A leper colony, also known by many other names, is an isolated community for the quarantining and treatment of lepers, people suffering from leprosy.
M. leprae , the bacterium responsible for leprosy, is believed to have spread from East Africa through the Middle East, Europe, and Asia by the 5th century before reaching the rest of the world more recently. Historically, leprosy was believed to be extremely contagious and divinely ordained, leading to enormous stigma against its sufferers. Other severe skin diseases were frequently conflated with leprosy and all such sufferers were kept away from the general public, although some religious orders provided medical care and treatment. Recent research has shown M. leprae has maintained a similarly virulent genome over at least the last thousand years, leaving it unclear which precise factors led to leprosy's near elimination in Europe by 1700. A growing number of cases following the first wave of European colonization, however, led to increased attention towards leprosy during the New Imperialism of the late 19th century. Following G.A. Hansen's discovery of the role of M. leprae in the disease, the First International Leprosy Conference held in Berlin in 1897 renewed interest and investment in the isolation of lepers throughout the European colonial empires.
The development of modern treatments eliminated the need to isolate lepers as early as the 1940s; scientific arguments against the practice were made in the 1980s. [1] Although Western countries now generally treat cases of leprosy individually on an outpatient basis, traditional isolated colonies continue to exist in India, China, and some other countries.
In medieval Latin, a place for the isolation and care of lepers was known as a leprosaria, leprosarium, or leprosorium, names which are sometimes used in English as well. [2] The Latin domus leprosaria was calqued in English as leper house, [3] with leper colony becoming by far the most common English term in the 1880s as the growing number of leprosy cases were discussed within the context of European colonialism. Less common synonyms include leper asylum, leper lodge, and leper hospital. [3] Other names derive from the figure of Lazarus in one of Jesus's parables, [4] treated by the Catholic Church during the Middle Ages as a historical figure and as the patron saint of both lepers and the Crusader Order of Saint Lazarus, who administered the leper colony in Jerusalem before spreading to other locations. This caused leper colonies to also be known as lazar houses [5] and, after the leper colony and quarantine center on Venice's Sta. Maria di Nazareth, as lazarets, lazarettes, [6] lazarettos, and lazarettas. [7] [8] The name leper [9] or leprosy village [10] [11] is sometimes used for colonies in China, a calque of the Mandarin name máfēngcūn( t 麻風村, s 麻风村).
Although not all of the skin diseases (kushtha) discussed in the Indian Vedas and the Laws of Manu were leprosy, some of them seem to have been, with the disease appearing in the subcontinent by at least 2000 BC. The Indian religious texts and laws did not organize formal leper colonies but treated those afflicted with the disease as untouchable outcastes, forbidding and punishing any marriage with them while they suffered from the disease, which was considered both contagious and a divine punishment for sins of the sufferer's current or former life. In legend, even kings were removed from power and left to wander in the forests while suffering from leprosy, although their position could be restored in the event of their recovery, whether through divine intervention or Ayurvedic herbal remedies such as chaulmoogra oil. [12] Similarly, the ancient Persians [13] and Hebrews considered certain skin diseases to render people unclean and unfit for society, without organizing any special locations for their care; it seems likely, however, that the references to "leprosy" in the Old and New Testaments of the Bible are the result of a misunderstanding produced by the Septuagint's Greek translation and subsequent Latin translations like the Vulgate and originally referred to a variety of conditions such as psoriasis before becoming associated with leprosy centuries later. This confusion of terms—and the related divine opprobrium—was then translated into Islamic medicine in the 9th century. [14] The introduction of leprosy to southern Europe was blamed on the armies of Alexander and Pompey; ancient Greek and Roman doctors did not blame divine punishment and advocated various treatments but still usually advised that lepers be kept out of cities. [13] Some early Christians sought to emulate Jesus's example by personally ministering to lepers or communities of lepers, activity recorded in hagiographies like St Gregory's life of St Basil. [13]
Leprosy seems to have reached the rest of Europe during late Antiquity and the early Middle Ages, with the imperial Church reducing formal restrictions on lepers while setting aside funds for leprosaria where clerics would treat the afflicted. [13] Such leper houses are documented at St-Oyen in 460, Chalon-sur-Saône in 570, and Verdun in 634; [13] their management was often provided by monastic orders. [15] The area of modern Belgium alone may have had as many as 700 or 800 prior to the Crusades. [13] Christian folklore misunderstood the parable of Lazarus and Dives as a historical account and took the sore-covered beggar in the story as St Lazarus, patron of lepers; [16] the military order St Lazarus was established to care for lepers in Crusader Jerusalem and subsequently operated other leprosaria around Europe. Some colonies were located on mountains or in remote locations to ensure isolation, some on main roads, where donations would be made for their upkeep. Others were essentially hospitals within major cities. In 1623 the Congregation of the Mission, a Catholic society of apostolic life founded by Vincent de Paul, was given possession of the Priory of St. Lazarus, a former leper house in Paris, due to which the entire Congregation gained the name of "Lazarites" or "Lazarists" although most of its members had nothing to do with caring for lepers.
Debate exists over the conditions found within historical colonies; while they are currently thought to have been grim and neglected places, there are some indications that life within a leper colony or house was no worse than the life of other, non-isolated individuals. There is even doubt that the current definition of leprosy can be retrospectively applied to the medieval condition. What was classified as leprosy then covers a wide range of skin conditions that would be classified as distinct afflictions today. [17] Some leper colonies issued their own money or tokens, in the belief that allowing people affected by leprosy to handle regular money could spread the disease. [18] [19] Today leper hospitals exist throughout the world to treat those afflicted with leprosy, especially in Africa, Brazil, China and India. [15]
In 2001, government-run leper colonies in Japan came under judicial scrutiny, leading to the determination that the Japanese government had mistreated the patients, and the district court ordered Japan to pay compensation to former patients. [20] In 2002, a formal inquiry into these colonies was set up, and in March 2005, the policy was strongly denounced. "Japan's policy of absolute quarantine... did not have any scientific grounds." [21] The inquiry denounced not only the government and the doctors who were involved with the policy, but also the court that repeatedly ruled in favor of the government when the policy was challenged, as well as the media, which failed to report the plight of the victims.[ citation needed ]
Leprosy, also known as Hansen's disease (HD), is a long-term infection by the bacteria Mycobacterium leprae or Mycobacterium lepromatosis. Infection can lead to damage of the nerves, respiratory tract, skin, and eyes. This nerve damage may result in a lack of ability to feel pain, which can lead to the loss of parts of a person's extremities from repeated injuries or infection through unnoticed wounds. An infected person may also experience muscle weakness and poor eyesight. Leprosy symptoms may begin within one year, but, for some people, symptoms may take 20 years or more to occur.
A lazaretto, sometimes lazaret or lazarette, is a quarantine station for maritime travelers. Lazarets can be ships permanently at anchor, isolated islands, or mainland buildings. In some lazarets, postal items were also disinfected, usually by fumigation. This practice was still being done as late as 1936, albeit in rare cases.
Kalaupapa National Historical Park is a United States National Historical Park located in Kalaupapa, Hawaiʻi, on the island of Molokaʻi. Coterminous with the boundaries of Kalawao County and primarily on Kalaupapa peninsula, it was established by Congress in 1980 to expand upon the earlier National Historic Landmark site of the Kalaupapa Leper Settlement. It is administered by the National Park Service. Its goal is to preserve the cultural and physical settings of the two leper colonies on the island of Molokaʻi, which operated from 1866 to 1969 and had a total of 8500 residents over the decades.
Peel Island is a small heritage-listed island located in Moreton Bay, east of Brisbane, in South East Queensland, Australia. The island is a locality within the local government area of Redland City and a national park named Teerk Roo Ra National Park and Conservation Park.
Leprosy was said to be first recognized in the ancient civilizations of China, Egypt, and India, according to the World Health Organization (WHO). Leprosy, also known as Hansen's disease, was officially eliminated at the national level in China by 1982, meaning prevalence is lower than 1 in 100,000. There are 3,510 active cases today. Though leprosy has been brought under control in general, the situation in some areas is worsening, according to China's Ministry of Health. In the past, leprosy sufferers were ostracized by their communities as the disease was incurable, disfiguring, and wrongly thought to be highly infectious.
Leprosy stigma is a type of social stigma, a strong negative feeling towards a person with leprosy relating to their moral status in society. It is also referred to as leprosy-related stigma, leprostigma, and stigma of leprosy. Since ancient times, leprosy instilled the practice of fear and avoidance in many societies because of the associated physical disfigurement and lack of understanding behind its cause. Because of the historical trauma the word "leprosy" invokes, the disease is now referred to as Hansen's disease, named after Gerhard Armauer Hansen who discovered Mycobacterium leprae, the bacterial agent that causes Hansen's disease. Those who have suffered from Hansen's disease describe the impact of social stigma as far worse than the physical manifestations despite it being only mildly contagious and pharmacologically curable. This sentiment is echoed by Weis and Ramakrishna, who noted that "the impact of the meaning of the disease may be a greater source of suffering than symptoms of the disease".
As of 2009, 2,600 former leprosy patients were living in 13 national sanatoriums and 2 private hospitals in Japan. Their mean age is 80. There were no newly diagnosed Japanese leprosy patients in 2005, but one in 2006, and one in 2007.
Behkadeh Raji is the first leper colony to be built as an economically self-sufficient, independent village. It was built in 1961 on the initiative of Farah Pahlavi in Iran. The aim of the village concept was to not only achieve optimal care of lepers by the coexistence of healthy and diseased, but also to cultivate dialog and the exchange of information with the public about leprosy sufferers.
Leper colony money was special money which circulated only in leper colonies due to the fear that money could carry leprosy and infect other people. However, leprosy is not easily transmitted by casual contact or objects; actual transmission only happens through long-term, constant, intimate contact with leprosy sufferers and not through contact with everyday objects used by sufferers.
Worldwide, two to three million people are estimated to be permanently disabled because of leprosy. India has the greatest number of cases, with Brazil second and Indonesia third.
Kusatsu Special Prison was a prison that operated between 1938 and 1947, in Kuryu Rakusen-en Sanatorium in Kusatsu Onsen, Kusatsu town, Gunma Prefecture, Japan, where criminals from public leprosaria throughout Japan were imprisoned. Prisons for conventional crimes had been built earlier in all public leprosaria. A total of 22 out of 93 prisoners died of cold or maltreatment in the cells or after confinement. In Japanese, it was called Tokubetsu Byoshitsu or Jyu Kanbo.
Sheldrake Island is an island in New Brunswick, Canada, known for being the site of New Brunswick's first lazaretto. It is located only 8 miles from Chatham, on the Miramichi River.
Although leprosy, or Hansen's Disease, was never an epidemic in The United States, cases of leprosy have been reported in Louisiana as early as the 18th century. The first leprosarium in the continental United States existed in Carville, Louisiana from 1894-1999 and Baton Rouge, Louisiana is the home of the only institution in the United States that is exclusively devoted to leprosy consulting, research, and training.
There has, historically, been fear around leprosy and people with the disease have suffered stigma, isolation and social exclusion. Expulsion of individuals infected with leprosy to quarantined areas or special institutions has been the general protocol since ancient times and was the recommended course of action by the Leprosy Conference of Berlin 1897. As a result, the exclusion and quarantining of people infected with leprosy became law, hence leprosy colonies were formed. The inhabitants of these colonies had very little legal recourse in preventing their exclusion and, even after they were treated and cured, many had trouble reintegrating into society. Even by the 1960s, when leprosy was highly treatable and curable, it still resulted in repulsion, and the exclusion of sufferers, by the general populace. As leprosy became curable, the focus of study shifted towards investigating the social aspects of the disease. This has become relevant due to the fact that the disease is making a resurgence and is proving resistant to previous remedies.
The Culion leper colony is a former leprosarium located on Culion, an island in the Palawan province of the Philippines. It was established by the U.S. government in order to rid leprosy from the Philippine Islands through the only method known at the time: isolating all existing cases and gradually phasing out the disease from the population. In addition to segregating the disease from the rest of the population, the island was later established in order to offer a better opportunity for people afflicted with leprosy to receive adequate care and modern treatments.
MORHAN or Movement of Reintegration of Persons Afflicted by Hansen's disease in English, is a non-profit organization that operates to reduce leprosy and the stigma of leprosy in Brazil. This organization was initially created to ensure the rights of patients from leper colonies due to their isolation, and today it is one of the most successful Brazilian social movements, with representation in the National Health Council. The group has used several methods to disseminate information about leprosy including, but not limited to, handing out pamphlets, hosting seminars, and organizing puppet shows for children. Morhan also creates its own publications as a means of mobilization and news regarding leprosy. Furthermore, Morhan has worked with anthropologists to provide explanatory models and lay explanations of leprosy within the Brazilian context. Morhan's work has been exemplary in creating partnerships between social groups and the government and received an award from the United Nation’s Millennium Development Goals. The current National Coordinator is Artur Custodio Moreira de Souza.
The history of leprosy was traced to its origins by an international team of 22 geneticists using comparative genomics of the worldwide distribution of Mycobacterium leprae. Monot et al. (2005) determined that leprosy originated in East Africa or the Near East and traveled with humans along their migration routes, including those of trade in goods and slaves. The four strains of M. leprae are based in specific geographic regions where each predominantly occurs:
The lepers' plot was an alleged conspiracy of French lepers in 1321 to spread their disease by contaminating water supplies, including well water, with their powders and poisons. According to the American historian Solomon Grayzel, lepers were the most abused group of people during the Middle Ages: they were thrown out of settlements and treated as wild animals due to the widespread belief that their disease was highly contagious. However, other historians have contested such a view, pointing out that lepers often lived within communities in leper houses (leprosaria) and were supported by charitable donations.
The Leprosy Act was an act of the Parliament of Canada regarding the establishment and direction of lazarettos, or leper homes, in Canada to ensure the segregation and treatment of people afflicted with leprosy. The Leprosy Act gave responsibility to the Minister of Agriculture for the management of the lazarettos, apprehension and confinement of the ill, capture of escaped inmates, and punishment of those found to be harbouring or concealing a person afflicted with leprosy.
The Channel Island Leprosarium was a quarantine station that operated as a colony for people suffering from leprosy in the Northern Territory of Australia from 1931 to 1955. Channel Island forms part of Middle Arm, located just south of Darwin.
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