Formation | 1970 / 1985 |
---|---|
Type | Professional association |
Headquarters | Royal College of Surgeons of England Lincoln's Inn Fields |
Location |
|
Coordinates | 51°30′55″N0°06′57″W / 51.51528°N 0.11583°W |
Joint presidents | Kate le Maréchal and Jacqueline Smallridge |
Key people |
|
Website | www.craniofacialsociety.org.uk |
The Craniofacial Society of Great Britain and Ireland (CFSGBI), commonly known as the Craniofacial Society, is a professional organisation and charity dedicated to the study of cleft lip and palate and other craniofacial anomalies based at the Royal College of Surgeons of England in London in the United Kingdom. [1] [2] The Society first convened in 1970 and continued to meet on an ad hoc basis, leading to its formal constitutional establishment in 1985. The Society has since grown in terms of membership and stature and has developed to become the leading professional organisation for cleft health care professionals in the United Kingdom and Ireland. [3]
The origins of the Society can be traced back to 1969 when British orthodontists Arnold Huddart from Stourbridge, West Midlands and Denis Glass from East Grinstead, Sussex met at the first International Congress to be hosted by the American Cleft Palate–Craniofacial Association (ACPA) in Houston, Texas, US and discussed organising a similar meeting in the UK. The following year a conference concerned with cleft lip and palate management was held at Wordsley Hospital in the West Midlands. Following this, orthodontists and surgeons met annually and were later joined by speech and language therapists. Meetings continued in this manner and after an international meeting in Birmingham in 1983, a meeting was held in Wolverhampton in 1985 to consider the future of the Society. Following considerable discussion those present voted to name the organisation The Craniofacial Society of Great Britain – A Society for the Study of Cleft Lip and Palate and other Craniofacial Anomalies. The Society became the Craniofacial Society of Great Britain and Ireland in 1999. [4]
The Society logo depicts the tree of knowledge together with the Society motto Dies Diem Docet, which is Latin for "the day teaches the day", meaning that education is never complete. [5]
Management of patients with cleft lip and palate or craniofacial anomalies require the expertise of a range of healthcare professionals and this is reflected in the membership of the Society. Healthcare professionals with appropriate professional qualifications and a special interest in the field can apply for membership. Today, members can include audiological physicians, audiologists, anaesthetists, cleft network managers, clinical nurse specialists, clinical psychologists, dental technicians, dental therapists, dentists, geneticists, orthodontists, paediatric dentists, paediatricians, radiologists, restorative dentists, surgeons (maxillofacial, paediatric and plastic) and speech and language therapists. [6] [7]
The Society's main functions are to organise an annual scientific conference, sponsor research, comment on medico-political issues relating to cleft lip and palate service provision, provide an archive of conference material and provide a membership directory. [8]
The Society has held a scientific conference in March or April each year since the first conference in Liverpool in April 1986. This was preceded by pre-constitutional meetings that were held between 1970 and 1983. The 30th conference will be held at the Royal College of Physicians and will hosted by Guy's and St Thomas' NHS Foundation Trust from 16 to 17 April 2015 with a pre-conference special interest group (SIG) meeting on 15 April 2015.
Members of different specialities meet in subcommittees to work on audit and research projects. The Society's audit group established a minimum data set for cleft audit and has funded audit and research workshops. In 1989, the Craniofacial Society Anomalies Register (CARE) was developed to record the births of children with craniofacial anomalies. The Society funded a multi disciplinary committee to oversee CARE, which became the Craniofacial Anomalies Network (CRANE) and is located in the Clinical Effectiveness Unit at the Royal College of Surgeons of England. The Society has provided research grants and provided funding to assist members in attending its conferences and international meetings. The CFSGBI has also funded training initiatives for speech and language therapists and cleft nurse specialists. In 1996 the Society was asked to provide written evidence to the Clinical Standards Advisory Group (CSAG). The submission highlighted the interdisciplinary nature of the Society and its role in acting as the forum for the presentation and evaluation of research and audit in the field. The Society is now represented in various National Health Service bodies and is consulted for advice by the government and the media. In 1999, the society became a founder member of the Healing Foundation with representation on its board of trustees and research council. This has ultimately led to the Cleft Collective, the world's largest cleft lip and palate research programme as well as other initiatives. [9] [10]
The speech and language therapy special interest group (SIG) was established in 1987 and held a meeting each year immediately preceding the annual conference. In 1990, the Society began to offer some financial assistance for these meetings and began to provide facilities for speech and language therapy meetings in 1995. Other speciality groups then developed special interest groups and these meetings now make up an additional day alongside the annual conference with eight special interest groups meeting for the conference in Birmingham in 2013. The Society also assists in securing guest speakers for these meetings. [11]
The Society is governed by its Council, which is chaired by the Society's president; the members of council and the president are elected from and by its membership.
Christine Couhig is Secretary and Joyce Russell is treasurer. Peter Hodgkinson and Helen Extence are co-opted councillors. [12] A rotation of posts exists to ensure council representation from the main specialities. The Society was initially established with four main categories of membership: orthodontics, oral and maxillofacial surgery, plastic surgery and speech and language therapy as well as some members from other specialities. Since 1990 other speciality groups could stand for office and “other” became incorporated into council rotations. Nurses were first part of the “other” group but increasing numbers led to a specific group for nurses in 2003. The centralisation of cleft lip and palate care has meant that the number of surgeons within the membership has declined and from 2015/2016 the categories of maxillofacial surgeon and plastic surgeon will be combined to form the single category of cleft surgeon for council rotations. [13] [14] [15]
The president is elected annually. Kate le Maréchal and Jacqueline Smallridge are current presidents and Karine Latter is vice-president elect. [16] The following table is a list of presidents of the Craniofacial Society of Great Britain and Ireland. [17]
№ | Term | President |
---|---|---|
1 | 1986 | Olda Pospisil |
2 | 1987 | Roz Razzell |
3 | 1988 | M Poole |
4 | 1989 | Michael Mars |
5 | 1990 | Peter Banks |
6 | 1991 | Monica Turner |
7 | 1992 | Ron Pigott |
8 | 1993 | Graham Rabey |
9 | 1994 | James Moss |
10 | 1995 | Kursheed Moos |
11 | 1996 | Debbie Sell |
12 | 1997 | Brian Sommerlad |
13 | 1998 | Brian Christie |
13 | 1999 | Mark Ferguson |
14 | 2000 | Martin Mace |
15 | 2001 | Triona Sweeney |
16 | 2002 | John Boorman |
17 | 2003 | Dai Roberts-Harry |
18 | 2004 | Nichola Rumsey |
19 | 2005 | Adrian Sugar |
20 | 2006 | Jane Russell |
21 | 2007 | Michael Earley |
22 | 2008 | William Shaw |
23 | 2009 | Terry Gregg |
24 | 2010 | Trisha Bannister |
25 | 2011 | Alistair Smyth |
26 | 2012 | Liz Albery |
27 | 2013 | Rona Slator |
28 | 2014 | Stephen Robinson |
29 | 2015 | Kate le Maréchal |
29 | 2015 | Jacqueline Smallridge |
Kathleen Randle, Personal assistant to Arnold Huddart, played a vital role in the development and administration of the Society from its inception. She became membership secretary when the society was formally established in 1985 and remained in the role until her retirement in 2002. In 2006 an office and secretariat was established at the Royal College of Surgeons of England in Lincoln's Inn Fields, London. [18]
The Arnold Huddart Medal was established in 1990 to encourage original and promising research papers at the annual scientific conference. Submissions are judged by a panel consisting of one member from each of the Society's five membership categories and chaired by the vice-president. Submissions are judged by the quality of the presentation, content and handling of the paper's post-presentation discussion. Papers should be of general interest and should aim to be understood by all members of the Society. The medal is usually awarded to a presenter who is aged 40 or younger at the time of presentation and priority is given to sole authors over multi-authored papers. [19]
The presidents Prize was introduced in 2011 and consists of a medal and a £100 cash prize. This award is eligible to members of the Society for a verbal presentation at the annual scientific conference that is considered to have made a significant clinical contribution to cleft lip and palate care. [20]
The society has maintained a close relationship with the Cleft Lip and Palate Association (CLAPA) and since 1995 the national secretary of CLAPA has been able to be co-opted as a member of the Society and given financial assistance to attend meetings, at the discretion of the president. [21]
Plastic surgery is a surgical specialty involving the restoration, reconstruction or alteration of the human body. It can be divided into two main categories: reconstructive surgery and cosmetic surgery. Reconstructive surgery includes craniofacial surgery, hand surgery, microsurgery, and the treatment of burns. While reconstructive surgery aims to reconstruct a part of the body or improve its functioning, cosmetic surgery aims at improving the appearance of it. Comprehensive definition of plastic surgery has never been established, because it has no distinct anatomical object and thus overlaps with practically all other surgical specialties. An essential feature of plastic surgery is that it involves treatment of conditions that require or may require tissue relocation skills.
A cleft lip contains an opening in the upper lip that may extend into the nose. The opening may be on one side, both sides, or in the middle. A cleft palate occurs when the palate contains an opening into the nose. The term orofacial cleft refers to either condition or to both occurring together. These disorders can result in feeding problems, speech problems, hearing problems, and frequent ear infections. Less than half the time the condition is associated with other disorders.
Oral and maxillofacial surgery is a surgical specialty focusing on reconstructive surgery of the face, facial trauma surgery, the oral cavity, head and neck, mouth, and jaws, as well as facial cosmetic surgery/facial plastic surgery including cleft lip and cleft palate surgery.
Orthognathic surgery, also known as corrective jaw surgery or simply jaw surgery, is surgery designed to correct conditions of the jaw and lower face related to structure, growth, airway issues including sleep apnea, TMJ disorders, malocclusion problems primarily arising from skeletal disharmonies, and other orthodontic dental bite problems that cannot be treated easily with braces, as well as the broad range of facial imbalances, disharmonies, asymmetries, and malproportions where correction may be considered to improve facial aesthetics and self-esteem.
The Haberman Feeder is a speciality bottle named after its inventor Mandy Haberman for babies with impaired sucking ability. The design of the feeder is to simulate breastfeeding.
Pierre Robin sequence is a congenital defect observed in humans which is characterized by facial abnormalities. The three main features are micrognathia, which causes glossoptosis, which in turn causes breathing problems due to obstruction of the upper airway. A wide, U-shaped cleft palate is commonly also present. PRS is not merely a syndrome, but rather it is a sequence—a series of specific developmental malformations which can be attributed to a single cause.
Hearing loss with craniofacial syndromes is a common occurrence. Many of these multianomaly disorders involve structural malformations of the outer or middle ear, making a significant hearing loss highly likely.
Debbie Sell, OBE, FRCSLT is a leading British speech and language therapist.
Paul Tessier was a French maxillofacial surgeon. He was considered the father of modern craniofacial surgery.
Pediatric plastic surgery is plastic surgery performed on children. Its procedures are most often conducted for reconstructive or cosmetic purposes. In children, this line is often blurred, as many congenital deformities impair physical function as well as aesthetics.
S. M. Balaji is a dental, oral, and maxillofacial surgeon from Chennai, Tamil Nadu, India, who specializes in repair of cleft palate, rhinoplasty, ear reconstruction, jaw reconstruction, facial asymmetry correction, dental implantology, maxillofacial surgery and Craniofacial surgery. He is an alumni of Annamalai University.
A facial cleft is an opening or gap in the face, or a malformation of a part of the face. Facial clefts is a collective term for all sorts of clefts. All structures like bone, soft tissue, skin etc. can be affected. Facial clefts are extremely rare congenital anomalies. There are many variations of a type of clefting and classifications are needed to describe and classify all types of clefting. Facial clefts hardly ever occur isolated; most of the time there is an overlap of adjacent facial clefts.
Malpuech facial clefting syndrome, also called Malpuech syndrome or Gypsy type facial clefting syndrome, is a rare congenital syndrome. It is characterized by facial clefting, a caudal appendage, growth deficiency, intellectual and developmental disability, and abnormalities of the renal system (kidneys) and the male genitalia. Abnormalities of the heart, and other skeletal malformations may also be present. The syndrome was initially described by Georges Malpuech and associates in 1983. It is thought to be genetically related to Juberg-Hayward syndrome. Malpuech syndrome has also been considered as part of a spectrum of congenital genetic disorders associated with similar facial, urogenital and skeletal anomalies. Termed "3MC syndrome", this proposed spectrum includes Malpuech, Michels and Mingarelli-Carnevale (OSA) syndromes. Mutations in the COLLEC11 and MASP1 genes are believed to be a cause of these syndromes. The incidence of Malpuech syndrome is unknown. The pattern of inheritance is autosomal recessive, which means a defective (mutated) gene associated with the syndrome is located on an autosome, and the syndrome occurs when two copies of this defective gene are inherited.
Peter James Taub, MD, FACS, FAAP, is an American Professor of Surgery, Pediatrics, Dentistry, Neurosurgery, and Medical Education at the Icahn School of Medicine at Mount Sinai as well as Attending Plastic and Reconstructive Surgeon at the Mount Sinai Medical Center and Elmhurst Hospital Center, all in New York City. He is a diplomate of both the American Board of Surgery and the American Board of Plastic Surgery.
The American Society of Maxillofacial Surgeons (ASMS) is a professional organization focused on the science and practice of surgery of the facial region and craniofacial skeleton. The organization is involved in education, research, and advocacy on behalf of patients and maxillofacial surgeons.
T. M. "Tom" Graber was an American orthodontist known for his contributions to the field of orthodontics. Graber wrote 28 books on orthodontics and dental anatomy. He also wrote chapters in more than 20 books and over 175 published articles.
Egil Peter Harvold was an American orthodontist who is known for developing a Cephalometric analysis known as Harvold Analysis. He also is known to have contributed significantly towards the understanding of the orofacial clefts and craniofacial development.
Millard criteria is a set of rules, which is to be fulfilled for undertaking elective surgery for children, and mostly used for reference in cleft lip surgery. The criteria includes these prerequisites:
The Overseas Plastic Surgery Appeal is a registered charity in the UK, that exists to provide free facial surgery for poor children and young adults in Pakistan. The OPSA team operate on facial abnormalities including cleft lip and palate.
Richard Andrew Lewandowski is an Australian plastic and reconstructive surgeon.