![]() | |
Founded | 1997 |
---|---|
Founder | Lynne Matallana Karen Lee Richards |
Type | 501(c)3 |
Focus | Patient education and support Medical education programs Facilitating research |
Location | |
Area served | International |
Product | Education |
Method | Assistance to support groups Fibromyalgia AWARE Magazine Fibromyalgia Awareness Day Leaders Against Pain Coalition Legislative lobbying Ongoing media presence |
Key people | Founder:Executive Director: Lynne Matallana Board of directors: Richard Matallana Michael Seffinger, DO, FAAFP Craig Kennedy Bas Mulder |
Website | fmaware |
The National Fibromyalgia Association (NFA) is a nonprofit organization whose purpose is to help improve the quality of life for people living with fibromyalgia (FM) and other chronic pain conditions. The NFA has worked to build international awareness of this chronic pain disorder, provide patient assistance and support, educate the medical community, facilitate and implement research, and build collaboration between the patient, health care providers and scientific communities.
The National Fibromyalgia Association's mission is to help people affected by FM by organizing awareness events, media coverage, support and training for support group leaders across the United States. The NFA produces informational materials, hosts patient and health care provider web sites, and publishes the magazine Fibromyalgia AWARE. [1]
First known as the National Fibromyalgia Awareness Campaign, [2] the NFA was founded as a 501(c)3 nonprofit organization in 1997 in Orange, California, by Lynne Matallana [3] [4] [5] and Karen Lee Richards. [6] The organization developed an educational website FMaware.org [7] [8] In 2002, [9] the organization also began publishing a magazine quarterly titled Fibromyalgia AWARE, which at the time was the only consumer magazine that was focused on fibromyalgia patient community issues. [10]
Through 2006, the NFA hosted six international conferences, featuring authorities on fibromyalgia who presented their research and expertise to attendees, including patients and health care professionals. More than 1,000 people attended the 2006 FAME (Fibromyalgia Awareness Means Everything) conference. [11]
The NFA partnered with Johns Hopkins School of Medicine and the Institute of Johns Hopkins Nursing in 2007, to form “The Fibromyalgia Circle of Care”, a collaboration that hold three annual initiatives [12] that work to assist healthcare providers in diagnosing fibromyalgia, [12] raising awareness of the condition, [13] and taking care of patients diagnosed with the illness.
The NFA has been covered by various media sources, including National Public Radio, [14] Newsweek , [15] The Gazette , [16] and United Press International. [17]
Co-founders Matallana and Richards have both been diagnosed with fibromyalgia. They first met in 1997 through discussions in online fibromyalgia chat groups, and shared similar concerns over incorrect diagnoses as well as a lack of available information and patient support. [6] Matallana had first experienced symptoms of pain and fatigue in 1993, and by 1997 had visited 37 doctors before being diagnosed with fibromyalgia. [18] [19] Richards said that she had become ill in 1989, but did not receive a diagnosis of Fibromyalgia until 1996. [20] After the two met, they organized gatherings with other fibromyalgia patients who wanted to increase public awareness of the issue, initiating the National Fibromyalgia Awareness Campaign, [21] [22] which developed over the following five years to become the NFA. [11] Matallana has been president of the NFA since 1997 and was publisher and editor-in-chief of Fibromyalgia AWARE magazine from 2002 until 2012. [23] Richards served as NFA's vice president from 1997 through 2006. [20]
Chiropractic is a form of alternative medicine concerned with the diagnosis, treatment and prevention of mechanical disorders of the musculoskeletal system, especially of the spine. It has esoteric origins and is based on several pseudoscientific ideas.
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
The American Medical Association (AMA) is an American professional association and lobbying group of physicians and medical students. Founded in 1847, it is headquartered in Chicago, Illinois. Membership was 271,660 in 2022.
Fibromyalgia is a medical syndrome which causes chronic widespread pain, accompanied by fatigue, waking unrefreshed, and cognitive symptoms. Other symptoms can include headaches, lower abdominal pain or cramps, and depression. People with fibromyalgia can also experience insomnia and a general hypersensitivity. The cause of fibromyalgia is unknown, but is believed to involve a combination of genetic and environmental factors. Environmental factors may include psychological stress, trauma, and certain infections. Since the pain appears to result from processes in the central nervous system, the condition is referred to as a "central sensitization syndrome".
Pain management is an aspect of medicine and health care involving relief of pain in various dimensions, from acute and simple to chronic and challenging. Most physicians and other health professionals provide some pain control in the normal course of their practice, and for the more complex instances of pain, they also call on additional help from a specific medical specialty devoted to pain, which is called pain medicine.
The Joint Commission is a United States-based nonprofit tax-exempt 501(c) organization that accredits more than 22,000 US health care organizations and programs. The international branch accredits medical services from around the world.
Family medicine is a medical specialty within primary care that provides continuing and comprehensive health care for the individual and family across all ages, genders, diseases, and parts of the body. The specialist, who is usually a primary care physician, is named a family physician. It is often referred to as general practice and a practitioner as a general practitioner. Historically, their role was once performed by any doctor with qualifications from a medical school and who works in the community. However, since the 1950s, family medicine / general practice has become a specialty in its own right, with specific training requirements tailored to each country. The names of the specialty emphasize its holistic nature and/or its roots in the family. It is based on knowledge of the patient in the context of the family and the community, focusing on disease prevention and health promotion. According to the World Organization of Family Doctors (WONCA), the aim of family medicine is "promoting personal, comprehensive and continuing care for the individual in the context of the family and the community". The issues of values underlying this practice are usually known as primary care ethics.
The SOAP note is a method of documentation employed by healthcare providers to write out notes in a patient's chart, along with other common formats, such as the admission note. Documenting patient encounters in the medical record is an integral part of practice workflow starting with appointment scheduling, patient check-in and exam, documentation of notes, check-out, rescheduling, and medical billing. Additionally, it serves as a general cognitive framework for physicians to follow as they assess their patients.
Medically unexplained physical symptoms are symptoms for which a treating physician or other healthcare providers have found no medical cause, or whose cause remains contested. In its strictest sense, the term simply means that the cause for the symptoms is unknown or disputed—there is no scientific consensus. Not all medically unexplained symptoms are influenced by identifiable psychological factors. However, in practice, most physicians and authors who use the term consider that the symptoms most likely arise from psychological causes. Typically, the possibility that MUPS are caused by prescription drugs or other drugs is ignored. It is estimated that between 15% and 30% of all primary care consultations are for medically unexplained symptoms. A large Canadian community survey revealed that the most common medically unexplained symptoms are musculoskeletal pain, ear, nose, and throat symptoms, abdominal pain and gastrointestinal symptoms, fatigue, and dizziness. The term MUPS can also be used to refer to syndromes whose etiology remains contested, including chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity and Gulf War illness.
AIDS service organizations are community-based organizations that provide support for people affected by HIV/AIDS. This article focuses on HIV/AIDS service organizations in the United States only. However, it is important to note that similar organizations in other countries, such as Canada, also played significant roles during the HIV/AIDS crisis and share many common experiences and challenges.
A patient safety organization (PSO) is a group, institution, or association that improves medical care by reducing medical errors. Common functions of patient safety organizations are data collection, analysis, reporting, education, funding, and advocacy. A PSO differs from a Federally designed Patient Safety Organization (PSO), which provides health care providers in the U.S. privilege and confidentiality protections for efforts to improve patient safety and the quality of patient care delivery
The Arthritis Foundation is a nonprofit organization addressing the needs of people living with arthritis in the United States.
Living with Fibromyalgia: A Journey of Hope and Understanding is a 2007 documentary film by Stephen Eyer and Daneen Akers from Trillusion Media, Inc. The documentary has been called the first feature-length film that explores the chronic pain condition known as fibromyalgia.
Hospice care is a type of health care that focuses on the palliation of a terminally ill patient's pain and symptoms and attending to their emotional and spiritual needs at the end of life. Hospice care prioritizes comfort and quality of life by reducing pain and suffering. Hospice care provides an alternative to therapies focused on life-prolonging measures that may be arduous, likely to cause more symptoms, or are not aligned with a person's goals.
Gender-biased diagnosing is the idea that medical and psychological diagnosis are influenced by the patient's gender. Several studies have found evidence of differential diagnosis for patients with similar ailments but of different sexes. Female patients face discrimination through the denial of treatment or miss-classification of diagnosis as a result of not being taken seriously due to stereotypes and gender bias. According to traditional medical studies, most of these medical studies were done on men thus overlooking many issues that were related to women's health. This topic alone sparked controversy and questions about the medical standard of our time. Popular media has illuminated the issue of gender bias in recent years. Research that was done on diseases that affected women more were less funded than those diseases that affected men and women equally.
Pain in cancer may arise from a tumor compressing or infiltrating nearby body parts; from treatments and diagnostic procedures; or from skin, nerve and other changes caused by a hormone imbalance or immune response. Most chronic (long-lasting) pain is caused by the illness and most acute (short-term) pain is caused by treatment or diagnostic procedures. However, radiotherapy, surgery and chemotherapy may produce painful conditions that persist long after treatment has ended.
The American Association for Geriatric Psychiatry is a learned society of professionals aiming to improve the quality of life for the elderly population, promote a healthy aging process, and a greater awareness of geriatric mental health issues.
The term functional somatic syndrome (FSS) refers to a group of chronic diagnoses with no identifiable organic cause. This term was coined by Hemanth Samkumar. It encompasses disorders such as fibromyalgia, chronic widespread pain, temporomandibular disorder, irritable bowel syndrome, lower back pain, tension headache, atypical face pain, non-cardiac chest pain, insomnia, palpitation, dyspepsia and dizziness. General overlap exists between this term, somatization and somatoform. The status of ME/CFS as a functional somatic syndrome is contested. Although the aetiology remains unclear, there are consistent findings of biological abnormalities, and major health bodies such as the NAM, WHO, and NIH, classify it as an organic disease.
The International Pelvic Pain Society is an organization of healthcare professionals whose primary mission is to disseminate educational resources for the management of chronic pelvic pain conditions. The society promotes multi-disciplinary and biopsychosocial treatment approaches, as well as research and collaboration between patients and providers. Its mission statement is:
Before the COVID-19 pandemic, telehealth adoption was gradually increasing. With the outbreak of COVID-19 in early 2020, healthcare professionals reduced in-person visits to minimize exposure. As a result, telehealth usage surged dramatically, experiencing a 5,000% increase from February to March 2020. Telehealth has since remained widely utilized in healthcare services.
{{cite web}}
: CS1 maint: unfit URL (link)