Jim Sinclair (activist)

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Jim Sinclair
Born
James Sinclair [1]

United States
Other namesToby
Alma mater Syracuse University
OccupationsActivist, writer
Known for Autism Network International

James Sinclair is an American autistic activist and writer who helped pioneer the neurodiversity movement. [2] Sinclair, along with Xenia Grant and Donna Williams, formed Autism Network International (ANI). [3] Sinclair became the original coordinator of ANI. [4] Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured. [5] Sinclair is intersex. [6] [7]

Contents

Biography

Sinclair is Jewish and grew up with a mother, a father, and a brother. At a very young age, Sinclair identified with other disabled people. They saw a blind man walking with a cane and imitated him with a cane found in his grandparents' basement. When Sinclair was six years old, they played with a set of Johnny West action figures with their brother. If one of the arms came loose, Sinclair would secure it by turning the lasso into an improvised sling. For another figure that broke, Sinclair fashioned a wheelchair for it. Jim explained that "from very early on, I had the concept that you don't throw people away for being broken". [8]

Sinclair has said that they did not speak until age 12. [5] Sinclair was raised as a girl, but describes having an intersex body, [9] and in a 1997 introduction to the Intersex Society of North America, Sinclair wrote, "I remain openly and proudly neuter, both physically and socially." [10] Sinclair appeared on the The Sally Jessy Raphael Show as a guest with the alias "Toby" to talk about being intersex and asexual. [11]

In 1998, Sinclair was a graduate student of rehabilitation counseling at Syracuse University in Syracuse, New York. [4] [12]

Sinclair was the first person to "articulate the autism rights position". [2] In their book "Don't Mourn for Us", he uses He/him and Xe/xem pronouns. [13] [14]

Views

In 1993, Sinclair wrote the essay "Don't Mourn for Us" (1993) with an anti-cure perspective on autism. [15] The essay has been mentioned in The New York Times [5] and New York magazine. [2] In the essay, Sinclair writes,

You didn't lose a child to autism. You lost a child because the child you waited for never came into existence. That isn't the fault of the autistic child who does exist, and it shouldn't be our burden. We need and deserve families who can see us and value us for ourselves, not families whose vision of us is obscured by the ghosts of children who never lived. Grieve if you must, for your own lost dreams. But don't mourn for us. We are alive. We are real. [15]
—Jim Sinclair, "Don't Mourn for Us", Our Voice, Vol. 1, No. 3, 1993

Sinclair also expresses their frustration with the double standard autistic people face, such as being told their persistence is "pathological" when neurotypical people are praised for their dedication to something important to them. [12] Sinclair has criticized the medical view that autistic people have deficits in social skills, arguing that autistic people can be compared to a different culture in a neurotypical-dominated society. [16]

Sinclair is the first documented autistic person to reject people-first language. [7]

Autreat

Sinclair established and ran Autism Network International, also known as Autreat, the first independent autistic-run gathering, [17] for fifteen years.

See also

References

  1. "Stories from the Spectrum: James Sinclair". National Autistic Society . Retrieved January 8, 2026.
  2. 1 2 3 Solomon, Andrew (May 25, 2008). "The Autism Rights Movement". New York Magazine . Retrieved June 28, 2008.
  3. Shapiro, Joseph (June 26, 2006). "Autism Movement Seeks Acceptance, Not Cures". NPR . Retrieved February 29, 2016.
  4. 1 2 "Information About Presentations". Autreat . 1998. Retrieved January 12, 2024.
  5. 1 2 3 Harmon, Amy (December 20, 2004). "How About Not 'Curing' Us, Some Autistics Are Pleading". The New York Times . p. 2. Archived from the original on October 29, 2014. Retrieved November 7, 2007.
  6. "Personal Voices-Toby: An Asexual Person". Ace Archive. Archived from the original on March 6, 2024.
  7. 1 2 Pripas-Kapit, Sarah (2020), Kapp, Steven K. (ed.), "Historicizing Jim Sinclair's "Don't Mourn for Us": A Cultural and Intellectual History of Neurodiversity's First Manifesto", Autistic Community and the Neurodiversity Movement: Stories from the Frontline, Springer, pp. 23–39, doi: 10.1007/978-981-13-8437-0_2 , ISBN   978-981-13-8437-0
  8. Silberman, Steve (2015). NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. Avery An Imprint of Penguin Random House. pp. 432–434. ISBN   978-0-399-18561-8.
  9. Leith, Sam (February 16, 2013). "Family Differences". The Spectator . Archived from the original on March 6, 2016. Retrieved March 2, 2016.
  10. Sinclair, Jim (1997). "Self-introduction to the Intersex Society of North America". Syracuse University. Archived from the original on February 7, 2009. Retrieved June 28, 2011.
  11. "Sally Jesse Raphael interviews Toby, a neuter, genderless person (1989)". YouTube. Retrieved September 26, 2024.
  12. 1 2 "Learning to Live With Autism" . Syracuse Herald Journal . August 16, 1999. Retrieved March 2, 2016.
  13. Seigler, Aviva (September 29, 2020). "Autistic History: Jim Sinclair". Aviva Seigler. Retrieved June 25, 2025.
  14. "Historicizing Jim Sinclair's "Don't Mourn for Us": A Cultural and Intellectual History of Neurodiversity's First Manifesto". ResearchGate. Archived from the original on April 5, 2025. Retrieved June 25, 2025.
  15. 1 2 Sinclair, Jim (1993). "Don't mourn for us". Autreat . Retrieved August 11, 2014.
  16. Sinclair, Jim (February 22, 2010). "Being Autistic Together". Disability Studies Quarterly . 30 (1). doi: 10.18061/dsq.v30i1.1075 . ISSN   2159-8371.
  17. Ari, Ne'eman (2019). "The Neurodiversity Movement". In Rembis, Michael A. (ed.). Disability: A Reference Handbook. Contemporary world issues. Santa Barbara, California: ABC-CLIO, LLC. pp. 99–104. ISBN   978-1-4408-6229-8.