Quantified self

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The Nike+ FuelBand is one of the many kinds of wearable devices that people use as "quantified self" tools. Black Nike FuelBand.jpg
The Nike+ FuelBand is one of the many kinds of wearable devices that people use as "quantified self" tools.

Quantified self refers both to the cultural phenomenon of self-tracking with technology and to a community of users and makers of self-tracking tools who share an interest in "self-knowledge through numbers". [1] Quantified self practices overlap with the practice of lifelogging and other trends that incorporate technology and data acquisition into daily life, often with the goal of improving physical, mental, and emotional performance. The widespread adoption in recent years of wearable fitness and sleep trackers such as the Fitbit or the Apple Watch, [2] combined with the increased presence of Internet of things in healthcare and in exercise equipment, have made self-tracking accessible to a large segment of the population.

Contents

Other terms for using self-tracking data to improve daily functioning [3] are auto-analytics, body hacking, self-quantifying, self-surveillance, sousveillance (recording of personal activity), and personal informatics. [4] [5] [6]

History

According to Riphagen et al., the history of the quantimetric self-tracking using wearable computers began in the 1970s:

"The history of self-tracking using wearable sensors in combination with wearable computing and wireless communication already exists for many years, and also appeared, in the form of sousveillance back in the 1970s [13, 12]" [7]

Quantimetric self-sensing was proposed for the use of wearable computers to automatically sense and measure exercise and dietary intake in 2002:

"Sensors that measure biological signals, ... a personal data recorder that records ... Lifelong videocapture together with blood-sugar levels, ... correlate blood-sugar levels with activities such as eating, by capturing a food record of intake." [8] [9]

Blood pressure information Blood Pressure Information.jpg
Blood pressure information

The "quantified self" or "self-tracking" are contemporary labels. They reflect the broader trend of the progressions for organization and meaning-making in human history; there has been a use of self-taken measurements and data collection that attempted the same goals that the quantified movement has. [10] Scientisation plays a major role in legitimizing self-knowledge through self-tracking. As early as 2001, media artists such as Ellie Harrison and Alberto Frigo extensively pioneered the concept, proposing a new direction of labour-intensive self-tracking without using privacy infringing automation. [11] [ page needed ]

The term quantified self appears to have been proposed in San Francisco by Wired magazine editors Gary Wolf [12] and Kevin Kelly [13] in 2007 [14] as "a collaboration of users and tool makers who share an interest in self knowledge through self-tracking." In 2010, Wolf spoke about the movement at TED, [15] and in May 2011, the first international conference was held in Mountain View, California. [16] There are conferences in America and Europe. Gary Wolf said "Almost everything we do generates data." Wolf suggests that companies target advertising or recommend products use data from phones, tablets, computers, other technology, and credit cards. However, using the data they make can give people new ways to deal with medical problems, help sleep patterns, and improve diet.

Within the quantified self community, the concept of " personal science " has been developed. It is defined as: "the practice of exploring personally consequential questions by conducting self-directed N-of-1 studies using a structured empirical approach". [17]

Methodologies

Like any empirical study, the primary method is the collection and analysis of data. [18] In many cases, data are collected automatically using wearable sensors, not limited to, but often worn on the wrist. [19] In other cases, data may be logged manually.

The data are typically analyzed using traditional techniques such as linear regression to establish correlations among the variables under investigation. As in every attempt to understand potentially high-dimensional data, visualization techniques can suggest hypotheses that may be tested more rigorously using formal methods. One simple example of a visualization method is to view the change in some variable over time.

Even though the idea is not new, the technology is. Technology has made it easier and simpler to gather and analyze personal data. Since these technologies have become smaller and cheaper to be put in smart phones or tablets, it is easier to take the quantitative methods used in science and business and apply them to the personal sphere.

Narratives constitute a symbiotic relationship with large bodies of data. Therefore, quantified self participants are encouraged to share their experiences of self-tracking at various conferences and meetings. [20]

Applications

A major application of quantified self has been in health and wellness improvement. [21] [22] Many devices and services help with tracking physical activity, caloric intake, sleep quality, posture, and other factors involved in personal well-being. Corporate wellness programs, for example, will often encourage some form of tracking. Genetic testing and other services have also become popular.

Quantified self is also being used to improve personal or professional productivity, [23] with tools and services being used to help people keep track of what they do during the workday, where they spend their time, and whom they interact with.

Another application has been in the field of education, where wearable devices are being used in schools so that students can learn more about their own activities and related math and science. [24] Many start-up companies occupy the market right now[ when? ]. Most of them help track data for some type of health pattern, be it sleep or asthma. However, there are bigger companies such as Apple and Google (Fitbit) that occupy some of the space in the market.

A recent movement in quantified self is gamification. There is a wide variety of self-tracking technologies that allow everyday activities to be turned into games by awarding points or monetary value to encourage people to compete with their friends. The success of connected sport is part of the gamification movement. People can pledge a certain amount of real or fake money, or receive awards and trophies.

Many of these self-tracking applications or technologies are compatible with each other and other websites so people can share information with one another.[ citation needed ] Each technology may integrate with other apps or websites to show a bigger picture of health patterns, goals, and journaling. [25] For example, one may figure out that migraines were more likely to have painful side effects when using a particular migraine drug. Or one can study personal temporal associations between exercise and mood. [25]

The quantified self is also demonstrating to be a major component of "big data science", due to the amount of data that users are collecting on a daily basis. Although these data set streams are not conventional big data, they become sites for data analysis projects, that could be used in medical-related fields to predict health patterns or aide in genomic studies. Examples of studies that have been done using QS data include projects such as the DIYgenomics studies, the Harvard's Personal Genome Project, and the American Gut Microbiome Project. [26]

Quantified baby

Quantified baby is a branch of the quantified self movement that is concerned with collecting extensive data on a baby's daily activities, and using this data to make inferences about behaviour and health. A number of software and hardware products exist to assist data collection by the parent or to collect data automatically for later analysis. Reactions to quantified baby are mixed. [27] [28]

Parents are often told by health professionals to record daily activities about their babies in the first few months, such as feeding times, sleeping times and diaper changes. [29] This is useful for both the parent (used to maintain a schedule and ensure they remain organised) and for the health professional (to make sure the baby is on target and occasionally to assist in diagnosis).

For quantified self, knowledge is power, and knowledge about oneself easily translates as a tool for self-improvement. [30] The aim for many is to use this tracking to ultimately become better parents. Some parents use sleep trackers because they worry about sudden infant death syndrome. [31]

A number of apps exist that have been made for parents wanting to track their baby's daily activities. The most frequently tracked metrics are feeding, sleeping and diaper changes. Mood, activity, medical appointments and milestones are also sometimes covered. Other apps are specifically made for breastfeeding mothers, or those who are pumping their milk to build up a supply for their baby.

Quantified baby, as in quantified self, is associated with a combination of wearable sensors and wearable computing. The synergy of these is related to the concept of the Internet of things. [28]

Debates and criticism

The quantified self movement has faced some criticism related to the limitations it inherently contains or might pose to other domains. Within these debates, there are some discussions around the nature, responsibility, and outcome of the quantified self movement and its derivative practices. Generally, most bodies of criticism tackle the issue of data exploitation and data privacy but also health literacy skills in the practice of self-tracking. While most of the users engaging in self tracking practices are using the gathered data for self-knowledge and self-improvement, in some cases, self-tracking is pushed and forced by employers onto employees in certain workplace environments, health and life insurers or by substance addiction programs (drug and alcohol monitoring) in order to monitor the physical activity of the subject and analyze the data in order to gather conclusions. Usually the data gathered by this practice of self-tracking can be accessed by commercial, governmental, research and marketing agencies. [32]

The data fetishist critique

Another recurrent line of debate revolves around "data fetishism". Data fetishism is a phenomenon evolving when active users of self-tracking devices become enticed by the satisfaction and sense of achievement and fulfillment that numerical data offer. [33] Proponents of such lines of criticism tend to claim that data in this sense become simplistic, where complex phenomena become transcribed into reductionist data. [34] This reductionist line of criticism generally incorporates fears and concerns with the ways in which ideas on health are redefined, as well as doctor-patient dynamics and the experience of selfhood among self-trackers. Because of such arguments, the quantified self movement has been criticized for providing predetermined ideals of health, well-being and self-awareness. Rather than increasing the personal skills for self-knowledge, it distances the user from the self by offering an inherently normative and reductionist framework. [32]

An alternative line of criticism still linked to the reductionist discourse but still proposing a more hopeful solution is related the lack of health literacy among most of self-trackers. The European Health Literacy Survey Consortium Health defines health literacy as "[...] people's knowledge, motivations, and competencies to access, understand, appraise, and apply health information in order to make judgements and take decisions in everyday life concerning healthcare, disease prevention and health promotion to maintain or improve quality of life during the life course." [35] Generally, people tend to focus mostly on the data collecting stage, while stages of data archiving, analysis and interpretation are often overlooked because of the skills necessary to conduct such processes, which explains the call for the improvement of health literacy skills among self-quantifiers. [36]

The health literacy critique is different from the data-fetishist critique in its approach to data influence on the human life, health and experience. While the data-fetishist critical discourse ascribes a crucial power of influence to numbers and data, the health literacy critique views gathered data as useless and powerless without the human context and the analysis and reflection skills of the user that are needed to act on the numbers. Datum collection alone is not deterministic or normative, according to the health literacy critique. The "know thy numbers to know thyself" slogan of the quantified self movement is inconsistent, it has been claimed, in the sense that it does not fully acknowledge the need for auxiliary skills of health literacy to actually get to "know thyself". [36] The solution proposed by proponents of the health literacy critique in order to improve the practice of self-tracking and its results is a focus on addressing individual and systemic barriers. The individual barriers are faced by elderly citizens when having to deal with contemporary technology or in cases where there is a need for culturally-sound practices while systemic barriers could be overcome when involving the participation of more health literacy experts and the organization of health literacy education. [36]

Burden of tracking

Another challenge of self-tracking is that it can be quite burdensome in the sense that it takes time but also that it can be experienced as a reminder that one is sick. [37] A study exploring self-tracking of Parkinson's disease found recommendations for balanced self-tracking: focusing on positive aspects, using improved tools, and discussing self-tracking results with healthcare providers. [38]

See also

Related Research Articles

<span class="mw-page-title-main">Pedometer</span> Portable device that counts steps a person takes

A pedometer, or step-counter, is a device, usually portable and electronic or electromechanical, that counts each step a person takes by detecting the motion of the person's hands or hips. Because the distance of each person's step varies, an informal calibration, performed by the user, is required if presentation of the distance covered in a unit of length is desired, though there are now pedometers that use electronics and software to determine how a person's step varies automatically. Distance traveled can be measured directly by a GPS receiver.

eHealth describes healthcare services which are supported by digital processes, communication or technology such as electronic prescribing, Telehealth, or Electronic Health Records (EHRs). The use of electronic processes in healthcare dated back to at least the 1990s. Usage of the term varies as it covers not just "Internet medicine" as it was conceived during that time, but also "virtually everything related to computers and medicine". A study in 2005 found 51 unique definitions. Some argue that it is interchangeable with health informatics with a broad definition covering electronic/digital processes in health while others use it in the narrower sense of healthcare practice using the Internet. It can also include health applications and links on mobile phones, referred to as mHealth or m-Health. Key components of eHealth include electronic health records (EHRs), telemedicine, health information exchange, mobile health applications, wearable devices, and online health information. These technologies enable healthcare providers, patients, and other stakeholders to access, manage, and exchange health information more effectively, leading to improved communication, decision-making, and overall healthcare outcomes.

Actigraphy is a non-invasive method of monitoring human rest/activity cycles. A small actigraph unit, also called an actimetry sensor, is worn for a week or more to measure gross motor activity. The unit is usually in a wristwatch-like package worn on the wrist. The movements the actigraph unit undergoes are continually recorded and some units also measure light exposure. The data can be later read to a computer and analysed offline; in some brands of sensors the data are transmitted and analysed in real time.

<span class="mw-page-title-main">Self-care</span> Taking care of ones own health

Self-care has been defined as the process of establishing behaviors to ensure holistic well-being of oneself, to promote health, and actively manage illness when it occurs. Individuals engage in some form of self-care daily with food choices, exercise, sleep, and hygiene. Self-care is not only a solo activity, as the community—a group that supports the person performing self-care—overall plays a role in access to, implementation of, and success of self-care activities.

<span class="mw-page-title-main">Lifelog</span> Personal record of ones daily life

A lifelog is a personal record of one's daily life in a varying amount of detail, for a variety of purposes. The record contains a comprehensive dataset of a human's activities. The data could be used to increase knowledge about how people live their lives. In recent years, some lifelog data has been automatically captured by wearable technology or mobile devices. People who keep lifelogs about themselves are known as lifeloggers.

Fitbit, Inc. is an American consumer electronics and fitness company. It produces wireless-enabled wearable technology, physical fitness monitors and activity trackers such as smartwatches, pedometers and monitors for heart rate, quality of sleep and stairs climbed as well as related software. The company was acquired by Google in January 2021.

<span class="mw-page-title-main">Wearable technology</span> Clothing and accessories incorporating computer and advanced electronic technologies

Wearable technology is any technology that is designed to be used while worn. Common types of wearable technology include smartwatches and smartglasses. Wearable electronic devices are often close to or on the surface of the skin, where they detect, analyze, and transmit information such as vital signs, and/or ambient data and which allow in some cases immediate biofeedback to the wearer.

Withings is a French consumer electronics company headquartered in Issy-les-Moulineaux, France. It also has offices in Boston, Massachusetts, USA, and Hong Kong, and distributes its products worldwide. Withings is known for design and innovation in connected devices, such as the first Wi-Fi scale on the market, an FDA-cleared blood pressure monitor, a smart sleep system, and a line of automatic activity tracking watches. It also provides B2B services for healthcare providers and researchers.

<span class="mw-page-title-main">De-identification</span> Preventing personal identity from being revealed

De-identification is the process used to prevent someone's personal identity from being revealed. For example, data produced during human subject research might be de-identified to preserve the privacy of research participants. Biological data may be de-identified in order to comply with HIPAA regulations that define and stipulate patient privacy laws.

<span class="mw-page-title-main">BodyMedia</span> Technology company

BodyMedia was a medical and consumer technology company headquartered in Pittsburgh, Pennsylvania. Incorporated in 1999, BodyMedia developed wearable body monitoring systems. In April 2013, BodyMedia was acquired by Jawbone for an estimated $100 million.

<span class="mw-page-title-main">Nike+ FuelBand</span>

The Nike+ FuelBand was an activity tracker worn on the wrist and compatible with iPhone, iPad, or Android devices.

Digital health is a discipline that includes digital care programs, technologies with health, healthcare, living, and society to enhance the efficiency of healthcare delivery and to make medicine more personalized and precise. It uses information and communication technologies to facilitate understanding of health problems and challenges faced by people receiving medical treatment and social prescribing in more personalised and precise ways. The definitions of digital health and its remits overlap in many ways with those of health and medical informatics.

Hexoskin is an open data smart shirt for monitoring EKG, heart rate, heart rate variability, breathing rate, breathing volume, actigraphy and other activity measurements like step counting and cadence. Hexoskin allows real-time remote health monitoring on smartphones and tablets using Bluetooth. The smart shirt was created to be used for personal self-experiments, and has also been used by health researchers to study physiology, elite and professional athletes to optimize their physical conditioning, and astronauts to train for space missions.

<span class="mw-page-title-main">Activity tracker</span> Device or application for monitoring fitness

An activity tracker involves the practice of measuring and collecting data on an individual's physical and psychological activity to keep track and maintain documentation regarding their health and wellness. Used for many groups even animals as seen in collar-mounted activity trackers for dogs. A lot of the data is collected through wearable technology such as wristbands which sync with mobile apps through Apple and Samsung. As daily technologies such as phones and computers have been innovated, it paved the way for such wearable tracking technologies to be advanced. There are a variety of stakeholders involved in the usage of activity tracking through wearable technology and mobile health apps, knowing how much they track ranging from fitness, mood, sleep, water intake, medicine usage, sexual activity, menstruation, and potential diseases raises the concern on privacy given a lot of data is collected and analyzed. Through many studies that have been reviewed, data on the various demographics and goals these technologies are used provide more insight into their purposes.

<span class="mw-page-title-main">Instant (app)</span>

Instant is a Quantified Self mobile app for iOS and Android. It tracks the user's phone/app usage, travel, places, fitness and sleep automatically. It puts all this information on a dashboard and gives the user analysed reports based on the data. It is developed by Emberify, founded by Shashwat Pradhan. Instant 4.0 was launched on 13 July 2016 with a Chatbot Coach. The Coach allows users to query data and it also passively analyses the user's trends and correlations.

Bellabeat is a wellness company founded by Urška Sršen and Sandro Mur in 2014. It is best known for its Leaf smart jewelry wearable line. The company has offices in San Francisco, Zagreb and Hong Kong.

Mental health informatics is a branch of health or clinical informatics focused on the use of information technology (IT) and information to improve mental health. Like health informatics, mental health informatics is a multidisciplinary field that promotes care delivery, research and education as well as the technology and methodologies required to implement it.

<span class="mw-page-title-main">Pulse watch</span> Electronic devices

A pulse watch, also known as a pulsometer or pulsograph, is an individual monitoring and measuring device with the ability to measure heart or pulse rate. Detection can occur in real time or can be saved and stored for later review. The pulse watch measures electrocardiography data while the user is performing tasks, whether it be simple daily tasks or intense physical activity. The pulse watch functions without the use of wires and multiple sensors. This makes it useful in health and medical settings where wires and sensors may be an inconvenience. Use of the device is also common in sport and exercise environments where individuals are required to measure and monitor their biometric data.

<span class="mw-page-title-main">Sleep tracking</span> Process of quantitatively measuring a persons sleep

Sleep tracking is the process of monitoring a person's sleep, most commonly through measuring inactivity and movement. A device that tracks a person's sleep is called a sleep tracker. Sleep tracking may be beneficial in diagnosing sleep disorders. As sleep abnormalities are also symptoms of mental illness or relapsing psychotic disorders, it may also be beneficial in diagnosing mental disorders and psychotic disorders as well.

Personal science is a term used by the late psychologist and scientist Seth Roberts, who defined it as: "using science to solve your own problems". Associated fields are self-experimentation and citizen science. The concept has been further developed within the Quantified Self community. The first use of the term in a scientific publication was in 2016, where it was associated with: "an interest in collecting data about their own bodies or lives in order to obtain insights into their everyday health or performance". In 2017, the scientific journal Methods of Information in Medicine published a focus theme on single subject (N-of-1) research design, which also included personal science. The editorial introducing the focus theme is titled "Single Subject (N-of-1) Research Design, Data Processing, and Personal Science" is co-authored by Gary Wolf, who together with Kevin Kelly coined the phrase the quantified self. In the editorial, personal science was described as "self-directed N-of-1 studies". In 2020, Wolf further developed the term together with Martijn de Groot in an article titled "A Conceptual Framework for Personal Science". They defined personal science as "the practice of using empirical methods to explore personal questions". In a 2021 scientific article building on the previous ones, personal science is defined as: "the practice of exploring personally consequential questions by conducting self-directed N-of-1 studies using a structured empirical approach".

References

  1. Ferriss, Tim (2013-04-03). "The First-Ever Quantified Self Notes (Plus: LSD as Cognitive Enhancer?)". The Blog of Author Tim Ferriss. Retrieved 2019-04-18.
  2. Lamkin, Paul (22 February 2018). "Smartwatch Popularity Booms With Fitness Trackers On The Slide". Forbes .
  3. Dorminey, Bruce (2012-05-31). "Tic-Toc-Trac: New Watch Gadget Measures Time Perception For The Self-Quantifying". Forbes.
  4. Wilson, H. James (September 2012). "You, By the Numbers". Harvard Business Review. Retrieved 2015-08-18.
  5. Hill, Kashmir (April 7, 2011). "Adventures in Self-Surveillance, aka The Quantified Self, aka Extreme Navel-Gazing". Forbes.
  6. "Counting every moment". The Economist . March 3, 2012.
  7. Riphagen, Margreet; van Hout, Marco; Krijnen, Dann; Gootjes, Gijs. Learning Tomorrow: Visualising Student and Staff's Daily Activities and Reflect on It (PDF). ICERI2013. Archived from the original (PDF) on 2021-08-10.
  8. US Patent application 20020198685
  9. See also: Photographic images from video using quantimetric processing, doi 10.1145/641007.641032 (PDF). ACM Multimedia. Association for Computing Machinery. 2002.
  10. Swan, Melanie (June 2013). "The Quantified Self: Fundamental Disruption in Big Data Science and Biological Discovery". Big Data. 1 (2): 85–99. doi:10.1089/big.2012.0002. PMID   27442063. S2CID   23309114.
  11. Villarroel, Morris; Frigo, Alberto (2017). Self trackers: Eight Personal Tales of Journeys in Life-logging. CreateSpace. ISBN   978-1545316283.
  12. Singer, Emily. "The Measured Life". MIT . Retrieved 2022-12-05.
  13. Wolf, Gary. "Quantified Self". Gary Wolf. Archived from the original (blog) on 2012-03-20. Retrieved 2012-03-26.
  14. Wolf, Gary (2007). "Quantified Self Blog, oldest entries". quantifiedself.com. Gary Wolf. Archived from the original on 2013-01-17. Retrieved 2012-03-26.
  15. Wolf, Gary. "The quantified self". TED (conference). Archived from the original on 2014-02-22. Retrieved 2012-03-26.
  16. "Invasion of the body hackers". Financial Times . 2011-06-10. Archived from the original on 2012-03-26.
  17. Riggare, Sara; Hägglund, Maria; Bredenoord, Annelien L; de Groot, Martijn; Bloem, Bastiaan R (2021). "Ethical Aspects of Personal Science for Persons with Parkinson's Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?". Journal of Parkinson's Disease. 11 (4): 1927–1933. doi:10.3233/JPD-212647. PMC   8609698 . PMID   34120915.
  18. Hesse, Monica (September 9, 2008). "Bytes of Life". Washington Post. Retrieved 2012-03-26.
  19. Stinson, Ben. "How wearables became the key tech trend of 2014". TechRadar. Retrieved 4 June 2014.
  20. Hayles, Katherine (2007). "Narrative and Database: Natural Symbionts". PMLA. 122 (5).
  21. "The Rise of the 'Quantified Self' in Health Care". The Wall Street Journal.
  22. "Edelman - Conversations - The Quantified Self and Corporate Wellness". 22 February 2013.
  23. "When IoE Gets Personal: The Quantified Self Movement!". 2013-09-10.
  24. Lee, Victor R (1 January 2013). "The Quantified Self (QS) movement and some emerging opportunities for the educational technology field". Educational Technology. 53 (6).
  25. 1 2 Blaauw; et al. (2016). "Let's get Physiqual - an intuitive and generic method to combine sensor technology with ecological momentary assessments" (PDF). Journal of Biomedical Informatics. 63: 141–149. doi: 10.1016/j.jbi.2016.08.001 . PMID   27498066.
  26. Swan, Melanie (June 2013). "THE QUANTIFIED SELF: Fundamental Disruption in Big Data Science and Biological Discovery". Big Data. 1 (2): 85–99. doi:10.1089/big.2012.0002. PMID   27442063. S2CID   23309114.
  27. Heussner, Ki Mae (11 July 2013). "The quantified baby: Do parents really need infant-ready sensor tech?". GigaOM . Retrieved 22 September 2013.
  28. 1 2 Higginbotham, Stacy (18 April 2013). "Podcast: How the internet of things may make parents less worried but more neurotic". GigaOM. Retrieved 22 September 2013.
  29. "Baby's Checkup Schedule". TheBump.com. 2 March 2017.
  30. Wolf, Gary. "The quantified self". TED.com. Archived from the original on 2014-02-22. Retrieved 2012-03-27.
  31. Brooks, Ross (9 September 2013). "Baby Jumpsuit Reports Nighttime Activity Levels To Anxious Parents". PSFK . Retrieved 22 September 2013.
  32. 1 2 Lupton, D. (2016). "Self-tracking, health and medicine". Health Sociology Review. 26 (1): 131–142. doi: 10.1080/14461242.2016.1228149 . JSTOR   3118752. OCLC   994607553.
  33. Sharon & Zandbergen, T. & D. (2016). "From data fetishism to quantifying selves: Self-tracking practices and the other values of data". New Media & Society. 19 (11): 1695–1709. doi:10.1177/1461444816636090. JSTOR   3118752. OCLC   6009672325. S2CID   36561470.
  34. Lupton, D. (2015). "Quantified sex: a critical analysis of sexual and reproductive self-tracking using apps". Culture, Health & Sexuality. 17 (4): 440–453. doi:10.1080/13691058.2014.920528. JSTOR   3118752. OCLC   913515573. PMID   24917459. S2CID   39178456.
  35. Sorensen, K (2012). "Health literacy and public health: a systematic review and integration of definitions and models". BMC Public Health. 12 (80): 80. doi: 10.1186/1471-2458-12-80 . PMC   3292515 . PMID   22276600.
  36. 1 2 3 Vamos S. & Klein K. (2016). "Our self-tracking movement and health literacy: are we really making every moment count?". Global Health Promotion . 25 (2): 85–89. doi:10.1177/1757975916660674. PMID   27488673. S2CID   41543694.
  37. "Patients cannot do it alone: A cross-case study of a patient-driven mHealth innovation in cystic fibrosis". JMIR Preprints. Retrieved 2024-02-08.
  38. Riggare, Sara; Scott Duncan, Therese; Hvitfeldt, Helena; Hägglund, Maria (December 2019). ""You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease". BMC Medical Informatics and Decision Making. 19 (1): 175. doi: 10.1186/s12911-019-0896-7 . ISSN   1472-6947. PMC   6716928 . PMID   31470832.