Thanatology is the scientific study of death and the losses brought about as a result. It investigates the mechanisms and forensic aspects of death, such as bodily changes that accompany death and the postmortem period, as well as wider psychological and social aspects related to death. It is primarily an interdisciplinary study offered as a course of study at numerous colleges and universities.
The word is derived from the Greek language. In Greek mythology, Thanatos (θάνατος: "death") is the personification of death. [1] The English suffix -ology derives from the Greek suffix -logia (-λογια: "speaking").
Russian scientist Élie Metchnikoff pioneered the field of thanatology, and was famous for his work in microbiology and the discovery of phagocytosis. "Phagocytosis is the process by which a cell—often a phagocyte or protist—engulfs a solid particle to form an internal compartment known as a phagosome." In 1903, he established a scientific discipline devoted to the study of death. He argued that those who were dying had few or no resources for the experience of dying and that an academic study would help those facing death to have a better understanding of the phenomenon and reduce their fear of it. [2]
Metchnikoff based his ideas for an interdisciplinary study on the fact that while medical students had their obligatory encounters with cadavers through anatomical studies, there was almost no instruction on how to care for the dying, nor was there any research into death included in the curriculum. Because few scholars and educators agreed with Metchnikoff, the support he needed for the realization of his suggestion did not materialize for decades.
Metchnikoff chose to focus on two new areas of study, gerontology and thanatology. Contrary to gerontology, it took about 47 years for most people to accept thanatology as a science. Therefore, the science of thanatology is fairly new for the most part. The altered viewpoints people developed when it came to viewing and coping with death was one reason that thanatology became more accepted across societies.
Thanatology arose with the 'Death with Dignity' movement of the early 1970s as an interdisciplinary category for the study of death. [3] The Death with Dignity movement advocates for patients with a terminal illness to have a choice within a medical and legal framework to intentionally end their life. [4]
Following World War II, the world was haunted with the memories of the many casualties. During this period of reflection many existential philosophers began considering life-and-death issues. One in particular was Herman Feifel, an American psychologist who is considered the pioneer of the modern death movement. [2] Feifel broke the taboo on discussions of death and dying with the publication of his book The Meaning of Death. [5] In this book, Feifel [6] dispelled myths held by scientists and practitioners about death and the denial of its importance for human behavior. It earned wide attention and became a classic in the new field, including as it did contributions from eminent thinkers such as psychiatrist Carl Jung, theologian Paul Tillich and philosopher Herbert Marcuse. Through The Meaning of Death, Feifel was able to lay the foundation for a field that would eventually be known as Thanatology. The field was to improve death education and grief counselling by the use of valid death-related data, methodology and theory.
However, this is only one of several important books in the field of thanatology. Other key texts include The Experience of Death by Paul-Louis Landsberg, the sections on temporality and death from Martin Heidegger's Being and Time, as well as works of a fictional nature, such as Leo Tolstoy's The Death of Ivan Ilyich and As I Lay Dying by William Faulkner.
In most cases, thanatology is not specifically related to palliative care and end-of-life care, which aim to provide treatment for dying individuals and their families. According to the World Health Organization, "palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, involving the 'treatment of pain and other problems, physical, psychosocial and spiritual.'" [7]
Thanatology does not always directly explore the meaning of life and of death, though such questions are relevant to the psychological health of those involved in the dying process: individuals, families, communities, and cultures. [8]
As a consequence of thanatology becoming so prominent, there has been an increase in university education surrounding death, including courses and degree programs in thanatology. [9] [10] A continuing goal of this science is to improve the communication between practice and research since that is something that has been lacking. Thanatology has come a long way and will keep evolving to better our understanding of death. [11] [12] Highly regarded certification programs are also available. [13]
Forensic medicine deals with, among many other things, sudden and unexpected deaths. According to one author: "Forensic medicine is the application of medical knowledge for the scientific investigation of facts and causal relationships, as well as the analysis and interpretation thereof in the service of the law in its broadest sense; moreover, it addresses all legal aspects of the practice of medicine during teaching, medical training, and specialist training." The process of postmortem autopsy, which originated and is well established in modern Europe has not been adopted universally, however. [14]
A large portion of a forensic physician's duty is to assist in inquiries into sudden and suspicious deaths and to examine individuals in connections with allegations of sexual offenses. They also provide expert evidence in court but the notion that they represent individuals in court proceedings reveals a misconception of their role. Legal representation is invariably the province of legally qualified advocates and in many jurisdictions, the right of audience as an advocate is confined by law to those so qualified. [15]
Physicians' rules for forensic science: Any natural scientist who wishes to practice forensic science must obviously acquire forensic knowledge. [16] Not all forensic scientists, however, are medically qualified and nor do medical practitioners have a monopoly in forensic science.
There are a handful of forensic doctors who work closely with prisoners to provide them with clinical assessments. They also put together care plans moving forward with these prisoners. These plans can include prescribing and obtaining medicine and monitoring them from a physical and mental health perspective. [15]
Multiple scholarly journals dedicated specifically to thanatology regularly publish peer-reviewed studies and essays of interest in the field. These include Death Studies, Mortality, Omega:Journal of Death & Dying, Journal of Loss & Trauma, and Illness, Crisis, & Loss. Though Elisabeth Kübler-Ross described Five Stages of Grief with terminal illness (denial, anger, bargaining, depression, and acceptance), some thanatologists disagree about the actual existence of such stages. Some reject the notion as simplistic and empirically unsupported. [17] Dr. Allan Kellerhear pointed out that Kübler-Ross' stage theory was openly discussed and outlined as a heuristic device. He also went on to point out that she put the "stages" in inverted commas to emphasize their tentative nature in the only diagrammatic representation of these ideas in her book, "On Death & Dying."
Studies show that if one's self-esteem is already low, the death of one's partner may well result in greater social and emotional loneliness (concepts defined specifically by the researchers). Aggravated social and emotional loneliness, as thus defined, may result in a feeling of having received less support. [18] However, since an imperfect grasp of these findings may lead to a garbled attempt to describe them, it is desirable to read them fully in their original sources so as to master them as thoroughly as one assimilates Kübler-Ross' theories of responses to loss.
Mortality awareness may be thought essential to our overall well-being as we confront the aging of world societies, global health disparities, emerging biomedical technologies, and shifting understandings of good deaths and lives worth living. [3] However, we must be clear about what we mean by 'mortality awareness'. It is often said, and with some justification, that one phenomenon that distinguishes humans from other evolved beings is our acute awareness of our own mortality. If we mean no more than that we must know we must die in order to flourish, the assertion is facile since most humans are conscious of their mortality but we do not all rise equally well to existential or wider social challenges.
One way to cope with death is to utilize hospice care facilities. Hospice care of dying people is usually palliative rather than curative, and it may ease the suffering of the dying and those who care about them. The services provided in a hospice include: managing the dying individual's pain and symptoms; providing needed drugs, medical supplies and equipment; assisting the individual with emotional, psychological and spiritual aspects of dying; rendering services such as speech and physiotherapy where needed; and coaching family and friends on how to care for the individual. [19]
A common myth about hospice care is that someone must be in their last few days of life, be bedridden or be unable to communicate with others to receive hospice help. However, that is simply not the case. Hospice care is appropriate for those who have been given a prognosis that they are likely to die within around 12 months or less. A decision to use hospice care means the dying individual will ideally spend more quality time with the people they love and have time to look back on life during this peaceful, meaningful period.
Another common myth is that hospice care means giving up hope. Hospice involves coping with death and part of that means acknowledging that some diseases, illnesses and states of being in their advanced stages cannot be cured. The idea of hope varies from person to person and, in hospice care, patients and their loved ones will often seek any form of hope that they can. [20]
However, in places where there is little or no publicly funded provision, various private insurance plans such as Medicare, Medicaid, and HMO will take care of the costs of hospice care, reducing direct expense for the individual's family.
Death and dying was the subject of the 2018 Academy Award-nominated [21] Netflix short documentary, End Game about terminally ill patients in palliative care at a San Francisco hospital and subsequent Hospice care. It featured palliative care physician, BJ Miller and was executive produced by palliative care activist Dr. Shoshana R. Ungerleider. [22]
An episode of Quincy, M.E. titled "Gentle into That Good Night" (season 07 episode 07) featured a Thanatologist by the name of Dr. Pendelton. During the episode Dr. Quincy explores the effect of death on people and his role in the grieving process.
In 2016, an open letter [23] to the singer David Bowie written by a palliative care doctor, Professor Mark Taubert, talked about the importance of good end of life care, being able to express wishes about the last months of life, and good education about issues related to thanatology more generally. The letter went viral after David Bowie's son Duncan Jones shared it. [24] The letter was subsequently read out by the actor Benedict Cumberbatch and the singer Jarvis Cocker at public events. [25]
The 2005 video game Pathologic features a fictional Thanatologist by the name of Daniil Dankovsky as a playable character. His quest to understand and cure death itself is his sole motivation for travelling to the town where the game is set, where he intends to meet with, and perhaps learn the secrets of, a man who has lived an unnaturally long life. [26]
As an interdisciplinary study, thanatology relies on collaboration with many different fields of study. Death is a universal human concern; it has been examined and re-examined in a wide variety of disciplines, dating back to pre-history. Some of these fields of study are academic in nature; others have evolved throughout history as cultural traditions. One of the oldest organizations in the field of thanatology is the U.S.-based Association for Death Education and Counseling [27]
The humanities are, perhaps, the very oldest disciplines to explore death[ citation needed ]. Historically, the average human had a significantly lower standard of living and lifespan than they would today. Wars, famine, and disease always kept death close at hand. Artists, authors, and poets often employed the universality of death as a motif in their works; this trend continues today[ citation needed ].
The social sciences are often involved on both the individual and the cultural level. The individual level is primarily covered by psychology, the study of individual minds. However, to overlook social psychology would be a serious omission. Avoiding (or, in some cases, seeking) death is an important human motive; the fear of death affects many individuals' actions. That fear can be either reinforced or assuaged by social culture.[ citation needed ]
Social science research has frequently encountered the issue of death[ citation needed ]. The subject-matter of Sociology, for instance, extends to but is by no means confined to social rules, conventions and practices. Sub-disciplines within sociology, such as the sociology of death and sociology of disaster, focus more narrowly on such issues as how societies handle death under certain conditions. Likewise, cultural anthropology and archeology are concerned with how various current and past cultures have each dealt with death. Society and culture are related but dissimilar concepts, so the scope of each is different. Thus, a society is an interdependent community, while societal as distinct from individual culture is an attribute of a community, including the complex web of shifting patterns that links some individuals together. In any case, both cultures and societies must deal with death; and various cultural studies (many of which overlap with each other) examine this response taking a variety of approaches.[ citation needed ]
Thanatology is by no means reducible to a section of forensic science and the notion that it can be is symptomatic of the pathological urge of scientism to force all disciplines into its own Procrustean bed. The biological study of death helps explain what happens, physically, to individuals in the moment of dying and during after-death bodily changes, so that extraneous events at the time of death and thereafter can be clarified. In psychiatry and clinical psychology the medical application of psychological principles and therapeutic drugs is also involved; many licensed psychiatrists are required to take courses on thanatology during training. Medical ethics is also an important area of study, especially on the issue of euthanasia ('merciful killing') and assisted suicide. But the degree to which any of these is an aspect of thanatology is a matter of opinion depending primarily on how one defines thanatology itself.[ citation needed ]
There is also a branch of thanatology called music thanatology which focuses on the use of "music vigils" to help dying individuals, their families and friends. [28] A vigil consists of one or a team of music thanatologists who visit the dying person. They play the harp most often but can be any gentle instrument like the guitar and sing music based on changes that they observe in that person's physiology as well as in interpersonal family dynamics. The music tends toward the meditative, and can be very helpful to the dying person and others present. Often after a vigil, the dying person is more relaxed, less agitated, and in less pain. (However, in the nature of things, appreciative or even disparaging reviews of the service by recipients are few and far between.) Some music thanatologists are certified by the Music Thanatology Association International, and they use the initials "CM-Th" to designate certification by this professional organization. A number of hospitals and hospices now have professional music thanatologists on their staff. [29]
Dying is the final stage of life which will eventually lead to death. Diagnosing dying is a complex process of clinical decision-making, and most practice checklists facilitating this diagnosis are based on cancer diagnoses.
Palliative care is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Within the published literature, many definitions of palliative care exist. The World Health Organization (WHO) describes palliative care as "an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain, illnesses including other problems whether physical, psychosocial, and spiritual". In the past, palliative care was a disease specific approach, but today the WHO takes a broader patient-centered approach that suggests that the principles of palliative care should be applied as early as possible to any chronic and ultimately fatal illness. This shift was important because if a disease-oriented approach is followed, the needs and preferences of the patient are not fully met and aspects of care, such as pain, quality of life, and social support, as well as spiritual and emotional needs, fail to be addressed. Rather, a patient-centered model prioritizes relief of suffering and tailors care to increase the quality of life for terminally ill patients.
Gerontology is the study of the social, cultural, psychological, cognitive, and biological aspects of aging. The word was coined by Ilya Ilyich Mechnikov in 1903, from the Greek γέρων (gérōn), meaning "old man", and -λογία (-logía), meaning "study of". The field is distinguished from geriatrics, which is the branch of medicine that specializes in the treatment of existing disease in older adults. Gerontologists include researchers and practitioners in the fields of biology, nursing, medicine, criminology, dentistry, social work, physical and occupational therapy, psychology, psychiatry, sociology, economics, political science, architecture, geography, pharmacy, public health, housing, and anthropology.
Terminal illness or end-stage disease is a disease that cannot be cured or adequately treated and is expected to result in the death of the patient. This term is more commonly used for progressive diseases such as cancer, dementia, advanced heart disease, and for HIV/AIDS, or long COVID in bad cases, rather than for injury. In popular use, it indicates a disease that will progress until death with near absolute certainty, regardless of treatment. A patient who has such an illness may be referred to as a terminal patient, terminally ill or simply as being terminal. There is no standardized life expectancy for a patient to be considered terminal, although it is generally months or less. Life expectancy for terminal patients is a rough estimate given by the physician based on previous data and does not always reflect true longevity. An illness which is lifelong but not fatal is a chronic condition.
According to the model of the five stages of grief, or the Kübler-Ross model, those experiencing sudden grief following an abrupt realization (shock) go through five emotions: denial, anger, bargaining, depression, and acceptance.
Elisabeth Kübler-Ross was a Swiss-American psychiatrist, a pioneer in near-death studies, and author of the internationally best-selling book, On Death and Dying (1969), where she first discussed her theory of the five stages of grief, also known as the "Kübler-Ross model".
Dame Cicely Mary Strode Saunders was an English nurse, social worker, physician and writer. She is noted for her work in terminal care research and her role in the birth of the hospice movement, emphasising the importance of palliative care in modern medicine, and opposing the legalisation of voluntary euthanasia.
Death education is education about death that focuses on the human and emotional aspects of death. Though it may include teaching on the biological aspects of death, teaching about coping with grief is a primary focus. The scientific study of death is known as thanatology. Thanatology stems from the Greek word thanatos, meaning death, and ology meaning a science or organized body of knowledge. A specialist in this field is a thanatologist.
End-of-life care (EOLC) is health care provided in the time leading up to a person's death. End-of-life care can be provided in the hours, days, or months before a person dies and encompasses care and support for a person's mental and emotional needs, physical comfort, spiritual needs, and practical tasks.
The philosophy of healthcare is the study of the ethics, processes, and people which constitute the maintenance of health for human beings. For the most part, however, the philosophy of healthcare is best approached as an indelible component of human social structures. That is, the societal institution of healthcare can be seen as a necessary phenomenon of human civilization whereby an individual continually seeks to improve, mend, and alter the overall nature and quality of their life. This perennial concern is especially prominent in modern political liberalism, wherein health has been understood as the foundational good necessary for public life.
In the United States, hospice care is a type and philosophy of end-of-life care which focuses on the palliation of a terminally ill patient's symptoms. These symptoms can be physical, emotional, spiritual, or social in nature. The concept of hospice as a place to treat the incurably ill has been evolving since the 11th century. Hospice care was introduced to the United States in the 1970s in response to the work of Cicely Saunders in the United Kingdom. This part of health care has expanded as people face a variety of issues with terminal illness. In the United States, it is distinguished by extensive use of volunteers and a greater emphasis on the patient's psychological needs in coming to terms with dying.
Hospice care is a type of health care that focuses on the palliation of a terminally ill patient's pain and symptoms and attending to their emotional and spiritual needs at the end of life. Hospice care prioritizes comfort and quality of life by reducing pain and suffering. Hospice care provides an alternative to therapies focused on life-prolonging measures that may be arduous, likely to cause more symptoms, or are not aligned with a person's goals.
David Kessler is an American author, public speaker, and death and grieving expert. He has published many books, including two co-written with the psychiatrist Elisabeth Kübler-Ross: Life Lessons: Two Experts on Death and Dying Teach Us About the Mysteries of Life and Living, and On Grief & Grieving: Finding the Meaning of Grief Through the Five Stages of Grief. His first book, The Needs of the Dying, received praise from Mother Teresa and Marianne Williamson.
In 2006, hospice and palliative medicine was officially recognized by the American Board of Medical Specialties, and is co-sponsored by the American Boards of
M. R. Rajagopal is an Indian palliative care physician (anesthesiologist) and professor referred to as the 'father of palliative care in India' in honour of his significant contribution to the palliative care scene in India.
Joy Ufema, also known as Joy Counsel, is a retired American nurse and thanatologist. She is noted for her work with terminally ill people in the U.S. state of Pennsylvania, and was the first nurse-thanatologist in the country. Ufema garnered national attention after 60 Minutes aired a segment about her. Ufema was Clinical Specialist in Thanatology for Upper Chesapeake Medical Center/Harford Memorial Hospital. Linda Lavin Played the role of Ufema in a 1981 television film, A Matter of Life and Death.
Stephen Robert Connor is an American licensed clinical health psychologist, researcher, author, executive and palliative care consultant. He is the executive director of the Worldwide Hospice Palliative Care Alliance (WHPCA), formerly called the Worldwide Palliative Care Alliance (WPCA). From 1998 to 2008 he served as Vice President of Research and Development at the National Hospice and Palliative Care Organization (NHPCO). He has promoted global initiatives for hospice and end-of-life care programs through the World Health Assembly. He has also addressed the UN General Assembly on the need for greater pain management in palliative care.
The sociology of death explores and examines the relationships between society and death.
Karen Bullock is an American medical sociologist, clinical social worker, and an academic research scholar. She is the Ahearn Endowed Professor at the Boston College School of Social Work.
Ines Testoni is an Italian psychologist, psychotherapist, author, and academic. She is a professor of Social Psychology at University of Padova. She is also research fellow at the Department of Creative Arts Therapies at University of Haifa and directs Specialization programs in Death and End of Life Studies as well as Creative Arts Therapies for Resilience at University of Padova.