Epilepsy Action

Last updated

Epilepsy Action
Formation5 September 1950;74 years ago (1950-09-05) [1]
Founder Lady Cynthia Colville [1]
Type Charitable organisation
Registration no.234343 [2]
Headquarters Yeadon, West Yorkshire, United Kingdom
Coordinates 53°51′52″N1°41′39″W / 53.86441°N 1.69408°W / 53.86441; -1.69408
ServicesEpilepsy advice and information
Membership7,494 [3] (2023)
President
Margaret Ford, Baroness Ford [3]
Chair
Jane Riley [4]
Chief executive
Rebekah Smith [5]
Revenue£2.77m [3] (2023)
Staff75 [3] (2023)
Website www.epilepsy.org.uk
Formerly called
British Epilepsy Association (1950-2002)

Epilepsy Action is a UK-based charity dedicated to supporting people with epilepsy, raising awareness, and campaigning for better services and treatment for individuals affected by the condition. Founded in 1950, the charity provides information, resources, and services to help people with epilepsy live their lives with confidence and dignity.

Contents

Mission

Epilepsy Action’s mission is to create a world without limits for people with epilepsy. The charity aims to improve the lives of people living with epilepsy through advocacy, education, and community engagement. Their core belief is that no one should be limited by their condition, and they work tirelessly to reduce stigma and improve public understanding of epilepsy.

Vision for 2030

By 2030, Epilepsy Action envisions a future where:

  1. Every person with epilepsy in the UK feels that their life has improved through the work the charity achieves with them and for them.
  2. Epilepsy is widely understood, with the general public knowing what epilepsy is, how to support those living with the condition, and how to help fight the stigma surrounding it.
  3. Epilepsy Action is fully inclusive in all aspects of its work, ensuring that everyone — regardless of background, age, or circumstance — has access to the support, information, and services they need.

Core Services

Epilepsy Action offers a wide range of services to support people with epilepsy:

Campaigns & Awareness

Epilepsy Action runs a range of campaigns aimed at raising awareness about epilepsy and breaking down the stigma often associated with the condition. These initiatives engage the public and provide better education on how epilepsy affects millions of people worldwide. Notable campaigns include:

These campaigns are vital in Epilepsy Action’s mission to reduce stigma, increase understanding, and improve the quality of life for those living with epilepsy.

Achievements

The charity has received international media coverage on a number of occasions due to its work in highlighting bad practice in online videos in relation to photosensitive epilepsy.

References

  1. 1 2 "Epilepsy Action History Wall 1950-2010" (PDF). Epilepsy Action. Archived from the original (PDF) on 4 October 2015. Retrieved 16 March 2023.
  2. "British Epilepsy Association, registered charity no. 234343". Charity Commission for England and Wales.
  3. 1 2 3 4 "TRUSTEES' REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023" (PDF). Epilepsy Action. Retrieved 19 May 2024.
  4. "Council of Management". Epilepsy Action. Retrieved 17 March 2023.
  5. "Council of management, updates from council meeting 4 February 2025". Epilepsy Action. Retrieved 4 March 2025.
  6. Bond, David (13 June 2007). "Olympics inquiry into logo-launch seizures". ISSN   0307-1235.
  7. "London 2012 Olympics withdraw film after seizures". Epilepsy Action. 6 June 2007. Archived from the original on 23 November 2007. Retrieved 24 March 2023.
  8. "'Kanye West's 'All Of The Lights' Video Gets Epilepsy Warning'". MTV News. 25 February 2011. Archived from the original on 5 May 2014.
  9. "'Epilepsy charity criticises Twitter for flashing ads'". BBC News. 10 July 2015.