List of people with motor neuron disease

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This is a list of notable people who have or had motor neuron diseases, a group of rare neurodegenerative disorders that selectively affect motor neurons, the cells which control voluntary muscles of the body. This includes amyotrophic lateral sclerosis (ALS), progressive bulbar palsy (PBP), pseudobulbar palsy, progressive muscular atrophy (PMA), primary lateral sclerosis (PLS), spinal muscular atrophy (SMA) and monomelic amyotrophy (MMA), as well as some rarer variants resembling ALS.

Contents

Living

Singer Roberta Flack was forced to end her 54 year singing career upon her diagnosis with ALS in 2022. Roberta Flack, 2008.jpg
Singer Roberta Flack was forced to end her 54 year singing career upon her diagnosis with ALS in 2022.
NFL football player Steve Gleason chronicled his experiences with ALS in the documentary Gleason. He was awarded the Congressional Gold Medal for his contributions to ALS awareness. Steve Gleason (cropped).jpg
NFL football player Steve Gleason chronicled his experiences with ALS in the documentary Gleason . He was awarded the Congressional Gold Medal for his contributions to ALS awareness.
Activist Brian Wallach's advocacy through his foundation I AM ALS saw the Accelerating Access to Critical Therapies for ALS Act signed into law by President Joe Biden in 2021. Brian Wallach (53531545119) (cropped).jpg
Activist Brian Wallach's advocacy through his foundation I AM ALS saw the Accelerating Access to Critical Therapies for ALS Act signed into law by President Joe Biden in 2021.

Deceased

Public awareness of the disease gained prominence upon the diagnosis of baseball player Lou Gehrig, whose name would become an alternative title for the disease. Lou Gehrig as a new Yankee 11 Jun 1923.jpg
Public awareness of the disease gained prominence upon the diagnosis of baseball player Lou Gehrig, whose name would become an alternative title for the disease.
Astrophysicist Stephen Hawking, whose ALS was diagnosed in 1963, had the disease for 55 years, the longest recorded time one had the disease. He died at the age of 76 in 2018. Stephen Hawking.StarChild.jpg
Astrophysicist Stephen Hawking, whose ALS was diagnosed in 1963, had the disease for 55 years, the longest recorded time one had the disease. He died at the age of 76 in 2018.
The 11th century monk Hermann of Reichenau had a lifelong disease that is strongly believed to have been ALS. This would make him one of the earliest known patients of the disease. Hermann Reichenau Ofenkachel.jpg
The 11th century monk Hermann of Reichenau had a lifelong disease that is strongly believed to have been ALS. This would make him one of the earliest known patients of the disease.
Chairman Mao Zedong was reported to have been suffering from ALS. Mao Zedong in 1959 (cropped).jpg
Chairman Mao Zedong was reported to have been suffering from ALS.

Related Research Articles

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<span class="mw-page-title-main">Carl Webb</span> Australian rugby league footballer (1981–2023)

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<span class="mw-page-title-main">Lenny Johnrose</span> English footballer (1969–2022)

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<span class="mw-page-title-main">Chronic traumatic encephalopathy</span> Neurodegenerative disease caused by head injury

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<span class="mw-page-title-main">Motor Neurone Disease Association</span>

The Motor Neurone Disease Association focuses on improving access to care, research and campaigning for those people living with or affected by motor neurone disease (MND) in England, Wales and Northern Ireland. MND is also known as amyotrophic lateral sclerosis (ALS) or, in the United States, Lou Gehrig's disease.

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<span class="mw-page-title-main">Rob Burrow</span> English rugby league footballer (1982–2024)

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<span class="mw-page-title-main">Kevin Turner (running back)</span> American football player (1969–2016)

Paul Kevin Turner was an American professional football player who was a fullback for eight seasons in the National Football League (NFL) for the New England Patriots and Philadelphia Eagles. He played college football for the Alabama Crimson Tide. Turner died after a multi-year battle with amyotrophic lateral sclerosis (ALS), which had been triggered by chronic traumatic encephalopathy (CTE).

<span class="mw-page-title-main">Stephen Darby</span> English footballer (born 1988)

Stephen Mark Darby is an English former professional footballer who played as a right-back. Darby represented England at under-19 level. He began his career playing on the winning side of the Liverpool FA Youth Cup in 2006 and played competitively for Liverpool from 2008 to 2012. Darby then joined the Bradford team that reached the 2013 Football League Cup final, making over 200 appearances for the club and captaining the side for two seasons. Although he afterwards signed a two-year contract with Bolton Wanderers in 2017, Darby retired from his career just over a year later at the age of 29 after being diagnosed with motor neurone disease.

<span class="mw-page-title-main">ALS</span> Rare neurodegenerative disease

Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig's disease (LGD) in the United States, is a rare, terminal neurodegenerative disorder that results in the progressive loss of both upper and lower motor neurons that normally control voluntary muscle contraction. ALS is the most common form of the motor neuron diseases. ALS often presents in its early stages with gradual muscle stiffness, twitches, weakness, and wasting. Motor neuron loss typically continues until the abilities to eat, speak, move, and, lastly, breathe are all lost. While only 15% of people with ALS also fully develop frontotemporal dementia, an estimated 50% face at least some minor difficulties with thinking and behavior. Depending on which of the aforementioned symptoms develops first, ALS is classified as limb-onset or bulbar-onset.

<span class="mw-page-title-main">Ed Slater</span> English rugby union player

Edward Nicholas Slater is a former English rugby union player who played at lock.

Events from the year 1970 in Scotland.

<span class="mw-page-title-main">Gordon Aikman</span>

Gordon Lewis Aikman BEM was a Scottish political researcher and campaigner. He was Director of Research for the Better Together campaign during the Scottish Independence Referendum. During that campaign he was diagnosed with motor neurone disease. Aikman successfully lobbied the Scottish Government to double the number of MND nurses in Scotland, and to fund them via the NHS. He also raised more than £500,000 for medical research.

Justin John Yerbury was an Australian molecular biologist who was spurred to follow a career in biological research when he discovered that his family has the genetic form of motor neurone disease (MND). He held the position of Professor in Neurodegenerative Disease at the University of Wollongong. He was diagnosed with MND himself in 2016, but continued to research until his death from the disease in 2023.

The Motor Neurone Disease New Zealand Charitable Trust (MNDNZ) is an organisation that focuses on improving access to care, research and campaigning for those people living with or affected by motor neurone disease (MND) in New Zealand. MND is also known as amyotrophic lateral sclerosis (ALS) or, in the United States, Lou Gehrig's Disease. MNDNZ is the only national charity in New Zealand that promotes research into the disease and provides support for people affected by MND.

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