Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
Terminal illness or end-stage disease is a disease that cannot be cured or adequately treated and is expected to result in the death of the patient. This term is more commonly used for progressive diseases such as cancer, dementia or advanced heart disease than for injury. In popular use, it indicates a disease that will progress until death with near absolute certainty, regardless of treatment. A patient who has such an illness may be referred to as a terminal patient, terminally ill or simply as being terminal. There is no standardized life expectancy for a patient to be considered terminal, although it is generally months or less. Life expectancy for terminal patients is a rough estimate given by the physician based on previous data and does not always reflect true longevity. An illness which is lifelong but not fatal is a chronic condition.
Marie Curie is a registered charitable organisation in the United Kingdom which provides hospice care and support for anyone with an illness they’re likely to die from, and those close to them, and campaigns for better support for dying people. It was established in 1948, the same year as the National Health Service (NHS).
Hospice Palliative Care Ontario (HPCO) is an organization whose members provide end-of-life palliative care to terminal patients in the province of Ontario, Canada. It is the result of an April 2011 merger of the Hospice Association of Ontario (HOA) and the Ontario Palliative Care Association (OPCA). It is one of twelve primary care practitioner units participating in the development of advance care planning in Canada led by the Canadian Hospice Palliative Care Association and partly funded by the Canadian Institutes of Health Research.
Royal Trinity Hospice is the oldest hospice in the United Kingdom; it was founded in 1891 by a member of the Hoare banking family. It is located in Clapham Common, London, England, and provides specialist palliative care. In 2019, Royal Trinity Hospice was rated "Outstanding" by the Care Quality Commission, the highest rating that can be awarded. The hospice provides palliative and end of life care for patients in an inpatient unit at their Clapham Common headquarters and in the community, wherever patients may be living. In 2018, Trinity cared for 2,500 patients; in addition, the hospice provided pre- and post-bereavement support for over 900 carers.
Sue Ryder is a British palliative and bereavement support charity based in the United Kingdom. Formed as The Sue Ryder Foundation in 1953 by World War II Special Operations Executive volunteer Sue Ryder, the organisation provides care and support for people living with terminal illnesses and neurological conditions, as well as individuals who are coping with a bereavement. The charity was renamed Sue Ryder Care in 1996, before adopting its current name in 2011.
Spartanburg Regional Healthcare System(SRHS) is one of South Carolina's largest healthcare systems. SRHS draws patients primarily from the areas of Spartanburg, Cherokee, Union, and Greenville counties (all located in the Piedmont region of South Carolina), as well as Rutherford and Polk counties (located in western North Carolina). Spartanburg General Hospital was organized under the authority of the South Carolina General Assembly in 1917. It officially became the Spartanburg Regional Health Services District, Inc., a political subdivision of the State of South Carolina, by the charter granted by the Secretary of State of South Carolina on May 1, 1995.
Florence Wald was an American nurse, former Dean of Yale School of Nursing, and largely credited as "the mother of the American hospice movement". She led the founding of Connecticut Hospice, the first hospice program in the United States. Late in life, Wald became interested in the provision of hospice care within prisons. In 1998, Wald was inducted into the National Women's Hall of Fame.
Community Hospice & Palliative Care, also known simply as Community Hospice, is a not-for-profit hospice, which has served the Greater Jacksonville Metropolitan Area since its inception in 1979. The organization was the first hospice program in Northeast Florida and one of a few operating programs in the state when Florida began granting hospice licenses in 1981; Community Hospice received their license in 1983 and in 2008, assisted nearly 1,000 patients daily and more than 6,000 patients a year.
In the United States, hospice care is a type and philosophy of end-of-life care which focuses on the palliation of a terminally ill patient's symptoms. These symptoms can be physical, emotional, spiritual, or social in nature. The concept of hospice as a place to treat the incurably ill has been evolving since the 11th century. Hospice care was introduced to the United States in the 1970s in response to the work of Cicely Saunders in the United Kingdom. This part of health care has expanded as people face a variety of issues with terminal illness. In the United States, it is distinguished by extensive use of volunteers and a greater emphasis on the patient's psychological needs in coming to terms with dying.
Hospice Savannah is a non-profit hospice based in Savannah, Georgia that was started in 1979. Hospice Savannah provides its services to an average of 200 terminally ill patients at a time in Chatham, Effingham, Bryan, Long, and Liberty counties. Being non-profit, Hospice Savannah is community-based and is a member agency of the United Way of the Coastal Empire. It is certified by Medicare and Medicaid and will provide its services to any patient regardless of any financial situations. It employs around 200 people and also receives support from its large volunteer group.
Hospice care is a type of health care that focuses on the palliation of a terminally ill patient's pain and symptoms and attending to their emotional and spiritual needs at the end of life. Hospice care prioritizes comfort and quality of life by reducing pain and suffering. Hospice care provides an alternative to therapies focused on life-prolonging measures that may be arduous, likely to cause more symptoms, or are not aligned with a person's goals.
Coastal Hospice and Palliative Care is a non-profit health care organization founded in 1980. It is located in Salisbury, Maryland, and serves Dorchester, Wicomico, Somerset and Worcester counties.
In 2006, hospice and palliative medicine was officially recognized by the American Board of Medical Specialties, and is co-sponsored by the American Boards of
Pallium India is a national registered charitable trust formed in 2003 aimed at providing quality palliative care and effective pain relief for patients in India. Dr. M. R. Rajagopal is the founder and chairman of Pallium India. The organization works with national and international organisations to improve the accessibility and affordability of pain relief drugs (opioids) and other low-cost medicines, to ensure the availability of palliative care services in India and to improve the quality of palliative care services provided by the healthcare and allied health care professionals. In February 2016, Pallium India was accredited by Social Justice Department of Government of Kerala.
Assisi Hospice is a hospice facility in Singapore that provides palliative care to terminally ill patients. It is founded, owned, and run by the Franciscan Missionaries of the Divine Motherhood.
The Society for the Promotion of Hospice Care (SPHC) is a non-profit NGO that advocates and provides hospice and palliative care services in Hong Kong, China. It also conducts end-of-life research, education, and training.
A death midwife, or death doula, is a person who assists in the dying process, much like a midwife or doula does with the birthing process. It is often a community based role, aiming to help families cope with death, recognizing it as a natural and important part of life. The role can supplement and go beyond hospice. Practitioners perform a large variety of services, including but not limited to creating death plans, and providing spiritual, psychological, and social support before and just after death. Their role can also include more logistical activities, helping with services, planning funerals and memorial services, and guiding mourners in their rights and responsibilities.
St. Francis Hospice is an end-of-life care provider in Honolulu, Hawaii. Founded in 1978, it was the first hospice provider in the state, and is part of the St. Francis Healthcare System of Hawaii. The hospice currently provides end-of-life care for terminally ill patients at home and in its dedicated 12-bed facility at the Sister Maureen Keleher Center in Nuʻuanu, which was the first freestanding hospice facility in the state. Sponsored by a Catholic religious order, the hospice admits patients regardless of religious belief, and also provides support for their families.
Bereavement groups, or grief groups, are a type of support group that bereaved individuals may access to have a space to process through or receive social support around grief. Bereavement groups are typically one of the most common services offered to bereaved individuals, encompassing both formalized group therapy settings for reducing clinical levels of grief as well as support groups that offer support, information, and exchange between those who have experienced loss.
