride for autistic people and its role in bringing about positive changes in the broader society.
The Association for Behavior Analysis International (ABAI) is a nonprofit organization dedicated to promoting behavior analysis. The organization has over 9,000 members. The group organizes conferences and publishes journals on the topic of applied behavior analysis (ABA). ABAI has issued detailed, specific position papers intended to guide practitioners of ABA. The ABAI publishes six scholarly journals including The Psychological Record and their primary organ, Perspectives on Behavior Science, formerly The Behavior Analyst. They also publish an informational journal, Education and Treatment of Children, describing practical treatment of children with behavioral problems.
The following outline is provided as an overview of and topical guide to autism:
People-first language (PFL), also called person-first language, is a type of linguistic prescription which puts a person before a diagnosis, describing what condition a person "has" rather than asserting what a person "is". It is intended to avoid marginalization or dehumanization when discussing people with a chronic illness or disability. It can be seen as a type of disability etiquette but person-first language can also be more generally applied to any group that would otherwise be defined or mentally categorized by a condition or trait.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the neurodiversity movement and the Pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
Autism Speaks Inc. is a controversial autism advocacy organization and the largest autism research organization in the United States. It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. It was founded in February 2005 by Bob Wright and his wife Suzanne, a year after their grandson Christian was diagnosed with autism. The same year as its founding, the organization merged with Autism Coalition for Research and Education. It then merged with the National Alliance for Autism Research in 2006 and Cure Autism Now in 2007.
Ari Daniel Ne'eman is an American disability rights activist and researcher who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee. Ne'eman has a diagnosis of Asperger syndrome, which made him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. As of 2019, he also is a Ph.D. candidate in Health Policy at Harvard University.
Too Sane for This World is a documentary series that was directed by William Davenport. The first film, Too Sane for This World, was released on September 1, 2011 and features an introduction by Dr. Temple Grandin. The second documentary, Citizen Autistic, was released on April 1, 2013.
Autism Cymru was "Wales' national charity for autism" with offices in Cardiff, Wrexham, and Aberystwyth. The charity was established in May 2001 through an initial 3yrs grant provided by The Shirley Foundation. The founder chair of the Trustees was Dame Stephanie Shirley of the Shirley Foundation.
William Davenport is a documentary filmmaker, musician, publisher, writer, teacher and autism activist. He is best known for his documentary films about autism, also for his work as the publisher of Unsound magazine, and as the founding member of the experimental/noise band Problemist.
Discrimination against autistic people is the discrimination and persecution that autistic people have been subjected to. Discrimination against autistic people is a form of ableism.
Lydia X. Z. Brown is an American autistic disability rights activist, writer, attorney, and public speaker who was honored by the White House in 2013. They are the chairperson of the American Bar Association Civil Rights & Social Justice Disability Rights Committee. They are also Policy Counsel for Privacy & Data at the Center for Democracy & Technology, and Director of Policy, Advocacy, & External Affairs at the Autistic Women & Nonbinary Network. In 2022, they unsuccessfully ran for the Maryland House of Delegates in District 7A, losing to state delegate Kathy Szeliga and delegate-elect Ryan Nawrocki.
Julia Bascom is an American autism rights activist. She is the current Executive Director of the Autistic Self Advocacy Network (ASAN) and replaced Ari Ne'eman as president of ASAN in early 2017.
Citizen Autistic is a 2013 documentary film directed by William Davenport exploring the advocacy work of autism rights activists. Citizen Autistic features interviews with autistic activists including Ari Ne'eman, co-founder and former president of the Autistic Self Advocacy Network, and Zoe Gross, creator of the Disability Day of Mourning annual vigils held in honor of filicide victims with disabilities. The documentary covers topics important to neurodiversity such as the debate over whether researchers should seek a cure for autism and controversies surrounding the nonprofit organization Autism Speaks and the Judge Rotenberg Center, a residential institution known for using electric skin shock aversive treatment as a form of behavioral modification.
Morénike Giwa Onaiwu is an American educator, author, and autism and HIV advocate. Alongside E. Ashkenazy and Lydia Brown, Onaiwu is an editor of All the Weight of Our Dreams, an anthology of art and writing entirely by autistic people of color published by the Autism Women's Network in June 2017.
Jonathan "Jon" Shestack is a film producer. He has produced well-known movies such as Air Force One. Additionally, he was one of the founders of Cure Autism Now, an autism organization that merged with Autism Speaks in 2006. His father is Jerome J. Shestack, a well-known lawyer from Philadelphia.