Author | Jean-Dominique Bauby |
---|---|
Country | France |
Language | French |
Genre | Autobiography, Memoir |
Publisher | Éditions Robert Laffont |
Publication date | March 6, 1997 |
ISBN | 978-0-375-40115-2 |
The Diving Bell and the Butterfly (original French title: Le Scaphandre et le Papillon) is a memoir by journalist Jean-Dominique Bauby. It describes his life before and after a massive stroke left him with locked-in syndrome.
The French edition of the book was published on March 7, 1997. It sold the first 25,000 copies on the day of publication, reaching 150,000 in a week. It went on to become a number one bestseller across Europe. Its total sales are now in the millions.
On December 8, 1995, Bauby, the editor-in-chief of French Elle magazine, suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings, but physically paralyzed with what is known as locked-in syndrome, with the only exception some movement in his head and eyes. Further, his right eye had to be sewn up because of irritation.
Bauby wrote the entire book by blinking his left eyelid, which took him two months working 3 hours a day, 7 days a week. [1] Using partner assisted scanning, a transcriber repeatedly recited a French language frequency-ordered alphabet (E, S, A, R, I, N, T, U, L, etc.), until Bauby blinked to choose the next letter. The book took Bauby about 200,000 blinks to write at an average of approximately two minutes per word.[ citation needed ]
The book also chronicles everyday events for a person with locked-in syndrome. These events include playing at the beach with his family, getting a bath, and meeting visitors while in hospital at Berck-sur-Mer. On March 9, 1997, two days after the book was published, Bauby died of pneumonia. [2] [3]
In 1997, Jean-Jacques Beineix directed a 27-minute television documentary, "Assigné à résidence" (released on DVD in the U.S. as "Locked-in Syndrome" with English subtitles), that captured Bauby in his paralyzed state. He also explored as the process of composing the book. [4]
Artist/director Julian Schnabel released a feature-film adaptation of the book in 2007, starring Mathieu Amalric as Bauby. The film was nominated for several international awards and won best director that year at the Cannes Film Festival. [5] [6] [7] [8]
In 2019, The Dallas Opera was awarded a National Endowment for the Arts grant to commission The Diving Bell and the Butterfly, an opera based on Le Scaphandre et le Papillon by Jean-Dominique Bauby. It was composed by Joby Talbot with a libretto by Gene Scheer. [9] [10] It premiered on November 3, 2023 after facing production delays due to the COVID-19 pandemic. [11]
Marie-Josée Croze is a Canadian actress. She also holds French nationality, which she obtained in December 2012.
Julian Schnabel is an American painter and filmmaker. In the 1980s, he received international attention for his "plate paintings" — with broken ceramic plates set onto large-scale paintings. Since the 1990s, he has been a proponent of independent arthouse cinema. Schnabel directed Before Night Falls, which became Javier Bardem's breakthrough Academy Award-nominated role, and The Diving Bell and the Butterfly, which was nominated for four Academy Awards. For the latter, he won the Cannes Film Festival Award for Best Director and the Golden Globe Award for Best Director, as well as receiving nominations for the Academy Award for Best Director and the César Award for Best Director.
Sir Ronald Harwood was a South African-born British author, playwright, and screenwriter, best known for his plays for the British stage as well as the screenplays for The Dresser and The Pianist, for which he won the 2003 Academy Award for Best Adapted Screenplay. He was nominated for the Best Adapted Screenplay Oscar for The Diving Bell and the Butterfly (2007).
Jean-Dominique Bauby was a French journalist, author and editor of the French fashion magazine Elle.
Mathieu Amalric is a French actor and filmmaker. He has won several César Awards and the Lumières Award.
The Diving Bell and the Butterfly is a 2007 biographical drama film directed by Julian Schnabel and written by Ronald Harwood. Based on Jean-Dominique Bauby's 1997 memoir of the same name, the film depicts Bauby's life after suffering a massive stroke that left him with a condition known as locked-in syndrome. Bauby is played by Mathieu Amalric.
The 33rd Los Angeles Film Critics Association Awards, given by the Los Angeles Film Critics Association (LAFCA), honored the best in film for 2007.
The 6th San Francisco Film Critics Circle Awards, honoring the best in film for 2007, were given on 10 December 2007.
The 6th Washington D.C. Area Film Critics Association Awards, honouring the best in filmmaking in 2007, were given on December 10, 2007.
The 28th Boston Society of Film Critics Awards, honoring the best in filmmaking in 2007, were given on 11 December 2007.
The 60th Writers Guild of America Awards honored the best film, television, and videogame writers of 2007. Winners were announced on February 9, 2008.
The 20th Chicago Film Critics Association Awards, given by the CFCA on December 13, 2007, honored the best in film for 2007.
The 13th Dallas–Fort Worth Film Critics Association Awards, given by the Dallas-Fort Worth Film Critics Association on 17 December 2007, honored the best in film for 2007.
The 12th San Diego Film Critics Society Awards were announced on December 18, 2007.
The 4th St. Louis Gateway Film Critics Association Awards were announced on December 21, 2007.
The 42nd National Society of Film Critics Awards, given on 5 January 2008, honored the best in film for 2007.
A brainstem stroke syndrome falls under the broader category of stroke syndromes, or specific symptoms caused by vascular injury to an area of brain. As the brainstem contains numerous cranial nuclei and white matter tracts, a stroke in this area can have a number of unique symptoms depending on the particular blood vessel that was injured and the group of cranial nerves and tracts that are no longer perfused. Symptoms of a brainstem stroke frequently include sudden vertigo and ataxia, with or without weakness. Brainstem stroke can also cause diplopia, slurred speech and decreased level of consciousness. A more serious outcome is locked-in syndrome.
The 7th New York Film Critics Online Awards, honoring the best in filmmaking in 2007, were given on 9 December 2007.
Lightwriters are a type of speech-generating device. The person who cannot speak types a message on the keyboard, and this message is displayed on two displays, one facing the user and a second outfacing display facing the communication partner or partners. A speech synthesiser is also used to provide speech output, and some models offer the facility to connect to a printer to provide printed output.
Reviews of The Diving Bell and the Butterfly: