Eugenics is a set of beliefs and practices that aim to improve the genetic quality of a human population. Historically, eugenicists have attempted to alter human gene pools by excluding people and groups judged to be inferior or promoting those judged to be superior. In recent years, the term has seen a revival in bioethical discussions on the usage of new technologies such as CRISPR and genetic screening, with heated debate around whether these technologies should be considered eugenics or not.
Human cloning is the creation of a genetically identical copy of a human. The term is generally used to refer to artificial human cloning, which is the reproduction of human cells and tissue. It does not refer to the natural conception and delivery of identical twins. The possibilities of human cloning have raised controversies. These ethical concerns have prompted several nations to pass laws regarding human cloning.
Bioethics is both a field of study and professional practice, interested in ethical issues related to health, including those emerging from advances in biology, medicine, and technologies. It proposes the discussion about moral discernment in society and it is often related to medical policy and practice, but also to broader questions as environment, well-being and public health. Bioethics is concerned with the ethical questions that arise in the relationships among life sciences, biotechnology, medicine, politics, law, theology and philosophy. It includes the study of values relating to primary care, other branches of medicine, ethical education in science, animal, and environmental ethics, and public health.
The Human Genome Organisation (HUGO) is a non-profit organization founded in 1988. HUGO represents an international coordinating scientific body in response to initiatives such as the Human Genome Project. HUGO has four active committees, including the HUGO Gene Nomenclature Committee (HGNC), and the HUGO Committee on Ethics, Law and Society (CELS).
Arthur L. Caplan is an American ethicist and professor of bioethics at New York University Grossman School of Medicine.
Surrogacy is an arrangement, often supported by a legal agreement, whereby a woman agrees to delivery/labour on behalf of another couple or person, who will become the child's parent(s) after birth. People may seek a surrogacy arrangement when a couple or single woman do not wish to carry a pregnancy themselves, when pregnancy is medically impossible, when pregnancy risks are dangerous for the intended mother, or when a single man or a male same sex couple wish to have a child.
A designer baby is a baby whose genetic makeup has been selected or altered, often to exclude a particular gene or to remove genes associated with disease. This process usually involves analysing a wide range of human embryos to identify genes associated with particular diseases and characteristics, and selecting embryos that have the desired genetic makeup; a process known as preimplantation genetic diagnosis. Screening for single genes is commonly practiced, and polygenic screening is offered by a few companies. Other methods by which a baby's genetic information can be altered involve directly editing the genome before birth, which is not routinely performed and only one instance of this is known to have occurred as of 2019, where Chinese twins Lulu and Nana were edited as embryos, causing widespread criticism.
Gregory Stock is an American biophysicist, best-selling author, biotech entrepreneur, and the former director of the Program on Medicine, Technology and Society at UCLA’s School of Medicine. His interests lie in the scientific and evolutionary as well as ethical, social and political implications of today's revolutions in the life sciences and in information technology and computers.
Lori B. Andrews is an American professor of law. She is on the faculty of Illinois Institute of Technology Chicago-Kent College of Law and serves as Director of IIT's Institute for Science, Law, and Technology. In 2002, she was a visiting professor at Princeton University. She received her B.A. summa cum laude from Yale College and her J.D. from Yale Law School. Andrews is a Fellow of the Hastings Center.
Rosario Isasi is a health and human rights attorney, whose research and work focuses on the regulation of human genetic technologies.
The Institute on Biotechnology and the Human Future (IBHF) is an affiliate of the Illinois Institute of Technology (IIT) and is housed at IIT's Chicago-Kent College of Law. The IBHF was founded in 2004 by Lori Andrews, J.D., and Nigel M. de S. Cameron, Ph.D., to discuss and analyze the ethical, legal, and social implications of biotechnologies.
In bioethics, the ethics of cloning concerns the ethical positions on the practice and possibilities of cloning, especially of humans. While many of these views are religious in origin, some of the questions raised are faced by secular perspectives as well. Perspectives on human cloning are theoretical, as human therapeutic and reproductive cloning are not commercially used; animals are currently cloned in laboratories and in livestock production.
Roberto Andorno is Privatdozent at the Faculty of Law, University of Zurich (Switzerland). He is also Research Fellow at the University's Institute of Biomedical Ethics and Medical History, where he also coordinates the PhD Program in biomedical ethics and law. Originally from Argentina, he holds doctoral degrees in law from the Universities of Buenos Aires (1991) and Paris XII (1994), both on topics related to the ethical and legal aspects of assisted reproductive technologies. Between 1999 and 2005 he conducted various research projects relating to global bioethics, human dignity, and human rights at the Laval University, and at the Universities of Göttingen and Tübingen, in Germany.
The International Bioethics Committee (IBC) of UNESCO is a body composed of 36 independent experts from all regions and different disciplines that follows progress in the life sciences and its applications in order to ensure respect for human dignity and human rights. It was created in 1993 by Dr Federico Mayor Zaragoza, General Director of UNESCO at that time. It has been prominent in developing Declarations with regard to norms of bioethics that are regarded as soft law but are nonetheless influential in shaping the deliberations, for example, of research ethics committees and health policy.
Fertility tourism is the practice of traveling to another country or jurisdiction for fertility treatment, and may be regarded as a form of medical tourism. A person who can become pregnant is considered to have fertility issues if they are unable to have a clinical pregnancy after 12 months of unprotected intercourse. Infertility, or the inability to get pregnant, affects about 8-12% of couples looking to conceive or 186 million people globally. In some places, rates of infertility surpass the global average and can go up to 30% depending on the country. Areas with lack of resources, such as assisted reproductive technologies (ARTs), tend to correlate with the highest rates of infertility.
Richard Hayes is visiting scholar at the University of California at Berkeley College of Natural Resources / Energy and Resources Group. He was founding executive director of the Berkeley, California-based Center for Genetics and Society, serving from 1999 through 2012. In the early 1990s he chaired the Sierra Club's Global Warming Campaign Committee. In the 1980s he served on the national staff of the Sierra Club, first as assistant political director and then as national director of volunteer development. He was previously executive director of the San Francisco Democratic Party.
Jan Deckers works in bioethics at Newcastle University. His work revolves mainly around three topics: animal ethics, reproductive ethics and embryo research, and ethics of genetics.
Judit Sándor is a Hungarian lawyer, bioethicist, and author, as well as full professor at the Department of Political Science, Department of Legal Studies and the Department of Gender Studies of the Central European University (CEU), Budapest. She had a bar exam in Hungary before she conducted legal practice at Simmons & Simmons in London. In 1996 she received Ph.D. in law and political science at the Hungarian Academy of Sciences.
Human Genetics Alert is a secular, independent watchdog group based in London, England. It advocates against uses of reproductive technology and human genetics research that it considers harmful.
Vardit Ravitsky is a bioethicist, researcher, and author. She is president and CEO of The Hastings Center, a full professor at the University of Montreal, and a senior lecturer on Global Health and Social Medicine at Harvard Medical School. She is immediate-past president and current vice-president of the International Association of Bioethics, and the director of Ethics and Health at the Center for Research on Ethics. She is a Fellow of the Pierre Elliott Trudeau Foundation, where she chaired the COVID-19 Impact Committee. She is also Fellow of The Hastings Center and of the Canadian Academy of Health Sciences.
