Data philanthropy

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Data philanthropy refers to private sector companies sharing data they collected with the public, in an attempt to address social or environmental challenges for public benefit. [1] The concept was introduced through the United Nations Global Pulse initiative in 2011 to explore corporate data assets for humanitarian, academic, and societal causes. [2] For instance, anonymized mobile data has been used to track disease outbreaks. In contrast, corporate data on consumer behavior may be shared with researchers to study public health and economic trends. [3]

Contents

Definition of data philanthropy

A significant portion of data collected from the Internet consists of user-generated content, such as blogs, social media posts, and information submitted through lead capture and data forms. In addition to this, corporations gather and analyze consumer data to gain insights into customer behavior, identify potential markets, and inform investment decisions. United Nations Global Pulse Director, Robert Kirkpatrick, has referred to this type of data as "massive passive data" or "data exhaust." [4]

Data philanthropy refers to private sector data-sharing initiatives intended to serve public purposes. [1] The term "philanthropy" suggests that data sharing may be perceived as a public good. [4]

Challenges

While data philanthropy has the potential to enhance development policies, it also raises concerns regarding privacy, ownership, and the equitable use of data. [5] Making users' private data available to various organizations and institutions can raise concerns regarding internet privacy. Mathematical techniques such as differential privacy and space-time boxes have been developed to allow access to personal data while ensuring user anonymity. However, even if these algorithms work, re-identification may still be possible. [1]

Another challenge is convincing corporations to share their data. The data collected by corporations provides them with market competitiveness and insight regarding consumer behavior. Corporations may fear losing their competitive edge if they share the information they have collected to the public. [1]

Numerous moral challenges are also encountered. In 2016, Mariarosaria Taddeo, a Digital Ethics professor at the University of Oxford, proposed an ethical framework to address these moral challenges. [6]

Sharing strategies

The goal of data philanthropy is to create a global data commons, where companies, governments, and individuals can contribute anonymous, aggregated datasets. [2] The United Nations Global Pulse offers four different tactics that companies can use to share their data that preserve consumer anonymity: [1]

  1. Share aggregated and derived data sets for analysis under nondisclosure agreements (NDA)
  2. Allow researchers to analyze data within the private company's own network under NDAs
  3. Real-Time Data Commons: data pooled and aggregated among multiple companies of the same industry to protect competitiveness
  4. Public/Private Alerting Network: companies mine data behind their own firewalls and share indicators

Application in various fields

Through data philanthropy, corporations such as social networking sites (e.g., Facebook, Twitter), telecommunication companies (e.g., Verizon, AT&T), and search engines (e.g., Google, Bing), amongst other data-intensive organizations, collect and make anonymized and aggregated user-generated information available to a data sharing system for research, policy development, and social impact initiatives. This also allows institutions to give back to a cause widely seen as beneficial. With the onset of technological advancements, a sharing of data on a global scale and an in-depth analysis of these data structures could alter the reaction towards global events such as natural disasters and epidemics. Robert Kirkpatrick, the Director of the United Nations Global Pulse, has argued that this aggregated information is beneficial for the common good and can lead to developments in research and data production in a range of varied fields. [4]

Digital disease detection

Health researchers use digital disease detection by collecting data from various sources—such as social media platforms (e.g., Twitter, Facebook), mobile devices (e.g., cell phones, smartphones), online search queries, mobile apps, and sensor data from wearables and environmental sensors—to monitor and predict the spread of infectious diseases. This approach allows them to track and anticipate outbreaks of epidemics (e.g., COVID-19, Ebola), pandemics, vector-borne diseases (e.g., malaria, dengue fever), and respiratory illnesses (e.g., influenza, SARS), improving response and intervention strategies for the spread of diseases. [7]

In the United States, HealthMap is using data philanthropy-related tactics to track the outbreak of diseases. HealthMap analyzes data from publicly available media sources such as news websites, government alerts, and social media sites like X (formerly known as Twitter) for outbreaks of various illnesses around the world. [7] [8] Another website, Flu Near You, allows users to report their own health status on a weekly basis. Traditional flu surveillance can take up to 2 weeks to confirm outbreaks [7] , and doctors must wait for a virological test to confirm the outbreak before reporting it to the Centers for Disease Control. This form of data philanthropy allows for up-to-date information regarding various health concerns by using publicly available information gathered from news outlets, government alerts, and social media sites. HealthMap and Flu Near You are considered data philanthropy as users' data is gathered from social media sites without their knowledge. [7]

The Centers for Disease Control and Prevention collaborated with Google and launched Google Flu Trends in 2008, a website that tracks flu-related searches and user locations to track the spread of the flu. Users can visit the website to compare the amount of flu-related search activity versus the reported numbers of flu outbreaks on a graphical map. The difficulty with this method of tracking is that Google searches are sometimes performed due to curiosity rather than when an individual is suffering from the flu. According to Ashley Fowlkes, an epidemiologist in the CDC Influenza division, "The Google Flu Trends system tries to account for that type of media bias by modeling search terms over time to see which ones remain stable." [7] Google Flu Trends is no longer publishing current flu estimates on the public website; however, visitors to the site can still view and download previous estimates. Current data can be shared with verified researchers. [9]

A study from the Harvard School of Public Health (HSPH), published in the October 12, 2012 issue of Science, discussed how phone data helped curb the spread of malaria in Kenya. The researchers mapped phone calls and texts made by 14,816,521 Kenyan mobile phone subscribers. [10] When individuals left their primary living location, the destination and length of journey were calculated. This data was then compared to a 2009 malaria prevalence map to estimate the disease's commonality in each location. Combining all this information, the researchers can estimate the probability of an individual carrying malaria and map the movement of the disease. This research can be used to track the spread of similar diseases. [10]

Humanitarian aid

Calling patterns of mobile phone users can determine the socioeconomic standings of the populace, which can be used to deduce "its access to housing, education, healthcare, and basic services such as water and electricity.". [4] Researchers from Columbia University and Karolinska Institute used daily SIM card location data from both before and after the 2010 Haiti earthquake to estimate the movement of people both in response to the earthquake and during the related 2010 Haiti cholera outbreak. [11] Their research suggests that mobile phone data can provide rapid and accurate estimates of population movements during disasters and outbreaks of infectious disease. Big data can also provide information on looming disasters and can assist relief organizations in rapid response and locating displaced individuals. By analyzing specific patterns within this 'big data,' we can enhance responses to disruptive events such as natural disasters, disease outbreaks, and global economic crises. Leveraging real-time information enables a deeper understanding of individual well-being, allowing for more effective interventions. Corporations utilize digital services, such as human sensor systems, to detect and solve impending problems within communities. This is a strategy implemented by the private sector in order to protect its citizens by anonymously disseminating customer information to the public sector whilst also ensuring the protection of their privacy. [4]

Impoverished areas

Poverty still remains a worldwide issue with over 2.5 billion people [12] currently impoverished. Accumulating accurate data has been a complex issue but developments in technology and utilising 'big data' [12] is one solution for improving this situation. Statistics indicate the widespread use of mobile phones, even within impoverished communities. This availability could prove vital in gathering data on populations living in poverty. Additional data can be collected through Internet access, social media, utility payments and governmental statistics. Data-driven activities can lead to the cumulation of 'big data', which in turn can assist international non-governmental organization in documenting and evaluating the needs of underprivileged populations. Through data philanthropy, NGOs can distribute information whilst cooperating with governments and private companies. [12]

Corporate

Data philanthropy incorporates aspects of social philanthropy by allowing corporations to create profound impacts through the act of giving back by dispersing proprietary datasets. [13] The public sector collects and preserves information, considered an essential asset. Companies track and analyze users' online activities to gain insights into their needs related to new products and services. [14] These companies view the welfare of the population as key to business expansion and progression by using their data to highlight global citizens' issues. [4] Experts in the private sector emphasize the importance of integrating diverse data sources—such as retail, mobile, and social media data—to develop essential solutions for global challenges. In Data Philanthropy: New Paradigms for Collaborative Problem Solving (2022), authors Stefaan Verhulst and Andrew Young discuss this approach. Robert Kirkpatrick argues that, although sharing private information carries inherent risks, it ultimately yields public benefits, supporting the common good. [15]  – via Harvard Business Review (subscription required) The digital revolution causes an extensive production of big data that is user-generated and available on the web. Corporations accumulate information on customer preferences through the digital services they utilize and products they purchase to gain clear insights on their clientele and future market opportunities. [4] However, the rights of individuals concerning privacy and ownership of data are controversial, as governments and other institutions can use this collective data for unethical purposes. Companies monitor and probe consumer online activities in order to better comprehend and develop tailored needs for their clientele, thereby increasing their profits. [16]

Academia

Data philanthropy plays an important role in academia. Researchers encounter countless obstacles while attempting to access data. This data is available to a limited number of researchers with sole access to restricted resources who are authorized to utilize this information, like social media streams, enabling them to produce more knowledge and develop new studies. For example, X Corp. (formerly Twitter Inc.) markets access to its real-time APIs at various prices, e.g. $5,000 for reading 1,000,000 posts per month, which often surpasses the budgets of most researchers.

Human rights

Data philanthropy aids the human rights movement by assisting in dispersing evidence for truth commissions and war crimes tribunals. Advocates for human rights gather data on abuses occurring within countries, which is then used for scientific analysis to raise awareness and drive action. For example, non-profit organizations compile data from human rights monitors in war zones to assist the UN High Commissioner for Human Rights. This data uncovers inconsistencies in the number of war casualties, leading to international attention and influencing global policy discussions. [16]

See also

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References

  1. 1 2 3 4 5 "Data Philanthropy: Where Are We Now?". UN Global Pulse. 2013-05-08. Archived from the original on 2022-01-19. Retrieved 2025-01-14.
  2. 1 2 Coren, Michael J. (December 9, 2011). "Data Philanthropy: Open Data for World-Changing Solutions". Fast Company .
  3. ↑ "Information Sheet - United Nations Global Pulse" (PDF). September 2013.
  4. 1 2 3 4 5 6 7 Kirkpatrick, Robert (September 20, 2011). "Data philanthropy is good for business". Forbes.
  5. ↑ "Data Philanthropy, International Organizations and Development Policy: Ethical Issues to Consider". UNDP. Retrieved 2024-11-04.
  6. ↑ Taddeo, M. (2016). "Data philanthropy and the design of the infraethics for information societies". Philosophical Transactions of the Royal Society A . 374 (2083). Bibcode:2016RSPTA.37460113T. doi:10.1098/rsta.2016.0113. PMID   28336792.
  7. 1 2 3 4 5 Schmidt, C. (2012). "Trending Now: Using Social Media to Predict and Track Disease Outbreaks". Environmental Health Perspectives. 120 (1): a30 –a33. doi:10.1289/ehp.120-a30. PMC   3261963 . PMID   22214548.
  8. ↑ Reddy, E. (July 14, 2015). "Using Twitter data to study the world's health". Twitter blog.
  9. ↑ O'Connor, F. (August 20, 2015). "Google Flu Trends calls out sick, indefinitely". PC World .
  10. 1 2 Datz, T. (October 11, 2012). "Using cell phone data to curb the spread of malaria" (Press release). Harvard Chan School of Public Health.
  11. ↑ Bengtsson, Linus; Lu, Xin; Thorson, Anna; Garfield, Richard; Schreeb, Johan von (2011-08-30). "Improved Response to Disasters and Outbreaks by Tracking Population Movements with Mobile Phone Network Data: A Post-Earthquake Geospatial Study in Haiti". PLOS Medicine. 8 (8): e1001083. doi: 10.1371/journal.pmed.1001083 . ISSN   1549-1676. PMC   3168873 . PMID   21918643.
  12. 1 2 3 Rick Delgado (2014-05-23). "Lifting Up: How Big Data Can Help Eliminate Poverty". Smart Data Collection. Archived from the original on 2016-11-02.
  13. ↑ "Data Philanthropy for Humanitarian Response". Irevolution. 2012-07-04.[ permanent dead link ]
  14. ↑ Stempeck, Matt (2014-07-24). "Sharing Data Is a Form of Corporate Philanthropy". Harvard Business Review . ISSN   0017-8012. Archived from the original on 2016-03-04. Retrieved 2024-10-09.
  15. ↑ Robert Kirkpatrick (2013-03-21). "A New Type of Philanthropy: Donating Data". Harvard Business Review .
  16. 1 2 Jim Fruchterman (2013-03-19). "Big Data Means More Than Big Profits". Harvard Business Review .
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