Information privacy

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Information privacy is the relationship between the collection and dissemination of data, technology, the public expectation of privacy, contextual information norms, and the legal and political issues surrounding them. [1] It is also known as data privacy [2] [3] or data protection.

Contents

Information types

Various types of personal information often come under privacy concerns.

Cable television

This describes the ability to control what information one reveals about oneself over cable television, and who can access that information. For example, third parties can track IP TV programs someone has watched at any given time. "The addition of any information in a broadcasting stream is not required for an audience rating survey, additional devices are not requested to be installed in the houses of viewers or listeners, and without the necessity of their cooperations, audience ratings can be automatically performed in real-time." [4]

Educational

In the United Kingdom in 2012, the Education Secretary Michael Gove described the National Pupil Database as a "rich dataset" whose value could be "maximised" by making it more openly accessible, including to private companies. Kelly Fiveash of The Register said that this could mean "a child's school life including exam results, attendance, teacher assessments and even characteristics" could be available, with third-party organizations being responsible for anonymizing any publications themselves, rather than the data being anonymized by the government before being handed over. An example of a data request that Gove indicated had been rejected in the past, but might be possible under an improved version of privacy regulations, was for "analysis on sexual exploitation". [5]

Financial

Information about a person's financial transactions, including the amount of assets, positions held in stocks or funds, outstanding debts, and purchases can be sensitive. If criminals gain access to information such as a person's accounts or credit card numbers, that person could become the victim of fraud or identity theft. Information about a person's purchases can reveal a great deal about that person's history, such as places they have visited, whom they have contact with, products they have used, their activities and habits, or medications they have used. In some cases, corporations may use this information to target individuals with marketing customized towards those individual's personal preferences, which that person may or may not approve. [5]

Information technology

As heterogeneous information systems with differing privacy rules are interconnected and information is shared, policy appliances will be required to reconcile, enforce, and monitor an increasing amount of privacy policy rules (and laws). There are two categories of technology to address privacy protection in commercial IT systems: communication and enforcement.

Policy communication
Policy enforcement
Improving privacy through individualization

Computer privacy can be improved through individualization. Currently security messages are designed for the "average user", i.e. the same message for everyone. Researchers have posited that individualized messages and security "nudges", crafted based on users' individual differences and personality traits, can be used for further improvements for each person's compliance with computer security and privacy. [6]

Improve privacy through data encryption

By converting data into a non-readable format, encryption prevents unauthorized access. At present, common encryption technologies include AES and RSA. Use data encryption so that only users with decryption keys can access the data. [7]

Internet

The ability to control the information one reveals about oneself over the internet and who can access that information has become a growing concern. These concerns include whether email can be stored or read by third parties without consent or whether third parties can continue to track the websites that someone visited. Another concern is whether websites one visits can collect, store, and possibly share personally identifiable information about users.

The advent of various search engines and the use of data mining created a capability for data about individuals to be collected and combined from a wide variety of sources very easily. [8] [9] [10] AI facilitated creating inferential information about individuals and groups based on such enormous amounts of collected data, transforming the information economy. [11] The FTC has provided a set of guidelines that represent widely accepted concepts concerning fair information practices in an electronic marketplace, called the Fair Information Practice Principles. But these have been critiqued for their insufficiency in the context of AI-enabled inferential information. [11]

On the internet many users give away a lot of information about themselves: unencrypted emails can be read by the administrators of an e-mail server if the connection is not encrypted (no HTTPS), and also the internet service provider and other parties sniffing the network traffic of that connection are able to know the contents. The same applies to any kind of traffic generated on the Internet, including web browsing, instant messaging, and others. In order not to give away too much personal information, emails can be encrypted and browsing of webpages as well as other online activities can be done anonymously via anonymizers, or by open source distributed anonymizers, so-called mix networks. Well-known open-source mix nets include I2P – The Anonymous Network and Tor. [12]

Email is not the only internet content with privacy concerns. In an age where increasing amounts of information are online, social networking sites pose additional privacy challenges. People may be tagged in photos or have valuable information exposed about themselves either by choice or unexpectedly by others, referred to as participatory surveillance. Data about location can also be accidentally published, for example, when someone posts a picture with a store as a background. Caution should be exercised when posting information online. Social networks vary in what they allow users to make private and what remains publicly accessible. [13] Without strong security settings in place and careful attention to what remains public, a person can be profiled by searching for and collecting disparate pieces of information, leading to cases of cyberstalking [14] or reputation damage. [15]

Cookies are used on websites so that users may allow the website to retrieve some information from the user's internet, but they usually do not mention what the data being retrieved is. [16] In 2018, the General Data Protection Regulation (GDPR) passed a regulation that forces websites to visibly disclose to consumers their information privacy practices, referred to as cookie notices. [16] This was issued to give consumers the choice of what information about their behavior they consent to letting websites track; however, its effectiveness is controversial. [16] Some websites may engage in deceptive practices such as placing cookie notices in places on the page that are not visible or only giving consumers notice that their information is being tracked but not allowing them to change their privacy settings. [16] Apps like Instagram and Facebook collect user data for a personalized app experience; however, they track user activity on other apps, which jeopardizes users' privacy and data. By controlling how visible these cookie notices are, companies can discreetly collect data, giving them more power over consumers. [16]

Locational

As location tracking capabilities of mobile devices are advancing (location-based services), problems related to user privacy arise. Location data is among the most sensitive data currently being collected. [17] A list of potentially sensitive professional and personal information that could be inferred about an individual knowing only their mobility trace was published in 2009 by the Electronic Frontier Foundation. [18] These include the movements of a competitor sales force, attendance of a particular church or an individual's presence in a motel, or at an abortion clinic. A recent MIT study [19] [20] by de Montjoye et al. showed that four spatio-temporal points, approximate places and times, are enough to uniquely identify 95% of 1.5 million people in a mobility database. The study further shows that these constraints hold even when the resolution of the dataset is low. Therefore, even coarse or blurred datasets provide little anonymity.

Medical

People may not wish for their medical records to be revealed to others due to the confidentiality and sensitivity of what the information could reveal about their health. For example, they might be concerned that it might affect their insurance coverage or employment. Or, it may be because they would not wish for others to know about any medical or psychological conditions or treatments that would bring embarrassment upon themselves. Revealing medical data could also reveal other details about one's personal life. [21] There are three major categories of medical privacy: informational (the degree of control over personal information), physical (the degree of physical inaccessibility to others), and psychological (the extent to which the doctor respects patients' cultural beliefs, inner thoughts, values, feelings, and religious practices and allows them to make personal decisions). [22] Physicians and psychiatrists in many cultures and countries have standards for doctor–patient relationships, which include maintaining confidentiality. In some cases, the physician–patient privilege is legally protected. These practices are in place to protect the dignity of patients, and to ensure that patients feel free to reveal complete and accurate information required for them to receive the correct treatment. [23] To view the United States' laws on governing privacy of private health information, see HIPAA and the HITECH Act. The Australian law is the Privacy Act 1988 Australia as well as state-based health records legislation.

Political

Political privacy has been a concern since voting systems emerged in ancient times. The secret ballot is the simplest and most widespread measure to ensure that political views are not known to anyone other than the voters themselves—it is nearly universal in modern democracy and considered to be a basic right of citizenship. In fact, even where other rights of privacy do not exist, this type of privacy very often does. There are several forms of voting fraud or privacy violations possible with the use of digital voting machines. [24]

Legality

The legal protection of the right to privacy in general – and of data privacy in particular – varies greatly around the world. [25]

Laws and regulations related to Privacy and Data Protection are constantly changing, it is seen as important to keep abreast of any changes in the law and to continually reassess compliance with data privacy and security regulations. [26] [27] Within academia, Institutional Review Boards function to assure that adequate measures are taken to ensure both the privacy and confidentiality of human subjects in research. [28]

Privacy concerns exist wherever personally identifiable information or other sensitive information is collected, stored, used, and finally destroyed or deleted – in digital form or otherwise. Improper or non-existent disclosure control can be the root cause for privacy issues. Informed consent mechanisms including dynamic consent are important in communicating to data subjects the different uses of their personally identifiable information. Data privacy issues may arise in response to information from a wide range of sources, such as: [29]

Authorities

Laws

Authorities by country

Safe Harbor program

The United States Department of Commerce created the International Safe Harbor Privacy Principles certification program in response to the 1995 Directive on Data Protection (Directive 95/46/EC) of the European Commission. [33] Both the United States and the European Union officially state that they are committed to upholding information privacy of individuals, but the former has caused friction between the two by failing to meet the standards of the EU's stricter laws on personal data. The negotiation of the Safe Harbor program was, in part, to address this long-running issue. [34] Directive 95/46/EC declares in Chapter IV Article 25 that personal data may only be transferred from the countries in the European Economic Area to countries which provide adequate privacy protection. Historically, establishing adequacy required the creation of national laws broadly equivalent to those implemented by Directive 95/46/EU. Although there are exceptions to this blanket prohibition – for example where the disclosure to a country outside the EEA is made with the consent of the relevant individual (Article 26(1)(a)) – they are limited in practical scope. As a result, Article 25 created a legal risk to organizations which transfer personal data from Europe to the United States.

The program regulates the exchange of passenger name record information between the EU and the US. According to the EU directive, personal data may only be transferred to third countries if that country provides an adequate level of protection. Some exceptions to this rule are provided, for instance when the controller themself can guarantee that the recipient will comply with the data protection rules.

The European Commission has set up the "Working party on the Protection of Individuals with regard to the Processing of Personal Data," commonly known as the "Article 29 Working Party". The Working Party gives advice about the level of protection in the European Union and third countries. [35]

The Working Party negotiated with U.S. representatives about the protection of personal data, the Safe Harbor Principles were the result. Notwithstanding that approval, the self-assessment approach of the Safe Harbor remains controversial with a number of European privacy regulators and commentators. [36]

The Safe Harbor program addresses this issue in the following way: rather than a blanket law imposed on all organizations in the United States, a voluntary program is enforced by the Federal Trade Commission. U.S. organizations which register with this program, having self-assessed their compliance with a number of standards, are "deemed adequate" for the purposes of Article 25. Personal information can be sent to such organizations from the EEA without the sender being in breach of Article 25 or its EU national equivalents. The Safe Harbor was approved as providing adequate protection for personal data, for the purposes of Article 25(6), by the European Commission on 26 July 2000. [37]

Under the Safe Harbor, adoptee organizations need to carefully consider their compliance with the onward transfer obligations, where personal data originating in the EU is transferred to the US Safe Harbor, and then onward to a third country. The alternative compliance approach of "binding corporate rules", recommended by many EU privacy regulators, resolves this issue. In addition, any dispute arising in relation to the transfer of HR data to the US Safe Harbor must be heard by a panel of EU privacy regulators. [38]

In July 2007, a new, controversial, [39] Passenger Name Record agreement between the US and the EU was made. [40] A short time afterwards, the Bush administration gave exemption for the Department of Homeland Security, for the Arrival and Departure Information System (ADIS) and for the Automated Target System from the 1974 Privacy Act. [41]

In February 2008, Jonathan Faull, the head of the EU's Commission of Home Affairs, complained about the US bilateral policy concerning PNR. [42] The US had signed in February 2008 a memorandum of understanding (MOU) with the Czech Republic in exchange of a visa waiver scheme, without concerting before with Brussels. [39] The tensions between Washington and Brussels are mainly caused by a lesser level of data protection in the US, especially since foreigners do not benefit from the US Privacy Act of 1974. Other countries approached for bilateral MOU included the United Kingdom, Estonia, Germany and Greece. [43]

See also

Computer science specific
Organisations
Scholars working in the field

Related Research Articles

<span class="mw-page-title-main">Privacy</span> Seclusion from unwanted attention

Privacy is the ability of an individual or group to seclude themselves or information about themselves, and thereby express themselves selectively.

<span class="mw-page-title-main">Data Protection Directive</span> EU directive on the processing of personal data

The Data Protection Directive, officially Directive 95/46/EC, enacted in October 1995, was a European Union directive which regulated the processing of personal data within the European Union (EU) and the free movement of such data. The Data Protection Directive was an important component of EU privacy and human rights law.

<span class="mw-page-title-main">Information Commissioner's Office</span> Non-departmental public body

The Information Commissioner's Office (ICO) is a non-departmental public body which reports directly to the Parliament of the United Kingdom and is sponsored by the Department for Science, Innovation and Technology. It is the independent regulatory office dealing with the Data Protection Act 2018 and the General Data Protection Regulation, the Privacy and Electronic Communications Regulations 2003 across the UK; and the Freedom of Information Act 2000 and the Environmental Information Regulations 2004 in England, Wales and Northern Ireland and, to a limited extent, in Scotland. When they audit an organisation they use Symbiant's audit software.

Internet privacy involves the right or mandate of personal privacy concerning the storage, re-purposing, provision to third parties, and display of information pertaining to oneself via the Internet. Internet privacy is a subset of data privacy . Privacy concerns have been articulated from the beginnings of large-scale computer sharing and especially relate to mass surveillance.

A privacy policy is a statement or legal document that discloses some or all of the ways a party gathers, uses, discloses, and manages a customer or client's data. Personal information can be anything that can be used to identify an individual, not limited to the person's name, address, date of birth, marital status, contact information, ID issue, and expiry date, financial records, credit information, medical history, where one travels, and intentions to acquire goods and services. In the case of a business, it is often a statement that declares a party's policy on how it collects, stores, and releases personal information it collects. It informs the client what specific information is collected, and whether it is kept confidential, shared with partners, or sold to other firms or enterprises. Privacy policies typically represent a broader, more generalized treatment, as opposed to data use statements, which tend to be more detailed and specific.

Personal data, also known as personal information or personally identifiable information (PII), is any information related to an identifiable person.

Information privacy, data privacy or data protection laws provide a legal framework on how to obtain, use and store data of natural persons. The various laws around the world describe the rights of natural persons to control who is using their data. This includes usually the right to get details on which data is stored, for what purpose and to request the deletion in case the purpose is not given anymore.

The International Safe Harbor Privacy Principles or Safe Harbour Privacy Principles were principles developed between 1998 and 2000 in order to prevent private organizations within the European Union or United States which store customer data from accidentally disclosing or losing personal information. They were overturned on October 6, 2015, by the European Court of Justice (ECJ), which enabled some US companies to comply with privacy laws protecting European Union and Swiss citizens. US companies storing customer data could self-certify that they adhered to 7 principles, to comply with the EU Data Protection Directive and with Swiss requirements. The US Department of Commerce developed privacy frameworks in conjunction with both the European Union and the Federal Data Protection and Information Commissioner of Switzerland.

TrustArc Inc. is a privacy compliance technology company based in Walnut Creek, California. The company provides software and services to help corporations update their privacy management processes so they comply with government laws and best practices. Their privacy seal or certification of compliance can be used as a marketing tool.  

Privacy law is a set of regulations that govern the collection, storage, and utilization of personal information from healthcare, governments, companies, public or private entities, or individuals.

Security breach notification laws or data breach notification laws are laws that require individuals or entities affected by a data breach, unauthorized access to data, to notify their customers and other parties about the breach, as well as take specific steps to remedy the situation based on state legislature. Data breach notification laws have two main goals. The first goal is to allow individuals a chance to mitigate risks against data breaches. The second goal is to promote company incentive to strengthen data security.Together, these goals work to minimize consumer harm from data breaches, including impersonation, fraud, and identity theft.

The German Bundesdatenschutzgesetz (BDSG) is a federal data protection act, that together with the data protection acts of the German federated states and other area-specific regulations, governs the exposure of personal data, which are manually processed or stored in IT systems.

<span class="mw-page-title-main">General Data Protection Regulation</span> EU regulation on the processing of personal data

The General Data Protection Regulation, abbreviated GDPR, is a European Union regulation on information privacy in the European Union (EU) and the European Economic Area (EEA). The GDPR is an important component of EU privacy law and human rights law, in particular Article 8(1) of the Charter of Fundamental Rights of the European Union. It also governs the transfer of personal data outside the EU and EEA. The GDPR's goals are to enhance individuals' control and rights over their personal information and to simplify the regulations for international business. It supersedes the Data Protection Directive 95/46/EC and, among other things, simplifies the terminology.

The right to be forgotten (RTBF) is the right to have private information about a person be removed from Internet searches and other directories in some circumstances. The issue has arisen from desires of individuals to "determine the development of their life in an autonomous way, without being perpetually or periodically stigmatized as a consequence of a specific action performed in the past". The right entitles a person to have data about them deleted so that it can no longer be discovered by third parties, particularly through search engines.

<span class="mw-page-title-main">Max Schrems</span> Austrian author and privacy activist

Maximilian Schrems is an Austrian activist, lawyer, and author who became known for campaigns against Facebook for its privacy violations, including violations of European privacy laws and the alleged transfer of personal data to the US National Security Agency (NSA) as part of the NSA's PRISM program. Schrems is the founder of NOYB – European Center for Digital Rights.

The EU–US Privacy Shield was a legal framework for regulating transatlantic exchanges of personal data for commercial purposes between the European Union and the United States. One of its purposes was to enable US companies to more easily receive personal data from EU entities under EU privacy laws meant to protect European Union citizens. The EU–US Privacy Shield went into effect on 12 July 2016 following its approval by the European Commission. It was put in place to replace the International Safe Harbor Privacy Principles, which were declared invalid by the European Court of Justice in October 2015. The ECJ declared the EU–US Privacy Shield invalid on 16 July 2020, in the case known as Schrems II. In 2022, leaders of the US and EU announced that a new data transfer framework called the Trans-Atlantic Data Privacy Framework had been agreed to in principle, replacing Privacy Shield. However, it is uncertain what changes will be necessary or adequate for this to succeed without facing additional legal challenges.

Data re-identification or de-anonymization is the practice of matching anonymous data with publicly available information, or auxiliary data, in order to discover the person to whom the data belongs. This is a concern because companies with privacy policies, health care providers, and financial institutions may release the data they collect after the data has gone through the de-identification process.

The ePrivacy Regulation (ePR) is a proposal for the regulation of various privacy-related topics, mostly in relation to electronic communications within the European Union. Its full name is "Regulation of the European Parliament and of the Council concerning the respect for private life and the protection of personal data in electronic communications and repealing Directive 2002/58/EC ." It would repeal the Privacy and Electronic Communications Directive 2002 and would be lex specialis to the General Data Protection Regulation. It would particularise and complement the latter in respect of privacy-related topics. Key fields of the proposed regulation are the confidentiality of communications, privacy controls through electronic consent and browsers, and cookies.

<span class="mw-page-title-main">NOYB</span> European data protection advocacy group

NOYB – European Center for Digital Rights is a non-profit organization based in Vienna, Austria established in 2017 with a pan-European focus. Co-founded by Austrian lawyer and privacy activist Max Schrems, NOYB aims to launch strategic court cases and media initiatives in support of the General Data Protection Regulation (GDPR), the proposed ePrivacy Regulation, and information privacy in general. The organisation was established after a funding period during which it has raised annual donations of €250,000 by supporting members. Currently, NOYB is financed by more than 4,400 supporting members.

The gathering of personally identifiable information (PII) refers to the collection of public and private personal data that can be used to identify individuals for various purposes, both legal and illegal. PII gathering is often seen as a privacy threat by data owners, while entities such as technology companies, governments, and organizations utilize this data to analyze consumer behavior, political preferences, and personal interests.

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