Informed Consent Action Network

Last updated
Informed Consent Action Network
AbbreviationICAN
Formation2016
Founder Del Bigtree
PurposeAnti-vaccination advocacy group
Location
Official language
English
CEO
Del Bigtree
Chief Operating Officer
Catharine Layton
Public Relations
James Scherrer
Budget (2019)
$3.46 million
Staff (2019)
5
Website icandecide.org

The Informed Consent Action Network (ICAN) is one of the main anti-vaccination groups in the United States. Founded in 2016 by Del Bigtree, it spreads misinformation about the risks of vaccines and contributes to vaccine hesitancy, [1] [2] [3] which has been identified by the World Health Organization as one of the top ten global health threats of 2019. [4] [5] Arguments against vaccination are contradicted by overwhelming scientific consensus about the safety and effectiveness of vaccines. [6] [7] [8] [9]

Contents

Funding and activities

ICAN was founded in 2016 by television producer Del Bigtree, after the release of the movie Vaxxed: From Cover-Up to Catastrophe , which he wrote and produced, with anti-vaccination activist Andrew Wakefield directing. The national attention Bigtree gained with the movie and its promotion tour allowed the newly-formed group to quickly assume a leading role among the anti-vaccination movement. [1] [10] [11] Scientists have countered many of ICAN's statements, arguments against vaccination being contradicted by overwhelming scientific consensus about the safety and efficacy of vaccines. [12] [13] [14] [15]

ICAN was established with a $100,000 grant from the Selz Foundation. Its budget ballooned to $1.4 million in 2017, with one million coming from the Selz Foundation, making ICAN the most well-funded anti-vaccination group in the United States that year. [16] In 2019, the Selz had stopped their funding, but ICAN received $2.46 million funneled through the donor-directed charitable trust investment firm T. Rowe Price, out of total revenue of $3.46 million. [17] [18] ICAN reported making $5.5 million in revenue in 2020, a 60% increase from the previous year. [18] The group received a significant part of its funding in the early days of the pandemic from the charitable foundations from investment firm that anonymize donations: $235,000 from Fidelity Investments' foundation (2021-22), $600,000 from The Vanguard Group's foundation (2020 to 2022), $400,000 from Schwab Charitable (2020 to 2022), $135,000 from the Morgan Stanley Global Impact Funding Trust (2020 and 2021). It also received $15,000 from Donors Trust (2021). [19] In 2022, ICAN received a total of $13.4 million in funding. [20]

In 2019, ICAN paid a salary of $232,000 to Del Bigtree as its CEO, $162,000 to its Executive Producer Jenn Sherry Parry, $138,000 to its Chief Administrative Officer Catharine Layton, and 111,000 to Patrick Layton as Creative Director. [1] [21] An article in Rolling Stone states that Layton stumbled upon the anti-vaccine movement on social media after her two sons were diagnosed with autism. [3] :1 By 2022, Bigtree's compensation had increased to $284,000. [20]

Despite spreading misinformation about vaccines, the group received a federal loan of $165,600 through the Paycheck Protection Program in 2020. [22] [23] It also holds Facebook fundraisers, this contributing $23,000 to its bottom line in 2021. [18] Like other anti-vaccination groups, ICAN directs their Instagram followers to a fundraising tool. [24]

Much of the group's funding in spent on legal fees, with a total of $13.8 million being paid to law firm Siri & Glimstad. [25]

Given the impact they had during the height of the COVID-19 pandemic, ethicist Arthur Caplan commented that funding ICAN and similar groups might have grave consequence in future epidemics. [20]

In 2019, Bigtree was a keynote speaker at several anti-vaccination events targeting the ultra-Orthodox Jewish in Brooklyn and in Rockland County. [1] [26] He has been criticized by the Anti-Defamation League and the Auschwitz-Birkenau Memorial and Museum for wearing a Star of David at an anti-vaccination event, attempting to compare the treatment of those opposed to vaccination with the persecution of the Jewish people. [27] [28] [29] [30] Bigtree's anti-vaccine advocacy has been described by anti-vaccination movement critic physician David Gorski as "fear mongering based on misinformation". [31]

In 2020, Facebook and Youtube removed Del Bigtree's anti-vaccination show The Highwire from their social media platforms, as part of efforts to limit the spread of disinformation about COVID-19. ICAN sued them for that, alleging the audience of the videos have decreased by half since they had to relocate it on their own website, although it continued streaming on Twitter. ICAN lost the court case in early 2022. [18] [17]

Experts observing the anti-vaccination movement believe ICAN is crafting its communications in order to appeal to the segment of the population that distrusts expertise and government. Bigtree regularly appears in events that cater to those ideologies, including an event in October, 2020, at Trump National Doral Miami, a Florida resort owned by Donald Trump, where several leading figures of the QAnon movement also spoke. [32]

Access to information lawsuits

ICAN spends a large part of its budget on legal fees, paid to Siri & Glimstad. The law firm has made a specialty out of challenging vaccine mandates during the COVID-19 pandemic. [18]

In 2018, ICAN filed Freedom of information lawsuits to force the Food and Drug Administration, the National Institutes of Health and the Department of Health and Human Services (HHS) to release administrative reports on childhood vaccine injury HHS is required to file with Congress. HHS replied that they could not find any such reports. [1] :1 [33] :1 While ICAN claimed the absence of these reports means that the federal government has neglected to properly study the effect of vaccines, [33] :1 scientists and the fact-checking site PolitiFact pointed out a large number of in-depth studies were undertaken and their results shared with the public, even though HHS failed to file the required reports. [33] :1

Dorit Reiss, a Professor of Law at the University of California, explained, "ICAN uses FOIA requests as a query, asking questions that likely do not have government records." She added, "when the government, predictably, says they do not have such records (because many of CDC's statements on scientific matters are based, for example, on scientific literature rather than government records), ICAN misrepresents that as showing there is no evidence - where all the answer shows is that there is no specific record." [34]

Related Research Articles

The National Vaccine Information Center (NVIC), founded under the name Dissatisfied Parents Together (DPT) in 1982, is an American 501(c)(3) organization that has been widely criticized as a leading source of fearmongering and misinformation about vaccines. While NVIC describes itself as the "oldest and largest consumer-led organization advocating for the institution of vaccine safety and informed consent protections", it promotes false and misleading information including the discredited claim that vaccines cause autism, and its campaigns portray vaccination as risky, encouraging people to consider "alternatives." In April 2020, the organization was identified as one of the greatest disseminators of COVID-19 misinformation on Facebook.

<span class="mw-page-title-main">Joseph Mercola</span> American alternative medicine proponent and purveyor of anti-vaccination misinformation

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<span class="mw-page-title-main">Sherri Tenpenny</span> Anti-vaccination activist

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Children's Health Defense (CHD) is an American 501(c)(3) nonprofit activist group mainly known for anti-vaccine disinformation, and which has been called one of the main sources of misinformation on vaccines. Founded under the name World Mercury Project in 2007, it is chaired by Robert F. Kennedy Jr. The group has been campaigning against various public health programs, such as vaccination and fluoridation of drinking water. The group has been contributing to vaccine hesitancy in the United States, encouraging citizens and legislators to support anti-vaccine regulations and legislation. Arguments against vaccination are contradicted by overwhelming scientific consensus about the safety and effectiveness of vaccines. Its $15-million budget is funded through donations from individuals and affiliate marketing revenues.

<span class="mw-page-title-main">Vaccine Choice Canada</span> Canadian anti-vaccination group

Vaccine Choice Canada (VCC) is Canada's main anti-vaccination group. It was founded in the 1980s under the name Vaccination Risk Awareness Network (VRAN) and adopted its current name in 2014. The group has been contributing to vaccine hesitancy in Canada, encouraging citizens to forgo immunization and legislators to support anti-vaccine regulations and legislation.

Bernard Thierry Selz is a fund manager and anti-vaccination supporter based in Manhattan. His wife Lisa serves as president of the Selz Foundation, a charitable group. They are major financiers of anti-vaccination groups.

<span class="mw-page-title-main">Del Bigtree</span> American television producer and anti-vaccination activist

Del Matthew Bigtree is an American television and film producer who is the CEO of the anti-vaccination group Informed Consent Action Network. He produced the film Vaxxed: From Cover-Up to Catastrophe, based on the discredited opinions of Andrew Wakefield and alleges an unsubstantiated connection between vaccines and autism.

Taylor Winterstein is an Australian-Samoan online influencer and conspiracy theorist best known for her public anti-vaccination stance. Winterstein has been heavily criticised in several South Pacific, and Australasian countries for her anti-vaccination rhetoric and her seminars have been called "irresponsible" by the Australian Medical Association and a "public health threat" by the Samoan Ministry of Health. She claims she has not encouraged non-vaccination, rather, "informed consent" and "freedom of choice".

The Stop Mandatory Vaccination website and associated Facebook group are some of the major hubs of the American anti-vaccination movement. It was established by anti-vaccination activist Larry Cook in 2015.

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See also