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Autism Network International (ANI) is an advocacy organization run by and for autistic people. ANI's principles involve the anti-cure perspective, the perspective that there should not be a goal to "cure" people of autism.
ANI was started by Jim Sinclair, Kathy Grant, and Donna Williams in 1992. [1] The advocacy group is organized by autistic people for autistic people. [2] ANI started out as a pen pal group, but when they first met in person, "they felt a sense of belonging, of being understood, of having the same concepts and sharing a language, of being normal." [3] Sinclair and the other founders created an online community where participants could discuss issues in the online forum. [4] ANI began publishing a newsletter, called Our Voice , which was ANI's physical newsletter [5] .
ANI is responsible for coining the phrase "neurologically typical". [6] Sinclair used ANI to help focus on the positive benefits of being Autistic, rather than the negatives. [4] ANI has helped autistic individuals learn "the important lesson of delighting in a shared autistic culture." [7]
Autreat was a United States retreat and conference hosted by Autism Network International for autistic people. The first Autreat was in 1996, [1] and was held at Camp Bristol Hills in New York. [2] In 1999, there were 80 attendees, with one woman traveling from as far as Japan. [4] Autreat was held annually between 1996 and 2013, with the exception of 2001. [8]
Autreat was a conference for autistic people "designed by autistic people. [9] It was a contrast to other autism conferences, which ANI believes are typically about autistic people but are intended for parents and professionals. Although parents, professionals, and others were welcome, Autreat was specifically designed for autistics, and offers an "autism friendly" environment, free of sensory bombardment. Common autistic mannerisms, like exceedingly literal conversation and hand-flapping, are to be expected. Common sources of autistic irritation, like casual hugs and fluorescent lighting, are not allowed. [10]
Guests were under no pressure to interact socially. A simple visual code in the form of a colored badge was used to indicate members who wish to interact with anyone and everyone, those who wish not to be approached by strangers, and those who wish not to be approached at all. [11] Autreat helped allow autistic individuals a "place to pursue and enjoy a nonconforming subculture." [12]
Autreat inspired similar programs such as AutCon in the Western United States, as well as in other countries, such as Autscape in England and Projekt Empowerment in Sweden. [2]
Diagnoses of autism have become more frequent since the 1980s, which has led to various controversies about both the cause of autism and the nature of the diagnoses themselves. Whether autism has mainly a genetic or developmental cause, and the degree of coincidence between autism and intellectual disability, are all matters of current scientific controversy as well as inquiry. There is also more sociopolitical debate as to whether autism should be considered a disability on its own.
The neurodiversity paradigm is a framework for understanding human brain function that recognizes the diversity within sensory processing, motor abilities, social comfort, cognition, and focus as neurobiological differences. This diversity falls on a spectrum of neurocognitive differences. The neurodiversity paradigm argues that diversity in neurocognition is part of humanity and that some neurodivergences generally classified as disorders, such as autism, are differences and disabilities that are not necessarily pathological. Neurotypical individuals are those who fall within the average range of functioning and thinking.
The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with the disability rights movement. It emphasizes the neurodiversity paradigm, viewing autism as a set of naturally occurring variations in human cognition, a disability with both strengths and weaknesses, rather than as a disease to be cured or a medical disorder. This paradigm contradicts and diverges from the medical model of disability, without opposing all aspects of it.
Jim Sinclair is an American autistic activist and writer who helped pioneer the neurodiversity movement. Sinclair, along with Xenia Grant and Donna Williams, formed Autism Network International (ANI). Sinclair became the original coordinator of ANI. Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured. Sinclair is intersex and uses Xe/Xem/Xyr pronouns.
Autistic Pride Day is a pride celebration for autistic people held on 18 June each year. Autistic pride recognises the importance of pride for autistic people and its role in bringing about positive changes in the broader society.
Aspies For Freedom (AFF) is a solidarity and campaigning group that aimed at raising public awareness of the autism rights movement. The aim of Aspies For Freedom is to educate the public that the autism spectrum is not always a disability, and that there are advantages as well as disadvantages. For this purpose, the group organizes an annual Autistic Pride Day. AFF provides support for the autistic community and protests attempts to cure autism.
The following outline is provided as an overview of and topical guide to autism:
Self-advocacy is the act of speaking up for oneself and one's interests. It is used as a name for civil rights movements and mutual aid networks for people with intellectual and developmental disabilities. The term arose in the broader civil rights movements of the 1960s and 1970s, and is part of the disability rights movement. Today there are self-advocacy organizations across the world.
People-first language (PFL), also called person-first language, is a type of linguistic prescription which puts a person before a diagnosis, describing what condition a person "has" rather than asserting what a person "is". It is intended to avoid marginalization or dehumanization when discussing people with a chronic illness or disability. It can be seen as a type of disability etiquette but person-first language can also be more generally applied to any group that would otherwise be defined or mentally categorized by a condition or trait.
Mel Baggs, was an American non-binary blogger who predominantly wrote on the subject of autism and disability. At times, Baggs used a communication device to speak and referred to themself as a low-functioning autistic. Revelations about Baggs's past created some uncertainty about their diagnosis.
Societal and cultural aspects of autism or sociology of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects the definition of personhood. The autistic community is divided primarily into two camps; the autism rights movement and the pathology paradigm. The pathology paradigm advocates for supporting research into therapies, treatments, and/or a cure to help minimize or remove autistic traits, seeing treatment as vital to help individuals with autism, while the neurodiversity movement believes autism should be seen as a different way of being and advocates against a cure and interventions that focus on normalization, seeing it as trying to exterminate autistic people and their individuality. Both are controversial in autism communities and advocacy which has led to significant infighting between these two camps. While the dominant paradigm is the pathology paradigm and is followed largely by autism research and scientific communities, the neurodiversity movement is highly popular among most autistic people, within autism advocacy, autism rights organizations, and related neurodiversity approaches have been rapidly growing and applied in the autism research field in the last few years.
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
Autism Speaks Inc. is a controversial American non-profit autism awareness organization and the largest autism research organization in the United States. It sponsors autism research and conducts awareness and outreach activities aimed at families, governments, and the public. It was founded in February 2005 by Bob Wright and his wife Suzanne, a year after their grandson Christian was diagnosed with autism. The same year as its founding, the organization merged with Autism Coalition for Research and Education. It then merged with the National Alliance for Autism Research in 2006 and Cure Autism Now in 2007.
Ari Daniel Ne'eman is an American disability rights activist and researcher who co-founded the Autistic Self Advocacy Network in 2006. On December 16, 2009, President Barack Obama announced that Ne'eman would be appointed to the National Council on Disability. After an anonymous hold was lifted, Ne'eman was unanimously confirmed by the United States Senate to serve on the Council on June 22, 2010. He chaired the council's Policy & Program Evaluation Committee making him the first autistic person to serve on the council. In 2015, Ne'eman left the National Council on Disability at the end of his second term. He currently serves as a consultant to the American Civil Liberties Union. He is currently an Assistant Professor at the Department of Health Policy and Management of Harvard University.
Autism, or autism spectrum disorder (ASD), is a neurodevelopmental disorder characterized by repetitive, restricted, and inflexible patterns of behavior, interests, and activities; deficits in social communication and social interaction; and the presence of high or low sensory sensitivity. A formal diagnosis requires that symptoms cause significant impairment in multiple functional domains, in addition to being atypical or excessive for the individual's age and sociocultural context.
Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individuals' unique and special needs.
Diagnosis, treatment, and experiences of autism varies globally. Although the diagnosis of autism is rising in post-industrial nations, diagnosis rates are much lower in developing nations.
Lydia X. Z. Brown is an American autistic disability rights activist, writer, attorney, and public speaker who was honored by the White House in 2013. They are the chairperson of the American Bar Association Civil Rights & Social Justice Disability Rights Committee. They are also Policy Counsel for Privacy & Data at the Center for Democracy & Technology, and Director of Policy, Advocacy, & External Affairs at the Autistic Women & Nonbinary Network. In 2022, they unsuccessfully ran for the Maryland House of Delegates in District 7A, losing to state delegate Kathy Szeliga and delegate-elect Ryan Nawrocki.
Julia Bascom is an American autism rights activist. She is a former executive director of the Autistic Self Advocacy Network (ASAN) and replaced Ari Ne'eman as president of ASAN in early 2017 before stepping down at the end of 2023.
Morénike Giwa Onaiwu is an American educator, author, and autism and HIV advocate. Alongside E. Ashkenazy and Lydia Brown, Onaiwu is an editor of All the Weight of Our Dreams, an anthology of art and writing entirely by autistic people of color published by the Autism Women's Network in June 2017.
