Cleft Lip and Palate Association

Last updated

Cleft Lip and Palate Association
UK Charity No 1108160
First registered1979
Expenditure 2019/20£725,177 [1]

The Cleft Lip and Palate Association, also known as CLAPA, is a national charity registered in England, [1] Wales, [1] and Scotland [2] which supports people affected by cleft lip and cleft palate in the United Kingdom.

Contents

CLAPA was established in 1979 as a partnership between health professionals and parents of children with cleft lip and cleft palate. It provides support for new parents, for people with the condition and their families, from infancy through to adulthood.

The organisation's office is in London, but staff are based around the UK. [3]

Aims

The main aims of CLAPA are: [3]

BAFTAs controversy

At BAFTA Television Awards at the London Palladium Theatre in London on 20 May 2007, when presenting Ricky Gervais with the award for best comedy performance Joan Rivers made a joke referring to the statuette as a "Jew with a harelip". CLAPA Chief Executive Gareth Davies wrote directly to BAFTA to express his "serious disappointment" at the incident and he said that "many people found the old-fashioned term "harelip" highly offensive and that "making the condition the subject of a cheap joke was simply hurtful"

Rivers said that she was extremely sorry for any offence caused as this had certainly not been her intention. Amanda Berry, BAFTA Chief Executive, stated that the academy would "never set out to offend nor make fun of anyone".

On their website CLAPA said it was pleased to receive the apologies but is aware that too many people are still ill-informed about what cleft lip and palate is and what it is not. They added that this ignorance can often feed into prejudice and the media and those in the public eye have a key role in helping us de-stigmatise the condition.

Patron

Carol Vorderman is the current patron of CLAPA. She got involved with the charity because her older brother, Anton, was born with a cleft lip and palate. He had treatment at Alder Hay Hospital in Merseyside and life was not always easy for him or his family. He is the first to acknowledge that it was his family that carried him through all the difficult times and he is now a successful businessman based in the Netherlands. He retains strong links with his home town, Prestatyn, in North Wales.

Board of trustees

The governing body of CLAPA is a board of trustees who are volunteers. The board is a mix of people affected by cleft lip and/or palate (with a cleft or parent of a child with a cleft) and health professionals involved in the care of people born with cleft lip and palate. Trustees are selected on the basis of what skills they can bring to the charity and vacancies are advertised in the national press.

Current trustees: [1]

Related Research Articles

Cleft lip and cleft palate Medical condition

A cleft lip contains an opening in the upper lip that may extend into the nose. The opening may be on one side, both sides, or in the middle. A cleft palate occurs when the palate contains an opening into the nose. The term orofacial cleft refers to either condition or to both occurring together. These disorders can result in feeding problems, speech problems, hearing problems, and frequent ear infections. Less than half the time the condition is associated with other disorders.

Carol Vorderman British media personality

Carol Jean Vorderman, HonFIET is a British media personality, best known for co-hosting the game show Countdown for 26 years from 1982 until 2008, as a newspaper columnist and nominal author of educational and diet books, and hosting the annual Pride of Britain awards. She has written books on detox diets.

Sir William Fergusson, 1st Baronet

Sir William Fergusson, 1st Baronet FRCS FRS FRSE was a Scottish surgeon.

Alzheimers Society United Kingdom care and research charity

Alzheimer's Society is a United Kingdom care and research charity for people with dementia and their carers. It operates in England, Wales and Northern Ireland, while its sister charities Alzheimer Scotland and Alzheimer's Society of Ireland cover Scotland and the Republic of Ireland respectively.

Shriners Hospitals for Children Network of hospitals for children

Shriners Children's is a network of non-profit medical facilities across North America. Children with orthopaedic conditions, burns, spinal cord injuries, and cleft lip and palate are eligible for care and receive all services in a family-centered environment, regardless of the patients' ability to pay. Care for children is usually provided until age 18, although in some cases, it may be extended to age 21.

Van der Woude syndrome (VDWS) is a genetic disorder characterized by the combination of lower lip pits, cleft lip with or without cleft palate (CL/P), and cleft palate only (CPO). The frequency of orofacial clefts ranges from 1:1000 to 1:500 births worldwide, and there are more than 400 syndromes that involve CL/P. VWS is distinct from other clefting syndromes due to the combination of cleft lip and palate (CLP) and CPO within the same family. Other features frequently associated with VWS include hypodontia in 10-81% of cases, narrow arched palate, congenital heart disease, heart murmur and cerebral abnormalities, syndactyly of the hands, polythelia, ankyloglossia, and adhesions between the upper and lower gum pads.

Operation Smile is a nonprofit medical service organization founded in 1982 by Dr. William P. Magee Jr. and his wife Kathleen (Kathy) S. Magee. It is headquartered in Virginia Beach, Virginia.

Smile Train

Smile Train is a nonprofit organization and charity providing corrective surgery for children with cleft lips and palates.

Teenage Cancer Trust

Teenage Cancer Trust is a cancer care and support charity in the UK that exists to improve the cancer experience of young people aged 13–24. Founded in 1990, the charity's key service is providing specialist teenage units in NHS hospitals. It also trains and funds staff who are teenage cancer specialists. The units are dedicated areas for teenage and young adult patients, who are involved in their concept and creation. Medical facilities on the units are equipped with computers, TVs and game consoles.

Pierre Robin sequence is a congenital defect observed in humans which is characterized by facial abnormalities. The three main features are micrognathia, which causes glossoptosis, which in turn causes breathing problems due to obstruction of the upper airway. A wide, U-shaped cleft palate is commonly also present. PRS is not merely a syndrome, but rather it is a sequence—a series of specific developmental malformations which can be attributed to a single cause.

Ectrodactyly–ectodermal dysplasia–cleft syndrome Medical condition

Ectrodactyly–ectodermal dysplasia–cleft syndrome, or EEC, and also referred to as EEC syndrome and split hand–split foot–ectodermal dysplasia–cleft syndrome is a rare form of ectodermal dysplasia, an autosomal dominant disorder inherited as a genetic trait. EEC is characterized by the triad of ectrodactyly, ectodermal dysplasia, and facial clefts. Other features noted in association with EEC include vesicoureteral reflux, recurrent urinary tract infections, obstruction of the nasolacrimal duct, decreased pigmentation of the hair and skin, missing or abnormal teeth, enamel hypoplasia, absent punctae in the lower eyelids, photophobia, occasional cognitive impairment and kidney anomalies, and conductive hearing loss.

Speech–language pathology Disability therapy profession

Speech–language pathology is a field of expertise practiced by a clinician known as a speech–language pathologist (SLP) or a speech and language therapist, both of whom may be referred to as a speech therapist. Speech–language pathology is considered a "related health profession" or "allied health profession", along with audiology, optometry, occupational therapy, rehabilitation psychology, physical therapy and others.

Transforming Faces

Transforming Faces (TF) is a Canadian-based charity that provides comprehensive cleft care for children born with cleft lip and palate and their families. TF partners with local medical teams to ensure that life-changing cleft care is accessible for all.

The 2007 British Academy Television Awards were held on Sunday 20 May at the London Palladium Theatre in London. They were broadcast live on BBC One in the UK. The nominations were announced on 11 April 2007.

Oral and maxillofacial pathology refers to the diseases of the mouth, jaws and related structures such as salivary glands, temporomandibular joints, facial muscles and perioral skin. The mouth is an important organ with many different functions. It is also prone to a variety of medical and dental disorders.

Royal Osteoporosis Society Charity in the United Kingdom

The Royal Osteoporosis Society (ROS), formerly the National Osteoporosis Society, established in 1986, is the only UK-wide charity dedicated to improving the prevention, diagnosis and treatment of osteoporosis. It is based in Camerton, Somerset, England.

In the Philippines, the Kapampangan Development Foundation (KDF) is an organization of Kapampangans living outside the region. It was founded in 1987 by 35 people who were inspired by President Corazon Aquino; in 2012, 11 of its founders remained. The KDF has created a rural-industrialization program known as RICH and has provided social and health services to poor residents of Pampanga through its HELP program, with assistance from international and non-governmental organizations and government agencies.

Kenny Ardouin

Kenneth Michael "Kenny" Ardouin is an advocate for those affected by cleft lip and palate and lives in London, England. He is well known for his role in supporting those affected in New Zealand, the United Kingdom and around the world, by cleft lip and palate. He is also well known as a radio journalist and presenter in Christchurch, New Zealand.

The Craniofacial Society of Great Britain and Ireland (CFSGBI), commonly known as the Craniofacial Society, is a professional organisation and charity dedicated to the study of cleft lip and palate and other craniofacial anomalies based at the Royal College of Surgeons of England in London in the United Kingdom. The Society first convened in 1970 and continued to meet on an ad hoc basis, leading to its formal constitutional establishment in 1985. The Society has since grown in terms of membership and stature and has developed to become the leading professional organisation for cleft health care professionals in the United Kingdom and Ireland.

The Overseas Plastic Surgery Appeal is a registered charity in the UK, that exists to provide free facial surgery for poor children and young adults in Pakistan. The OPSA team operate on facial abnormalities including cleft lip and palate.

References

  1. 1 2 3 4 "THE CLEFT LIP AND PALATE ASSOCIATION - Charity 1108160".
  2. "OSCR | Charity Details".
  3. 1 2 "About the Cleft Lip and Palate Association (CLAPA)".