Stephen Robert Connor (born 29 December 1950) is an American licensed clinical health psychologist, [1] researcher, author, executive and palliative care consultant. He is the executive director of the Worldwide Hospice Palliative Care Alliance (WHPCA), formerly called the Worldwide Palliative Care Alliance (WPCA). [2] From 1998 to 2008 he served as Vice President of Research and Development at the National Hospice and Palliative Care Organization (NHPCO). [3] He has promoted global initiatives for hospice and end-of-life care programs through the World Health Assembly. He has also addressed the UN General Assembly on the need for greater pain management in palliative care.
Connor worked as CEO of four US hospice programs from 1976 to 1998. [3] From 1998 to 2009 he was Vice President of Research and Development at the National Hospice and Palliative Care Organization. [1] He is the executive director of the Worldwide Hospice Palliative Care Alliance (WHPCA), which has established organizational ties between national and regional hospice programs throughout the world. [1] [3] Connor is also a consultant senior research scholar at Capital Care based in the Washington metropolitan area, and serves as a board member of the International Work Group on Death, Dying, and Bereavement, the Association for Death Education and Counseling, and the Scientific Advisory Board of the US National Palliative Care Research Center. [3]
Connor is a member of the editorial board of the Journal of Pain and Symptom Management . [3] Since 2012 he has been a member of the board of trustees for the International Children's Palliative Care Network, which is represented in the board of the WHPCA. [4] As of 2016 he has served on the board of directors for the Elisabeth Kübler-Ross Foundation. [5]
As a member of WHPCA, Connor edited a joint publication with the World Health Organization (WHO) entitled Global Atlas of Palliative Care at the End of Life (2014). [2] He was also instrumental in the passage of a palliative care resolution at the World Health Assembly (WHA). [2] As of 2019 Connor has published five major books on palliative care. [1] [3]
In regards to the right to medical care (including palliative care) in Article 25 of the Universal Declaration of Human Rights, Connor implored the UN General Assembly to provide adequate medical use of controlled substances without their misuse, calling access to pain relief "a global crisis." [6] Connor asserts that the World Health Assembly's 2014 resolution entitled "Strengthening Palliative Care as a component of Comprehensive Care Throughout the Life Course" is undermined by the pernicious lack of access to analgesics and medical opioids in some countries where stronger technical assistance and public education programs should be required. [7]
To emphasize the growing need for palliative care, Connor has highlighted the fact that globally as of 2015 there are more people over the age of 65 than under the age of 5. [8] Connor has also stressed that global healthcare's greatest problem is the almost exclusive attention given to acute care rather than chronic care of patients. [9]
The World Health Organization (WHO) is a specialized agency of the United Nations responsible for international public health. It is headquartered in Geneva, Switzerland, and has six regional offices and 150 field offices worldwide.
Dying is the final stage of life which will eventually lead to death. Diagnosing dying is a complex process of clinical decision-making, and most practice checklists facilitating this diagnosis are based on cancer diagnoses.
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
Thanatology is the scientific study of death and the losses brought about as a result. It investigates the mechanisms and forensic aspects of death, such as bodily changes that accompany death and the postmortem period, as well as wider psychological and social aspects related to death. It is primarily an interdisciplinary study offered as a course of study at numerous colleges and universities.
In medicine, specifically in end-of-life care, palliative sedation is the palliative practice of relieving distress in a terminally ill person in the last hours or days of a dying person's life, usually by means of a continuous intravenous or subcutaneous infusion of a sedative drug, or by means of a specialized catheter designed to provide comfortable and discreet administration of ongoing medications via the rectal route.
Elisabeth Kübler-Ross was a Swiss-American psychiatrist, a pioneer in near-death studies, and author of the internationally best-selling book, On Death and Dying (1969), where she first discussed her theory of the five stages of grief, also known as the "Kübler-Ross model".
The Institute of Palliative Medicine is an education, training and research centre for palliative care located in Kozhikode, India. The institute trains health care professionals in palliative care and related medical disciplines. Through its connection with Calicut Medical College and other clinics in the state of Kerala, the institute supports between 4,500 and 5,000 patients per week. This institute is an organ of Pain and Palliative Care Society, Medical College, Calicut, which was founded in 1993.
Ira Robert Byock is an American physician, author, and advocate for palliative care. He is founder and chief medical officer of the Providence St. Joseph Health Institute for Human Caring in Torrance, California, and holds appointments as active emeritus professor of medicine and professor of community health and family medicine at the Geisel School of Medicine at Dartmouth College. He was director of palliative medicine at Dartmouth–Hitchcock Medical Center, from 2003–14, and associate director for patient and family-centered care at the affiliated Norris-Cotton Cancer Center.
The American Academy of Hospice and Palliative Medicine (AAHPM) is a professional organization for physicians specializing in Hospice and Palliative Medicine, headquartered in Chicago, Illinois. Membership is open to all health care providers committed to improving the care of patients with serious or life-threatening illnesses. AAHPM has more than 5,200 members; 82 percent are physicians, 12 percent are nurses or other health care providers and 6 percent are residents or students.
In the United States, hospice care is a type and philosophy of end-of-life care which focuses on the palliation of a terminally ill patient's symptoms. These symptoms can be physical, emotional, spiritual or social in nature. The concept of hospice as a place to treat the incurably ill has been evolving since the 11th century. Hospice care was introduced to the United States in the 1970s in response to the work of Cicely Saunders in the United Kingdom. This part of health care has expanded as people face a variety of issues with terminal illness. In the United States, it is distinguished by extensive use of volunteers and a greater emphasis on the patient's psychological needs in coming to terms with dying.
Hospice care is a type of health care that focuses on the palliation of a terminally ill patient's pain and symptoms and attending to their emotional and spiritual needs at the end of life. Hospice care prioritizes comfort and quality of life by reducing pain and suffering. Hospice care provides an alternative to therapies focused on life-prolonging measures that may be arduous, likely to cause more symptoms, or are not aligned with a person's goals.
Diane E. Meier, an American geriatrician and palliative care specialist. In 1999, Dr. Meier founded the Center to Advance Palliative Care, a national organization devoted to increasing access to quality health care in the United States for people living with serious illness. She continues to serve as CAPC's Director Emerita and Strategic Medical Advisor. Meier is also Vice-Chair for Public Policy, Professor of Geriatrics and Palliative Medicine and Catherine Gaisman Professor of Medical Ethics at the Icahn School of Medicine at Mount Sinai Hospital in New York City. Meier was founder and Director of the Hertzberg Palliative Care Institute at the Icahn School of Medicine in New York City from 1997 to 2011.
Robert Twycross is a retired British physician and writer. He was a pioneer of the hospice movement during the 1970s, when he helped palliative care gain recognition as an accepted field of modern medicine.
In 2006, hospice and palliative medicine was officially recognized by the American Board of Medical Specialties, and is co-sponsored by the American Boards of
African Palliative Care Association (APCA) is a pan-African non-governmental organization (NGO) working to promote and support the integration of palliative care into health systems across Africa. APCA has appeared on the BBC World Service, The Guardian and across regional and national African press advocating for better palliative care provision.
Anne Merriman, MBE, MCommH, FRCPI, FRCP is a British doctor, known for her pioneering work and influential research into palliative care in developing countries in Africa. She has campaigned to make affordable oral morphine widely available.
Pallium India is a national registered charitable trust formed in 2003 aimed at providing quality palliative care and effective pain relief for patients in India. Dr. M. R. Rajagopal is the founder and chairman of Pallium India. The organization works with national and international organisations to improve the accessibility and affordability of pain relief drugs (opioids) and other low-cost medicines, to ensure the availability of palliative care services in India and to improve the quality of palliative care services provided by the healthcare and allied health care professionals. In February 2016, Pallium India was accredited by Social Justice Department of Government of Kerala.
M. R. Rajagopal is an Indian palliative care physician referred to as the 'father of palliative care in India' in honour of his significant contribution to the palliative care scene in India.
The Worldwide Hospice Palliative Care Alliance or WHPCA is an international non-governmental organization based in the United Kingdom. In official relations with the World Health Organization (WHO), the WHPCA works in conjunction with over 200 regional institutions and national partners for the global development of palliative care and advancement of pain relief. It advocates for changes in public policy on accessibility of pain relief in end-of-life care and integration of palliative care into national health agendas. In 2014 it released the Global Atlas of Palliative Care at the End of Life in a joint publication with the WHO.
Mhoira E.H. LengFRSE MBChB MRCP(UK) FRCP(Ed and Glas) is one of the first Scottish specialists in palliative care, who has developed the palliative care services internationally, working in Eastern Europe, India and Africa and advises international institutions and agencies on palliative care in the developing world. In 2021, Leng was admitted as one of the new female Fellows of the Royal Society of Edinburgh.