Leprosy Mission Australia

Last updated

Leprosy Mission Australia
Formation1913
Founder The Leprosy Mission International
TypeNon-Government Organisation
FocusTreatment, rehabilitation and support for people with leprosy
Location
Area served
5 countries (2023)
MethodMedication, surgery, advocacy, education and awareness
Key people
Greg J Clarke (CEO)
Revenue
A$7.866 million (2023)
Employees
23 (FTE, 2019)
Website www.leprosymission.org.au

The Leprosy Mission Australia (TLMA) is a Christian medical charity dedicated to eradicating leprosy, and supporting those affected by the disease. An independent Australian charity, it is an active member of Leprosy Mission International (LMI) a global federation working in 28 countries. [1] With a history dating back to 1913, TLMA focuses on providing medical treatment, rehabilitation, education, and advocacy for people affected by leprosy, especially those in marginalised communities. [2]

Contents

The mission raises funds through church and community networks to fund doctors, nurses and specialist healthcare professions in clinics and hospitals around the developing world. It has also been a fellowship who recruits, supports and sends the leprosy specialists, including the surgeon Grace Warren, Professor Warrick Britton, and the microbiologist Jenny Davis. [3] [4] [5]

The stated goal of Leprosy Mission Australia is a world free from leprosy and its associated social shame, sometimes described as zero transmission, zero disability, zero stigma. [3] This vision aligns with the Sustainable Development Goals of the United Nations which aim to end the neglect of neglected tropical diseases like leprosy, of which Australia is a signatory. [6] The mission is accredited by the Australian Government's Department of Foreign Affairs and Trade, who funds may of its projects through Australian Aid. [7] [8]

Leprosy is a chronic, infectious disease, also known as Hansens Disease, caused by the bacterium Mycobacterium leprae. [9] While the disease has been feared throughout history, and it sufferers frequently experience social rejection, Gospel accounts—such as Jesus cleansing a person affected by leprosy—have compelled many Australian Christians to serve those who live with the condition. [10] As such the mission and its auxiliaries have historically seen their work as medical, social and spiritual in nature, putting strong emphasis on prayer for their work. [11] [12]

The group funds research programs based in the Stanley Browne Laboratory in India, which has emerged as authority on the transmission of the bacteria in the environment, within households and via the nose. [13] [14] [15] Thanks to significant breakthroughs, particularly the three-drug leprostatic agent of rifampicin, dapsone and clofazimine, TLMA has seen a steep decline in the number of people contracting leprosy, dropping from 11 million in the 1980s to 1 million by 2000. [16] [10] By 2021, the number is estimated to have dropped to 208,000. [17] By 2035, the leadership hopes to see all transmission of the disease disrupted. [18]

Programs

Nerve function assessment at Kothara Hospital, India, an earlier project of the mission Kothara Hospital testing TLMI cr DC 90d13916-94bb-418e-a0b8-802672400b6b.jpg
Nerve function assessment at Kothara Hospital, India, an earlier project of the mission

Leprosy Mission Australia began by delivering 2 pounds and 10 shillings in funding to one project, in India. In the mid-1990s, the biggest contributor to the work of the international network, after England and Wales, was Leprosy Mission Australia. [19]

As of 2023, according to Australian Charities and Not-for-profits Commission records, the mission funded ten projects in India, Indonesia, Nepal, Nigeria and Timor-Leste drawing on a budget of $7.866 million. [20] These projects provide essential medical services, including diagnosis, treatment, and rehabilitation, particularly to those who have no other access to healthcare. [21]

Contemporary projects

CountryProgramsRef.
IndiaVocational training centre in Vadathorasalur for people with leprosy (2018–2022). Disability management and job creation through trade accreditation and developing producer groups (2019–2023). Free specialised services at Salur and Kothara Hospitals (2023–2028). [8] [20]
IndonesiaUrban Leprosy project, trains doctors in diagnosis and treatment (2022–2025). Leprosy Friendly Village, community awareness and stigma reduction program (2022–2025). [8] [20]
NepalJhapa Leprosy Reduction, reducing child transmission across six municipalities (2022–2027). Nepal Tertiary Education Scholarships (2022–2027). Self-care unit rehabilitation for people with leprosy who require ulcer and wound care (2022–2027). [22] [20]
NigeriaUpdating health infrastructure, active case detection, artificial limb provision; advocacy for people with leprosy so they can vote without a thumbprint; improved water, sanitation and hygiene practices (2019–2024). [22] [20]
Timor-LesteImproved Leprosy Services in partnership with TL Ministry of Health, including early detection program, in Baucau and Manatuto, developing technicians to provide diagnostics in 15 health centres (2019–2024). [8] [20]

Historic projects

CountryProgramsRef.
BangladeshHealth, Education and Economic Development program rolled out from Dhaka to 32 districts of Bangladesh, led by Keith Skillicorn (1982–1988) [23]
BhutanWork led by Dr Helen Rienits (née Stokes) as superintendent of government hospital at Mongar Hospital. Leprosy was declared a manageable disease in the country from 1992 (1982–1992). [24] [25] [26]
CongoIn the 1950s the mission known to support patients in what was then the Belgian Congo with hand-knitted woollens. It supported the work of the Australian field worker Maggie Mead, who served with the Leprosy Mission in Lemera Hospital, and later in Bukavu, in what is now known as the Democratic Republic of the Congo. [27] [28] [29] [30]
EthiopiaSupporting the work of the ALERT medical facility in Addis Ababa; through the work of physiotherapist Anne Roberts, training was provided for rehabilitation and prevention of disability. [31] [32]
Hong KongLeprosy Hospital in Hei Ling Chau, became base hospital for the surgical teaching ministry of Dr Grace Warren (1959–1975). [33]
IndiaIda Griffiths sailed for India in to serve in Karigiri (1960s). Mobile clinic run across Bihar by Keith Skillicorn (1970s). Support for the Kolkata leprosy projects (1990-2000s). [23] [34]
IndonesiaAt the invitation of the Department of Health, Dr Ernest Fritschi was appointed to begin a medical service in West Irian and Medan (1960s). Work in Irian later led by Myra Ronalds (1973–1996). Work amongst Dyak people in Kalimantan Province on Borneo led by Jim and Robyn Nottingham (1996–2005). [35] [36] [37]
KoreaFunding for Leprosy Mission in Korea, led by Dr. C. H. Erwin. [2] [38]
NepalDeidra Banks headed up the mission in Anandaban developing the rehabilitation work (1960s). Development of the Mycobacterial Research Laboratory, training Nepali scientists, with Dr Paul Roche and Jenny Davis; later work led by Prof Warwick Britton (1980s). The large Lalgadh Hospital established thanks to Marion and Ian Cochrane (1990s). Anandaban Leprosy Hospital, led by Dr Des and Dr Wendy Soares (1989–1997). Elisa Yule leads medical care for women with leprosy in Central Development Region. [10] [39] [37]
NigerSupporting the work of the Danja leprosy and general hospital Danja hospital in Maradi, Niger in the 2000s; particularly early treatment and disability strategies; with 40,000 adults and children attended each year; Australian Occupational therapist Helen Nixon serving there. [40] [41]
NigeriaMicro-enterprise project in Okegbala. Occupational therapy project (1998) [42] [37]
Papua New GuineaReconstructive surgery led by Dr Ken Clezy with nurse Val Taylor, based at Aitape (1964–1989). Surgical services at Hoyabia, Balimo Hopital, and Togoba in the Western Highlands, with the team led by Dr Bill Ramsay (1965–1968). Medical centre built at Mapoda (circa 1968). Supporting Public Health Department in Southern Highlands developing screening and treatment, led by Alex and Pam Packet (1970–1979). More recently, vocational training is provided in parallel to rehabilitation. [43] [44] [45] [46] [47]
South SudanIn what then Anglo-Egyptian Sudan, the Australian auxiliary responded to a need for shelter for people living with leprosy in buildings for leprosy patients in the riverside town of Melut. [48]
TanzaniaHospital administration for Diocese of Central Tanganyika leprosy Centre at Hombolo (1979–1985). Establishing the All Africa Leprosy and Rehabilitation Centre at Addis Ababa in 1965, later known as ALERT. [44] [49]
Timor-LesteImproved Leprosy Services in partnership with TL Ministry of Health, including early detection program, in Baucau and Manatuto, developing technicians to provide diagnostics in 15 health centres (2019–2024). [50] [8]
ThailandManarom OMF Hospital became new base for itinerant ministry for Dr Grace Warren (1975–1989). Dr Trevor and Heather Smith led McKean Rehabilitation Centre in Chiang Mai, (1969–2009) from where ran a surgery project in Laos. [51]
UgandaLeprosy treatment and surgery at Kumi Hospital, led by Geoff and Ruth Bowman (1989–1997) then Nathan Zweck (1993–1996). [37] [52] [53]
VietnamOne of the first AusAID supported projects, shared with the Institute of Dermatology in Hanoi (2005+). [54]

Range of care

Ulcer and wound care in India Philadelphia Community Hospital, Salur ulcer and wound care TLMI cr DC ef546eb2-634a-4b93-9f55-376450d88eb0.jpg
Ulcer and wound care in India

TLMA's work encompasses a wide spectrum of care, including medical treatment, rehabilitation, education, and advocacy. [55] Most projects provide early diagnosis, treatment, and care for those affected by the disease. [56] This is regarded as crucial since early detection and treatment are key to preventing the debilitating effects of the disease. [57] Programs include multi-drug treatment, shown to cure the disease within 6 to 24 months. [58]

Funding these international programs has always been a priority, so these projects "have the best Australia can give", to use the phrase of its early advocate, Bishop George Chambers. [59] For healthcare professionals in Australia's Christian community, the mission has also been a conduit for service overseas. [60] In this way, many Australians have provided patients with physiotherapy, reconstructive surgery, and other forms of rehabilitation. [61] [62] This aspect of TLMA's work addresses the physical and psychological impacts of leprosy, enabling people to rebuild their lives. [63] In this regard, the charity has been described as one of the earliest disability inclusion organisations. [64] The organisation is shaped by its Christian faith, and so addresses leprosy as both a medical and social issue. [51] [65]

TLMA raises awareness about leprosy, its symptoms, and available treatments through educational programmes and campaigns. [16] This includes educating communities about how the disease is both preventable and treatable. [16] TLMA's educational efforts aim to empower individuals and communities with knowledge about leprosy, facilitating early diagnosis and treatment. [3] Advocacy plays a crucial role in raising the profile of leprosy on national and international agendas, ensuring adequate funding and resources for its eradication. [66]

Organisation and partners

Artificial limb workshop at Arumugam Sridhar Arumugam Sridhar artificial limb workshop table TLMA project cr DC e263a5d8-8477-414d-99d3-185cb711677d.jpg
Artificial limb workshop at Arumugam Sridhar

The charity is registered with the Australian Charities and Not-for-profits Commission and accountable to that body. [7] [67] As such, it has been endorsed by the Australian Government as a Deductible Gift Recipient (DGR). [68] The work of the mission is accredited by Department of Foreign Affairs and Trade. [20]

TLMA works closely with other mission partners, such as the Netherlands charity, No Leprosy Remains, in joint projects in Indonesia. [8] It is a member of the Australian Council for International Development, the Australian NGO Cooperation Program of Australian Aid, the Fair Trade Association of Australia and New Zealand, the Fundraising Institute of Australia and the Australian Disability Consortium. [69] [8]

While the mission does attract some government funds through Australian Aid, the great majority of funding for its projects come from private donors, raising $2.9 million in 2023. [8] Through its history, the mission has encouraged a great variety of fundraising activities, including regular giving, cycling sponsorships, street appeals, events, and extreme-distance walking. [70] [71] [72]

History

Wellesley and Alice Bailey Wellesley and Alice Bailey.jpg
Wellesley and Alice Bailey

Inspired by the work of the leprosy mission pioneer Wellesley Bailey, Horace Hannah began a correspondence with the Irishman. Bailey replied by giving the Melbourne banker the challenge of organising an Australian auxiliary for the new movement. [73]

Hannah did so, selecting secretaries for each of the states. [73] Wellesley sailed from China to join Hannah for the first official meeting, which convened on 8 July 1913 in Melbourne, chaired by Rev A C Kellaway. [74] On the day, 23 people passed a resolution for a committee to represent the mission in Australia. [2] Hannah would later become president and honorary treasurer, and continued in leadership roles until his death in 1958. [2]

The executive function of the mission—which at this time was known as the Mission to Lepers—was performed by the secretaries. [75] In 1922, the General Secretary, Rev Walter Eddy, traveled to New Zealand to establish an auxiliary there. [48]

Fundraising

X-ray of patient in Chiang Mai, Thailand, a project long supported by Leprosy Mission Australia 5158103105 5e16f4ce3d bLepre.jpg
X-ray of patient in Chiang Mai, Thailand, a project long supported by Leprosy Mission Australia

The focus, from the beginning, was on fundraising for overseas leprosy missions, and prayer to support the efforts of the missionaries. [11] In 1918, J Noble Mackenzie asked the Australian auxiliary if they would raise funds for a Leprosy Mission in Korea, led by Dr. C. H. Erwin; which would require 500 pounds. [2] [38] The sum was raised in the AGM of that year. [2] In 1922, the committees raised sufficient money to provide buildings for leprosy patients in Melut, in partnership with Sudan United Mission. [48]

Budgets built steadily, which stood at 4,410 pounds by 1924. In the following years, 1,000 pounds were allocated for the Foochow leprosy mission in China, then 400 pounds for the enlargement of a church at the Champa Mission Station in Chhattisgarh, India. Perhaps more impressively, total income for the group grew to 6,475 pounds by 1930, well into the Great Depression. [76] By 1944, it had reached 20,000 pounds. [77]

Imaginative approaches to fundraising have marked out the Australian operation, which were driven by local chapters. [78] The Taree TLM auxiliary, which first met in 1954, was known for producing elaborate musicals and cake competitions. [78] In the 1960s it was producing its own radio show on 3XY and later on 3SH, along with its own magazine, In Action, and, in 1971 its own TV special, "Freedom from Bondage." [79] [48] [80] The approach has continued in the 21st century. One fundraiser auctioned off the colourful football shorts of Matthew Primus, the captain of the Port Adelaide Football Club. [81] And with the support of David Wenham—who starred in the film Molokai, about a missionary who served and died in a leprosy mission—TLMA became a sponsor of Sydney Film Festival, allowing them to show short films about their work. [82] [83]

Field workers

Tendon transfer pioneer, Grace Warren Dr Grace Warren cr Jeanette Hyland in Tasmania.jpg
Tendon transfer pioneer, Grace Warren

Following the Billy Graham crusades in Australia 1959, the group saw an influx of talent, both in leadership and among medical staff. William McKeown, a new convert, became the executive secretary that year. [84] Grace Warren began her first stint with the group at this time, and would go on to lead surgical teams, train many other specialists and pioneered the technique of tendon transfer in reconstructive surgery for leprosy patients with Paul Brand. [85] [86] With new techniques and systems, they arranged a fresh medical team to serve in New Guinea of Dr Ken Clezy, Julie Christie a physiotherapist from NZ, theatre sister Val Taylor. That team, on the day after arriving in PNG, operated on eight cases of leprosy; with over 500 operations on hands, feet and faces in the following nine months. [87]

The nature of the mission's work changed radically in the 1980s with the launch of effective multi-drug treatment, distributed free from the WHO. [18] One of its researchers, the microbiologist, Jenny Davis, was now describing the fight against leprosy as being one of the medical success stories of the 20th Century. [10]

By 2003, TLMA was responsible for several groups of not just medical, but allied health students, who began visiting projects in the Democratic Republic of the Congo, Papua New Guinea, Nigeria, Nepal and India. [88] The mission had developed its partnership with AusAID by 2011, enabling 23 projects. [54] But with infections entirely treatable, focus was now on prevention, rehabilitation and advocacy. In this way, they have become leaders disability inclusion, globally. [18]

Countries where Leprosy Mission Australia serves as of 2023 TLMA places of operations as per ACNC reporting 2023.svg
Countries where Leprosy Mission Australia serves as of 2023

Through a partnership between The Leprosy Mission Nigeria and The Leprosy Mission Australia, DFAT and the Australian High Commission in Nigeria an electoral reform was effected, which made it possible for people who aren't able to provide a fingerprint—particularly those with hands damaged by leprosy—were able to register and vote in the 2023 Nigerian presidential election. [89] For the leadership of the mission, the advocacy work indicated the mission is keeping to its original principles: “The Christian principle of seeking the outcast is a big principle of The Leprosy Mission – no one is outcast in the kingdom of God.” [89]

Current and previous leadership

Chairs

National leadership

Noted doctors, nurses, scientists

In the early 20th Century, doctors and nurses who served in were known as medical missionaries, later as field workers. [101] Leprosy Mission Australia, has supported many Australians as overseas staff who have become internationally known for their work.

Notes

  1. "BBC Radio 4 - Radio 4 Appeal, The Leprosy Mission (England and Wales)". BBC. Retrieved 27 May 2024.
  2. 1 2 3 4 5 6 Turnbull 1990, p. 6.
  3. 1 2 3 4 Lim, Anne (11 October 2023). "Leprosy - didn't Jesus fix that? - Eternity News" . Retrieved 27 May 2024.
  4. 1 2 Gainsford, Jim (9 June 2014). "Research rewarded (QBH 2014)". St George & Sutherland Shire Leader. Retrieved 5 June 2024.
  5. 1 2 "About Jenny Davis". www.abc.net.au. Retrieved 4 June 2024.
  6. World Health Organisation. "Take Action for the Sustainable Development Goals". United Nations Sustainable Development. Retrieved 27 May 2024.
  7. 1 2 "THE LEPROSY MISSION AUSTRALIA". Australian Charities and Not-for-profits Commission. 2017.
  8. 1 2 3 4 5 6 7 8 9 10 "The Leprosy Mission Annual Report 2023 by The Leprosy Mission Australia - Issuu". issuu.com. 17 November 2023. Retrieved 28 May 2024.
  9. "Leprosy (Hansen disease)". www.who.int. Retrieved 5 June 2024.
  10. 1 2 3 4 "Fighting Leprosy in Nepal - Jenny Davis". www.abc.net.au. Retrieved 27 May 2024.
  11. 1 2 Turnbull 1990, p. 89.
  12. Bock 2016, p. 2-3.
  13. Pathak, Vinay Kumar; Singh, Itu; Singh, Shoor Vir; Sengupta, Utpal (24 December 2021). "Mimicking B and T cell epitopes between Mycobacterium leprae and host as predictive biomarkers in type 1 reaction in leprosy". Scientific Reports. 11 (1): 24431. Bibcode:2021NatSR..1124431P. doi:10.1038/s41598-021-04135-5. ISSN   2045-2322. PMC   8709860 . PMID   34952925.
  14. Group, The Be IT Safe. "Research Projects". Leprosy Mission Australia. Retrieved 5 June 2024.{{cite web}}: |last= has generic name (help)
  15. Turankar, Ravindra P.; Pandey, Shradha; Lavania, Mallika; Singh, Itu; Nigam, Astha; Darlong, Joydeepa; Darlong, Fam; Sengupta, Utpal (March 2015). "Comparative evaluation of PCR amplification of RLEP, 16S rRNA, rpoT and Sod A gene targets for detection of M. leprae DNA from clinical and environmental samples". International Journal of Mycobacteriology. 4 (1): 54. doi: 10.1016/j.ijmyco.2014.11.062 . ISSN   2212-5531 via LWW.
  16. 1 2 3 Crooks, Mike (28 January 2024). "Secrets of Leprosy : "Suffering Can Be Stopped"". Hope 103.2. Retrieved 27 May 2024.
  17. Mieras, L.; Singh, M. K.; Manglani, P. R.; Arif, M. M.; Banstola, N. L.; Pandey, B.; Budiawan, T.; Utami, R.; Wibowo, T.; Iswandi, A. I.; Peters, R.; Brakel, W. van (1 December 2020). "A single dose of rifampicin to prevent leprosy; quantitative analysis of impact on perception, attitudes and behaviour of persons affected, contacts and community members towards leprosy in India, Nepal and Indonesia". Leprosy Review. 91 (4): 314–327. doi: 10.47276/lr.91.4.314 . ISSN   0305-7518.
  18. 1 2 3 "Mornings". ABC listen. ABC Australia. 17 April 2024. 2 hours 11 minutes 50 seconds on. Retrieved 5 June 2024.
  19. Bock 2016, p. 53.
  20. 1 2 3 4 5 6 7 "Australian Charities and Not-for-profits Commission". ACNC. 2024.
  21. "Postcard: Leprosy Mission Australia :: Sunday Nights". www.abc.net.au. Retrieved 28 May 2024.
  22. 1 2 "Annual Report 2023" (PDF). The Leprosy Mission Australia. 2023.
  23. 1 2 Skillicorn, Keith; Am, Keith Skillicorn; Skillicorn, Ruth (2006). Faith + Action = Miracle. Lulu.com. ISBN   978-1-4116-7800-2.
  24. 1 2 Bock 2016, p. 39.
  25. "Helen Rienits". scholars.uow.edu.au. 6 June 2024. Retrieved 5 June 2024.
  26. "50 Years of KYB" (PDF). Keiraview Uniting News. 19 June 2022.
  27. "WYNYARD". Advocate. 5 November 1954. Retrieved 13 June 2024.
  28. 1 2 Briggs, John (28 December 2002). "Leprosy fighter back from war hell in Congo". The Mercury (Hobart) .
  29. 1 2 Wilson, Susan (March 2003). "On a mission of mercy". Australian Nursing Journal. 10 (8): 14.
  30. "Mission to Lepers". Advocate. 5 November 1954. Retrieved 13 June 2024.
  31. Veen, J (1 January 2009). "Evaluation of Interventions to Prevent Disability in Leprosy". Population Health Metrics via ResearchGate.
  32. Brandsma, JW (13 February 2011). "Prevention of disability in leprosy: the different levels" (PDF). Indian Journal of Leprosy. 83 (1–8): 6.
  33. 1 2 "Doctor Number 49: Grace Warren of The Leprosy Mission". Sydney Anglicans. Retrieved 5 June 2024.
  34. "Postcard: Leprosy Mission Australia". ABC listen. 3 March 2007. Retrieved 28 May 2024.
  35. Anderson, J. G.; Brandsma, J. W. "Book Reviews" (PDF). International Journal of Leprosy. 53 (1): 129 via ILSL.
  36. Turnbull 1990, p. 50.
  37. 1 2 3 4 Bock 2016, p. 62.
  38. 1 2 Kornegay, Nate (15 January 2015). "Sorokdo". Colonial Korea. Retrieved 5 June 2024.
  39. Gruen, Russell L (April 1993). Jones, Peter; Mackie, Maggie (eds.). "Electives" (PDF). Chiron. 3 (1). Melbourne: University of Melbourne Medical Society: 35–36.
  40. 1 2 Bock 2016, p. 62-63.
  41. 1 2 Byrne, Bridie (25 January 2012). "Leprosy fight continues". Whitehorse Leader.
  42. Bock 2016, p. 18.
  43. Bock 2016, p. 40.
  44. 1 2 "Alex and Pam Packet - TLM Heroes". Leprosy Mission International. Retrieved 5 June 2024.
  45. Watters, David (23 August 2010). Stitches in Time: Two Centuries of Surgery in Papua New Guinea. Xlibris Corporation. ISBN   978-1-4535-5493-7.
  46. Jackson, Keith (30 July 2019). "The Amazing Story of PNG's First Professor of Surgery". PNG Attitude.
  47. Hendrie, Doug (29 October 2018). "Leprosy was thought to be eliminated in Papua New Guinea – but it's back". News GP. Royal Australian College of General Practitioners.
  48. 1 2 3 4 Turnbull 1990, p. 8.
  49. Turnbull 1990, p. 28.
  50. desa, jose (31 January 2024). "Leprosy Mission Timor-Leste calls for ending leprosy stigma". TATOLI Agência Noticiosa de Timor-Leste. Retrieved 13 June 2024.
  51. 1 2 Bock 2016, p. 38.
  52. "Abandoned at the hospital because they had leprosy". Monitor. 5 January 2021. Retrieved 5 June 2024.
  53. The History of Kumi Hospital Ongino: From a Leprosy Centre to a General Hospital (PDF). June 2022.{{cite book}}: CS1 maint: date and year (link)
  54. 1 2 Bock 2016, p. 17.
  55. Bock 2016, p. 12-17.
  56. Bock 2016, p. 12.
  57. Nicholls, P. G.; Ross, L.; Smith, W. C. S. (1 December 2006). "Promoting early detection in leprosy – a literature review to identify proven and potential interventions addressing patient-related delay". Leprosy Review. 77 (4): 298–310. doi: 10.47276/lr.77.4.298 . ISSN   0305-7518. PMID   17343217.
  58. Tran, Megan. "Leprosy in Australia: a forgotten disease". Nursing Review. Retrieved 28 May 2024.
  59. Turnbull 1990, p. 9.
  60. "CLEANSING THE LEPER". Telegraph. 27 August 1938. Retrieved 13 June 2024.
  61. Turnbull 1990, p. 24-44.
  62. "Dig deep for leprosy". Regional Business News: 7. 10 August 2010 via eds.p.ebscohost.com.
  63. Joseph A., Geetha; Sundar Rao, P.S.S. (1999). "Impact of leprosy on the quality of life". Bulletin of the World Health Organization. 77 (6): 515–518. PMC   2557686 . PMID   10427937.
  64. "Mornings". ABC listen. 17 April 2024. 2 hours 12 minutes on. Retrieved 27 May 2024.
  65. Cleary, John; Debien, Noel (2 March 2007). "Sunday Nights". abc.net.au. 15 minutes 40 seconds on.
  66. Brink, Susan (16 September 2017). "Leprosy Is Not Quite Yet A Disease Of The Past". NPR .
  67. "The Leprosy Mission Australia" (PDF). Treasury. Australian Government, Department of Treasury. 13 June 2024.
  68. "ABN Lookup". abr.business.gov.au. 1 November 2014. Retrieved 13 June 2024.
  69. "The Leprosy Mission Australia". Modern Slavery Register. 30 June 2021.
  70. "Help disadvantaged". Guardian Express (Perth): 5. 10 August 2010 via EBSCO.
  71. Taylor, Nikki (12 January 2011). "Helen's trip aids people with leprosy: Blacktown Advocate". Blacktown Advocate: 13 via EBSCO.
  72. Cogdon, Kamahl (12 October 2007). "Driven scientist is on roll for charity". Herald Sun via EBSCO.
  73. 1 2 Turnbull 1990, p. 5.
  74. "LEPROSY IN THE EAST". Argus. 26 June 1913. Retrieved 5 June 2024.
  75. "Australian Dictionary of Evangelical Biography - HANNAH, Horace John (1872-1958)". sites.google.com. Retrieved 5 June 2024.
  76. Turnbull 1990, p. 10.
  77. Turnbull 1990, p. 14.
  78. 1 2 Bock 2016, p. 19.
  79. Turnbull 1990, p. 21,23.
  80. Turnbull 1990, p. 59.
  81. Muston, Anna (2013). Powell, Stephanie (ed.). A little TLC : a celebration of TLM in Australia. LMA. p. 75. ISBN   9780646911557.
  82. "Wenham the hero of a heroic tale". The Age. 16 June 2002. Retrieved 13 June 2024.
  83. Barrett, Rebecca (6 June 2024). "Leprosy campaign launches at Sydney Film Festival". ABC listen. Retrieved 13 June 2024.
  84. 1 2 3 Turnbull 1990, p. 20.
  85. Centre for Transformative Innovation, Swinburne University of Technology. "Warren, Grace - Person - Encyclopedia of Australian Science and Innovation". www.eoas.info. Retrieved 5 June 2024.
  86. Bock 2016, p. 37.
  87. Bock 2016, p. 44.
  88. "Aid chief faces a world of challenges". The Sydney Morning Herald. 20 November 2003. Retrieved 28 May 2024.
  89. 1 2 Vujevic, Alisha (8 November 2023). "Fighting stigma and discrimination: influencing electoral reform in Nigeria for people with leprosy and disability". The Melbourne Anglican. Retrieved 5 June 2024.
  90. 1 2 3 4 5 6 7 Turnbull 1990, p. 12-16.
  91. "Jennifer Keeler-Milne: Ian McKay Milne". Jennifer Keeler-Milne. Retrieved 4 June 2024.
  92. Bock 2016, p. 42.
  93. 1 2 Reporters, Staff (13 September 2023). "Leprosy Mission guest speakers coming to Taree". Manning River Times. Retrieved 28 May 2024.
  94. Tran, Megan (December 2018). "The forgotten disease". Nursing Review (6): 18. ISSN   1326-0472 via EBSCO.
  95. Carpenter, Martk (21 November 2019). "Spotlight on the Code – governing accountably, transparently and responsibly". Australian Council for International Development.
  96. "ILSL - Internacional Journal of Leprosy and other Mycobacterial Diseases- OBITUARY- William Robert Edgar, B.Sc, M.B.A. may 12, 1942-july 20, 1992". ijl.ilsl.br. Retrieved 5 June 2024.
  97. 1 2 3 4 Bock 2016, p. 2-6.
  98. Bock 2016, p. 2-11.
  99. "Over 50 community leaders and public figures call for bipartisan leadership to rebuild Australian aid". Parliament of Australia.
  100. ben.holman (31 October 2022). "Leprosy stole more than Shakti's leg. Why is she smiling? - Eternity News" . Retrieved 4 June 2024.
  101. "TREATMENT OF LEPROSY". Northern Territory Times. 27 September 1929. Retrieved 5 June 2024.
  102. "Staff Profile". The University of Sydney. Retrieved 13 June 2024.
  103. 1 2 Davis, Jenny (22 October 2020). "Stigma, separation, sorrow: leprosy in Australia". Microbiology Australia. 41 (4): 187–191. doi:10.1071/MA20051. ISSN   2201-9189.
  104. Rinaudo, Ben (3 December 2014). "International Day of People With Disabilities Special". 3CR. 9 minutes 0 seconds on.
  105. "People assume Helen is Joel's carer but the reality couldn't be more different". ABC News. 3 December 2021. Retrieved 13 June 2024.
  106. Byrne, Bridie (2 February 2011). "New role with global importance". Whitehorse Leader. p. 11.
  107. Nottingham, Marvin A. (2000). Once a Cowboy. iUniverse. ISBN   978-0-595-09024-2.
  108. "ILSL - Internacional Journal of Leprosy and other Mycobacterial Diseases- ABSTRACTS OF CONGRESS- 15th International Leprosy Congress". ijl.ilsl.br. Retrieved 13 June 2024.
  109. Risko, Marta, ed. (January 2018). "The Bridge" (PDF).
  110. Lockwood, Diana N. J., ed. (June 2009). "Rehabilitation and Prevention of Disability (RPOD) Courses". Leprosy Review. 80 (2): 228–229. ISSN   0305-7518.
  111. Nicholson, Trish (December 2014). "The Leprosy Mission Australia" (PDF). Berry Alliance. p. 24.
  112. Adams, David (14 April 2020). "Conversations: Heather and Trevor Smith, 50 years with The Leprosy Mission in Thailand". Sight Magazine. Retrieved 5 June 2024.
  113. Shamrock, Jane; Smith, Natalie; Gray, Marion; Cameron, Melainie; Oprescu, Florin (January 2017). "People with disabilities working in the disability sector in Timor Leste: a study of 'lived experience' using PhotoVoice". Third World Quarterly. 38 (1): 117–133. doi:10.1080/01436597.2016.1199258.
  114. Gully, Andrew, ed. (20 January 2010). "Living with leprosy". The New Humanitarian.
  115. Centre for Transformative Innovation, Swinburne University of Technology. "Warren, Grace - Person - Encyclopedia of Australian Science and Innovation". www.eoas.info. Retrieved 13 June 2024.
  116. Risko, Marta, ed. (July 2019). "The Bridge" (PDF).
  117. Pfanner, Eric (1 July 2007). "High security at concert for Princess Diana". The New York Times. ISSN   0362-4331 . Retrieved 13 June 2024.
  118. "Australian Catholic University (ACU)". webpublic.acu.edu.au. Retrieved 13 June 2024.

Related Research Articles

<span class="mw-page-title-main">Leprosy</span> Chronic infection caused by mycobacteria leprae or lepromatosis

Leprosy, also known as Hansen's disease (HD), is a long-term infection by the bacteria Mycobacterium leprae or Mycobacterium lepromatosis. Infection can lead to damage of the nerves, respiratory tract, skin, and eyes. This nerve damage may result in a lack of ability to feel pain, which can lead to the loss of parts of a person's extremities from repeated injuries or infection through unnoticed wounds. An infected person may also experience muscle weakness and poor eyesight. Leprosy symptoms may begin within one year, but, for some people, symptoms may take 20 years or more to occur.

Lepra (Leprosy Relief Association) is a UK-based international charity established in 1924, working to diagnose, treat, and rehabilitate people with leprosy. Lepra currently works in India, Bangladesh, and Zimbabwe.

<span class="mw-page-title-main">Bill Shorten</span> Australian politician (born 1967)

William Richard Shorten is an Australian politician and former trade unionist serving as the current Minister for Government Services and Minister for the National Disability Insurance Scheme since 2022. Previously, Shorten was leader of the opposition and leader of the Labor Party (ALP) from 2013 to 2019. A member of parliament (MP) for the division of Maribyrnong since 2007, Shorten also held several ministerial portfolios in the Gillard and Rudd governments from 2010 to 2013.

<span class="mw-page-title-main">Peel Island (Queensland)</span> Suburb of Moreton Bay, Queensland, Australia

Peel Island is a small heritage-listed island located in Moreton Bay, east of Brisbane, in South East Queensland, Australia. The island is a locality within the local government area of Redland City and a national park named Teerk Roo Ra National Park and Conservation Park.

<span class="mw-page-title-main">Australian Aid</span> Governmental aid agency

Australian Aid is the brand name used to identify projects in developing countries supported by the Australian Government. As of 2014 the Department of Foreign Affairs and Trade (DFAT) has been responsible for Australia's official development assistance to developing countries.

<span class="mw-page-title-main">St Vincent's Hospital, Sydney</span> Hospital in New South Wales, Australia

St Vincent's Hospital, Sydney is a leading tertiary referral hospital and research facility located in Darlinghurst, Sydney. Though funded and integrated into the New South Wales state public health system, it is operated by St Vincent's Health Australia. It is affiliated with the University of Tasmania College of Health and Medicine and the University of New South Wales Medical School.

Leprosy stigma is a type of social stigma, a strong negative feeling towards a person with leprosy relating to their moral status in society. It is also referred to as leprosy-related stigma, leprostigma, and stigma of leprosy. Since ancient times, leprosy instilled the practice of fear and avoidance in many societies because of the associated physical disfigurement and lack of understanding behind its cause. Because of the historical trauma the word "leprosy" invokes, the disease is now referred to as Hansen's disease, named after Gerhard Armauer Hansen who discovered Mycobacterium leprae, the bacterial agent that causes Hansen's disease. Those who have suffered from Hansen's disease describe the impact of social stigma as far worse than the physical manifestations despite it being only mildly contagious and pharmacologically curable. This sentiment is echoed by Weis and Ramakrishna, who noted that "the impact of the meaning of the disease may be a greater source of suffering than symptoms of the disease".

<span class="mw-page-title-main">The Leprosy Mission</span>

The Leprosy Mission is an international and inter-denominational Christian NGO, the largest and oldest organisation working in the fight against leprosy. Founded as the Mission to Lepers, it has the goal of zero leprosy transmission by 2035.

Leprosy currently affects approximately a quarter of a million people throughout the world, with the majority of these cases being reported from India.

<span class="mw-page-title-main">Epidemiology of leprosy</span>

Worldwide, two to three million people are estimated to be permanently disabled because of leprosy. India has the greatest number of cases, with Brazil second and Indonesia third.

<span class="mw-page-title-main">History of leprosy</span>

The history of leprosy was traced to its origins by an international team of 22 geneticists using comparative genomics of the worldwide distribution of Mycobacterium leprae. Monot et al. (2005) determined that leprosy originated in East Africa or the Near East and traveled with humans along their migration routes, including those of trade in goods and slaves. The four strains of M. leprae are based in specific geographic regions where each predominantly occurs:

Stanley George Browne, also called "Bonganga" by the community members with whom he worked, was a British medical missionary and leprologist known for his work and his many research achievements throughout the 20th century in the Belgian Congo, Nigeria, and India including his early use of Dapsone. He received numerous awards throughout his academic and professional career. He is also known as an academic for his early publications surrounding his findings of leprosy of which he published about 150 articles and five books.

Isaac Santra was an Indian physician, gandhian and social worker, known for his contributions for the eradication of Leprosy from India. The Government of India honoured him in 1956, with the award of Padma Shri, the fourth highest Indian civilian award for his services to the nation.

Medical missions is the term used for Christian missionary endeavors that involve the administration of medical treatment. As has been common among missionary efforts from the 18th to 20th centuries, medical missions often involves residents of the "Western world" traveling to locales within Africa, Asia, Eastern Europe, Latin America, or the Pacific Islands.

<span class="mw-page-title-main">Ernest W. Price</span> British doctor and researcher

Dr Ernest Woodward Price MD, FRCSE, DTM&H, OBE was a missionary doctor, orthopaedic surgeon, leprosy specialist and the discoverer of podoconiosis, one of the neglected tropical diseases. A list of his publications is available online.

Green Pastures Hospital (GPH) is located in Pokhara, Gandaki Province, Nepal. It was established in 1957 as "Green Pastures Leprosarium" which became Green Pastures Hospital in 1970. GPH provides treatment and rehabilitation for people with spinal cord injuries and other physical disabilities, as well as reconstructive surgery, palliative care and specialist ear care.

<span class="mw-page-title-main">R. Ranchandra Vishwanath Wardekar</span> Founder of Gandhi Memorial Leprosy Foundation

R. Ranchandra Vishwanath Wardekar was an Indian doctor and founder of Gandhi Memorial Leprosy Foundation. He received the Padma Shri award in 1973. He is considered "the father of leprosy control" in India.

Ernest Muir FRCS, CIE, CMG was a Scottish medical missionary and educator in British-controlled India and Nigeria most noted for his work with Hansen's disease (leprosy).

<span class="mw-page-title-main">John Charles Hargrave</span> Dr John Hargrave was an Australian surgeon who worked to eliminate leprosy in the N.T.

John Hargrave was a renowned Australian surgeon whose work resulted in the near elimination of leprosy in the Northern Territory. In 1959, Hargrave was appointed medical superintendent of the East Arm Leprosarium, which replaced the leper colony known as Channel Island in Darwin Harbour.

The Kigali Declaration on Neglected Tropical Diseases is a global health project that aims to mobilise political and financial resources for the control and eradication of infectious diseases, the so-called neglected tropical diseases. Launched by the Uniting to Combat Neglected Tropical Diseases on 27 January 2022, it was the culmination and join commitment declared at the Kigali Summit on Malaria and Neglected Tropical Diseases (NTDs) hosted by the Government of Rwanda at Kigali on 23 June 2022.

References