Health Disparities Centers are institutions in the United States that cover a broad range of needs and focus areas to decrease currently disproportionate illness and disease rates that lead to health disparities. They also promote the engagement, empowerment and recruitment of underrepresented populations in health professions. Many programs devote significant resources to developing cultural competency training to promote the delivery of culturally sensitive healthcare by faculty and staff, as well as current and future healthcare providers. These services are usually tailored to meeting specific goals or missions of the individual components common in most of the operating Health Disparities Centers.
The Minority Health and Health Disparities Act of 2000, Public Law 106-525 led the way for an innovative program established by the National Center on Minority Health and Health Disparities (NCHMD). This program, originally entitled the Project EXPORT, now bears the title of the NCMHD Centers of Excellence (COE) Program. The mission of this program is to develop centers of research, training, partnership and community outreach in the field and study of health disparities. Through grant support from the NCHMD, these centers contribute to scientific advancements and community programs with the aim of eliminating health disparities. Successful centers are currently operating in 31 states, the District of Columbia, Puerto Rico and the U.S. Virgin Islands. Many of these centers are made in partnerships with research-intensive universities, medical colleges and institutions, historically black colleges and universities, universities that serve Hispanic populations, tribal colleges and liberal arts schools. As of 2007, the NCMHD COE program had supported the development of 37 centers. [1]
Health disparities continue to be major issue in the United States,
It is a common misconception that Health Disparities Centers are tailored primarily for minorities, but in actuality their mission extends to a wide range of groups. These include age, gender, ethnicity, geographical location, language barriers, or any other differences related to socioeconomic status or environmental factors. However, the largest disparities are most prominent in minority groups.
According to the Healthy People 2010 Objectives list of ten largest Racial and Ethnic disparities: [2]
The focus and importance of addressing growing national health disparities represents a relatively new shift in health research. Both the NCMHD Research Endowment Program and the Community-Based Participatory Research Program are initiatives to promote awareness and research incentives for those interested in studying specific health disparities and the effectiveness of current outreach programs. Major research concentrations currently being studied include, but are not limited to, conditions such as HIV/AIDS, obesity, diabetes, specific types of cancers, cardiovascular diseases, and child health promotion. [3] [4] A few examples of specific research studies that have been conducted through a partnership of Health Disparities Centers are as follows:
As disproportionate burdens of certain diseases and health conditions among specific populations are a growing concern, so is the need for widespread education and training for both the public and health professionals alike to be able to cope with, and prevent the occurrence of growing disparities in their communities. Health Disparities Centers across the nation are active in implementing educational resources that range from undergraduate and graduate coursework, postdoctoral training opportunities, conference or seminar series, and diversity and cultural competency training programs. Additionally, these centers are devoted to the recruitment and retention of research scientists and healthcare practitioners from racial/ethnic minority groups, people with disabilities and socio-economically disadvantaged individuals. Many institutions support faulty mentoring of underrepresented students who are interested in completing community-based participatory research on health disparities.[ citation needed ]
The community outreach component of Health Disparities Centers provides the essential link between advancements in research and implementing significant findings directly into the communities being studied. Emphasis has also been placed on giving target populations affected by health disparities access to health information in a community setting where they feel comfortable to have sensitive health queries addressed. A major goal of Health Disparities Centers is to give the public the knowledge and encouragement necessary to empower them to promote a healthy lifestyle in their homes and communities and be proponents for their own healthcare. Health Disparities Centers also may partner with grassroots and community-based organizations that can serve mediums to disburse educational materials and provide valuable information about the needs of the community to the centers. Examples of successful community outreach programs established by national Health Disparities Centers are provided below.
The administration component of numerous Health Disparities Centers is responsible for the oversight and management of all center initiatives and programs and ensures the fiscal responsibility of the institution. It is also common for the governing body of a health disparities center to manage grants and collaborative partnerships between the center and various university, hospital or community entities. [12] [13]
Health Disparities Centers promote the concept of social justice which is a key facet of sustainability. The process of eliminating health disparities involves breaking language barriers, improving access to health-care, stamping out violence, and alleviating poor health conditions associated with a life of poverty. An example:
Environment factors contribute to health disparities. Environmental justice refers to the burden that certain groups experience due to the physical environment that encompasses there day-to-day lives. People in different geographical locations may experience health disparities due to pollutants in the food or air, stress factors caused by their physical environment, and availability of different resources. [15] Many health disparity centers have programs to promote a cleaner environment and healthy lifestyles, preventing disparities caused by the environmental. A few examples:
(Affiliated Institutions in parentheses)
Louis Wade Sullivan is an active health policy leader, minority health advocate, author, physician, and educator. He served as the Secretary of the United States Department of Health and Human Services during President George H. W. Bush's Administration and was Founding Dean of the Morehouse School of Medicine.
The National Human Genome Research Institute (NHGRI) is an institute of the National Institutes of Health, located in Bethesda, Maryland.
Behavior change, in context of public health, refers to efforts put in place to change people's personal habits and attitudes, to prevent disease. Behavior change in public health can take place at several levels and is known as social and behavior change (SBC). More and more, efforts focus on prevention of disease to save healthcare care costs. This is particularly important in low and middle income countries, where supply side health interventions have come under increased scrutiny because of the cost.
The Jade Ribbon Campaign (JRC) also known as JoinJade, was launched by the Asian Liver Center (ALC) at Stanford University in May 2001 during Asian Pacific American Heritage Month to help spread awareness internationally about hepatitis B (HBV) and liver cancer in Asian and Pacific Islander (API) communities.
The Massachusetts Department of Public Health is a governmental agency of the Commonwealth of Massachusetts with various responsibilities related to public health within that state. It is headquartered in Boston and headed by Commissioner Robbie Goldstein, MD, PhD.
In medicine, rural health or rural medicine is the interdisciplinary study of health and health care delivery in rural environments. The concept of rural health incorporates many fields, including wilderness medicine, geography, midwifery, nursing, sociology, economics, and telehealth or telemedicine.
WE ACT for Environmental Justice is a nonprofit environmental justice organization based in Harlem, Manhattan, New York City. The organization was founded in March 1988 to mobilize community opposition to the city's operation of the North River Sewage Treatment Plant, and the siting of the sixth bus depot in Northern Manhattan.
The Hopkins Center for Health Disparities Solutions (HCHDS), a research center within the Johns Hopkins Bloomberg School of Public Health, strives to eradicate disparities in health and health care among racial and ethnic groups, socioeconomic groups, and geopolitical categories such as urban, rural, and suburban populations.
Health communication is the study and practice of communicating promotional health information, such as in public health campaigns, health education, and between doctor and patient. The purpose of disseminating health information is to influence personal health choices by improving health literacy. Health communication is a unique niche in healthcare that allows professionals to use communication strategies to inform and influence decisions and actions of the public to improve health.
Lisa A. Cooper is an American internal medicine and public health physician who is the Bloomberg Distinguished Professor of Equity in Health and Healthcare at Johns Hopkins University, jointly appointed in the Johns Hopkins School of Medicine, Johns Hopkins School of Nursing and in the departments of Health, Behavior and Society, Health Policy and Management; Epidemiology; and International Health in the Johns Hopkins Bloomberg School of Public Health. She is the James F. Fries Professor of Medicine in the Division of General Internal Medicine, Director of the Johns Hopkins Center for Health Equity, and Director of the Johns Hopkins Urban Health Institute. Cooper is also a Gilman Scholar and a core faculty member in the Welch Center for Prevention, Epidemiology, and Clinical Research. She is internationally recognized for her research on the impact of race, ethnicity and gender on the patient-physician relationship and subsequent health disparities. She is a member of the President’s Council of Advisors on Science and Technology (PCAST). In 2007, she received a MacArthur Fellowship.
Research shows many health disparities among different racial and ethnic groups in the United States. Different outcomes in mental and physical health exist between all U.S. Census-recognized racial groups, but these differences stem from different historical and current factors, including genetics, socioeconomic factors, and racism. Research has demonstrated that numerous health care professionals show implicit bias in the way that they treat patients. Certain diseases have a higher prevalence among specific racial groups, and life expectancy also varies across groups.
The community health center (CHC) in the United States is the dominant model for providing integrated primary care and public health services for the low-income and uninsured, and represents one use of federal grant funding as part of the country's health care safety net. The health care safety net can be defined as a group of health centers, hospitals, and providers willing to provide services to the nation's uninsured and underserved population, thus ensuring that comprehensive care is available to all, regardless of income or insurance status. According to the U.S. Census Bureau, 29 million people in the country were uninsured in 2015. Many more Americans lack adequate coverage or access to health care. These groups are sometimes called "underinsured". CHCs represent one method of accessing or receiving health and medical care for both underinsured and uninsured communities.
Structural inequality occurs when the fabric of organizations, institutions, governments or social networks contains an embedded cultural, linguistic, economic, religious/belief, physical or identity based bias which provides advantages for some members and marginalizes or produces disadvantages for other members. This can involve, personal agency, freedom of expression, property rights, freedom of association, religious freedom,social status, or unequal access to health care, housing, education, physical, cultural, social, religious or political belief, financial resources or other social opportunities. Structural inequality is believed to be an embedded part of all known cultural groups. The global history of slavery, serfdom, indentured servitude and other forms of coerced cultural or government mandated labour or economic exploitation that marginalizes individuals and the subsequent suppression of human rights are key factors defining structural inequality.
Asian Americans have historically been perceived as a "model minority", experiencing few health problems relative to other minority groups. Research within the past 20 years, however, has shown that Asian Americans are at high risk for hepatitis B, liver cancer, tuberculosis, and lung cancer, among other conditions. Asian American health disparities have only gained focus in the past 10 years, with policy initiatives geared towards promoting healthcare access to Asian Americans rising to prominence even later. Asian Americans are defined as Americans of Asian ancestry and constitute nearly 5% of American's population as of 2003, according to the U.S. Census Bureau. Yet, the Asian American population can hardly be described as homogenous. The term applies to members of over 25 groups that have been classified as a single group because of similar appearances, cultural values, and common ethnic backgrounds. The Asian Americans commonly studied have been limited primarily to individuals of Cambodian, Chinese, Filipino, Hmong, Japanese, Korean, Lao, Mien, or Vietnamese descent.
The Institute of Gerontology (IOG) at Wayne State University conducts research on the behavioral and social aspects of aging. Located in Detroit, Michigan, the Institute has a strong focus on urban issues, especially disability, mobility and transportation, financial challenges, and disparities in health between ethnic groups. Faculty at the Institute are jointly appointed with a home department in a complementary discipline, such as economics, physical therapy or nursing. The Institute also maintains a Lifespan Cognitive Neuroscience of Aging laboratory currently profiling brain changes in normal aging through traditional testing and magnetic resonance imaging (MRI) of participants brain structure and function.
Cultural competence in healthcare refers to the ability for healthcare professionals to demonstrate cultural competence toward patients with diverse values, beliefs, and feelings. This process includes consideration of the individual social, cultural, and psychological needs of patients for effective cross-cultural communication with their health care providers. The goal of cultural competence in health care is to reduce health disparities and to provide optimal care to patients regardless of their race, gender, ethnic background, native languages spoken, and religious or cultural beliefs. Cultural competency training is important in health care fields where human interaction is common, including medicine, nursing, allied health, mental health, social work, pharmacy, oral health, and public health fields.
Shiriki K. Kumanyika is an Emeritus Professor of Biostatistics and Epidemiology at the Perelman School of Medicine at the University of Pennsylvania and co-chair of the International Association for the Study of Obesity International Obesity Task Force. She has previously served as Associate Dean for Disease Prevention and was founding director of the University of Pennsylvania Master of Public Health. She chairs the African American Collaborative Obesity Research Network. She is the former president of the American Public Health Association.
Anna María Nápoles is an American behavioral epidemiologist and science administrator. She is the Scientific Director of the Intramural Research Program at the National Institute on Minority Health and Health Disparities. She was a professor and epidemiologist at University of California, San Francisco.
Kisha Braithwaite Holden is a scientist known for her research on mental health of African-Americans and members of other minority groups. She is professor of psychiatry and behavioral sciences and community health & preventive medicine and interim director of Satcher Health Leadership Institute (SHLI) at Morehouse School of Medicine.
Monica Baskin is an American psychologist who is a professor of medicine at the University of Alabama at Birmingham. Her research considers health disparities in the Deep South. She serves as Director of Community Outreach and Engagement at the O'Neal Comprehensive Cancer Center.