List of people diagnosed with cystic fibrosis

Last updated

The following notable people have or had cystic fibrosis.

NameLifeNotabilityReference
Frankie Abernathy (1981–2007)Former cast member of MTVs The Real World: San Diego; appeared in 22 of the 25 episodes. [1]
Bill Balas (19??—)American screenwriter, director and producer best known for his work on the A&E series Bates Motel and the TNT series Animal Kingdom . [2]
Dean Barnett (1967—2008)American conservative columnist and blogger. [3]
Lisa Bentley (1968—)Canadian Ironman triathlete. [4]
Carré Callaway(1986—)American singer-songwriter, of Queen Kwong [5]
Nathan Charles (1989—)Professional rugby union player with the Western Force. As of 2014, believed to be the only CF patient to play any contact sport professionally. [6]
Frédéric Chopin  ? (unconfirmed)(1810–1849)Polish composer. During his lifetime and at his death, he was thought to suffer from tuberculosis. However recently scientists have suggested that his symptoms were more consistent with cystic fibrosis, unknown at the time. The Polish government has refused to allow DNA tests to be performed on his heart, which is preserved in alcohol (see Frédéric Chopin's illness). [7]
Harry Coffey(1995—)Australian professional horse racing jockey. [8]
Christopher Davies (1978—)Former Southern Redbacks cricketer and current Port Adelaide Football Club Football general manager. [9]
AniKa Dąbrowska(2005–)Polish pop singer, winner of the second series of the Polish talent show The Voice Kids [10]
Alexandra Deford (1971–1980)Daughter of American sportswriter Frank Deford, subject of Deford's book Alex: The Life Of A Child. [11]
Gunnar Esiason (1991—)Son of former football player Boomer Esiason. [12]
Bob Flanagan (1952–1996)American writer, poet, performance artist, and comic. [13]
Travis Flores (1991—2024)American activist, philanthropist, motivational speaker, actor and award-winning children's book author. [14] [15]
Nolan Gottlieb (1982—)Former Anderson University (South Carolina) NCAA basketball player and current Anderson assistant coach. [16]
Queva Griffin (1983—2003)Published a book of poetry as a fundraiser. Named Ireland's Young Person of The Year in 1998. [17]
Kenneth Keith Kallenbach (1970–2008)Frequent guest on the Howard Stern Show. [18]
Grégory Lemarchal (1983—2007)French singer and winner of the show Star Academy, Season 4. [19]
Katie Malik(1979—)American singer and runner up on Swedish reality TV series Allt för Sverige , season 4 (2014). Believed to be the first person with CF to work professionally as an operatic singer. [20]

[21] [22]

Eva Markvoort (1984–2010)Canadian blogger and subject of 65 Redroses . [23]
Alice Martineau (1972–2003)British singer-songwriter and model. [24]
Sarah Murnaghan (2003–)10-year-old girl who was initially denied access to adult lungs when no pediatric lungs were available. Federal Judge Michael Baylson issued a temporary restraining order keeping Kathleen Sebelius from enforcing the 'patient-must-be-12-or-older' rule. [25]
Christine Nelson(1960–1982)Actress; Daughter of Muppet puppeter Jerry Nelson who appeared alongside her father in a cameo appearance in The Great Muppet Caper . [26] [27]
Bianca Nicholas (1989–)British pop and swing singer, one half of Electro Velvet [28]
Laura Rothenberg (1981–2003)Brown University student, and author of Breathing for a Living: A Memoir, and My So Called Lungs a radio documentary, which aired on NPR August 5, 2002. [29]
Andrew Simmons (1984—)British professional wrestler. [30]
Alex Stobbs (1990—)British music student, subject of the documentary A Boy Called Alex [31]
Orla Tinsley (1987—)Irish CF and LGBT activist, author, journalist and student [32]
Bill Williams (1960–1998) Software developer [33]
Anton Yelchin (1989–2016)American actor, best known for his role as Pavel Chekov in the Star Trek reboot. [34]

Related Research Articles

<span class="mw-page-title-main">Cystic fibrosis</span> Genetic disorder inhibiting clearance of mucus from the lungs

Cystic fibrosis (CF) is a genetic disorder inherited in an autosomal recessive manner that impairs the normal clearance of mucus from the lungs, which facilitates the colonization and infection of the lungs by bacteria, notably Staphylococcus aureus. CF is a rare genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. The hallmark feature of CF is the accumulation of thick mucus in different organs. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Other signs and symptoms may include sinus infections, poor growth, fatty stool, clubbing of the fingers and toes, and infertility in most males. Different people may have different degrees of symptoms.

<span class="mw-page-title-main">Jenny Agutter</span> English actress (born 1952)

Jennifer Ann Agutter is an English actress. She began her career as a child actress in 1964, appearing in East of Sudan, Star!, and two adaptations of The Railway Children; the BBC's 1968 television serial and the 1970 film version. In 1971 she also starred in the critically acclaimed film Walkabout and the TV film The Snow Goose, for which she won an Emmy Award for Outstanding Supporting Actress in a Drama.

<span class="mw-page-title-main">Anton Yelchin</span> American actor (1989–2016)

Anton Viktorovich Yelchin was an American actor. Born in the Soviet Union to a Russian Jewish family, he emigrated to the United States with his parents at the age of six months. He began his career as a child actor, appearing as the lead of the mystery drama film Hearts in Atlantis (2001) and a series regular on the Showtime comedy-drama Huff (2004–2006). Yelchin landed higher-profile film roles in 2009, portraying Pavel Chekov in the Star Trek reboot and Kyle Reese in Terminator Salvation. He reprised his role as Chekov in the sequels Star Trek Into Darkness (2013) and Star Trek Beyond (2016).

Kate Lawler is an English television personality, presenter, model and DJ. She became the first female winner of Big Brother UK after winning the third series of the reality series in 2002. Since Big Brother, she has presented various radio shows including Capital FM and Virgin Radio. She has also appeared in television series including Celebrity Wrestling and Love Island.

<span class="mw-page-title-main">Vertex Pharmaceuticals</span> American pharmaceutical company

Vertex Pharmaceuticals Incorporated is an American biopharmaceutical company based in Boston, Massachusetts. It was one of the first biotech firms to use an explicit strategy of rational drug design rather than combinatorial chemistry. It maintains headquarters in South Boston, Massachusetts, and three research facilities, in San Diego, California, and Milton Park, Oxfordshire, England.

<span class="mw-page-title-main">The Great Khali</span> Indian-American professional wrestler (born 1972)

Dalip Singh Rana is an Indian-born American retired professional wrestler and wrestling promoter better known by his ring name The Great Khali. He is best known for his tenure in WWE where he became the first Indian-born World Heavyweight Champion in history. He was inducted into the WWE Hall of Fame in 2021.

Mackenzie Rosman is an American actress. She is known for her television role as Ruthie Camden on The WB's long-running drama series 7th Heaven.

<span class="mw-page-title-main">Grégory Lemarchal</span> French singer

Grégory Jean-Paul Lemarchal, known professionally as Grégory Lemarchal, was a French singer who rose to fame by winning the fourth series of the reality television show Star Academy, which was broadcast on the TF1.

<span class="mw-page-title-main">Delta Phi Epsilon (social)</span> International collegiate sorority

Delta Phi Epsilon is an international sorority founded on March 17, 1917 at New York University Law School in Manhattan. It is one of 26 social sororities that form the National Panhellenic Conference (NPC). It has 110 active chapters, three of which are located in Canada, making the sorority an international organization.

<span class="mw-page-title-main">Miglustat</span> Medication

Miglustat, sold under the brand name Zavesca among others, is a medication used to treat type I Gaucher disease and Pompe disease.

Orla Tinsley is an Irish journalist, campaigner and multimedia artist.

<span class="mw-page-title-main">Taryn Terrell</span> American professional wrestler and model

Taryn Nicole Dryden is an American model, actress, stuntwoman, ring announcer and retired professional wrestler. She is best known for her tenures in Total Nonstop Action Wrestling (TNA), under her real name, and in WWE, where she performed under the ring name Tiffany.

Alexander Brett Stobbs, is a British musician with cystic fibrosis who was the subject of the Channel 4 Cutting Edge documentary A Boy Called Alex in 2008 and its sequel, Alex: A Passion for Life in 2009, also broadcast on Channel 4.

Nathan Charles is a former Australian rugby union player and now sports administrator. He played hooker for the Western Force in the Super Rugby competition, having previously played for the Melbourne Rebels, Sydney University in the Shute Shield & Western Sydney Rams in the NRC. He signed with English club Gloucester RFC in August 2011, but played there for only part of the 2011–12 northern hemisphere season before returning to Australia to continue his spell with the Force and pursue his dream to play for the Wallabies.

<span class="mw-page-title-main">T. J. Brodie</span> Canadian ice hockey player (born 1990)

Thomas James Brodie is a Canadian professional ice hockey defenceman for the Chicago Blackhawks of the National Hockey League (NHL). He was a fourth round selection of the Calgary Flames, 114th overall, at the 2008 NHL Entry Draft. Brodie played four seasons in the Ontario Hockey League (OHL) prior to turning professional in 2010. Internationally, he has represented Canada at the 2013 IIHF World Championship.

<span class="mw-page-title-main">Ivacaftor</span> Cystic fibrosis treatment drug

Ivacaftor is a medication used to treat cystic fibrosis in people with certain mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene, who account for 4–5% cases of cystic fibrosis. It is also included in combination medications, lumacaftor/ivacaftor, tezacaftor/ivacaftor, and elexacaftor/tezacaftor/ivacaftor which are used to treat people with cystic fibrosis.

<span class="mw-page-title-main">I Lived</span> 2014 single by OneRepublic

"I Lived" is a song recorded by American pop rock band OneRepublic. It was released as the fifth and final single from the album, Native (2013). It was originally planned to be released as the fourth single in January 2014 but was shelved in favor of "Love Runs Out". It was the final song covered in the series finale of the hit FOX musical comedy-drama Glee in March 2015.

<i>Five Feet Apart</i> 2019 film by Justin Baldoni

Five Feet Apart is a 2019 American romantic drama film directed by Justin Baldoni and written by Rachael Lippincott with Mikki Daughtry and Tobias Iaconis. The film was inspired by Claire Wineland, who suffered from cystic fibrosis. Haley Lu Richardson and Cole Sprouse play two young patients with cystic fibrosis who try to have a relationship despite being forced to stay six feet apart from each other. The film was released in the United States on March 15, 2019 by CBS Films via Lionsgate. It received mixed reviews from critics and grossed $92 million worldwide.

Elexacaftor/tezacaftor/ivacaftor, sold under the brand names Trikafta and Kaftrio, is a fixed-dose combination medication used to treat cystic fibrosis. Elexacaftor/tezacaftor/ivacaftor is composed of a combination of ivacaftor, a chloride channel opener, and elexacaftor and tezacaftor, CFTR modulators.

Michael James Welsh is an American pulmonologist. He is the current Roy J. Carver Chair in Biomedical Research, the Professor of Internal Medicine in Pulmonary, Critical Care and Occupational Medicine at the Department of Internal Medicine, and the Director of Pappajohn Biomedical Institute, Roy J. and Lucille A. Carver College of Medicine, University of Iowa. He is also a professor at the Department of Neurosurgery, Department of Neurology, and Department of Molecular Physiology and Biophysics. He received the 2022 Shaw Prize in Life science and Medicine, together with Paul A. Negulescu, for their work that uncovered the etiology of cystic fibrosis and developed effective medications.

References

  1. ↑ "'Real World: San Diego' Alum Frankie Abernathy Dead At 25". MTV. June 12, 2007. Archived from the original on June 14, 2007. Retrieved June 12, 2007.
  2. ↑ "Sloan Science and Film". Museum of the Moving Image.
  3. ↑ "Dean Barnett, conservative blogger, dead at 41". Boston Globe. October 27, 2008. Retrieved October 27, 2008.
  4. ↑ "Lisa Bentley Triumphs Over CF". Canadian Cystic Fibrosis Foundation. July 7, 2004. Archived from the original on September 27, 2006. Retrieved January 26, 2007.
  5. ↑ "Kerrang!". April 5, 2018.
  6. ↑ Robinson, Georgina (June 10, 2014). "Cystic fibrosis no barrier for Nathan Charles as he prepares for Test debut". Rugby Heaven. Retrieved June 10, 2014.
  7. ↑ "Home is where the heart'll stay: Sci-Tech: News: News24". Archived from the original on July 30, 2008. Retrieved July 31, 2008. Home is where the heart'll stay
  8. ↑ "Harry Coffey – Jockey Profile". Racing.com. October 2016. Retrieved October 31, 2016.
  9. ↑ "CricInfo: Chris Davies". ESPNcricinfo. August 2001. Retrieved January 26, 2007.
  10. ↑ "Jak dziś żyje AniKa Dąbrowska? Zwyciężczyni Voice Kids właśnie świętuje 18. urodziny!".
  11. ↑ Deford, Frank (1997). Alex: The Life of a Child. Rutledge Hill Press. ISBN   1558535527.
  12. ↑ "Boomer Esiason: His fight against his son's illness". USA Weekend Magazine. October 11, 1998. Retrieved January 26, 2007.[ dead link ]
  13. ↑ Holden, Stephen (April 3, 1997). "An artist whose medium was pain". The New York Times. Retrieved February 23, 2007.
  14. ↑ Travis Flores
  15. ↑ Webster, Philip; Coates, Sam (November 29, 2006). "Gordon Brown's baby son diagnosed with cystic fibrosis". The Times. London. Retrieved January 26, 2007.[ dead link ]
  16. ↑ "AC Player Battles Disease To Play Basketball". Anderson University. January 28, 2005. Archived from the original on September 28, 2007. Retrieved July 18, 2007.
  17. ↑ "Taoiseach praises 'remarkable people' at award ceremony". The Irish Times . November 10, 1998. Retrieved December 5, 2016.
  18. ↑ Rubinkam, Michael (April 25, 2008). "Howard Stern regular Kenneth Kallenbach dead at 39". Pittsburgh Tribune-Review. Archived from the original on July 13, 2009. Retrieved April 25, 2008.
  19. ↑ "JustGregory.net: Fanzone: Biographie". Just-Gregory.com. Retrieved January 26, 2007.
  20. ↑ "Time for the fourth season of Everything for Sweden". SVT Official Website. Sveriges Television. May 26, 2014. Retrieved December 31, 2014.
  21. ↑ Nillson, Christoffer (December 8, 2014). ""Allt för Sverige"-Katie om nyckeln till sjukdomsgåtan ("All for Sweden" Katie- the key to a puzzling disease)". Aftonbladet. Retrieved December 31, 2014.
  22. ↑ "Operabase professional artist database (Katie Malik)". Operabase.com. Retrieved December 31, 2014.
  23. ↑ Park, Madison (April 27, 2010). "Death at 25: Blogging the end of a life". CNN. Retrieved April 27, 2010.
  24. ↑ Barrow, Becky (July 3, 2003). "Pop singer dies after valiant battle with cystic fibrosis". The Daily Telegraph. London. Archived from the original on June 23, 2003. Retrieved February 23, 2007.
  25. ↑ "Pa. girl who took on donor rules gets adult lungs". New York Post. June 12, 2013.
  26. ↑ "Christine Nelson - Biography - IMDb". IMDb .
  27. ↑ http://www.tv.com/people/christine-nelson-ii/%5B%5D
  28. ↑ "Retro Singer | UK | Bianca Nicholas".
  29. ↑ Rothenberg, Laura (June 9, 2003). Breathing for a living . Hyperion. ISBN   1-4013-0059-6.
  30. ↑ "Online World of Wrestling: Wrestler Profile: Andrew Simmons". onlineworldofwrestling.com. Retrieved February 1, 2007.
  31. ↑ "A Boy Called Alex". Archived from the original on April 16, 2009. Retrieved December 23, 2011.
  32. ↑ "Orla Tinsley: Honesty about death and purpose in life · TheJournal.ie". September 23, 2012.
  33. ↑ Wallace, Catherine M. (Summer 1999). "Naked Before God: The Return of a Broken Disciple". Anglican Theological Review. Archived from the original on October 16, 2007. Retrieved February 23, 2007.
  34. ↑ "Actor Anton Yelchin, killed in an accident as he was about to talk publicly about his cystic fibrosis, celebrated in intimate Sundance documentary".
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