The World Network of Users and Survivors of Psychiatry (WNUSP) is an international organisation representing, and led by what it terms "survivors of psychiatry". As of 2003, over 70 national organizations were members of WNUSP, based in 30 countries. [1] The network seeks to protect and develop the human rights, disability rights, dignity and self-determination of those labeled 'mentally ill'.
WNUSP has special consultative status with the United Nations. It contributed to the development of the UN's Convention on the Rights of Persons with Disabilities. [1] [2] WNUSP has produced a manual to help people use it entitled "Implementation Manual for the United Nations Convention on the Rights of Persons with Disabilities", edited by Myra Kovary. [3]
WNUSP joined with other organizations to create the International Disability Caucus, which jointly represented organizations of people with disabilities and allies during the CRPD negotiations. WNUSP was part of the steering committee of the IDC, which maintained a principle of respecting the leadership of diverse constituencies on issues affecting them, and also maintained that the convention should be of equal value to all persons with disabilities irrespective of the type of disability or geographical location. Tina Minkowitz, WNUSP's representative on the IDC steering committee, coordinated the IDC's work on key articles of the CRPD, including those on legal capacity, liberty, torture and ill-treatment and integrity of the person. Since the adoption and entry into force of the CRPD, WNUSP has worked with other organizations in the International Disability Alliance and its CRPD Forum to guide the interpretation and application of the CRPD on these issues. [4]
In 2007 at a Conference held in Dresden on "Coercive Treatment in Psychiatry: A Comprehensive Review", the president and other leaders of the World Psychiatric Association met, following a formal request from the World Health Organization, with several representatives from the user/survivor movement, including Judi Chamberlin (Co-chair of WNUSP), Mary Nettle and Peter Lehmann (Ex-chairs of the European Network of [Ex-] Users and Survivors of Psychiatry), Dorothea Buck (Honorary Chair of the German Federal Organisation of Users and Survivors of Psychiatry, and David Oaks (Director of MindFreedom International). [5] [6]
Salam Gómez and Jolijn Santegoeds are the current Co-Chairpersons of WNUSP.
Current International Representative and former co-chair of WNUSP is Tina Minkowitz, an international advocate and lawyer. [7] She represented WNUSP in the Working Group convened by the UN to produce a draft text of the Convention on the Rights of Persons with Disabilities [8] and contributed to a UN seminar on torture and persons with disabilities [9] [10] that resulted in an important report on the issue by Special Rapporteur on Torture Manfred Nowak in 2008. [11]
Since the 1970s, the psychiatric survivors movement has grown from a few scattered self-help groups to a worldwide network engaged in protecting civil rights and facilitation of efforts to provide housing, employment, public education, research, socialisation and advocacy programmes. The term 'psychiatric survivor' is used by individuals who identify themselves as having experienced human rights violations in the mental health system. WNUSP was established to further promote this movement and to respond on an international level to the oppression survivors continue to experience.
After initially meeting, in 1991, as the World Federation of Psychiatric Users at the biennial World Federation for Mental Health conference in Mexico, the network's name was changed to WNUSP in 1997. In 2000, the WNUSP Secretariat was established in Odense, Denmark. In 2001, the network held its First General Assembly in Vancouver, British Columbia, with 34 groups from twelve countries represented, and adopted its governing statutes.
In 2004, the network held its Second General Assembly in Vejle, Denmark with 150 participants from 50 countries attending.
In 2007 WNUSP received ECOSOC special consultative status at the United Nations.
In 2009, WNUSP held its third General Assembly in Kampala, Uganda. It adopted the Kampala Declaration stating its positions on the CRPD, which was later expanded into a longer version adopted by consensus of the board and the participants in the Kampala GA. [12]
The European Network of (Ex-) Users and Survivors of Psychiatry is the most important European NGO of (ex-) users and survivors. Forty-two representatives from 16 European countries met at a conference to found it in the Netherlands in October 1991. Every 2 years, delegates from the ENUSP members in more than 40 European countries meet at a conference where the policies for the coming period are set out. All delegates are (ex-)users and survivors of psychiatry. ENUSP is officially involved in consultations on mental health plans and policies of the European Union, World Health Organization and other important bodies. Initial funding came from the Dutch government and from the European Commission but has since proved more difficult to secure. ENUSP is involved in commenting and debating declarations, position papers, policy guidelines of the EU, UN, WHO and other important bodies. [13]
International human rights instruments are the treaties and other international texts that serve as legal sources for international human rights law and the protection of human rights in general. There are many varying types, but most can be classified into two broad categories: declarations, adopted by bodies such as the United Nations General Assembly, which are by nature declaratory, so not legally-binding although they may be politically authoritative and very well-respected soft law;, and often express guiding principles; and conventions that are multi-party treaties that are designed to become legally binding, usually include prescriptive and very specific language, and usually are concluded by a long procedure that frequently requires ratification by each states' legislature. Lesser known are some "recommendations" which are similar to conventions in being multilaterally agreed, yet cannot be ratified, and serve to set common standards. There may also be administrative guidelines that are agreed multilaterally by states, as well as the statutes of tribunals or other institutions. A specific prescription or principle from any of these various international instruments can, over time, attain the status of customary international law whether it is specifically accepted by a state or not, just because it is well-recognized and followed over a sufficiently long time.
MindFreedom International is an international coalition of over one hundred grassroots groups and thousands of individual members from fourteen nations. Based in the United States, it was founded in 1990 to advocate against forced medication, medical restraints, and involuntary electroconvulsive therapy. Its stated mission is to protect the rights of people who have been labeled with psychiatric disorders. Membership is open to anyone who supports human rights, including mental health professionals, advocates, activists, and family members. MindFreedom has been recognized by the United Nations Economic and Social Council as a human rights NGO with Consultative Roster Status.
The World Psychiatric Association is an international umbrella organisation of psychiatric societies.
Rehabilitation International is an international disability rights organization with member organizations in every region of the world. The RI secretariat is located in New York City.
The psychiatric survivors movement is a diverse association of individuals who either currently access mental health services, or who are survivors of interventions by psychiatry.
Psychiatric rehabilitation, also known as psych social rehabilitation, and sometimes simplified to psych rehab by providers, is the process of restoration of community functioning and well-being of an individual diagnosed in mental health or emotional disorder and who may be considered to have a psychiatric disability.
Mad Pride is a mass movement of the users of mental health services, former users, and the aligned, which advocates that individuals with mental illness should be proud of their 'mad' identity. Mad Pride activists seek to reclaim terms such as "mad", "nutter", and "psycho" from misuse, such as in tabloid newspapers, and in order to switch it from a negative view into a positive view. Through mass media campaigns, Mad Pride activists seek to re-educate the general public on the causes of mental disabilities, the experiences of those using the mental health system, and the global suicide pandemic.
Disability Rights International (DRI), formerly Mental Disability Rights International, is a Washington, DC–based human rights advocacy organization dedicated to promoting the human rights and full participation in society of persons with disabilities worldwide. DRI documents conditions, publishes reports, and promotes international oversight of the rights of persons with disabilities.
Eric Rosenthal is an American lawyer and activist. He is the founder and executive director of Disability Rights International (DRI). Since establishing DRI in 1993, Rosenthal has trained human rights and disability activists and provided assistance to governments and international development organizations worldwide.
Judi Chamberlin was an American activist, leader, organizer, public speaker and educator in the psychiatric survivors movement. Her political activism followed her involuntary confinement in a psychiatric facility in the 1960s. She was the author of On Our Own: Patient-Controlled Alternatives to the Mental Health System, which is a foundational text in the Mad Pride movement.
The Convention on the Rights of Persons with Disabilities is an international human rights treaty of the United Nations intended to protect the rights and dignity of persons with disabilities. Parties to the convention are required to promote, protect, and ensure the full enjoyment of human rights by persons with disabilities and ensure that persons with disabilities enjoy full equality under the law. The Convention serves as a major catalyst in the global disability rights movement enabling a shift from viewing persons with disabilities as objects of charity, medical treatment and social protection towards viewing them as full and equal members of society, with human rights. The convention was the first U.N. human rights treaty of the twenty-first century.
Sanism, saneism or mentalism refers to the systemic discrimination against or oppression of individuals perceived to have a mental disorder or cognitive impairment. This discrimination and oppression are based on numerous factors such as stereotypes about neurodiversity. Mentalism impacts individuals with autism, learning disorders, ADHD, FASD, bipolar, schizophrenia, personality disorders, stuttering, tics, intellectual disabilities, and other cognitive impairments.
The Mental Disability Advocacy Center (MDAC) is an international human rights organisation founded in Hungary in 2002. It is headquartered in Budapest.
The Committee on the Rights of Persons with Disabilities is a United Nations body of 18 experts that meets two times a year in Geneva to consider the reports submitted by 164 UN member states on their compliance with the Convention on the Rights of Persons with Disabilities (CRPD), and to examine individual petitions concerning 94 States Parties to the Optional Protocol.
The following outline is provided as an overview of and topical guide to the psychiatric survivors movement:
Peter Lehmann, D. Phil. h.c., is an author, social scientist, publisher, and an independent freelance activist in humanistic anti-psychiatry, living in Berlin, Germany.
David William Oaks is a civil rights activist and co-founder and former executive director of Eugene, Oregon-based MindFreedom International.
Approximately 12 million French citizens are affected by disability. The history of disability activism in France dates back to the French Revolution when the national obligation to help disabled citizens was recognized, but it was "unclear whether or not such assistance should be public or private." Disabled civilians began to form the first associations to demand equal rights and integration in the workforce after the First World War. Between 1940 and 1945, 45,000 people with intellectual disabilities died from neglect in French psychiatric asylums. After the Second World War, parents of disabled children and charities created specialized institutions for disabled children for whom school was not accessible. In 2018, the French Government began to roll out a disability policy which aimed to increase the allowance for disabled adults to €900 per month, improve the digital accessibility of public services, and develop easy-to-read and understand language among other goals.
Indigenous Disability Canada / British Columbia Aboriginal Network on Disability Society (IDC/BCANDS) is a national Indigenous charitable organization with its head office based in Victoria, British Columbia, Canada. IDC/BCANDS provides cross disability-related support and services to Indigenous peoples in Canada with disabilities, and advocates for the full inclusion of all Indigenous peoples with disabilities, both socially and economically.
Mental healthcare in India is a right secured to every person in the country by law. Indian mental health legislation, as per a 2017 study, meets 68% (119/175) of the World Health Organization (WHO) standards laid down in the WHO Checklist of Mental Health Legislation. However, human resources and expertise in the field of mental health in India is significantly low when compared to the population of the country. The allocation of the national healthcare budget to mental health is also low, standing at 0.16%. India's mental health policy was released in 2014.