The Indian Stammering Association

Last updated
The Indian Stammering Association
Founded2009
TypeCommunity Service
Focus People who stammer
Location
Area served
Bangalore Mumbai Surat Jammu Herbertpur Goa Pune Delhi Chennai Meerut Hyderabad Kolkata Chandigarh Jaipur Ahmedabad Indore
Website stammer.in

The Indian Stammering Association (TISA) is a public charitable trust and self-help movement for people in India who stammer. In India a person who stammers (PWS) faces stigma at home and in public, as often parents chide their children publicly, and social acceptance is not high.

Contents

Background

An estimated 11 to 12 million people in India stammer. [1] [2] [3] Stammering is a physiological disorder. [4] The World Health Organization classifies stuttering (stammering) in its section F98.5, "Mental and behavioural disorders", where it is defined as "Speech that is characterised by frequent repetition or prolongation of sounds or syllables or words, or by frequent hesitations or pauses that disrupt the rhythmic flow of speech. It should be classified as a disorder only if its severity is such as to markedly disturb the fluency of speech." [5] However, as India has a shortage of good speech therapists, speech therapy is expensive and the government of India does not officially recognise the condition as a handicap. [6] [7] Those who stutter face problems getting jobs as well as barriers to career growth, resulting in feelings of shame, guilt, and fear of not being accepted within an organisation. [1] Many stammering people avoid talking and prefer to communicate by writing, text or e-mail, as they may be unable to enunciate even simple words. [1]

Formation

International Stuttering Awareness Day Ribbon Isad ribbon.gif
International Stuttering Awareness Day Ribbon

TISA grew out of an e-network managed by Viren Gandhi from Mumbai operated through a Yahoo group initiated on 3 April 2001 by Dr. Satyendra K Srivastava, an Indian PWS. [1] The blog, called "Haqlana" (Hindi for stammer), where Srivastava first went public with his condition and was joined later by members responding from across the country, raised awareness that real-time experiences, like difficulty in answering when attendance is taken in schools, job interview difficulties, and fear of social boycott, were widespread. [8] By late 2010, the group had 576 members, contributing almost 6,000 posts on issues including speech therapy reviews, self-help tips, and emotional support. One experience Dr. Satyendra recalls from his childhood is when he found it difficult to buy bus tickets, and when riding would call out a stop before or after his intended stop instead of where he wanted, then reached his desired location by other means. [8] Srivastava currently counsels various young boys and girls whose e-mail queries seek help, as well as anxious parents about the dilemmas their affected children face. [1]

Some group members met in person for the first time in Mumbai on 13 April 2008, where they determined to start a self-help association to be named The Indian Stammering Association. [9] TISA started a blog on 9 May 2008, the first Indian blog about stammering in open public internet space, unlike chat groups, which required registration and were open primarily to those who stammer. [10]

There had been parallel and/or preceding attempts by Indians to address coping with stammering. Inspired by Keith Boss, a trustee of the British Stammering Association and board member of the International Stuttering Association, a small group of Indians started an internet group. One Indian PWS contributed to International Stammering Awareness Day in 2006 [11] and another attended the world congress in Croatia in 2007. A group in Chennai had been meeting under the statute of Mahatma Gandhi on the Marina Beach from 2001. The Samagra Trust also helped TISA in its formative years by, among other things, publishing a booklet on stammering. [12]

The Indian Stammering Association launched its official website on 15 August 2009 and was formally registered as Public Charitable Trust No. 6055 on 13 November 2009. The trust's head office is located at Herbertpur, Dehradun, Uttarakhand, India. By October 2020, the body grew to include self-help groups, online courses, daily virtual meetings, counseling, communication workshops, and other support, and has over 8,000 active members from places like Pune, Jaipur, and Lucknow as well as metro cities. [8] [13]

Activities

The trust has conducted self-help workshops in various Indian cities, based on acceptance, breathing techniques and CALMS approach. A model of the workshop is freely available on the internet. [14] TISA promotes self-help groups in different cities and has made available a self-help manual that combines the modern approach to stammering with eastern concepts of self-acceptance. It also produces a newsletter. [15] [16] [17] [18] TISA is also participating in genetic research into stammering in India. [19] TISA organised a three-day National Conference at IHS, Bhubaneshwar (31st Dec 2011 to 2nd Jan 2012). [20] Twenty five participants from different parts of the country learned from each other, shared experiences and did sightseeing. Dr. Satya Mahapatra and Dr. Elaine Robin from the National Stuttering Association (USA) gave the inaugural address and shared their wisdom with participants over the three days. [20] In 2019, Hrithik Roshan, an Indian Film industry Bollywood superstar, agreed to become the organisation's brand ambassador. [21]

Self-help groups

Groups are open to those taking speech therapy from any source, and are facilitated by a volunteer PWS. The facilitator provides the opportunity for members to practise communication skills in a group setting, to offer and receive counseling, and to gather information about techniques and therapists. TISA recommends that self-help groups limit themselves to no more than 12 participants (with no minimum). Cities with TISA self-help groups include Bangalore, Mumbai, Surat, Jammu, Herbertpur, Goa, Pune, Delhi, Chennai, Dehradun, Meerut, Hyderabad, Kolkata, Chandigarh, Jaipur, Ludhiana and Ahmedabad. [22]

TISA's self-help communication workshops last from three to ten days, depending on participant needs and time availability. These workshops are based on acceptance: Even though I stammer, I accept myself wholeheartedly, because there is an inner perfection in me. Breathing techniques based on Pranayama are introduced to aid in relaxation and to speech driven by belly breathing. Western techniques are also incorporated, [23] as well as the four techniques, adapted from a book by Peter Reitzes, [24] among other sources. Accepting and serving other PWS is an important concluding theme in the workshop. Some participants have started their own self-help groups after the workshop. [25] [26] [27]

Members also interact through many communities (where they are known by their nicknames) including three on the social-networking site Orkut, and several e-groups for PWS where they discuss their lives and problems and comfort and support each other, knowing that no one is alone and that the condition is common. [1]

Advocacy

In October 2010, TISA filed a public interest writ petition against the director and producers of the film Golmaal 3 and the censor board of India at Uttarakhand High Court, objecting to the film's portrayal of stammerers as objects of ridicule, on the ground that this promoted discrimination, teasing and bullying of people who stammer. [28] [29] [30]

Philosophy

TISA philosophy consists of two precepts: "Accept stammering and work on communication".

See also

Related Research Articles

Stuttering, also known as stammering, is a speech disorder characterized externally by involuntary repetitions and prolongations of sounds, syllables, words, or phrases as well as involuntary silent pauses called blocks in which the person who stutters is unable to produce sounds.

A communication disorder is any disorder that affects an individual's ability to comprehend, detect, or apply language and speech to engage in dialogue effectively with others. This also encompasses deficiencies in verbal and non-verbal communication styles. The delays and disorders can range from simple sound substitution to the inability to understand or use one's native language. This article covers subjects such as diagnosis, the DSM-IV, the DSM-V, and examples like sensory impairments, aphasia, learning disabilities, and speech disorders.

Speech disorders, impairments, or impediments, are a type of communication disorder in which normal speech is disrupted. This can mean fluency disorders like stuttering, cluttering or lisps. Someone who is unable to speak due to a speech disorder is considered mute. Speech skills are vital to social relationships and learning, and delays or disorders that relate to developing these skills can impact individuals function. For many children and adolescents, this can present as issues with academics. Speech disorders affect roughly 11.5% of the US population, and 5% of the primary school population. Speech is a complex process that requires precise timing, nerve and muscle control, and as a result is susceptible to impairments. A person who has a stroke, an accident or birth defect may have speech and language problems.

Cluttering is a speech and communication disorder characterized by a rapid rate of speech, erratic rhythm, and poor syntax or grammar, making speech difficult to understand.

The European League of Stuttering Associations (ELSA) was set up in 1990 by organisations in 12 countries to promote a greater knowledge and understanding of stuttering and to bring together, as a top umbrella organisation, the national stuttering self-help organisations of Europe.

The Tisa is a river in Central Europe.

<span class="mw-page-title-main">Speech–language pathology</span> Disability therapy profession

Speech–language pathology is a healthcare and academic discipline concerning the evaluation, treatment, and prevention of communication disorders, including expressive and mixed receptive-expressive language disorders, voice disorders, speech sound disorders, speech disfluency, pragmatic language impairments, and social communication difficulties, as well as swallowing disorders across the lifespan. It is an allied health profession regulated by professional bodies including the American Speech-Language-Hearing Association (ASHA) and Speech Pathology Australia. The field of speech-language pathology is practiced by a clinician known as a speech-language pathologist (SLP) or a speech and language therapist (SLT). SLPs also play an important role in the screening, diagnosis, and treatment of autism spectrum disorder (ASD), often in collaboration with pediatricians and psychologists.

<span class="mw-page-title-main">Jaik Campbell</span> British comedian

Jaik Campbell is a British comedian, and an Edinburgh Festival Fringe regular since 2001 and performed his first solo show "I've Stuttered So I'll F-F-Finish" in 2005. He performs stand-up regularly in London at prestigious venues such as The Comedy Store, Banana Cabaret and Headliners, and has appeared on BBC and ITV television. Campbell performed a new show "L-L-Lost for Words: My Life with a Stutter" at the 2007 Edinburgh Festival Fringe.

<span class="mw-page-title-main">Electronic fluency device</span> Devices intended to improve the fluency of persons who stutter

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There are many references to stuttering in popular culture. Because of the unusual-sounding speech that is produced, as well as the behaviors and attitudes that accompany a stutter, stuttering has been a subject of scientific interest, curiosity, discrimination, and ridicule.

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Charles Gage Van Riper was a renowned speech therapist who became internationally known as a pioneer in the development of speech pathology. A severe stutterer throughout his career, he is described as having had the most influence of any speech-language pathologist in the field of stuttering.

Speech and language impairment are basic categories that might be drawn in issues of communication involve hearing, speech, language, and fluency.

<i>Golmaal 3</i> 2010 Indian film

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The British Stammering Association (BSA), trading as Stamma since 2019, is a national membership organisation in the United Kingdom for adults and children who stammer, their friends and families, speech and language therapists and other professionals. It became a charity in 1978 and is based in London. The mission of the charity is to support anyone who stammers in the UK and tackle the stigma, ignorance and discrimination that people who stammer face so that they can live their lives in full and with dignity. It describes stammering as a neurological condition and estimates that up to 3% of adults in the UK have a stammer.

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References

  1. 1 2 3 4 5 6 Suryanarayan, Deepa (January 4, 2010). "Who needs help, he who stammers or he who doesn't?". Daily news and analysis. Mumbai- India. Retrieved 23 November 2010.
  2. ↑ Sheth, Dr Parul R (October 22, 2010). "Stuttering challenges". Times of India—Times Wellness.com. Retrieved 28 November 2010.
  3. ↑ Olwoch, Anthony; Okwera, Oyet (6 June 2010). "Speech Defect - Tension, anxiety trigger stammering". New Vision. Retrieved 23 November 2010.
  4. ↑ K.Lakshmi and R.Sujatha (January 20, 2010). "Tongue-tied for fear of stammering? Shed myths Health & Lifestyle". The Hindu . Chennai. Archived from the original on January 22, 2009. Retrieved 28 November 2010.
  5. ↑ "ICD Version 2007—Mental and behavioural disorders". WHO. Retrieved 28 November 2010.
  6. ↑ Suryanarayan, Deepa; Madhoomita Mookerji (April 14, 2008). "Speech therapy is extremely expensive". Daily news and analysis. Mumbai. Retrieved 28 November 2010.
  7. ↑ Bhanushali, Kishor. "Defining Disabilities: NSSO v/s Census". Disability India Network. Retrieved 26 November 2010.
  8. 1 2 3 Ahuja, Simran (22 January 2020). "'Need to be open about stammering'". The New Indian Express. Retrieved 21 April 2021.
  9. ↑ Boss, Keith (July 2008). "Work in outreach" (PDF). One Voice (25): 3–4. Retrieved 21 November 2010.
  10. ↑ "Yahoo | Mail, Weather, Search, Politics, News, Finance, Sports & Videos". Archived from the original on July 10, 2012.
  11. ↑ Sachan, Prakhar (12 August 2006). "Influence of Stuttering on Career Decisions: A Personal Story". mnsu.edu. Retrieved 23 November 2010.
  12. ↑ Srivastava, Satyendra. "Samagra Publications" . Retrieved 26 November 2010.
  13. ↑ "Do you stutter? Tips on living with it and feeling better about yourself". 21 October 2020. Retrieved 21 April 2021.
  14. ↑ "Communication Workshop for People Who Stammer (PWS)". The Indian Stammering Association. 7–17 January 2010. Retrieved 23 November 2010.
  15. ↑ "Stammering for Dummies: A self-help manual from The Indian Stammering Association". The Indian Stammering Association. 10 March 2009. Retrieved 23 November 2010.
  16. ↑ "Finding ways to attain eloquence". The Hindu . 23 February 2010. Archived from the original on 13 January 2011. Retrieved 20 November 2010.
  17. ↑ Alvi, Naziya (22 October 2009). "Hiding makes problem worse". Hindustan Times. Archived from the original on January 25, 2013. Retrieved 20 November 2010.
  18. ↑ Suryanarayan, Deepa; Mookerji, Madhoomita (14 April 2008). "Conversation, interrupted". dnaindia.com. Retrieved 20 November 2010.
  19. ↑ Ramanan, Revathi (24 January 2011). "Stammering a genetic disorder: Expert". The Times of India . Archived from the original on 4 November 2012. Retrieved 30 January 2011.
  20. 1 2 "First NC Report: Expert" (PDF). stammer.in. 24 January 2012.
  21. ↑ "Hrithik Roshan to become brand ambassador of The Indian Stammering Association (TISA)". Firstpost. 17 March 2019. Retrieved 21 April 2021.
  22. ↑ Mathai, Kamini TISA Chennai Chapter inaugurated! , quoted in The Times of India, 21 January 2009.  Accessed 22 November 2010.
  23. ↑ George, Mary; McHugh, Megan. "CALMS Method of Assessment/Treatment". mnsu.edu. Retrieved 23 November 2010.
  24. ↑ Reitzes, Peter. "50 Great Activities for Children Who Stutter" . Retrieved 26 November 2010.
  25. ↑ Mandal, Manidipa (February 9, 2010). "Stuck in a Stutter?". livemint.com, Wall Street Journal. Retrieved 28 November 2010.
  26. ↑ BASU, RITH (April 19, 2010). "Self-help group for speech problem". Calcutta, India: The Telegraph. Archived from the original on February 4, 2013. Retrieved 28 November 2010.
  27. ↑ "TISA SHG in Indore".
  28. ↑ Shah, Kunal M (November 16, 2010). "Golmaal 3 sued!". The Times of India . Mumbai. Archived from the original on November 4, 2012. Retrieved 28 November 2010.
  29. ↑ Bhatti, Sharin, Golmaal 3 sued, Shreyas Talpade shocked! Archived 2011-05-15 at the Wayback Machine . Hindustan Times, 18 November 2010. Accessed 21 November 2010.
  30. ↑ Agencies (15 November 2010). "Shreyas' stammer becomes issue of contention". Indian Express News Service. Retrieved 23 November 2010.
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