Cardiac Risk in the Young

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Cardiac Risk in the Young (CRY) is a humanitarian charitable organisation helping to raise awareness of young sudden cardiac death (YSCD, SCD), including sudden arrhythmic death syndrome (SADS, SDS). CRY was established in May 1995 by Alison Cox MBE and is based in the United Kingdom.

Contents

The charity supports the families of victims of YSCD, facilitates the heart screening of young people through cardiac testing programmes and contributes to medical research.

Objectives

The CRY General Election Manifesto 2015 states: “Through awareness, support and screening many deaths can be prevented, and research into these conditions will be the key to providing the knowledge crucial to saving these young lives.” [1]

Activities

CRY offers support to those who have suffered tragedies through a network of trained volunteer bereavement supporters, [2] counselling groups and medical information. [3] The charity also offers support and regular meetings to young people diagnosed with a cardiac condition through their myheart Network. [4]

CRY holds regular subsidised ECG screening clinics for those aged 14 to 35 across the UK, [5] with the majority of events funded by bereaved families and free to the public.

The charity funds an expert centre for fast-track cardiac pathology in the UK, the CRY Centre for Cardiac Pathology [6] (CRY CCP) at St George's Hospital, London. The centre is directed by Professor Mary Sheppard. Pathology is free of charge when the cause of death is unascertained and the deceased was aged 35 or under. CRY also funds the CRY Centre for Inherited Cardiovascular Disease and Sports Cardiology at St George’s Hospital. Professor Sanjay Sharma, medical director of the London Marathon, is CRY’s consultant cardiologist and leads their research programme. [7]

CRY can provide information on

Postcard Campaigns

On 15 July 2004 CRY launched its National Postcard Campaign [8] to highlight the deaths of eight young people per week from undiagnosed heart problems by featuring their pictures. The campaign was launched at a Parliamentary Reception in Westminster. From August 2004 the Postcard has been re-launched as region specific including South West, North East, South, North West, Scotland and Wales versions. In February 2009 the postcard campaign was updated to "12 a week" [9] and continues to draw attention the number of young people with undetected heart conditions.

Patrons

Related Research Articles

<span class="mw-page-title-main">Cardiology</span> Branch of medicine dealing with the heart

Cardiology is the study of the heart. Cardiology is a branch of medicine that deals with disorders of the heart and the cardiovascular system. The field includes medical diagnosis and treatment of congenital heart defects, coronary artery disease, heart failure, valvular heart disease and electrophysiology. Physicians who specialize in this field of medicine are called cardiologists, a speciality of internal medicine. Pediatric cardiologists are pediatricians who specialize in cardiology. Physicians who specialize in cardiac surgery are called cardiothoracic surgeons or cardiac surgeons, a speciality of general surgery.

<span class="mw-page-title-main">Cardiomyopathy</span> Disease of the heart muscle

Cardiomyopathy is a group of diseases that affect the heart muscle. Early on there may be few or no symptoms. As the disease worsens, shortness of breath, feeling tired, and swelling of the legs may occur, due to the onset of heart failure. An irregular heart beat and fainting may occur. Those affected are at an increased risk of sudden cardiac death.

<span class="mw-page-title-main">Cardiac arrest</span> Sudden stop in effective blood flow due to the failure of the heart to beat

Cardiac arrest is when the heart stops beating. It is a medical emergency that, without immediate medical intervention, will result in cardiac death within minutes. When it happens suddenly, it is called sudden cardiac arrest. Cardiopulmonary resuscitation (CPR) and possibly defibrillation are needed until further treatment can be provided. Cardiac arrest results in a rapid loss of consciousness, and breathing may be abnormal or absent.

<span class="mw-page-title-main">Brugada syndrome</span> Heart conduction disease

Brugada syndrome (BrS) is a genetic disorder in which the electrical activity of the heart is abnormal due to channelopathy. It increases the risk of abnormal heart rhythms and sudden cardiac death. Those affected may have episodes of syncope. The abnormal heart rhythms seen in those with Brugada syndrome often occur at rest. They may be triggered by a fever.

<span class="mw-page-title-main">Wolff–Parkinson–White syndrome</span> Medical condition

Wolff–Parkinson–White syndrome (WPWS) is a disorder due to a specific type of problem with the electrical system of the heart involving an accessory pathway able to conduct electrical current between the atria and the ventricles, thus bypassing the atrioventricular node. About 60% of people with the electrical problem developed symptoms, which may include an abnormally fast heartbeat, palpitations, shortness of breath, lightheadedness, or syncope. Rarely, cardiac arrest may occur. The most common type of irregular heartbeat that occurs is known as paroxysmal supraventricular tachycardia.

<span class="mw-page-title-main">Myocarditis</span> Inflammation of the heart muscle

Myocarditis, also known as inflammatory cardiomyopathy, is an acquired cardiomyopathy due to inflammation of the heart muscle. Symptoms can include shortness of breath, chest pain, decreased ability to exercise, and an irregular heartbeat. The duration of problems can vary from hours to months. Complications may include heart failure due to dilated cardiomyopathy or cardiac arrest.

<span class="mw-page-title-main">Arrhythmogenic cardiomyopathy</span> Medical condition

Arrhythmogenic cardiomyopathy (ACM), arrhythmogenic right ventricular dysplasia (ARVD), or arrhythmogenic right ventricular cardiomyopathy (ARVC), most commonly is an inherited heart disease.

Hypertrophic cardiomyopathy is a condition in which the heart becomes thickened without an obvious cause. The parts of the heart most commonly affected are the interventricular septum and the ventricles. This results in the heart being less able to pump blood effectively and also may cause electrical conduction problems.

<span class="mw-page-title-main">Dilated cardiomyopathy</span> Medical condition

Dilated cardiomyopathy (DCM) is a condition in which the heart becomes enlarged and cannot pump blood effectively. Symptoms vary from none to feeling tired, leg swelling, and shortness of breath. It may also result in chest pain or fainting. Complications can include heart failure, heart valve disease, or an irregular heartbeat.

<span class="mw-page-title-main">Short QT syndrome</span> Medical condition

Short QT syndrome (SQT) is a very rare genetic disease of the electrical system of the heart, and is associated with an increased risk of abnormal heart rhythms and sudden cardiac death. The syndrome gets its name from a characteristic feature seen on an electrocardiogram (ECG) – a shortening of the QT interval. It is caused by mutations in genes encoding ion channels that shorten the cardiac action potential, and appears to be inherited in an autosomal dominant pattern. The condition is diagnosed using a 12-lead ECG. Short QT syndrome can be treated using an implantable cardioverter-defibrillator or medications including quinidine. Short QT syndrome was first described in 2000, and the first genetic mutation associated with the condition was identified in 2004.

<span class="mw-page-title-main">Athletic heart syndrome</span> Medical condition

Athletic heart syndrome (AHS) is a non-pathological condition commonly seen in sports medicine in which the human heart is enlarged, and the resting heart rate is lower than normal.

<span class="mw-page-title-main">Takotsubo cardiomyopathy</span> Sudden temporary weakening of the heart muscle

Takotsubo cardiomyopathy or takotsubo syndrome (TTS), also known as stress cardiomyopathy, is a type of non-ischemic cardiomyopathy in which there is a sudden temporary weakening of the muscular portion of the heart. It usually appears after a significant stressor, either physical or emotional; when caused by the latter, the condition is sometimes called broken heart syndrome. Examples of physical stressors that can cause TTS are sepsis, shock, subarachnoid hemorrhage, and pheochromocytoma. Emotional stressors include bereavement, divorce, or the loss of a job. Reviews suggest that of patients diagnosed with the condition, about 70–80% recently experienced a major stressor, including 41–50% with a physical stressor and 26–30% with an emotional stressor. TTS can also appear in patients who have not experienced major stressors.

The following outline is provided as an overview of and topical guide to cardiology, the branch of medicine dealing with disorders of the human heart. The field includes medical diagnosis and treatment of congenital heart defects, coronary artery disease, heart failure, valvular heart disease and electrophysiology. Physicians who specialize in cardiology are called cardiologists.

<span class="mw-page-title-main">Michel Haïssaguerre</span>

Michel Haïssaguerre is a French cardiologist and electrophysiologist. His investigations have been the basis for development of new markers and therapies for atrial and ventricular fibrillation.

<span class="mw-page-title-main">Hypertrophic cardiomyopathy screening</span> Procedure for detecting a form of heart disease

Hypertrophic cardiomyopathy screening is an assessment and testing to detect hypertrophic cardiomyopathy (HCM).

<span class="mw-page-title-main">Sudden arrhythmic death syndrome</span> Medical condition

Sudden arrhythmic death syndrome (SADS) is a sudden unexpected death of adolescents and adults, mainly during sleep. One relatively common type is known as Brugada syndrome.

<span class="mw-page-title-main">Sudden cardiac death of athletes</span> Natural, unexpected death from cardiac arrest of athletes

It remains a difficult medical challenge to prevent the sudden cardiac death of athletes, typically defined as natural, unexpected death from cardiac arrest within one hour of the onset of collapse symptoms, excluding additional time on mechanical life support. Most causes relate to congenital or acquired cardiovascular disease with no symptoms noted before the fatal event. The prevalence of any single, associated condition is low, probably less than 0.3% of the population in the athletes' age group, and the sensitivity and specificity of common screening tests leave much to be desired. The single most important predictor is fainting or near-fainting during exercise, which should require detailed explanation and investigation. The victims include many well-known names, especially in professional soccer, and close relatives are often at risk for similar cardiac problems.

<span class="mw-page-title-main">Mount Kelly School</span> Public School in Tavistock, Devon, England

Mount Kelly School is a co-educational private day and boarding school in the English public school tradition for pupils from 3 to 18, in Tavistock, Devon.

The Association for Inherited Cardiac Conditions is the UK national professional body for experts in genetics and cardiology dealing with inherited diseases of the heart. These include heart muscle diseases such as hypertrophic cardiomyopathy, dilated cardiomyopathy, noncompaction cardiomyopathy, and arrhythmogenic cardiomyopathy, as well as inherited arrhythmia disorders such as long QT syndrome, Brugada syndrome, and catecholaminergic polymorphic ventricular tachycardia (CPVT). The AICC also represents experts in aortic disease such as Marfan syndrome and other systemic diseases which affect the heart or circulation.

<span class="mw-page-title-main">Sports cardiology</span>

Sports cardiology is an emerging subspecialty field of Cardiology. It may also be considered a subspecialty field of Sports medicine, or alternatively a hybrid subspecialty that spans cardiology and sports medicine. Emergency medicine is another medical specialty that has some overlap with Sports Cardiology. Sports cardiology is now considered to be a distinct subspecialty in Europe and the USA, with a core curriculum developed in both regions. In Europe it has traditionally been grouped under Preventive Cardiology, but the subspecialty of Sports Cardiology is now considered a distinct field. In the USA, it has developed from being a special interest area to a distinct subspecialty as well.

References

  1. CRY General Election Manifesto 2015. Surrey, United Kingdom: Cardiac Risk in the Young. 2015. p. 5.
  2. "Bereavement". Cardiac Risk in the Young. Cardiac Risk in the Young. Retrieved 4 December 2015.
  3. "What is SADS". SADS. Cardiac Risk in the Young. Retrieved 4 December 2015.
  4. "Welcome to myheart!". myheart. Cardiac Risk in the Young. Retrieved 4 December 2015.
  5. "Testmyheart". Testmyheart. Cardiac Risk in the Young. Retrieved 4 December 2015.
  6. "CRY Centre of Cardiac Pathology (CRY CCP)". CRY CCP. Cardiac Risk in the Young. Retrieved 4 December 2015.
  7. "Young sudden death cardiac research". Cardiac Risk in the Young. Cardiac Risk in the Young. Retrieved 4 December 2015.
  8. "CRY launches postcard campaign at Westminster with support of many MPS". Archived from the original on 14 November 2009. Retrieved 2009-05-04.
  9. "CRY Press Release about the launch of the "Life Years Lost..." campaign". Archived from the original on 21 November 2010. Retrieved 2009-05-04.