Type | Non-profit organization |
---|---|
Location | |
Services | DLA manages and promotes Donate Life℠, the national brand for the cause of donation; motivates the public to register as organ, eye and tissue donors; provides education about living donation; manages the National Donate Life Registry at RegisterMe.org; and develops and executes effective multi-media campaigns to promote donation. |
Website | https://www.donatelife.net/ |
Donate Life America (DLA) is a 501(c)(3) nonprofit organization leading its national partners and Donate Life State Teams to increase the number of donated organs, eyes and tissues available to save and heal lives through transplantation while developing a culture where donation is embraced as a fundamental human responsibility.
DLA manages and promotes Donate Life, the national brand for the cause of donation; motivates the public to register as organ, eye and tissue donors; provides education about living donation; manages the National Donate Life Registry at RegisterMe.org; and develops and executes effective multi-media campaigns to promote donation.
Founded as the Coalition on Donation in 1992 by the donation and transplantation community, Donate Life America changed its name in 2006 in response to extensive research and the desire to align the organization with the Donate Life brand. Over the past 25 years, Donate Life America and the Donate Life Community have registered nearly 145 million organ, eye and tissue donors in the United States – more than 58% of the adult population.
The current President and CEO of Donate Life America is David Fleming. [1]
In 2003, Donate Life America helped institute National Donate Life Month, which was first officially proclaimed by President George W. Bush. [2] More recently, Donate Life America has launched awareness campaigns targeted at millennials through digital outreach and social media campaigns. [3] [4] Some examples of this are the 2012 campaign on Facebook, the 2016 "World's Biggest A**hole" Coleman Sweeney video campaign and the partnership with Apple to offer the donor registration opportunity on iPhone in the Health App. [5] [6]
Donate Life America manages the National Donate Life Registry.
The National Donate Life Registry was launched in 2015 with the goal of making donor registration an easy, secure and mobile-friendly process across the nation. Having a national registry allows Donate Life America to work with national partners like Apple and Walgreens to make registration available to people through commonly-used phone apps.
Registering the decision to be an organ, eye and tissue donor in the National Donate Life Registry ensures donor registration travels with individuals wherever they are.
Every April, Donate Life America focuses national attention through National Donate Life Month (NDLM) on how every individual has the potential to make life possible by registering their decision to be an organ, eye and tissue donor and by considering being a living donor.
Donate Life America creates artwork for National Donate Life Month that illustrates the power of donation. National Donate Life Month was established by Donate Life America and its partnering organizations in 2003. Celebrated in April each year, NDLM features an entire month of local, regional and national activities to help encourage Americans to register as organ, eye and tissue donors and to celebrate those that have saved lives through the gift of donation.
For the 2019 National Donate Life Month theme, Donate Life America was inspired by bicycles and the phrase "Life is a beautiful ride". Like the donation and transplantation journey, a bicycle serves as a symbol of progress, renewal and the moving circle of life.
Bicycles come in all styles, shapes and sizes, but each is made of the same components, essential to supporting the rider and converting their energy into motion. Similarly, organ, eye and tissue donation offers many ways to give hope, support and strength to patients waiting, recipients and donor families. All people carry the potential to help make life a beautiful ride for others by registering as a donor, considering living donation, being a caregiver and championing the cause.
Key elements of National Donate Life Month include National Donate Life Blue & Green Day and National Pediatric Transplant Week.
On National Donate Life Blue & Green Day, the public is encouraged to wear blue and green, hold events and fundraisers, and partner with local restaurants, malls, media, and community organizations in an effort to spread awareness about organ, eye and tissue donation and transplantation.
National Pediatric Transplant Week, observed annually the last full week of April, focuses on ending the pediatric transplant waiting list. Throughout the week, clinical partners share their innovative work and patient stories (candidates and recipients), donor families whose children have saved and healed lives through organ, eye, and tissue donation are honored, and recipient families share their thanks and celebrate milestones.
ECHO Donate Life, observed annually for two weeks in July, is an important aspect of this organization, "this National Observance was started with the aim of giving voice to the experience of multicultural communities with donation and transplantation," says Bobby Howard, DLA board member and past president of AMAT. "To increase our educational outreach efforts and donor registrations, voices and stories from these communities need to be heard." [7]
National DMV Appreciation Week, observed annually the last week of September, was created by DLA in 2016 to thank DMVs and recognize them for their commitment to the Donate Life mission through national and local events and outreach.
National Donor Sabbath, observed annually two weekends before Thanksgiving, Friday-Sunday, seeks to engage all major religions in the United States. It is a time for congregations to learn more about the critical shortage, celebrate life and pray for those affected by donation and transplantation.
Various organ donation advocacy groups exist in the United States, including lobbying organizations including the Youth Coalition for Organ Donation [9] and the Organ Donation Advocacy Group [10] .
Non-lobbying organizations also exist, which primarily focus on increasing awareness. These include One8Fifty [11] , the Chris Klug Foundation [12] , Donate Life Hollywood [13] , and the Organ Donation and Transplantation Alliance [14] .
Each state has a donate life chapter in the US, with varying degrees of reach and membership. [15]
DLA Works with 560 Organ Procurement Organizations (OPOs) across the United States, and a full list can be found on their website. [16]
Organ donation is the process when a person allows an organ of their own to be removed and transplanted to another person, legally, either by consent while the donor is alive or dead with the assent of the next of kin.
Organ transplantation is a medical procedure in which an organ is removed from one body and placed in the body of a recipient, to replace a damaged or missing organ. The donor and recipient may be at the same location, or organs may be transported from a donor site to another location. Organs and/or tissues that are transplanted within the same person's body are called autografts. Transplants that are recently performed between two subjects of the same species are called allografts. Allografts can either be from a living or cadaveric source.
The Uniform Anatomical Gift Act (UAGA), and its periodic revisions, is one of the Uniform Acts drafted by the National Conference of Commissioners on Uniform State Laws (NCCUSL), also known as the Uniform Law Commission (ULC), in the United States with the intention of harmonizing state laws between the states.
Canadian Blood Services is a non-profit charitable organization that is independent from the Canadian government. The Canadian Blood Services was established as Canada's blood authority in all provinces and territories except for Quebec in 1998. The federal, provincial and territorial governments created the Canadian Blood Services through a memorandum of understanding. Canadian Blood Services is funded mainly through the provincial and territorial governments.
Eye banks recover, prepare and deliver donated eyes for cornea transplants and research. The first successful cornea transplant was performed in 1905 and the first eye bank was founded in 1944. Currently, in the United States, eye banks provide tissue for over 80,000 cornea transplants each year to treat conditions such as keratoconus and corneal scarring. In some cases, the white of the eye (sclera) is used to surgically repair recipient eyes. Unlike other organs and tissues, there is an adequate supply of corneas for transplants in the United States, and excess tissue is exported internationally, where there are shortages in many countries, due to greater demand and a less-developed eye banking infrastructure.
Body donation, anatomical donation, or body bequest is the donation of a whole body after death for research and education. Donated bodies are mostly used for medical education and research. They are used for gross anatomy, surgical anatomy and for furthering medical education. For years, only medical schools accepted bodies for donation, but now private programs also accept donors. Depending on the program's need for body donation, some programs accept donors with different specifications.
The Australian Organ Donor Register (AODR) is a government register, recording individuals who have agreed to donate organs and tissues in the event of their death. The register is operated by the Organ and Tissue Authority (OTA) and Services Australia through Medicare.
The United Network for Organ Sharing (UNOS) is a non-profit, scientific and educational organization that administers the only Organ Procurement and Transplantation Network (OPTN) in the United States, established by the U.S. Congress in 1984 by Gene A. Pierce, founder of United Network for Organ Sharing. Located in Richmond, Virginia, the organization's headquarters are situated near the intersection of Interstate 95 and Interstate 64 in the Virginia BioTechnology Research Park.
The National Marrow Donor Program (NMDP) is a nonprofit organization founded in 1986 and based in Minneapolis, Minnesota, that operates the Be The Match Registry of volunteer hematopoietic cell donors and umbilical cord blood units in the United States.
On October 19, 1984, the Congress of the United States approved the National Organ Transplant Act (NOTA). It not only established the framework for the U.S. organ transplant system but has served as a model for development of other transplant networks worldwide. Through the establishment of a national Organ Procurement and Transplantation Network (OPTN), the law directed that organ allocation would be managed on a national basis and be developed through a unique public-private partnership. Since the initial network contract was finalized in 1986, United Network for Organ Sharing (UNOS) has served as the OPTN under contract with the U.S. Department of Health and Human Services. OPTN policies are developed by a broad community that includes donation and transplant clinicians and professionals, as well as people personally touched by the donation and transplant experience. NOTA and subsequent federal regulation call on the OPTN to emphasize fair and equitable patient access to transplantation, as well as reliance on objective medical evidence and adaptability to rapid evolution in clinical treatment and scientific understanding. Many of the OPTN’s responsibilities, priorities and policies have changed over the years. Yet the lifesaving gift organ donation, and the continuing need of candidates awaiting a transplant, remain the same today as they did 30 years ago. To fulfill the ultimate goals of NOTA, we must continue to ensure that the national transplant network allocates organs efficiently and fairly. We must also build public knowledge and trust in organ donation to help increase transplant opportunities for everyone in need.
The National Organization for Organ and Tissue Donation and Transplant (NOD-Lb) is a Lebanese non-profit organization affiliated to the Lebanese Ministry of Public Health. NOD-Lb was created by a joint venture between the Ministry of Public Health and the Lebanese Order of Physicians in Beirut.
The Gift of Life Marrow Registry is a public bone marrow and blood stem cell registry headquartered in Boca Raton, Florida. Gift of Life facilitates transplants for children and adults suffering from life-threatening illnesses, including leukemia, lymphoma, other cancers and genetic diseases.
The Ontario Online Donor Registry is a website where Ontario residents, age 16 and older, can register their consent to be an organ and tissue donor. This registry was created to help ease questions and ambiguities with organ donor wishes. The virtual registry also increases Ontario donations with increased accessibility. The registration process can be done through beadonor.ca. Online donor registries have also become popular in the United States, where one can register through Donate Life America; Malaysia, registering through their National Transplant Registry; and Saudi Arabia, registering through the Saudi Center for Organ Transplantation.
In the United States, an organ procurement organization (OPO) is a non-profit organization that is responsible for the evaluation and procurement of deceased-donor organs for organ transplantation. There are 58 such organizations in the United States, each responsible for organ procurement in a specific region, and each a member of the Organ Procurement and Transplantation Network (OPTN), a federally mandated network created by and overseen by the United Network for Organ Sharing (UNOS). The individual OPOs represent the front-line of organ procurement, having direct contact with the hospital and the family of the recently deceased donor. Once the OPO receives the consent of the decedent's family, it works with UNOS to identify the best candidates for the available organs, and coordinates with the surgical team for each organ recipient.
MOHAN Foundation is a not-for-profit, registered non-government charity organisation in India that works in the field of deceased organ donation and transplantation. MOHAN is an acronym for Multi Organ Harvesting Aid Network. It has offices in Chennai, Hyderabad, Bengaluru, Delhi, Mumbai, Chandigarh, Nagpur, Jaipur and information centers at Kerala and Imphal.
Organ donation is when a person gives their organs after they die to someone in need of new organs. Transplantation is the process of transplanting the organs donated into another person. This process extends the life expectancy of a person suffering from organ failure. Unfortunately the number of patients requiring organ transplants outweighs the number of donor organs available.
Kidney Paired Donation (KPD) or Paired Exchange, is an approach to living donor kidney transplantation where patients with incompatible donors swap kidneys to receive a compatible kidney. KPD is used in situations where a potential donor is incompatible. Because better donor HLA and age matching are correlated with lower lifetime mortality and longer lasting kidney transplants, many compatible pairs are also participating in swaps to find better matched kidneys. In the United States, the National Kidney Registry organizes the majority of U.S. KPD transplants, including the largest swaps. Swaps involving more than two recipients are termed a kidney chain. The first large swap was a 60 participant chain in 2012 that appeared on the front page of the New York Times and the second, even larger swap, included 70 participants and was completed in 2014. Other KPD programs in the U.S. include the UNOS program which was launched in 2010 and completed its 100th KPD transplant in 2014 and the Alliance for Paired Donation.
BC Transplant Society (BCTS) founded in 1985 is now an agency of Provincial Health Services Authority (PHSA) in the Canadian province of British Columbia that registers consent to be donors of organs for Organ transplantation.
Organ transplantation in the Indian state of Tamil Nadu is regulated by India's Transplantation of Human Organs Act, 1994 and is facilitated by the Transplant Authority of Tamil Nadu (TRANSTAN) of the Government of Tamil Nadu and several NGOs. Tamil Nadu ranks first in India in deceased organ donation rate at 1.8 per million population, which is seven times higher than the national average.
The Youth Coalition for Organ Donation is a multinational nonpartisan. NY-based 501(c)(4) lobbying group formed with the goal of increasing the number of organ donations in the US. The YCOD promotes organ donation through various online campaigns, including social media messaging, news appearances, and public lobbying campaigns.