List of biobanks

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A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks.[ citation needed ]

Contents

Classification

Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.

Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease. [1] Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population. [2]

List of biobanks
BiobankAffiliationFocusTypeLocationFoundingNotes
All of Us Populationnon-profitUnited States
Autism Genetic Resource Exchange Autism Speaks Autism non-profitNorth America and Asia
Avon Longitudinal Study of Parents and Children University of Bristol non-profitUnited Kingdom1990 [3] [4]
BioBank Graz Medical University of Graz non-profitAustria [5]
Vilnius Santaros Klinikos Biobank Vilnius University Hospital Santaros Klinikos non-profitLithuania
BioBank Japan RIKEN, University of Tokyo Population, personalized medicinenon-profitJapan2003 [6]
Canadian Biosample Repository University of Alberta non-profitCanada
CARTaGENE biobank Centre hospitalier universitaire Sainte-Justine non-profitQuebec2009 [7] [8]
Cooperative Human Tissue Network Cancer governmentUSA1987
Coriell Institute for Medical Research Genetic Disorders, rare diseases, Stem Cells non-profitUnited States1953
DeCODE genetics commercialIceland [9]
Estonian Genome Project University of Tartu non-profitEstonia2000
EuroBioBank Rare diseasesnon-profitEurope
FINBBPopulationnon-profitFinland [10]
FinnGen Population, disease focusedpublic-privateFinland2017 [11]
Generation Scotland NHS Scotland governmentScotland1999 [12] [13]
Genomics England Rare diseases, cancer public-privateEngland2013 [14]
HUNT Biobank Norwegian University of Science and Technology non-profitNorway2002
Integrated Biobank of LuxembourgLuxembourg Institute of HealthCancer, immunologyLuxembourg
Interdisziplinäre Biomaterial- und Datenbank Würzburg University of Würzburg & Universitätsklinikum Würzburgpublic agencyWürzburg, Germany2013 [15]
Kaiser Permanente Research Bank Kaiser Permanente PopulationUnited States2016 [16] [17]
Lifelines University of Groningen & University Medical Centre Groningen Healthy agingnon-profitGroningen, The Netherlands2006
Million Veterans Project United States Department of Veterans Affairs American veteransnon-profitUnited States [18]
MyCode Geisinger Health System Electronic health records, personalized medicinecommercialPennsylvania, United States2007 [19]
nPOD University of Florida, JDRF Diabetes non-profitUnited States2007 [20]
PATH Biobank Breast cancer non-profitGermany2002
Plasma Services GroupAutoimmune, Infectious, Coagulation, Diagnostics [21] commercialUnited States2017
Sapien Biosciences Apollo Hospitals & Saarum InnovationsPopulation, with special focus on tailoring treatment for Cancer privateIndia (headquartered in Hyderabad)2012 [22]
Signature biobank  [ fr ]Research centre of the Montreal Mental Health Institute Mental health non-profitCanada (Quebec)2012 [23]
The Malaysian Cohort National University of Malaysia non-profitMalaysia2003
Tohoku Medical Megabank Project Tohoku University, Iwate Medical University Population, Birth and Three-Generationnon-profitJapan2012 [24] [25]
UK Biobank non-profitUnited Kingdom2006 [26]
Biobank Sweden Health and Social Care Inspectorate Collaborative biobank infrastructure (nearly 250 biobanks)governmentSweden2017 [27] [28]

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<span class="mw-page-title-main">UK Biobank</span> Long-term biobank study of 500,000 people

UK Biobank is a long-term prospective biobank study in the United Kingdom (UK) that houses de-identified biological samples and health-related data on half a million people. Volunteer participants aged 40-69 were recruited between 2006 and 2010 from across Great Britain and consented to share their health data and to be followed for at least 30 years thereafter with the aim to enable scientific discoveries into the prevention, diagnosis, and treatment of disease.

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<span class="mw-page-title-main">Biobank</span> Repository of biological samples used for research

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CARTaGENE is a population-based cohort based on an ongoing and long-term health study of 40,000 men and women in Québec. It is a regional cohort member of the Canadian Partnership for Tomorrow's Health (CanPath). The project's core mandate is to identify the genetic and environmental causes of common chronic diseases affecting the Québecois population, and to develop personalized medicine and public policy initiatives targeting high-risk groups for the public.

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References

  1. ↑ Bevilacqua, G.; Bosman, F.; Dassesse, T.; Höfler, H.; Janin, A.; Langer, R.; Larsimont, D.; Morente, M. M.; Riegman, P.; Schirmacher, P.; Stanta, G.; Zatloukal, K.; Caboux, E.; Hainaut, P. (2010). "The role of the pathologist in tissue banking: European Consensus Expert Group Report". Virchows Archiv. 456 (4): 449–454. doi:10.1007/s00428-010-0887-7. PMC   2852521 . PMID   20157825.
  2. ↑ Riegman, P. H. J.; Morente, M. M.; Betsou, F.; De Blasio, P.; Geary, P.; Marble Arch International Working Group on Biobanking for Biomedical Research (2008). "Biobanking for better healthcare". Molecular Oncology. 2 (3): 213–222. doi:10.1016/j.molonc.2008.07.004. PMC   5527804 . PMID   19383342.
  3. ↑ Boyd, A.; Golding, J.; Macleod, J.; Lawlor, D. A.; Fraser, A.; Henderson, J.; Molloy, L.; Ness, A.; Ring, S.; Davey Smith, G. (16 April 2012). "Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children". International Journal of Epidemiology. 42 (1): 111–127. doi:10.1093/ije/dys064. PMC   3600618 . PMID   22507743.
  4. ↑ Levitt, Mairi (2011). "Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?". Health Care Analysis. 19 (3): 220–230. doi:10.1007/s10728-011-0193-9. PMID   21915714. S2CID   13953737.
  5. ↑ "About Biobank Graz" . Retrieved 2021-03-16.
  6. ↑ Nagai, Akiko; Hirata, Makoto; Kamatani, Yoichiro; Muto, Kaori; Matsuda, Koichi; Kiyohara, Yutaka; Ninomiya, Toshiharu; Tamakoshi, Akiko; Yamagata, Zentaro; Mushiroda, Taisei; Murakami, Yoshinori (March 2017). "Overview of the BioBank Japan Project: Study design and profile". Journal of Epidemiology. 27 (3): S2–S8. doi:10.1016/j.je.2016.12.005. PMC   5350590 . PMID   28189464.
  7. ↑ Awadalla, Philip; Catherine Boileau; Yves Payette; Youssef Idaghour; Jean-Philippe Goulet; Bartha Knoppers; Pavel Hamet; Claude Laberge (October 15, 2012). "Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics". International Journal of Epidemiology. 42 (5): 1285–99. doi: 10.1093/ije/dys160 . PMID   23071140.
  8. ↑ "Cartagene". cartagene.qc.ca. Retrieved 3 April 2013.
  9. ↑ "From Genes to Drugs". decode.com. deCODE genetics. Archived from the original on 2008-05-09. Retrieved 2008-05-04.
  10. ↑ "FinBioBank" . Retrieved 2019-11-23.
  11. ↑ "FinnGen-tutkimushanke vie suomalaiset löytöretkelle genomitietoon | Drupal". finngen.fi. Retrieved 2019-11-23.
  12. ↑ Smith BH, Campbell H, Blackwood D, et al. (2006). "Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability". BMC Medical Genetics. 7: 74. doi: 10.1186/1471-2350-7-74 . PMC   1592477 . PMID   17014726.
  13. ↑ Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ (February 2009). "Some principles and practices of genetic biobanking studies". The European Respiratory Journal. 33 (2): 419–25. doi: 10.1183/09031936.00043508 . PMID   19181915.
  14. ↑ "Genomics England | 100,000 Genomes Project" . Retrieved 2019-11-23.
  15. ↑ "Interdisziplinäre Biomaterial- und Datenbank Würzburg". ukw.de. Retrieved 2022-10-13.
  16. ↑ "Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery". Kaiser Permanente. 11 April 2018.
  17. ↑ "Kaiser Permanente Research Bank". Kaiser Permanente. Retrieved 8 November 2018.
  18. ↑ Gaziano, John Michael; Concato, John; Brophy, Mary; Fiore, Louis; Pyarajan, Saiju; Breeling, James; Whitbourne, Stacey; Deen, Jennifer; Shannon, Colleen; Humphries, Donald; Guarino, Peter (February 2016). "Million Veteran Program: A mega-biobank to study genetic influences on health and disease". Journal of Clinical Epidemiology. 70: 214–223. doi: 10.1016/j.jclinepi.2015.09.016 . PMID   26441289.
  19. ↑ Carey, David J.; Fetterolf, Samantha N.; Davis, F. Daniel; Faucett, William A.; Kirchner, H. Lester; Mirshahi, Uyenlinh; Murray, Michael F.; Smelser, Diane T.; Gerhard, Glenn S.; Ledbetter, David H. (2016). "The Geisinger MyCode community health initiative: an electronic health record–linked biobank for precision medicine research". Genetics in Medicine. 18 (9). Elsevier BV: 906–913. doi: 10.1038/gim.2015.187 . ISSN   1098-3600. PMC   4981567 . PMID   26866580.
  20. ↑ "JDRF nPOD | Network for Pancreatic Organ Donors with Diabetes". jdrfnpod.org. Retrieved 2016-09-22.
  21. ↑ "Plasma Services Group - The Difference is in The Data". Plasma Services Group. Retrieved 2020-12-11.
  22. ↑ "Sapien Biosciences | Asia's first biobank led CDx & phenotypic drug discovery company" . Retrieved 2020-11-19.
  23. ↑ "Banque Signature | Accès aux données et aux biospécimens". Banque Signature (in French). Retrieved 2023-03-27.
  24. ↑ "ToMMo ｜ Tohoku Medical Megabank Organization". ToMMo ｜ Tohoku Medical Megabank Organization (in Japanese). 2015-02-10. Retrieved 2021-12-27.
  25. ↑ "IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION". IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION (in Japanese). Retrieved 2022-01-05.
  26. ↑ "UK Biobank" . Retrieved 2019-11-23.
  27. ↑ "Guide to Biobanks in Sweden" (PDF). biobanksverige.se. Retrieved 2023-03-03.
  28. ↑ "About Biobank Sweden". biobanksverige.se. Retrieved 2023-03-03.
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