Autonomy

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In developmental psychology and moral, political, and bioethical philosophy, autonomy [note 1] is the capacity to make an informed, uncoerced decision. Autonomous organizations or institutions are independent or self-governing. Autonomy can also be defined from a human resources perspective, where it denotes a (relatively high) level of discretion granted to an employee in his or her work. [1] In such cases, autonomy is known to generally increase job satisfaction. Self-actualized individuals are thought to operate autonomously of external expectations. [2] In a medical context, respect for a patient's personal autonomy is considered one of many fundamental ethical principles in medicine.

Contents

Sociology

In the sociology of knowledge, a controversy over the boundaries of autonomy inhibited analysis of any concept beyond relative autonomy, [3] until a typology of autonomy was created and developed within science and technology studies [ citation needed ]. According to it, the institution of science's existing autonomy is "reflexive autonomy": actors and structures within the scientific field are able to translate or to reflect diverse themes presented by social and political fields, as well as influence them regarding the thematic choices on research projects.

Institutional autonomy

Institutional autonomy is having the capacity as a legislator to be able to implant and pursue official goals. Autonomous institutions are responsible for finding sufficient resources or modifying their plans, programs, courses, responsibilities, and services accordingly. [4] But in doing so, they must contend with any obstacles that can occur, such as social pressure against cut-backs or socioeconomic difficulties. From a legislator's point of view, to increase institutional autonomy, conditions of self-management and institutional self-governance must be put in place. An increase in leadership and a redistribution of decision-making responsibilities would be beneficial to the research of resources. [5]

Institutional autonomy was often seen as a synonym for self-determination, and many governments feared that it would lead institutions to an irredentist or secessionist region. But autonomy should be seen as a solution to self-determination struggles. Self-determination is a movement toward independence, whereas autonomy is a way to accommodate the distinct regions/groups within a country. Institutional autonomy can diffuse conflicts regarding minorities and ethnic groups in a society. Allowing more autonomy to groups and institutions helps create diplomatic relationships between them and the central government. [6]

Politics

In governmental parlance, autonomy refers to self-governance. An example of an autonomous jurisdiction was the former United States governance of the Philippine Islands. The Philippine Autonomy Act of 1916 provided the framework for the creation of an autonomous government under which the Filipino people had broader domestic autonomy than previously, although it reserved certain privileges to the United States to protect its sovereign rights and interests. [7] Other examples include Kosovo (as the Socialist Autonomous Province of Kosovo) under the former Yugoslav government of Marshal Tito [8] and Puntland Autonomous Region within Federal Republic of Somalia.

Although often being territorially defined as self-governments, autonomous self-governing institutions may take a non-territorial form. Such non-territorial solutions are, for example, cultural autonomy in Estonia and Hungary, national minority councils in Serbia or Sámi parliaments in Nordic countries. [9] [10]

Philosophy

Autonomy is a key concept that has a broad impact on different fields of philosophy. In metaphysical philosophy, the concept of autonomy is referenced in discussions about free will, fatalism, determinism, and agency. In moral philosophy, autonomy refers to subjecting oneself to objective moral law. [11]

According to Kant

Immanuel Kant (1724–1804) defined autonomy by three themes regarding contemporary ethics. Firstly, autonomy as the right for one to make their own decisions excluding any interference from others. Secondly, autonomy as the capacity to make such decisions through one's own independence of mind and after personal reflection. Thirdly, as an ideal way of living life autonomously. In summary, autonomy is the moral right one possesses, or the capacity we have in order to think and make decisions for oneself providing some degree of control or power over the events that unfold within one's everyday life. [12]

The context in which Kant addresses autonomy is in regards to moral theory, asking both foundational and abstract questions. He believed that in order for there to be morality, there must be autonomy. "Autonomous" is derived from the Greek word autonomos [13] where 'auto' means self and 'nomos' means to govern (nomos: as can be seen in its usage in nomárchēs which means chief of the province). Kantian autonomy also provides a sense of rational autonomy, simply meaning one rationally possesses the motivation to govern their own life. Rational autonomy entails making your own decisions but it cannot be done solely in isolation. Cooperative rational interactions are required to both develop and exercise our ability to live in a world with others.

Kant argued that morality presupposes this autonomy (German : Autonomie) in moral agents, since moral requirements are expressed in categorical imperatives. An imperative is categorical if it issues a valid command independent of personal desires or interests that would provide a reason for obeying the command. It is hypothetical if the validity of its command, if the reason why one can be expected to obey it, is the fact that one desires or is interested in something further that obedience to the command would entail. "Don't speed on the freeway if you don't want to be stopped by the police" is a hypothetical imperative. "It is wrong to break the law, so don't speed on the freeway" is a categorical imperative. The hypothetical command not to speed on the freeway is not valid for you if you do not care whether you are stopped by the police. The categorical command is valid for you either way. Autonomous moral agents can be expected to obey the command of a categorical imperative even if they lack a personal desire or interest in doing so. It remains an open question whether they will, however.

The Kantian concept of autonomy is often misconstrued, leaving out the important point about the autonomous agent's self-subjection to the moral law. It is thought that autonomy is fully explained as the ability to obey a categorical command independently of a personal desire or interest in doing so—or worse, that autonomy is "obeying" a categorical command independently of a natural desire or interest; and that heteronomy, its opposite, is acting instead on personal motives of the kind referenced in hypothetical imperatives.

In his Groundwork of the Metaphysic of Morals , Kant applied the concept of autonomy also to define the concept of personhood and human dignity. Autonomy, along with rationality, are seen by Kant as the two criteria for a meaningful life. Kant would consider a life lived without these not worth living; it would be a life of value equal to that of a plant or insect. [14] According to Kant autonomy is part of the reason that we hold others morally accountable for their actions. Human actions are morally praise- or blame-worthy in virtue of our autonomy. Non- autonomous beings such as plants or animals are not blameworthy due to their actions being non-autonomous. [14] Kant's position on crime and punishment is influenced by his views on autonomy. Brainwashing or drugging criminals into being law-abiding citizens would be immoral as it would not be respecting their autonomy. Rehabilitation must be sought in a way that respects their autonomy and dignity as human beings. [15]

According to Nietzsche

Friedrich Nietzsche wrote about autonomy and the moral fight. [16] Autonomy in this sense is referred to as the free self and entails several aspects of the self, including self-respect and even self-love. This can be interpreted as influenced by Kant (self-respect) and Aristotle (self-love). For Nietzsche, valuing ethical autonomy can dissolve the conflict between love (self-love) and law (self-respect) which can then translate into reality through experiences of being self-responsible. Because Nietzsche defines having a sense of freedom with being responsible for one's own life, freedom and self-responsibility can be very much linked to autonomy. [17]

According to Piaget

The Swiss philosopher Jean Piaget (1896–1980) believed that autonomy comes from within and results from a "free decision". It is of intrinsic value and the morality of autonomy is not only accepted but obligatory. When an attempt at social interchange occurs, it is reciprocal, ideal and natural for there to be autonomy regardless of why the collaboration with others has taken place. For Piaget, the term autonomous can be used to explain the idea that rules are self-chosen. By choosing which rules to follow or not, we are in turn determining our own behaviour. [18]

Piaget studied the cognitive development of children by analyzing them during their games and through interviews, establishing (among other principles) that the children's moral maturation process occurred in two phases, the first of heteronomy and the second of autonomy:

According to Kohlberg

The American psychologist Lawrence Kohlberg (1927–1987) continues the studies of Piaget. His studies collected information from different latitudes to eliminate the cultural variability, and focused on the moral reasoning, and not so much in the behavior or its consequences. Through interviews with adolescent and teenage boys, who were to try and solve "moral dilemmas", Kohlberg went on to further develop the stages of moral development. The answers they provided could be one of two things. Either they choose to obey a given law, authority figure or rule of some sort or they chose to take actions that would serve a human need but in turn break this given rule or command.

The most popular moral dilemma asked involved the wife of a man approaching death due to a special type of cancer. Because the drug was too expensive to obtain on his own, and because the pharmacist who discovered and sold the drug had no compassion for him and only wanted profits, he stole it. Kohlberg asks these adolescent and teenage boys (10-, 13- and 16-year-olds) if they think that is what the husband should have done or not. Therefore, depending on their decisions, they provided answers to Kohlberg about deeper rationales and thoughts and determined what they value as important. This value then determined the "structure" of their moral reasoning. [19]

Kohlberg established three stages of morality, each of which is subdivided into two levels. They are read in progressive sense, that is, higher levels indicate greater autonomy.

According to Audi

Robert Audi characterizes autonomy as the self-governing power to bring reasons to bear in directing one's conduct and influencing one's propositional attitudes. [20] :211–212 [21] Traditionally, autonomy is only concerned with practical matters. But, as Audi's definition suggests, autonomy may be applied to responding to reasons at large, not just to practical reasons. Autonomy is closely related to freedom but the two can come apart. An example would be a political prisoner who is forced to make a statement in favor of his opponents in order to ensure that his loved ones are not harmed. As Audi points out, the prisoner lacks freedom but still has autonomy since his statement, though not reflecting his political ideals, is still an expression of his commitment to his loved ones. [22] :249

Autonomy is often equated with self-legislation in the Kantian tradition. [23] [24] Self-legislation may be interpreted as laying down laws or principles that are to be followed. Audi agrees with this school in the sense that we should bring reasons to bear in a principled way. Responding to reasons by mere whim may still be considered free but not autonomous. [22] :249,257 A commitment to principles and projects, on the other hand, provides autonomous agents with an identity over time and gives them a sense of the kind of persons they want to be. But autonomy is neutral as to which principles or projects the agent endorses. So different autonomous agents may follow very different principles. [22] :258 But, as Audi points out, self-legislation is not sufficient for autonomy since laws that do not have any practical impact do not constitute autonomy. [22] :247–248 Some form of motivational force or executive power is necessary in order to get from mere self-legislation to self-government. [25] This motivation may be inherent in the corresponding practical judgment itself, a position known as motivational internalism, or may come to the practical judgment externally in the form of some desire independent of the judgment, as motivational externalism holds. [22] :251–252

In the Humean tradition, intrinsic desires are the reasons the autonomous agent should respond to. This theory is called instrumentalism. [26] [27] Audi rejects instrumentalism and suggests that we should adopt a position known as axiological objectivism. The central idea of this outlook is that objective values, and not subjective desires, are the sources of normativity and therefore determine what autonomous agents should do. [22] :261ff

Child development

Autonomy in childhood and adolescence is when one strives to gain a sense of oneself as a separate, self-governing individual. [28] Between ages 1–3, during the second stage of Erikson's and Freud's stages of development, the psychosocial crisis that occurs is autonomy versus shame and doubt. [29] The significant event that occurs during this stage is that children must learn to be autonomous, and failure to do so may lead to the child doubting their own abilities and feel ashamed. [29] When a child becomes autonomous it allows them to explore and acquire new skills. Autonomy has two vital aspects wherein there is an emotional component where one relies more on themselves rather than their parents and a behavioural component where one makes decisions independently by using their judgement. [28] The styles of child rearing affect the development of a child's autonomy. Autonomy in adolescence is closely related to their quest for identity. [28] In adolescence parents and peers act as agents of influence. Peer influence in early adolescence may help the process of an adolescent to gradually become more autonomous by being less susceptible to parental or peer influence as they get older. [29] In adolescence the most important developmental task is to develop a healthy sense of autonomy. [29]

Religion

In Christianity, autonomy is manifested as a partial self-governance on various levels of church administration. During the history of Christianity, there were two basic types of autonomy. Some important parishes and monasteries have been given special autonomous rights and privileges, and the best known example of monastic autonomy is the famous Eastern Orthodox monastic community on Mount Athos in Greece. On the other hand, administrative autonomy of entire ecclesiastical provinces has throughout history included various degrees of internal self-governance.

In ecclesiology of Eastern Orthodox Churches, there is a clear distinction between autonomy and autocephaly, since autocephalous churches have full self-governance and independence, while every autonomous church is subject to some autocephalous church, having a certain degree of internal self-governance. Since every autonomous church had its own historical path to ecclesiastical autonomy, there are significant differences between various autonomous churches in respect of their particular degrees of self-governance. For example, churches that are autonomous can have their highest-ranking bishops, such as an archbishop or metropolitan, appointed or confirmed by the patriarch of the mother church from which it was granted its autonomy, but generally they remain self-governing in many other respects.

In the history of Western Christianity the question of ecclesiastical autonomy was also one of the most important questions, especially during the first centuries of Christianity, since various archbishops and metropolitans in Western Europe have often opposed centralizing tendencies of the Church of Rome. [30] As of 2019, the Catholic Church comprises 24 autonomous ( sui iuris ) Churches in communion with the Holy See. Various denominations of Protestant churches usually have more decentralized power, and churches may be autonomous, thus having their own rules or laws of government, at the national, local, or even individual level.

Sartre brings the concept of the Cartesian god being totally free and autonomous. He states that existence precedes essence with god being the creator of the essences, eternal truths and divine will. This pure freedom of god relates to human freedom and autonomy; where a human is not subjected to pre-existing ideas and values. [31]

According to the first amendment, In the United States of America, the federal government is restricted in building a national church. This is due to the first amendment's recognizing people's freedom's to worship their faith according to their own belief's. For example, the American government has removed the church from their "sphere of authority" [32] due to the churches' historical impact on politics and their authority on the public. This was the beginning of the disestablishment process. The Protestant churches in the United States had a significant impact on American culture in the nineteenth century, when they organized the establishment of schools, hospitals, orphanages, colleges, magazines, and so forth. [33] This has brought up the famous, however, misinterpreted term of the separation of church and state. These churches lost the legislative and financial support from the state.

The disestablishment process

The first disestablishment began with the introduction of the bill of rights. [34] In the twentieth century, due to the great depression of the 1930s and the completion of the second world war, the American churches were revived. Specifically the Protestant churches. This was the beginning of the second disestablishment [34] when churches had become popular again but held no legislative power. One of the reasons why the churches gained attendance and popularity was due to the baby boom, when soldiers came back from the second world war and started their families. The large influx of newborns gave the churches a new wave of followers. However, these followers did not hold the same beliefs as their parents and brought about the political, and religious revolutions of the 1960s.

During the 1960s, the collapse of religious and cultural middle brought upon the third disestablishment. [34] Religion became more important to the individual and less so to the community. The changes brought from these revolutions significantly increased the personal autonomy of individuals due to the lack of structural restraints giving them added freedom of choice. This concept is known as "new voluntarism" [34] where individuals have free choice on how to be religious and the free choice whether to be religious or not.

Medicine

In a medical context, respect for a patient's personal autonomy is considered one of many fundamental ethical principles in medicine. [35] Autonomy can be defined as the ability of the person to make his or her own decisions. This faith in autonomy is the central premise of the concept of informed consent and shared decision making. This idea, while considered essential to today's practice of medicine, was developed in the last 50 years. According to Tom Beauchamp and James Childress (in Principles of Biomedical Ethics), the Nuremberg trials detailed accounts of horrifyingly exploitative medical "experiments" which violated the subjects' physical integrity and personal autonomy. [36] These incidences prompted calls for safeguards in medical research, such as the Nuremberg Code which stressed the importance of voluntary participation in medical research. It is believed that the Nuremberg Code served as the premise for many current documents regarding research ethics. [37]

Respect for autonomy became incorporated in health care and patients could be allowed to make personal decisions about the health care services that they receive. [38] Notably, autonomy has several aspects as well as challenges that affect health care operations. The manner in which a patient is handled may undermine or support the autonomy of a patient and for this reason, the way a patient is communicated to becomes very crucial. A good relationship between a patient and a health care practitioner needs to be well defined to ensure that autonomy of a patient is respected. [39] Just like in any other life situation, a patient would not like to be under the control of another person. The move to emphasize respect for patient's autonomy rose from the vulnerabilities that were pointed out in regards to autonomy.

However, autonomy does not only apply in a research context. Users of the health care system have the right to be treated with respect for their autonomy, instead of being dominated by the physician. [40] This is referred to as paternalism. While paternalism is meant to be overall good for the patient, this can very easily interfere with autonomy. [41] Through the therapeutic relationship, a thoughtful dialogue between the client and the physician may lead to better outcomes for the client, as he or she is more of a participant in decision-making.

There are many different definitions of autonomy, many of which place the individual in a social context. Relational autonomy, which suggests that a person is defined through their relationships with others, is increasingly considered in medicine and particularly in critical [42] and end-of-life care. [43] Supported autonomy [44] suggests instead that in specific circumstances it may be necessary to temporarily compromise the autonomy of the person in the short term in order to preserve their autonomy in the long-term. Other definitions of the autonomy imagine the person as a contained and self-sufficient being whose rights should not be compromised under any circumstance. [45]

There are also differing views with regard to whether modern health care systems should be shifting to greater patient autonomy or a more paternalistic approach. For example, there are such arguments that suggest the current patient autonomy practiced is plagued by flaws such as misconceptions of treatment and cultural differences, and that health care systems should be shifting to greater paternalism on the part of the physician given their expertise. [46]  On the other hand, other approaches suggest that there simply needs to be an increase in relational understanding between patients and health practitioners to improve patient autonomy. [47]

One argument in favor of greater patient autonomy and its benefits is by Dave deBronkart, who believes that in the technological advancement age, patients are capable of doing a lot of their research on medical issues from their home. According to deBronkart, this helps to promote better discussions between patients and physicians during hospital visits, ultimately easing up the workload of physicians. [48] deBronkart argues that this leads to greater patient empowerment and a more educative health care system. [48] In opposition to this view, technological advancements can sometimes be viewed as an unfavorable way of promoting patient autonomy. For example, self-testing medical procedures which have become increasingly common are argued by Greaney et al. to increase patient autonomy, however, may not be promoting what is best for the patient. In this argument, contrary to deBronkart, the current perceptions of patient autonomy are excessively over-selling the benefits of individual autonomy, and is not the most suitable way to go about treating patients. [49] Instead, a more inclusive form of autonomy should be implemented, relational autonomy, which factors into consideration those close to the patient as well as the physician. [49] These different concepts of autonomy can be troublesome as the acting physician is faced with deciding which concept he/she will implement into their clinical practice. [50] It is often references as one of the four pillars of medicine, alongside beneficence, justice and nonmaleficence [51]

Autonomy varies and some patients find it overwhelming especially the minors when faced with emergency situations. Issues arise in emergency room situations where there may not be time to consider the principle of patient autonomy. Various ethical challenges are faced in these situations when time is critical, and patient consciousness may be limited. However, in such settings where informed consent may be compromised, the working physician evaluates each individual case to make the most professional and ethically sound decision. [52] For example, it is believed that neurosurgeons in such situations, should generally do everything they can to respect patient autonomy. In the situation in which a patient is unable to make an autonomous decision, the neurosurgeon should discuss with the surrogate decision maker in order to aid in the decision-making process. [52] Performing surgery on a patient without informed consent is in general thought to only be ethically justified when the neurosurgeon and his/her team render the patient to not have the capacity to make autonomous decisions. If the patient is capable of making an autonomous decision, these situations are generally less ethically strenuous as the decision is typically respected. [52]

Not every patient is capable of making an autonomous decision. For example, a commonly proposed question is at what age children should be partaking in treatment decisions. [53] This question arises as children develop differently, therefore making it difficult to establish a standard age at which children should become more autonomous. [53] Those who are unable to make the decisions prompt a challenge to medical practitioners since it becomes difficult to determine the ability of a patient to make a decision. [54] To some extent, it has been said that emphasis of autonomy in health care has undermined the practice of health care practitioners to improve the health of their patient as necessary. The scenario has led to tension in the relationship between a patient and a health care practitioner. This is because as much as a physician wants to prevent a patient from suffering, they still have to respect autonomy. Beneficence is a principle allowing physicians to act responsibly in their practice and in the best interests of their patients, which may involve overlooking autonomy. [55] However, the gap between a patient and a physician has led to problems because in other cases, the patients have complained of not being adequately informed.

The seven elements of informed consent (as defined by Beauchamp and Childress) include threshold elements (competence and voluntariness), information elements (disclosure, recommendation, and understanding) and consent elements (decision and authorization). [56] Some philosophers such as Harry Frankfurt consider Beauchamp and Childress criteria insufficient. They claim that an action can only be considered autonomous if it involves the exercise of the capacity to form higher-order values about desires when acting intentionally. [57] What this means is that patients may understand their situation and choices but would not be autonomous unless the patient is able to form value judgements about their reasons for choosing treatment options they would not be acting autonomously.

In certain unique circumstances, government may have the right to temporarily override the right to bodily integrity in order to preserve the life and well-being of the person. Such action can be described using the principle of "supported autonomy", [44] a concept that was developed to describe unique situations in mental health (examples include the forced feeding of a person dying from the eating disorder anorexia nervosa, or the temporary treatment of a person living with a psychotic disorder with antipsychotic medication). While controversial, the principle of supported autonomy aligns with the role of government to protect the life and liberty of its citizens. Terrence F. Ackerman has highlighted problems with these situations, he claims that by undertaking this course of action physician or governments run the risk of misinterpreting a conflict of values as a constraining effect of illness on a patient's autonomy. [58]

Since the 1960s, there have been attempts to increase patient autonomy including the requirement that physician's take bioethics courses during their time in medical school. [59] Despite large-scale commitment to promoting patient autonomy, public mistrust of medicine in developed countries has remained. [60] Onora O'Neill has ascribed this lack of trust to medical institutions and professionals introducing measures that benefit themselves, not the patient. O'Neill claims that this focus on autonomy promotion has been at the expense of issues like distribution of healthcare resources and public health.

One proposal to increase patient autonomy is through the use of support staff. The use of support staff including medical assistants, physician assistants, nurse practitioners, nurses, and other staff that can promote patient interests and better patient care. [61] Nurses especially can learn about patient beliefs and values in order to increase informed consent and possibly persuade the patient through logic and reason to entertain a certain treatment plan. [62] [63] This would promote both autonomy and beneficence, while keeping the physician's integrity intact. Furthermore, Humphreys asserts that nurses should have professional autonomy within their scope of practice (35–37). Humphreys argues that if nurses exercise their professional autonomy more, then there will be an increase in patient autonomy (35–37).

International human rights law

After the Second World War, there was a push for international human rights that came in many waves. Autonomy as a basic human right started the building block in the beginning of these layers alongside liberty. [64] The Universal declarations of Human rights of 1948 has made mention of autonomy or the legal protected right to individual self-determination in article 22. [65]

Documents such as the United Nations Declaration on the Rights of Indigenous Peoples reconfirm international law in the aspect of human rights because those laws were already there, but it is also responsible for making sure that the laws highlighted when it comes to autonomy, cultural and integrity; and land rights are made within an indigenous context by taking special attention to their historical and contemporary events [66]

The United Nations Declaration on the Rights of Indigenous Peoples article 3 also through international law provides Human rights for Indigenous individuals by giving them a right to self-determination, meaning they have all the liberties to choose their political status, and are capable to go and improve their economic, social, and cultural statuses in society, by developing it. Another example of this, is article 4 of the same document which gives them autonomous rights when it comes to their internal or local affairs and how they can fund themselves in order to be able to self govern themselves. [67]

Minorities in countries are also protected as well by international law; the 27th article of the United Nations International covenant on Civil and Political rights or the ICCPR does so by allowing these individuals to be able to enjoy their own culture or use their language. Minorities in that manner are people from ethnic religious or linguistic groups according to the document. [68]

The European Court of Human rights, is an international court that has been created on behalf of the European Conventions of Human rights. However, when it comes to autonomy they did not explicitly state it when it comes to the rights that individuals have. The current article 8 has remedied to that when the case of Pretty v the United Kingdom , a case in 2002 involving assisted suicide, where autonomy was used as a legal right in law. It was where Autonomy was distinguished and its reach into law was marked as well making it the foundations for legal precedent in making case law originating from the European Court of Human rights. [69]

The Yogyakarta Principles, a document with no binding effect in international human rights law, contend that "self-determination" used as meaning of autonomy on one's own matters including informed consent or sexual and reproductive rights, is integral for one's self-defined or gender identity and refused any medical procedures as a requirement for legal recognition of the gender identity of transgender. [70] If eventually accepted by the international community in a treaty, this would make these ideas human rights in the law. The Convention on the Rights of Persons with Disabilities also defines autonomy as principles of rights of a person with disability including "the freedom to make one's own choices, and independence of persons". [71]

Celebrity culture on teenage autonomy

A study conducted by David C. Giles and John Maltby conveyed that after age-affecting factors were removed, a high emotional autonomy was a significant predictor of celebrity interest, as well as high attachment to peers with a low attachment to parents. Patterns of intense personal interest in celebrities was found to be conjunction with low levels of closeness and security. Furthermore, the results suggested that adults with a secondary group of pseudo-friends during development from parental attachment, usually focus solely on one particular celebrity, which could be due to difficulties in making this transition. [72]

Various uses

Limits to autonomy

Autonomy can be limited. For instance, by disabilities, civil society organizations may achieve a degree of autonomy albeit nested within—and relative to—formal bureaucratic and administrative regimes. Community partners can therefore assume a hybridity of capture and autonomy—or a mutuality—that is rather nuanced. [74]

Semi-autonomy

The term semi-autonomy (coined with prefix semi- / "half") designates partial or limited autonomy. As a relative term, it is usually applied to various semi-autonomous entities or processes that are substantially or functionally limited, in comparison to other fully autonomous entities or processes.

Quasi-autonomy

The term quasi-autonomy (coined with prefix quasi- / "resembling" or "appearing") designates formally acquired or proclaimed, but functionally limited or constrained autonomy. As a descriptive term, it is usually applied to various quasi-autonomous entities or processes that are formally designated or labeled as autonomous, but in reality remain functionally dependent or influenced by some other entity or process. An example for such use of the term can be seen in common designation for quasi-autonomous non-governmental organizations.

See also

Notes

  1. Ancient Greek: αὐτονομία, romanized: autonomia, from αὐτόνομος, autonomos, from αὐτο- auto- "self" and νόμος nomos, "law", hence when combined understood to mean "one who gives oneself one's own law"

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Robert N. Audi is an American philosopher whose major work has focused on epistemology, ethics, rationality and the theory of action. He is O'Brien Professor of Philosophy at the University of Notre Dame, and previously held a chair in the business school there. His 2005 book, The Good in the Right, updates and strengthens Rossian intuitionism and develops the epistemology of ethics. He has also written important works of political philosophy, particularly on the relationship between church and state. He is a past president of the American Philosophical Association and the Society of Christian Philosophers.

<span class="mw-page-title-main">Kantian ethics</span> Ethical theory of Immanuel Kant

Kantian ethics refers to a deontological ethical theory developed by German philosopher Immanuel Kant that is based on the notion that "I ought never to act except in such a way that I could also will that my maxim should become a universal law." It is also associated with the idea that "it is impossible to think of anything at all in the world, or indeed even beyond it, that could be considered good without limitation except a good will." The theory was developed in the context of Enlightenment rationalism. It states that an action can only be moral if it is motivated by a sense of duty, and its maxim may be rationally willed a universal, objective law.

Govert A. den Hartogh is a Dutch moral, legal and political philosopher. He studied theology in Kampen and philosophy in Leiden and Oxford. He received his PhD in philosophy in 1985 from the University of Amsterdam. From 1974 on he worked at the University of Amsterdam as assistant and associate professor of ethics and jurisprudence in the Philosophy Department and the Faculty of Law, as an extra-ordinary professor of medical ethics in the Faculty of Medicine, and as a full professor of ethics and its history in the Philosophy Department. In 1992 he took the initiative of founding the Netherlands School for Research in Practical Philosophy, together with Robert Heeger and Bert Musschenga, and functioned as the school's first director. He retired in 2008. At his retirement his former Ph.D. students published a Festschrift.

<span class="mw-page-title-main">Philosophy of healthcare</span>

The philosophy of healthcare is the study of the ethics, processes, and people which constitute the maintenance of health for human beings. For the most part, however, the philosophy of healthcare is best approached as an indelible component of human social structures. That is, the societal institution of healthcare can be seen as a necessary phenomenon of human civilization whereby an individual continually seeks to improve, mend, and alter the overall nature and quality of their life. This perennial concern is especially prominent in modern political liberalism, wherein health has been understood as the foundational good necessary for public life.

Principlism is an applied ethics approach to the examination of moral dilemmas centering the application of certain ethical principles. This approach to ethical decision-making has been prevalently adopted in various professional fields, largely because it sidesteps complex debates in moral philosophy at the theoretical level.

<span class="mw-page-title-main">Raphael Cohen-Almagor</span>

Raphael Cohen-Almagor is an Israeli/British academic.

Veterinary ethics is a system of moral principles that apply values and judgments to the practice of veterinary medicine. As a scholarly discipline, veterinary ethics encompasses its practical application in clinical settings as well as work on its history, philosophy, theology, and sociology. Veterinary ethics combines veterinary professional ethics and the subject of animal ethics. The subject of veterinary ethics can be interpreted as an extension of critical thinking skills necessary to make the decisions in veterinary care in order to support the profession's responsibilities to animal kind and mankind. Five main topics construct the physical usage of Veterinary Ethics. The first is history which describes how these ethics came to be, and how they have changed in the modernization of the veterinary industry. The second is the relation veterinary ethics has with human medical ethics, which together share many values. Third, the principles of these ethics which are updated regularly by the AVMA. Fourth are the key topics of veterinary ethics, which describe what these ethics cover. Last, how these ethics are incorporated into everyday practice and also how they affect those employed in the industry.

Behavioral ethics is a field of social scientific research that seeks to understand how individuals behave when confronted with ethical dilemmas. It refers to behavior that is judged within the context of social situations and compared to generally accepted behavioral norms.

Respect for persons is the concept that all people deserve the right to fully exercise their autonomy. Showing respect for persons is a system for interaction in which one entity ensures that another has agency to be able to make a choice.

Maternal-fetal conflict, also known as obstetric conflict, occurs when a pregnant woman’s (maternal) interests conflict with the interests of the fetus. Legal and ethical considerations involving women's rights and the rights of the fetus as a patient and future child, have become more complicated with advances in medicine and technology. Maternal-fetal conflict can occur in situations where the mother denies health recommendations that can benefit the fetus or make life choices that can harm the fetus. There are maternal-fetal conflict situations where the law becomes involved, but most physicians avoid involving the law for various reasons.

Feminist bioethics is a subfield of bioethics which advocates gender and social equality through the critique of existing bioethical discourse, offering unique feminist arguments and viewpoints, and pointing out gender concerns in bioethical issues.

References

Citations

  1. Dewey, C.R. Autonomy without a self.
  2. Bordages, John Walter (1989-06-01). "Self-Actualization and Personal Autonomy". Psychological Reports. 64 (3_suppl): 1263–1266. doi:10.2466/pr0.1989.64.3c.1263. ISSN   0033-2941. S2CID   146406002.
  3. BOURDIEU, 2001 (MARANHÃO, 2005; 2006 Archived October 8, 2010, at the Wayback Machine ; 2007; Sobral & Maranhão, 2008 [ dead link ])
  4. Evans, P. B., Rueschemeyer, D., & Skocpol, T. (1985). Bringing the state back in.
  5. Neave, G. (2012). The evaluative state, institutional autonomy and re-engineering higher education in Western Europe: The prince and his pleasure.
  6. Weller, M., & Wolff, S. (2014). Autonomy, self-governance, and conflict resolution: Innovative approaches to institutional design in divided societies.
  7. "Philippine Bill of 1902 (note: Philippine Autonomy Act)". Corpus Juris. July 1902. Archived from the original on 2016-05-25.
  8. Bokovoy, Melissa Katherine; Irvine, Jill A.; Lilly, Carol S. (1997). State-society relations in Yugoslavia, 1945–1992 . New York: St. Martin's Press. pp.  295–301. ISBN   978-0312126902.
  9. Coakley, John. "Introduction: Dispersed Minorities and Non-Territorial Autonomy". Ethnopolitics 15, nr 1 (2016): 1–23.
  10. Prina, Federica. "Nonterritorial Autonomy and Minority (Dis)Empowerment: Past, Present, and Future". Nationalities Papers 48, nr 3 (2020): 425–434
  11. Autonomy in Moral and Political Philosophy (Stanford Encyclopedia of Philosophy) Archived 2019-08-02 at the Wayback Machine . Plato.stanford.edu. Retrieved on 2013-07-12.
  12. Sensen, Oliver (2013). Kant on Moral Autonomy. Cambridge University Press. ISBN   978-1107004863.
  13. Oxford English Dictionary
  14. 1 2 Shafer-Landau, Russ. "The fundamentals of ethics." (2010). p. 161
  15. Shafer-Landau, Russ. "The fundamentals of ethics." (2010). p. 163
  16. Reginster, Bernard (2011-07-31). "Review of Nietzsche on Freedom and Autonomy". The Journal of Nietzsche Studies. Archived from the original on 2014-04-07. Retrieved 2014-04-02.
  17. Gemes, Ken; May, Simon (2009). Nietzsche on Freedom and Autonomy. OUP Oxford. ISBN   978-0191607882.
  18. Sugarman, Susan (1990). Piaget's Construction of the Child's Reality. Cambridge University Press. ISBN   978-0521379670.
  19. Shaffer, David (2008). Social and Personality Development. Cengage Learning. ISBN   978-1111807269. Archived from the original on 2024-02-19. Retrieved 2020-10-29.
  20. Audi, Robert (2001). The Architecture of Reason: The Structure and Substance of Rationality. Oxford University Press. Archived from the original on 2021-06-19. Retrieved 2020-11-20.
  21. Haji, Ish (9 March 2002). "Review of The Architecture of Reason: The Structure and Substance of Rationality". Notre Dame Philosophical Reviews. Archived from the original on 23 October 2020. Retrieved 20 November 2020.
  22. 1 2 3 4 5 6 Audi, Robert (1991). "Autonomy, Reason, and Desire". Pacific Philosophical Quarterly. 72 (4): 247–271. doi:10.1111/j.1468-0114.1991.tb00320.x. Archived from the original on 2021-04-14. Retrieved 2020-11-20.
  23. Kleingeld, Pauline; Willaschek, Marcus (2019). "Autonomy Without Paradox: Kant, Self-Legislation and the Moral Law". Philosophers' Imprint. 19. Archived from the original on 2021-02-05. Retrieved 2020-11-20.
  24. Dryden, Jane. "Autonomy". Internet Encyclopedia of Philosophy. Archived from the original on 11 November 2020. Retrieved 20 November 2020.
  25. Audi, Robert (1990). "Weakness of Will and Rational Action". Australasian Journal of Philosophy. 68 (3): 270–281. doi:10.1080/00048409012344301. Archived from the original on 2021-01-21. Retrieved 2020-11-20.
  26. Cohon, Rachel (2018). "Hume's Moral Philosophy". The Stanford Encyclopedia of Philosophy. Metaphysics Research Lab, Stanford University. Archived from the original on 10 January 2018. Retrieved 20 November 2020.
  27. Setiya, Kieran (2004). "Hume on Practical Reason". Philosophical Perspectives. 18: 365–389. doi:10.1111/j.1520-8583.2004.00033.x. ISSN   1520-8583. JSTOR   3840940. Archived from the original on 2020-11-28. Retrieved 2020-11-20.
  28. 1 2 3 Berk, Laura (2013). Child Development (9 ed.). Pearson.
  29. 1 2 3 4 Shaffer, David. Social and Personality Development (6 ed.).
  30. Meyendorff 1989, pp. 59–66, 130–139.
  31. Macken, John (2008). The Autonomy Theme in the Church Dogmatics: Karl Barth and his Critics.
  32. Renaud, Robert Joseph; Weinberger, Laed Daniel (2008). "Spheres of Sovereignty: Church Autonomy Doctrine and the Theological Heritage of the Separation of Church and State". heinonline.org. Archived from the original on 2018-03-18. Retrieved 2018-03-17.
  33. Hammond, Phillip (1992). Religion and personal autonomy: the third disestablishment in America.
  34. 1 2 3 4 Hammond, Phillip (1992). Religion and personal autonomy: the third disestablishment in America (First ed.). University of South Carolina Press. ISBN   978-0872498204.
  35. Varelius, Jukka (December 2006). "The value of autonomy in medical ethics". Medicine, Health Care and Philosophy. 9 (3): 377–388. doi:10.1007/s11019-006-9000-z. ISSN   1386-7423. PMC   2780686 . PMID   17033883.
  36. Beauchamp, Tom L. (2013). Principles of biomedical ethics. Childress, James F. (7th ed.). New York: Oxford University Press. ISBN   978-0199924585. OCLC   808107441.
  37. Fischer, Bernard A (January 2006). "A Summary of Important Documents in the Field of Research Ethics". Schizophrenia Bulletin. 32 (1): 69–80. doi:10.1093/schbul/sbj005. ISSN   0586-7614. PMC   2632196 . PMID   16192409.
  38. Leo, Raphael J. (October 1999). "Competency and the Capacity to Make Treatment Decisions: A Primer for Primary Care Physicians". Primary Care Companion to the Journal of Clinical Psychiatry. 1 (5): 131–141. doi:10.4088/PCC.v01n0501. ISSN   1523-5998. PMC   181079 . PMID   15014674.
  39. Riis, A.H. Autonomy, culture and healthcare.
  40. Gandhi, Akash. "Medical Ethics - The Principles". www.theukcatpeople.co.uk. Retrieved 28 February 2024.
  41. Sandman, Lars (2012). "Adherence, Shared Decision-Making and Patient Autonomy". Medicine, Health Care and Philosophy. 15 (2): 115–27. doi:10.1007/s11019-011-9336-x. PMID   21678125. S2CID   30120495.
  42. Grignoli, Nicola; Di Bernardo, Valentina; Malacrida, Roberto (2018-10-11). "New perspectives on substituted relational autonomy for shared decision-making in critical care". Critical Care. 22 (1): 260. doi: 10.1186/s13054-018-2187-6 . ISSN   1364-8535. PMC   6182794 . PMID   30309384.
  43. Gómez-Vírseda, Carlos; de Maeseneer, Yves; Gastmans, Chris (2019-10-26). "Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature". BMC Medical Ethics. 20 (1): 76. doi: 10.1186/s12910-019-0417-3 . ISSN   1472-6939. PMC   6815421 . PMID   31655573.
  44. 1 2 "Exemplaires: Consent and capacity in Ontario's civil mental". Archived from the original on 2015-05-24. Retrieved 2015-05-24.
  45. "The Inner Citadel". Archived from the original on 2015-09-24. Retrieved 2015-05-24.
  46. Caplan, Arthur L (2014). "Why autonomy needs help". Journal of Medical Ethics. 40 (5): 301–302. doi:10.1136/medethics-2012-100492. ISSN   0306-6800. JSTOR   43282987. PMID   22337604. S2CID   207010293.
  47. Entwistle, Vikki A.; Carter, Stacy M.; Cribb, Alan; McCaffery, Kirsten (July 2010). "Supporting Patient Autonomy: The Importance of Clinician-patient Relationships". Journal of General Internal Medicine. 25 (7): 741–745. doi:10.1007/s11606-010-1292-2. ISSN   0884-8734. PMC   2881979 . PMID   20213206.
  48. 1 2 deBronkart, Dave (2015). "From patient centred to people powered: autonomy on the rise". BMJ: British Medical Journal. 350. ISSN   0959-8138. JSTOR   26518242.
  49. 1 2 Greaney, Anna-Marie; O'Mathúna, Dónal P.; Scott, P. Anne (2012-11-01). "Patient autonomy and choice in healthcare: self-testing devices as a case in point" (PDF). Medicine, Health Care and Philosophy. 15 (4): 383–395. doi:10.1007/s11019-011-9356-6. ISSN   1572-8633. PMID   22038653. S2CID   915117. Archived (PDF) from the original on 2017-09-22. Retrieved 2019-06-16.
  50. Ross, Lainie Friedman; Walter, Jennifer K. (2014-02-01). "Relational Autonomy: Moving Beyond the Limits of Isolated Individualism". Pediatrics. 133 (Supplement 1): S16–S23. doi: 10.1542/peds.2013-3608D . ISSN   0031-4005. PMID   24488536. Archived from the original on 2019-04-13. Retrieved 2019-04-14.
  51. "Medical Ethics Interview Questions Guide – | Interview". www.theukcatpeople.co.uk. Archived from the original on 2023-02-07. Retrieved 2023-02-07.
  52. 1 2 3 Muskens, Ivo S.; Gupta, Saksham; Robertson, Faith C.; Moojen, Wouter A.; Kolias, Angelos G.; Peul, Wilco C.; Broekman, Marike L. D. (2019-01-26). "When Time Is Critical, Is Informed Consent Less So? A Discussion of Patient Autonomy in Emergency Neurosurgery". World Neurosurgery. 125: e336–e340. doi:10.1016/j.wneu.2019.01.074. hdl: 1887/3195421 . ISSN   1878-8769. PMID   30690144. S2CID   59339055. Archived from the original on 2019-06-16. Retrieved 2019-06-16.
  53. 1 2 Klass, Perri (2016-09-20). "When Should Children Take Part in Medical Decisions?". The New York Times. ISSN   0362-4331. Archived from the original on 2019-04-02. Retrieved 2019-04-21.
  54. Cole, Clare; Wellard, Sally; Mummery, Jane (2014). "Problematising autonomy and advocacy in nursing". Nursing Ethics. 21 (5): 576–582. doi:10.1177/0969733013511362. PMID   24399831. S2CID   10485758.
  55. MacKenzie, C. Ronald (September 2009). "What Would a Good Doctor Do? Reflections on the Ethics of Medicine". HSS Journal. 5 (2): 196–199. doi:10.1007/s11420-009-9126-7. ISSN   1556-3316. PMC   2744764 . PMID   19626379.
  56. Informed Consent : Legal Theory and Clinical Practice: Legal Theory and ... Archived 2024-02-19 at the Wayback Machine – Schools of Law and Medicine Jessica W. Berg Assistant Professor of Law and Bioethics Case Western Reserve University, Paul S. Appelbaum A. F. Zeleznik Distinguished Professor and Chair University of Massachusetts, Medical School and Director of the Center for Mental Health Services Research Charles W. Lidz Research Professor of Psychiatry University of Massachusetts, Center for Bioethics and Health Law University of Pittsburgh Lisa S. Parker Associate Professor and Director of Graduate Education – Google Books. Retrieved on 2013-07-12.
  57. Mappes Thomas, A., and David DeGrazia. Biomedical Ethics. (2006). pp. 54–55 [ ISBN missing ]
  58. Mappes Thomas, A., and David DeGrazia. Biomedical Ethics. (2006). p. 62
  59. Pilnick, Alison; Dingwall, Robert (April 2011). "On the Remarkable Persistence of Asymmetry in Doctor/Patient Interaction: A Critical Review". Social Science & Medicine. 72 (8): 1374–1382. doi:10.1016/j.socscimed.2011.02.033. PMID   21454003.
  60. O'neill, Onora. Autonomy and Trust in Bioethics. Cambridge University Press, 2002. p. 3 [ ISBN missing ]
  61. Sheather, Julian (2011). "Patient Autonomy". Student BMJ. 19.
  62. Charles, Sonya (2017). "The Moral Agency of Institutions: Effectively Using Expert Nurses to Support Patient Autonomy". Journal of Medical Ethics. 43 (8): 506–509. doi:10.1136/medethics-2016-103448. PMID   27934774. S2CID   11731579.
  63. Humphreys, Sally (January 2005). "Patient Autonomy". British Journal of Perioperative Nursing. 15 (1): 35–38, 40–41, 43. doi:10.1177/175045890501500103. PMID   15719905. S2CID   11528632.
  64. Marshall, Jill (2009). Personal freedom through human rights law? : autonomy, identity and integrity under the European Convention on Human Rights. Leiden: Martinus Nijhoff Publishers. ISBN   978-9004170599. OCLC   567444414.
  65. "Universal Declaration of Human Rights". www.un.org. 2015-10-06. Archived from the original on 2018-02-24. Retrieved 2018-03-15.
  66. Geoff, G. (1997-02-01). "Religious Minorities and Their Rights: A Problem of Approach". International Journal on Minority and Group Rights. 5 (2): 97–134. doi:10.1163/15718119720907435. ISSN   1571-8115.
  67. "A/RES/61/295 – E". undocs.org. Archived from the original on 2019-05-14. Retrieved 2018-03-15.
  68. "OHCHR | International Covenant on Civil and Political Rights". www.ohchr.org. Archived from the original on 2020-05-12. Retrieved 2018-03-15.
  69. Lõhmus, Katri (2015). Caring autonomy : European human rights law and the challenge of individualism. Cambridge, United Kingdom: Cambridge University Press. ISBN   978-1107081772. OCLC   898273667.[ page needed ]
  70. The Yogyakarta Principles, Principle 3, The Right to Recognition before the Law
  71. Convention on the Rights of Persons with Disabilities Article 3, (a)
  72. Giles, David C.; Maltby, John (2004). "The role of media figures in adolescent development: Relations between autonomy, attachment, and interest in celebrities". Personality and Individual Differences. 36 (4): 813–822. doi:10.1016/S0191-8869(03)00154-5.
  73. Bieling, Peter J. (2000). "The Sociotropy–Autonomy Scale: Structure and Implications". Cognitive Therapy and Research. 24 (6): 763–780. doi:10.1023/A:1005599714224. S2CID   38957013.
  74. O'Hare, Paul (March 2018). "Resisting the 'Long-Arm' of the State? Spheres of Capture and Opportunities for Autonomy in Community Governance" (PDF). International Journal of Urban and Regional Research. 42 (2): 210–225. doi:10.1111/1468-2427.12606. Archived (PDF) from the original on 2020-05-06. Retrieved 2020-06-04.

Sources