Author | Jean-Dominique Bauby |
---|---|
Country | France |
Language | French |
Genre | Autobiography, Memoir |
Publisher | Éditions Robert Laffont |
Publication date | March 6, 1997 |
ISBN | 978-0-375-40115-2 |
The Diving Bell and the Butterfly (original French title: Le Scaphandre et le Papillon) is a memoir by journalist Jean-Dominique Bauby. It describes his life before and after a massive stroke left him with locked-in syndrome.
The French edition of the book was published on March 7, 1997. It sold the first 25,000 copies on the day of publication, reaching 150,000 in a week. It went on to become a number one bestseller across Europe. Its total sales are now in the millions.
On December 8, 1995, Bauby, the editor-in-chief of French Elle magazine, suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings, but physically paralyzed with what is known as locked-in syndrome, with the only exception of some movement in his head and eyes. Further, his right eye had to be sewn up because of irritation. Bauby wrote the entire book by blinking his left eyelid, which took him two months working 3 hours a day, 7 days a week. [1] Using partner assisted scanning, a transcriber repeatedly recited a French language frequency-ordered alphabet (E, S, A, R, I, N, T, U, L, etc.), until Bauby blinked to choose the next letter. The book took Bauby about 200,000 blinks to write at an average of approximately two minutes per word.[ citation needed ] The book also chronicles everyday events for a person with locked-in syndrome. These events include playing at the beach with his family, getting a bath, and meeting visitors while in hospital at Berck-sur-Mer. On March 9, 1997, two days after the book was published, Bauby died of pneumonia. [2] [3]
This section's plot summary may be too long or excessively detailed.(January 2018) |
In 1997, Jean-Jacques Beineix directed a 27-minute television documentary, "Assigné à résidence" (released on DVD in the U.S. as "Locked-in Syndrome" with English subtitles), that captured Bauby in his paralyzed state, as well as the process of his book's composition. [5]
Artist/director Julian Schnabel's feature-film adaptation of the book was released in 2007, starring Mathieu Amalric as Bauby. The film was nominated for several international awards and won best director that year at the Cannes Film Festival. [6] [7] [8] [9]
In 2019, The Dallas Opera was awarded a National Endowment for the Arts grant to commission The Diving Bell and the Butterfly, an opera based on Le Scaphandre et le Papillon by Jean-Dominique Bauby which was composed by Joby Talbot with a libretto by Gene Scheer. [10] [11] It premiered on November 3, 2023 after facing production delays due to the COVID-19 pandemic. [12]
Ramsay Hunt syndrome type 2, commonly referred to simply as Ramsay Hunt syndrome (RHS) and also known as herpes zoster oticus, is inflammation of the geniculate ganglion of the facial nerve as a late consequence of varicella zoster virus (VZV). In regard to the frequency, less than 1% of varicella zoster infections involve the facial nerve and result in RHS. It is traditionally defined as a triad of ipsilateral facial paralysis, otalgia, and vesicles close to the ear and auditory canal. Due to its proximity to the vestibulocochlear nerve, the virus can spread and cause hearing loss, tinnitus, and vertigo. It is common for diagnoses to be overlooked or delayed, which can raise the likelihood of long-term consequences. It is more complicated than Bell's palsy. Therapy aims to shorten its overall length, while also providing pain relief and averting any consequences.
Locked-in syndrome (LIS), also known as pseudocoma, is a condition in which a patient is aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for vertical eye movements and blinking. The individual is conscious and sufficiently intact cognitively to be able to communicate with eye movements. Electroencephalography results are normal in locked-in syndrome. Total locked-in syndrome, or completely locked-in state (CLIS), is a version of locked-in syndrome wherein the eyes are paralyzed as well. Fred Plum and Jerome B. Posner coined the term for this disorder in 1966.
Julian Schnabel is an American painter and filmmaker. In the 1980s, he received international attention for his "plate paintings" — with broken ceramic plates set onto large-scale paintings. Since the 1990s, he has been a proponent of independent arthouse cinema. Schnabel directed Before Night Falls, which became Javier Bardem's breakthrough Academy Award-nominated role, and The Diving Bell and the Butterfly, which was nominated for four Academy Awards. For the latter, he won the Cannes Film Festival Award for Best Director and the Golden Globe Award for Best Director, as well as receiving nominations for the Academy Award for Best Director and the César Award for Best Director.
Jean-Dominique Bauby was a French journalist, author and editor of the French fashion magazine Elle.
One Flew Over the Cuckoo's Nest is a novel by Ken Kesey published in 1962. Set in an Oregon psychiatric hospital, the narrative serves as a study of institutional processes and the human mind, including a critique of psychiatry and a tribute to individualistic principles. It was adapted into the Broadway play One Flew Over the Cuckoo's Nest by Dale Wasserman in 1963. Bo Goldman adapted the novel into a 1975 film of the same name directed by Miloš Forman, which won five Academy Awards.
Berck, sometimes referred to as Berck-sur-Mer, is a commune in the northern French department of Pas-de-Calais. It lies within the Marquenterre regional park, an ornithological nature reserve.
Ptosis, also known as blepharoptosis, is a drooping or falling of the upper eyelid. This condition is sometimes called "lazy eye", but that term normally refers to the condition amblyopia. If severe enough and left untreated, the drooping eyelid can cause other conditions, such as amblyopia or astigmatism, so it is especially important to treat the disorder in children before it can interfere with vision development.
Legion is a 1983 horror novel by American writer William Peter Blatty, a sequel to The Exorcist. It was adapted for the film The Exorcist III in 1990. Like The Exorcist, it involves demonic possession. The book was the focus of a court case over its exclusion from The New York Times Best Seller list. Blatty based aspects of the Gemini Killer on the real life Zodiac Killer, who in a January 1974 letter to the San Francisco Chronicle had praised the original Exorcist film as "the best satirical comedy that I have ever seen".
Mathieu Amalric is a French actor and filmmaker. He has won several César Awards and the Lumières Award.
The Diving Bell and the Butterfly is a French-American 2007 biographical drama film directed by Julian Schnabel and written by Ronald Harwood. Based on Jean-Dominique Bauby's 1997 memoir of the same name, the film depicts Bauby's life after suffering a massive stroke that left him with a condition known as locked-in syndrome. Bauby is played by Mathieu Amalric.
Linda Richards was the first professionally trained American nurse. She established nursing training programs in the United States and Japan, and created the first system for keeping individual medical records for hospitalized patients.
Christopher Michael Taub, M.D. is a fictional character on the Fox medical drama House. He is portrayed by Peter Jacobson. He becomes a member of House's new diagnostic team in Season 4 Episode 9 which is titled as "Games".
"4-D" is the fourth episode of the ninth season and the 186th episode overall of the American science fiction television series The X-Files. The episode first aired in the United States on December 9, 2001, on the Fox network. It was written by Steven Maeda and directed by Tony Wharmby. The episode is a "monster-of-the-week" episode, a stand-alone plot which is unconnected to the mythology, or overarching fictional history, of The X-Files. The episode earned a Nielsen rating of 5.1 and was viewed by 5.38 million households. It received mixed to positive reviews from television critics.
"Locked In" is the nineteenth episode of the fifth season of House. It aired on March 30, 2009. Large portions of the episode are shown from the perspective of the patient, who retains consciousness but lacks the ability to move. After discovering the patient in an emergency room while being treated for injuries related to a motorbike crash, House's team move the patient to Princeton Plainsboro and attempts to diagnose him. During the course of treatment, the team discovers several medically relevant secrets about the patient. Other plot points focus on Wilson's attempts to discover why House was in Middletown, New York when he crashed, Wilson's new relationship, and the resolution of Taub's resignation from the previous episode.
Steven Laureys is a Belgian neurologist. He is principally known as a clinician and researcher in the field of neurology of consciousness.
A brainstem stroke syndrome falls under the broader category of stroke syndromes, or specific symptoms caused by vascular injury to an area of brain. As the brainstem contains numerous cranial nuclei and white matter tracts, a stroke in this area can have a number of unique symptoms depending on the particular blood vessel that was injured and the group of cranial nerves and tracts that are no longer perfused. Symptoms of a brainstem stroke frequently include sudden vertigo and ataxia, with or without weakness. Brainstem stroke can also cause diplopia, slurred speech and decreased level of consciousness. A more serious outcome is locked-in syndrome.
Partner-assisted scanning or listener-assisted scanning is an augmentative and alternative communication technique used to enable a person with severe speech impairments to communicate. The approach is used with individuals who, due to sickness or disability, have severe motor impairments and good memory and attention skills. It is used as an alternative to direct access to symbols, pictures, or speech generating devices when these are not used.
Lightwriters are a type of speech-generating device. The person who cannot speak types a message on the keyboard, and this message is displayed on two displays, one facing the user and a second outfacing display facing the communication partner or partners. A speech synthesiser is also used to provide speech output, and some models offer the facility to connect to a printer to provide printed output.
Babinski–Nageotte syndrome is an alternating brainstem syndrome. It occurs when there is damage to the dorsolateral or posterior lateral medulla oblongata, likely syphilitic in origin. Hence it is also called the alternating medulla oblongata syndrome.
Reviews of The Diving Bell and the Butterfly: