Formation | 1971 |
---|---|
Type | Nonprofit organization |
Purpose | Sickle-cell disease Research, public policy, education and community service. [1] |
Headquarters | Baltimore, Maryland, U.S. |
Region served | United States |
President | Beverley Francis-Gibson |
Website | www.sicklecelldisease.org |
The Sickle Cell Disease Association of America, Inc. (SCDAA) is a nonprofit organization with the sole purpose of supporting research, education and funding of individuals, families those who are impacted by sickle cell disease.
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease." [1]
The Sickle Cell Disease Association of America, Inc. originated in Racine, Wisconsin. Representatives from 15 different community-based sickle cell organizations came together at Wingspread, a community center, as guest of the Johnson Foundation. There was a common belief that there was a need for national attention to sickle cell disease. After a meeting, they created the "National Association for Sickle Cell Diseases". The name was changed in 1994 to the Sickle Cell Disease Association of America, Inc. Over the course of several years, the organization has grown into over 40 different branches. The organization has partnered with several different medical facilities, local and state government agencies to pursue national health care objectives. Some of the organization's partnerships include: National Association for the Advancement of Colored People (NAACP), National Institutes of Health (NIH), Health Resources and Services Administration (HRSA), Centers for Disease Control (CDC), United Way of America, and the Robert Johnson Foundation. [1]
The Sickle Cell Disease Association of America, Inc. hosts several events throughout each year. It hosts the Annual National Sickle Cell Walk with the Stars the weekend after Labor Day each year. The inaugural walk was held on September 6, 2014, at Lake Montebello in Baltimore, Maryland. This event typically will have a variety vendors, kid activities, prizes and celebrity guests. [2] The Sickle Cell Disease National Convention is held annually during the first weekend of October in Baltimore's Inner Harbor. The event will feature themed experience, with prizes, awards, auctions and educational sessions. [1]
Anemia or anaemia is a blood disorder in which the blood has a reduced ability to carry oxygen. This can be due to a lower than normal number of red blood cells, a reduction in the amount of hemoglobin available for oxygen transport, or abnormalities in hemoglobin that impair its function.
Tionne Tenese Watkins, better known by her stage name T-Boz, is an American singer. Born in Des Moines, Iowa, Watkins rose to fame in the early 1990s as a member of the girl-group TLC. She has won four Grammy Awards for her work with TLC.
Proposition 71 of 2004 is a law enacted by California voters to support stem cell research in the state. It was proposed by means of the initiative process and approved in the 2004 state elections on November 2. The Act amended both the Constitution of California and the Health and Safety Code.
Iota Phi Theta Fraternity, Inc. (ΙΦΘ) is a historically African American fraternity. It was founded on September 19, 1963, at Morgan State University in Baltimore, Maryland, and is currently the 5th largest Black Greek Lettered Fraternity. Members of the close-knit afrocentric fraternity proudly embrace the organization’s youth, uniqueness, individualism and modern idealism. As a contemporary organization, many members have had the great honor of meeting, fellowshipping with and/or engaging in personal or virtual discussions with one or more of their founders. Today there are over 301 undergraduate and alumni chapters, as well as colonies located in 40 U.S. states, the District of Columbia, The Bahamas, Colombia, South Korea, and Japan.
Sickle cell trait describes a condition in which a person has one abnormal allele of the hemoglobin beta gene, but does not display the severe symptoms of sickle cell disease that occur in a person who has two copies of that allele. Those who are heterozygous for the sickle cell allele produce both normal and abnormal hemoglobin.
William Bosworth Castle was an American physician and physiologist who transformed hematology from a "descriptive art to a dynamic interdisciplinary science."
James Van Gundia Neel was an American geneticist who played a key role in the development of human genetics as a field of research in the United States. He made important contributions to the emergence of genetic epidemiology and pursued an understanding of the influence of environment on genes. In his early work, he studied sickle-cell disease and acatalasia. conducted research on the effects of radiation on survivors of the Hiroshima atomic bombing.
Sickle cell disease (SCD), also simply called sickle cell, is a group of hemoglobin-related blood disorders typically inherited. The most common type is known as sickle cell anemia. It results in an abnormality in the oxygen-carrying protein haemoglobin found in red blood cells. This leads to a rigid, sickle-like shape under certain circumstances. Problems in sickle cell disease typically begin around 5 to 6 months of age. A number of health problems may develop, such as attacks of pain in joints, anemia, swelling in the hands and feet, bacterial infections, dizziness and stroke. Long-term pain may develop as people get older. The average life expectancy in the developed world is 40 to 60 years. It often gets worse with age. All the major organs are affected by sickle cell disease. The liver, heart, kidneys, gallbladder, eyes, bones, and joints also can suffer damage from the abnormal functions of the sickle cells, and their inability to flow through the small blood vessels correctly.
Helen Margaret Ranney was an American doctor and hematologist who made significant contributions to research on sickle-cell anemia.
Marilyn Hughes Gaston is a physician and researcher. She was the first black woman to direct the Bureau of Primary Health Care in the U.S. Health Resources and Services Administration. She is most famous for her work studying sickle cell disease (SCD).
Angella Dorothea Ferguson is an American pediatrician known for her groundbreaking research on sickle cell disease.
Doris Louise Wethers was an American pediatrician known for her research on sickle-cell disease.
Clarice D. Reid is an American pediatrician born in Birmingham, Alabama, who led the National Sickle Cell Disease Program at the U.S. National Heart, Lung, and Blood Institute (NHLBI) at the National Institutes of Health. She went on to become the Director of Division of Blood Diseases and Resources at NHLBI. Reid was a member of the 1985-1986 Taskforce on Black and Minority Health. She has also served as President Emeritus on the American Bridge Association's Education and Charitable Foundation, and has scored a rare perfect bridge score.
Kellyn George is from Dominica and in 2013 created a support foundation to help people with sickle cell anemia in her homeland. In 2015, she was awarded Queen's Young Leader Award for her activism in changing the lives of people in her community.
William Warrick Cardozo (1905–1962) was an accomplished private physician and pediatrician who also served as an instructor at the Howard University College of Medicine and as a school medical inspector for the District of Columbia Board of Health. He is best known for his research on sickle cell anemia, but also published articles about Hodgkin's disease, the gastrointestinal health of children, and the physical development of African American children. Cardozo was an early African-American contributor in the healthcare profession.
Hemoglobin Hopkins-2 is a mutation of the protein hemoglobin, which is responsible for the transportation of oxygen through the blood from the lungs to the musculature of the body in vertebrates. The specific mutation in Hemoglobin Hopkins-2 results in two abnormal α chains. The mutation is the result of histidine 112 being replaced with aspartic acid in the protein's polypeptide sequence. Additionally, within one of the mutated alpha chains, there are substitutes at 114 and 118, two points on the amino acid chain. This mutation can cause sickle cell anemia.
El-Mahdi E. Holly is an American politician from the state of Georgia. A member of the Democratic Party, Holly has served in the Georgia House of Representatives for the 111th and 116th district.
Ruth Robertson Berrey was an American pediatrician, educator, and a medical missionary to Nigeria. Berrey was active within the Alabama Pediatric Society and became a fellow in the American Academy of Pediatrics. As a medical missionary, she helped children in Nigeria and helped reduce leprosy in the population. As a public health officer in four Alabama counties, she conducted clinics for the detection of tuberculosis, cancer, diabetes, sickle cell anemia, and other diseases.
Kwaku Ohene-Frempong was a Ghanaian pediatric hematologist-oncologist and an expert in sickle cell disease (SCD). Ohene-Frempong grew up in Ghana and was a standout athlete in track-and-field, later competing for Yale University as well as Ghana at the 1970 British Commonwealth Games. He continued his medical training in the United States, where he completed medical school, pediatrics residency and a pediatric hematology-oncology fellowship. With a professional interest in SCD, Ohene-Frempong was a physician and involved in public health initiatives at Tulane University School of Medicine in New Orleans, Louisiana, and later the Children's Hospital of Philadelphia (CHOP) in Pennsylvania. He continued professional relationships with Komfo Anokye Teaching Hospital in Kumasi, Ghana where he later became a full-time physician after retiring from CHOP. In Ghana, he established public health initiatives for SCD screening in newborns, as well as an SCD clinic for patients with the disease.
{{cite web}}
: CS1 maint: archived copy as title (link)