Information privacy, data privacy or data protection laws provide a legal framework on how to obtain, use and store data of natural persons. The various laws around the world describe the rights of natural persons to control who is using its data. This includes usually the right to get details on which data is stored, for what purpose and to request the deletion in case the purpose is not given anymore.
Over 80 countries and independent territories, including nearly every country in Europe and many in Latin America and the Caribbean, Asia, and Africa, have now adopted comprehensive data protection laws. [1] The European Union has the General Data Protection Regulation (GDPR), [2] in force since May 25, 2018. The United States is notable for not having adopted a comprehensive information privacy law, but rather having adopted limited sectoral laws in some areas like the California Consumer Privacy Act (CCPA). [3]
The German state of Hessia enacted the world's first data privacy law on September 30, 1970. [4] In Germany the term informational self-determination was first used in the context of a German constitutional ruling relating to personal information collected during the 1983 census.
India passed its Digital Personal Data Protection Act, 2023 in August 2023.
China passed its Personal Information Protection Law (PIPL) in mid-2021, and was effective from November 1, 2021. It focuses heavily on consent, rights of the individual, and transparency of data processing. PIPL has been compared to the EU GDPR as it has similar scope and many similar provisions. [5]
In the Philippines, The Data Privacy Act of 2012 mandated the creation of the National Privacy Commission that would monitor and maintain policies that involve information privacy and personal data protection in the country. Modeled after the EU Data Protection Directive and the Asia-Pacific Economic Cooperation (APEC) Privacy Framework, the independent body would ensure compliance of the country with international standards set for data protection. [6] The law requires government and private organizations composed of at least 250 employees or those which have access to the personal and identifiable information of at least 1000 people to appoint a Data Protection Officer that would assist in regulating the management of personal information in such entities. [7]
In summary, the law identifies important points regarding the handling of personal information as follows:
In early 2022, Sri Lanka became the first country in South Asia to enact comprehensive data privacy legislation. The Personal Data Protection Act No. 9 of 2022, effective since March 19, 2022, applies to processing within Sri Lanka and extends extraterritorially to controllers or processors offering goods and services to individuals in Sri Lanka and/or monitoring their behavior in the country. [8]
The right to data privacy is relatively heavily regulated and actively enforced in Europe. Article 8 of the European Convention on Human Rights (ECHR) provides a right to respect for one's "private and family life, his home and his correspondence", subject to certain restrictions. The European Court of Human Rights has given this article a very broad interpretation in its jurisprudence. According to the Court's case law the collection of information by officials of the state about an individual without their consent always falls within the scope of Article 8. Thus, gathering information for the official census, recording fingerprints and photographs in a police register, collecting medical data or details of personal expenditures, and implementing a system of personal identification has been judged to raise data privacy issues. What also falls under "privacy-sensitive data" under the GDPR is such information as racial or ethnic origin, political opinions, religious or philosophical beliefs and information regarding a person's sex life or sexual orientation. [9]
Any state interference with a person's privacy is only acceptable for the Court if three conditions are fulfilled:
The government is not the only entity which may pose a threat to data privacy. Other citizens, and private companies most importantly, may also engage in threatening activities, especially since the automated processing of data became widespread. The Convention for the Protection of Individuals with regard to Automatic Processing of Personal Data was concluded within the Council of Europe in 1981. This convention obliges the signatories to enact legislation concerning the automatic processing of personal data, which many duly did.
As all the member states of the European Union are also signatories of the European Convention on Human Rights and the Convention for the Protection of Individuals with regard to Automatic Processing of Personal Data, the European Commission was concerned that diverging data protection legislation would emerge and impede the free flow of data within the EU zone. Therefore, the European Commission decided to propose harmonizing data protection law within the EU. The resulting Data Protection Directive was adopted by the European Parliament and ministers from national governments in 1995 and had to be transposed into national law by the end of 1998.
The directive contains a number of key principles with which member states must comply. Anyone processing personal data must comply with the eight enforceable principles of good practice. [10] They state that the data must be:
Personal data covers both facts and opinions about the individual. [10] It also includes information regarding the intentions of the data controller towards the individual, although in some limited circumstances exemptions will apply. With processing, the definition is far wider than before. For example, it incorporates the concepts of "obtaining", "holding" and "disclosing". [11]
All EU member states adopted legislation pursuant this directive or adapted their existing laws. Each country also has its own supervisory authority to monitor the level of protection. [12]
Because of this, in theory the transfer of personal information from the EU to the US is prohibited when equivalent privacy protection is not in place in the US. American companies that would work with EU data must comply with the Safe Harbour Archived 2010-06-09 at the Wayback Machine framework. The core principles of data protected are limited collection, consent of the subject, accuracy, integrity, security, subject right of review and deletion. As a result, customers of international organizations such as Amazon and eBay in the EU have the ability to review and delete information, while Americans do not. In the United States the equivalent guiding philosophy is the Code of Fair Information Practice (FIP).
The difference in language here is important: in the United States the debate is about privacy where in the European Community the debate is on data protection. Moving the debate from privacy to data protection is seen by some philosophers as a mechanism for moving forward in the practical realm while not requiring agreement on fundamental questions about the nature of privacy.
France adapted its existing law, "no. 78-17 of 6 January 1978 concerning information technology, files and civil liberties". [13]
In Germany, both the federal government and the states enacted legislation. [14]
While Switzerland is not a member of the European Union (EU) or of the European Economic Area (EEA), it has partially implemented the EU Directive on the protection of personal data in 2006 by acceding to the STE 108 agreement of the Council of Europe and a corresponding amendment of the federal Data Protection Act. However, Swiss law imposes less restrictions upon data processing than the Directive in several respects. [15]
In Switzerland, the right to privacy is guaranteed in article 13 of the Swiss Federal Constitution. The Swiss Federal Data Protection Act (DPA) [16] and the Swiss Federal Data Protection Ordinance (DPO) entered into force on July 1, 1993. The latest amendments of the DPA and the DPO entered into force on January 1, 2008.
The DPA applies to the processing of personal data by private persons and federal government agencies. Unlike the data protection legislation of many other countries, the DPA protects both personal data pertaining to natural persons and legal entities. [17]
The Swiss Federal Data Protection and Information Commissioner in particular supervises compliance of the federal government agencies with the DPA, provides advice to private persons on data protection, conducts investigations and makes recommendations concerning data protection practices.
Some data files must be registered with the Swiss Federal Data Protection and Information Commissioner before they are created. In the case of a transfer of personal data outside of Switzerland, special requirements need to be met and, depending on the circumstances, the Swiss Federal Data Protection and Information Commissioner must be informed before the transfer is made. [17]
Most Swiss cantons have enacted their own data protection laws regulating the processing of personal data by cantonal and municipal bodies.
In the United Kingdom the Data Protection Act 1998 (c 29) (Information Commissioner) implemented the EU Directive on the protection of personal data . [18] It replaced the Data Protection Act 1984 (c 35). The 2016 General Data Protection Regulation supersedes previous Protection Acts. The Data Protection Act 2018 (c 12) updates data protection laws in the UK. It is a national law which complements the European Union's General Data Protection Regulation (GDPR).
In Canada, the Personal Information Protection and Electronic Documents Act (PIPEDA) went into effect on 1 January 2001, applicable to private bodies which are federally regulated. All other organizations were included on 1 January 2004. [19] [20] The PIPEDA brought Canada into compliance with EU data protection law, [21] although civil society, regulators, and academics have claimed that it does not address modern challenges of privacy law as well as the GDPR does, calling for reform. [22]
The PIPEDA specifies the rules to govern collection, use, or disclosure of the personal information in the course of recognizing the right of privacy of individuals with respect to their personal information. It also specifies the rules for the organizations to collect, use, and disclose personal information.
The PIPEDA applies to:
The PIPEDA does not apply to:
As specified in the PIPEDA:
"Personal Information" means information about an identifiable individual, but does not include the name, title, or business address or telephone number of an employee of an organization.
"Organization" means an association, a partnership, a person and a trade union.
"Federal work, undertaking or business" means any work, undertaking or business that is within the legislative authority of Parliament, including:
The PIPEDA gives individuals the right to:
The PIPEDA requires organizations to:
Data privacy is not highly legislated or regulated in the U.S. [23] In the United States, access to private data contained in, for example, third-party credit reports may be sought when seeking employment or medical care, or making automobile, housing, or other purchases on credit terms. Although partial regulations exist, there is no all-encompassing law regulating the acquisition, storage, or use of personal data in the U.S. In general terms, in the U.S., whoever can be troubled to key in the data, is deemed to own the right to store and use it, even if the data was collected without permission, except to any extent regulated by laws and rules such as the federal Communications Act's provisions, and implementing rules from the Federal Communications Commission, regulating use of customer proprietary network information (CPNI). For instance, the Health Insurance Portability and Accountability Act of 1996 (HIPAA), the Children's Online Privacy Protection Act of 1998 (COPPA), and the Fair and Accurate Credit Transactions Act of 2003 (FACTA), are all examples of U.S. federal laws with provisions which tend to promote information flow efficiencies.
The Supreme Court interpreted the Constitution to grant a right of privacy to individuals in Griswold v. Connecticut . [24] Very few states, however, recognize an individual's right to privacy, a notable exception being California. An inalienable right to privacy is enshrined in the California Constitution's article 1, section 1, and the California legislature has enacted several pieces of legislation aimed at protecting this right. The California Online Privacy Protection Act (OPPA) of 2003 requires operators of commercial web sites or online services that collect personal information on California residents through a web site to conspicuously post a privacy policy on the site and to comply with its policy.
An early attempt to create rules around the use of information in the U.S. was the fair information practice guidelines developed by the Department for Health, Education and Welfare (HEW) (later renamed Department of Health & Human Services (HHS)), by a Special Advisory Committee on Automated Personal Data Systems, under the chairmanship of computer pioneer and privacy pioneer Willis H. Ware. The report submitted by the Chair to the HHS Secretary titled "Records, Computers and Rights of Citizens (07/01/1973)", [25] [26] proposes universal principles for the privacy and protection of consumer and citizen data:
The safe harbor arrangement was developed by the United States Department of Commerce in order to provide a means for U.S. companies to demonstrate compliance with European Commission directives and thus to simplify relations between them and European businesses. [27]
The Health Insurance Portability and Accountability Act (HIPAA) was enacted by the U.S. Congress in 1996. HIPAA is also known as the Kennedy-Kassebaum Health Insurance Portability and Accountability Act (HIPAA-Public Law 104-191), effective August 21, 1996. The basic idea of HIPAA is that an individual who is a subject of individually identifiable health information should have:
One difficulty with HIPAA is that there must be a mechanism to authenticate the patient who demands access to his/her data. As a result, medical facilities have begun to ask for Social Security Numbers from patients, thus arguably decreasing privacy by simplifying the act of correlating health records with other records. [28] The issue of consent is problematic under HIPAA, because the medical providers simply make care contingent upon agreeing to the privacy standards in practice.
The Fair Credit Reporting Act applies the principles of the Code of Fair Information Practice to credit reporting agencies. The FCRA allows individuals to opt out of unwanted credit offers:
Because of the Fair and Accurate Credit Transactions Act, each person can obtain a free annual credit report. [29]
The Fair Credit Reporting Act has been effective in preventing the proliferation of specious so-called private credit guides. Before 1970, [ when? ] [30] private credit guides offered detailed, if unreliable, information on easily identifiable individuals. [31] [32] Before the Fair Credit Reporting Act, salacious unsubstantiated material could be included – and in fact, gossip was widely included in credit reports. [33] EPIC has a FCRA page. The Consumer Data Industry Association, which represents the consumer reporting industry, also has a website with FCRA information.
The Fair Credit Reporting Act provides consumers the ability to view, correct, contest, and limit the uses of credit reports. The FCRA also protects the credit agency from the charge of negligent release in the case of misrepresentation by the requester. Credit agencies must ask the requester the purpose of a requested information release, but need to make no effort to verify the truth of the requester's assertions. In fact, the courts have ruled that, "The Act clearly does not provide a remedy for an illicit or abusive use of information about consumers" (Henry v Forbes, 1976). It is widely believed that in order to avoid the FCRA, ChoicePoint was created by Equifax at which time the parent company copied all its records to its newly created subsidiary. ChoicePoint is not a credit reporting agency, and thus FCRA does not apply. [34]
The Fair Debt Collection Practices Act similarly limits dissemination of information about a consumer's financial transactions. It prevents creditors or their agents from disclosing the fact that an individual is in debt to a third party, although it allows creditors and their agents to attempt to obtain information about a debtor's location. It limits the actions of those seeking payment of a debt. For example, debt collection agencies are prohibited from harassment or contacting individuals at work. The Bankruptcy Abuse Prevention and Consumer Protection Act of 2005 (which actually gutted consumer protections, for example in case of bankruptcy resulting from medical cost) limited some of these controls on debtors.
The Electronic Communications Privacy Act (ECPA) establishes criminal sanctions for interception of electronic communication. However, the legislation has been criticized for lack of impact due to loopholes. [35]
The following summarized some of the laws, regulations and directives related to the protection of information systems:
Several US federal agencies have privacy statutes that cover their collection and use of private information. These include the Census Bureau, the Internal Revenue Service, and the National Center for Education Statistics (under the Education Sciences Reform Act). In addition, the CIPSEA statute protects confidentiality of data collected by federal statistical agencies.
Lawmakers in several states have proposed legislation to change the way online businesses handle user information. Among those generating significant attention are several Do Not Track legislation and the Right to Know Act (California Bill AB 1291). The California Right to Know Act, if passed, would require every business which keeps user information to provide its user a copy of stored information when requested. [36] The bill faced heavy oppositions from trade groups representing companies such as Google, Microsoft, and Facebook, and failed to pass. [37]
Arkansas has a biometric data privacy law. [38]
On June 28, 2018 California legislature passed AB 375, the California Consumer Privacy Act of 2018, effective January 1, 2020. [39] In November 2020, Proposition 24, also known as the California Privacy Rights Act, amended and expanded the CCPA. [40] The law specifically protects employee data. [41]
On June 6, 2023, Florida enacted Florida Senate Bill 262, effective July 1, 2024. It gives consumers the right to confirm whether businesses with over $1 billion in gross annual revenue who derive more than half of their revenue from online ads collected data about them and control over the data, including correction and deletion. The law also prohibits government agencies from asking a social media companies to censor content or remove users from its platform. [42]
On October 3, 2008, Illinois enacted the Biometric Information Privacy Act. The law was the first in the nation to regulate biometric data. [43] The law requires private businesses to obtain consent to collect or disclose the biometric identifiers of consumers. The law also requires the data be securely stored and destroyed in a timely manner. [44] The law specifically protects employee data. [41]
In 2021, New York enacted a commercial biometric data privacy law that requires businesses to conspicuously notify consumers of data collection. The law bars employers from collecting biometric data from employees. [38]
In 2009, Texas enacted a consumer law requiring consent for biometric data for commercial use to be leased, sold, or disclosed. The law also requires the data be destroyed within one year of collection. [43] [38]
In 2017, Washington enacted a specific consumer biometric data privacy law covering commercial use. [43] [38]
On April 27, 2023, Washington enacted the My Health, My Data Act, effective March 31, 2024. [45] The law was the first in the nation to regulate consumer health data not protected by HIPAA. [46] The law requires companies to obtain prior authorization to obtain, share, or sell health data, including data that can be used to infer or linked to health status, such as purchasing medications or digestion tracking. The law guarantees the right to withdraw consent and request deletion. The law also prohibits geo-fences around healthcare facilities. [46] [47]
Brazil's General Personal Data Protection Law (LGPD) became law on September 18, 2020. The law's primary aim is to unify 40 different Brazilian laws that regulate the processing of personal data. The bill has 65 articles and has many similarities to the GDPR. [48]
Unlike the U.S. approach to privacy protection, which relies on industry-specific legislation, regulation and self-regulation, the European Union relies on the comprehensive privacy legislation. The European Directive on Data Protection that went into effect in October 1998, includes, for example, the requirement to create government data protection agencies, registration of databases with those agencies, and in some instances prior approval before personal data processing may begin. In order to bridge these different privacy approaches and provide a streamlined means for U.S. organizations to comply with the Directive, the U.S. Department of Commerce in consultation with the European Commission developed a "safe harbor" framework. In order for the framework to be enforced, companies must publicly publish a privacy policy. [49]
Information privacy is the relationship between the collection and dissemination of data, technology, the public expectation of privacy, contextual information norms, and the legal and political issues surrounding them. It is also known as data privacy or data protection.
The Data Protection Directive, officially Directive 95/46/EC, enacted in October 1995, was a European Union directive which regulated the processing of personal data within the European Union (EU) and the free movement of such data. The Data Protection Directive was an important component of EU privacy and human rights law.
Medical privacy, or health privacy, is the practice of maintaining the security and confidentiality of patient records. It involves both the conversational discretion of health care providers and the security of medical records. The terms can also refer to the physical privacy of patients from other patients and providers while in a medical facility, and to modesty in medical settings. Modern concerns include the degree of disclosure to insurance companies, employers, and other third parties. The advent of electronic medical records (EMR) and patient care management systems (PCMS) have raised new concerns about privacy, balanced with efforts to reduce duplication of services and medical errors.
The Personal Information Protection and Electronic Documents Act is a Canadian law relating to data privacy. It governs how private sector organizations collect, use and disclose personal information in the course of commercial business. In addition, the Act contains various provisions to facilitate the use of electronic documents. PIPEDA became law on 13 April 2000 to promote consumer trust in electronic commerce. The act was also intended to reassure the European Union that the Canadian privacy law was adequate to protect the personal information of European citizens. In accordance with section 29 of PIPEDA, Part I of the Act must be reviewed by Parliament every five years. The first Parliamentary review occurred in 2007.
A privacy policy is a statement or legal document that discloses some or all of the ways a party gathers, uses, discloses, and manages a customer or client's data. Personal information can be anything that can be used to identify an individual, not limited to the person's name, address, date of birth, marital status, contact information, ID issue, and expiry date, financial records, credit information, medical history, where one travels, and intentions to acquire goods and services. In the case of a business, it is often a statement that declares a party's policy on how it collects, stores, and releases personal information it collects. It informs the client what specific information is collected, and whether it is kept confidential, shared with partners, or sold to other firms or enterprises. Privacy policies typically represent a broader, more generalized treatment, as opposed to data use statements, which tend to be more detailed and specific.
Personal data, also known as personal information or personally identifiable information (PII), is any information related to an identifiable person.
A cybersecurity regulation comprises directives that safeguard information technology and computer systems with the purpose of forcing companies and organizations to protect their systems and information from cyberattacks like viruses, worms, Trojan horses, phishing, denial of service (DOS) attacks, unauthorized access and control system attacks. While cybersecurity regulations aim to minimize cyber risks and enhance protection, the uncertainty arising from frequent changes or new regulations can significantly impact organizational response strategies.
The International Safe Harbor Privacy Principles or Safe Harbour Privacy Principles were principles developed between 1998 and 2000 in order to prevent private organizations within the European Union or United States which store customer data from accidentally disclosing or losing personal information. They were overturned on October 6, 2015, by the European Court of Justice (ECJ), which enabled some US companies to comply with privacy laws protecting European Union and Swiss citizens. US companies storing customer data could self-certify that they adhered to 7 principles, to comply with the EU Data Protection Directive and with Swiss requirements. The US Department of Commerce developed privacy frameworks in conjunction with both the European Union and the Federal Data Protection and Information Commissioner of Switzerland.
Privacy law is a set of regulations that govern the collection, storage, and utilization of personal information from healthcare, governments, companies, public or private entities, or individuals.
Information sensitivity is the control of access to information or knowledge that might result in loss of an advantage or level of security if disclosed to others. Loss, misuse, modification, or unauthorized access to sensitive information can adversely affect the privacy or welfare of an individual, trade secrets of a business or even the security and international relations of a nation depending on the level of sensitivity and nature of the information.
Security breach notification laws or data breach notification laws are laws that require individuals or entities affected by a data breach, unauthorized access to data, to notify their customers and other parties about the breach, as well as take specific steps to remedy the situation based on state legislature. Data breach notification laws have two main goals. The first goal is to allow individuals a chance to mitigate risks against data breaches. The second goal is to promote company incentive to strengthen data security.Together, these goals work to minimize consumer harm from data breaches, including impersonation, fraud, and identity theft.
Canadian privacy law is derived from the common law, statutes of the Parliament of Canada and the various provincial legislatures, and the Canadian Charter of Rights and Freedoms. Perhaps ironically, Canada's legal conceptualization of privacy, along with most modern legal Western conceptions of privacy, can be traced back to Warren and Brandeis’s "The Right to Privacy" published in the Harvard Law Review in 1890, Holvast states "Almost all authors on privacy start the discussion with the famous article 'The Right to Privacy' of Samuel Warren and Louis Brandeis".
The German Bundesdatenschutzgesetz (BDSG) is a federal data protection act, that together with the data protection acts of the German federated states and other area-specific regulations, governs the exposure of personal data, which are manually processed or stored in IT systems.
Do Not Track legislation protects Internet users' right to choose whether or not they want to be tracked by third-party websites. It has been called the online version of "Do Not Call". This type of legislation is supported by privacy advocates and opposed by advertisers and services that use tracking information to personalize web content. Do Not Track (DNT) is a formerly official HTTP header field, designed to allow internet users to opt-out of tracking by websites—which includes the collection of data regarding a user's activity across multiple distinct contexts, and the retention, use, or sharing of that data outside its context. Efforts to standardize Do Not Track by the World Wide Web Consortium did not reach their goal and ended in September 2018 due to insufficient deployment and support.
The General Data Protection Regulation, abbreviated GDPR, or French RGPD is a European Union regulation on information privacy in the European Union (EU) and the European Economic Area (EEA). The GDPR is an important component of EU privacy law and human rights law, in particular Article 8(1) of the Charter of Fundamental Rights of the European Union. It also governs the transfer of personal data outside the EU and EEA. The GDPR's goals are to enhance individuals' control and rights over their personal information and to simplify the regulations for international business. It supersedes the Data Protection Directive 95/46/EC and, among other things, simplifies the terminology.
Chris Jay Hoofnagle is an American professor at the University of California, Berkeley who teaches information privacy law, computer crime law, regulation of online privacy, internet law, and seminars on new technology. Hoofnagle has contributed to the privacy literature by writing privacy law legal reviews and conducting research on the privacy preferences of Americans. Notably, his research demonstrates that most Americans prefer not to be targeted online for advertising and despite claims to the contrary, young people care about privacy and take actions to protect it. Hoofnagle has written scholarly articles regarding identity theft, consumer privacy, U.S. and European privacy laws, and privacy policy suggestions.
The gathering of personally identifiable information (PII) refers to the collection of public and private personal data that can be used to identify individuals for various purposes, both legal and illegal. PII gathering is often seen as a privacy threat by data owners, while entities such as technology companies, governments, and organizations utilize this data to analyze consumer behavior, political preferences, and personal interests.
The Data Protection Act 2018 is a United Kingdom Act of Parliament which updates data protection laws in the UK. It is a national law which complements the European Union's General Data Protection Regulation (GDPR) and replaces the Data Protection Act 1998.
The right of access, also referred to as right to access and (data) subject access, is one of the most fundamental rights in data protection laws around the world. For instance, the United States, Singapore, Brazil, and countries in Europe have all developed laws that regulate access to personal data as privacy protection. The European Union states that: "The right of access occupies a central role in EU data protection law's arsenal of data subject empowerment measures." This right is often implemented as a Subject Access Request (SAR) or Data Subject Access Request (DSAR).
Data minimization is the principle of collecting, processing and storing only the necessary amount of personal information required for a specific purpose. The principle emanates from the realisation that processing unnecessary data is creating unnecessary risks for the data subject without creating any current benefit or value. The risks of processing personal data vary from identity theft to unreliable inferences resulting in incorrect, wrongful and potentially dangerous decisions.
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