Congressional Hearing Health Caucus

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The Congressional Hearing Health Caucus (Caucus), a caucus of the United States Congress, was created in 2001 [1] in cooperation with the National Campaign for Hearing Health, a public education and advocacy project run by the Deafness Research Foundation (now called the Hearing Health Foundation.) The focus of the Congressional Hearing Health Caucus includes several aims that promote hearing health and encourage universal newborn hearing health screenings for all Americans. Those most at risk for hearing-related concerns are newborns, infants, and the elderly, particularly if such issues are left undetected. Therefore, a primary goal of the Congressional Hearing Health Caucus is to see that auditory abilities of all Americans are screened, including universal hearing screening for newborns. One of the co-founders and co-chairmen of the Caucus was former Congress Member James T. Walsh [2] (R-NY). The Director of the National Campaign for Hearing Health at the time of launch of the CHHC, was Elizabeth Thorp, who had herself been born with unilateral deafness not discovered until she was eight years old. [3]

Contents

Current co-chairs of the Committee are David McKinley (R-WV) and Mike Thompson (D-CA). [4]

Background

Walsh and other Congress members recognized the need for hearing screenings for everyone, but particularly for newborns and infants, [5] [6] [7] [8] as well as individuals who were aging, [5] including American veterans. [9] [10]

In association with his leadership activities of the Caucus, Walsh promoted passage of an act that guaranteed hearing screenings for newborns and infants. [6] The Newborn and Infant Screening and Intervention Program Act was authored and sponsored, mainly, by Walsh in 1999. [8] [11] On March 11, 2009, the act was renamed as the James T. Walsh Universal Newborn Hearing Screening Program, [6] and was identified within 42 United States Code 280g-1. [6] The Act is for "the early detection, diagnosis, and treatment regarding hearing loss in newborns and infants," and includes several provisions so that these endeavors may be accomplished. [6]

Additionally, in 1991, Walsh sponsored and introduced the Hearing Loss Testing Act. [7] [11]

Related Research Articles

<span class="mw-page-title-main">Hearing loss</span> Partial or total inability to hear

Hearing loss is a partial or total inability to hear. Hearing loss may be present at birth or acquired at any time afterwards. Hearing loss may occur in one or both ears. In children, hearing problems can affect the ability to acquire spoken language, and in adults it can create difficulties with social interaction and at work. Hearing loss can be temporary or permanent. Hearing loss related to age usually affects both ears and is due to cochlear hair cell loss. In some people, particularly older people, hearing loss can result in loneliness. Deaf people usually have little to no hearing.

Tinnitus is the perception of sound when no corresponding external sound is present. Nearly everyone experiences a faint "normal tinnitus" in a completely quiet room; but it is of concern only if it is bothersome, interferes with normal hearing, or is associated with other problems. While often described as a ringing, it may also sound like a clicking, buzzing, hissing or roaring. It may be soft or loud, low- or high-pitched, and may seem to come from one or both ears or from the head itself. In some people, it may interfere with concentration, and in some cases is associated with anxiety and depression.

<span class="mw-page-title-main">Lucille Roybal-Allard</span> U.S. Representative from California

Lucille Elsa Roybal-Allard is an American politician who served as a U.S. representative from California from 1993 to 2023. A member of the Democratic Party, she first entered Congress in 1993. Her district, numbered as the 33rd until 2003, the 34th from 2003 to 2013, and the 40th from 2013 to 2023, included much of southern Los Angeles, as well as several eastern suburbs, such as Downey, Bell and Bell Gardens. On December 20, 2021, Roybal-Allard announced her retirement at the end of the 117th Congress.

<span class="mw-page-title-main">Newborn screening</span> Practice of testing infants for diseases

Newborn screening (NBS) is a public health program of screening in infants shortly after birth for conditions that are treatable, but not clinically evident in the newborn period. The goal is to identify infants at risk for these conditions early enough to confirm the diagnosis and provide intervention that will alter the clinical course of the disease and prevent or ameliorate the clinical manifestations. NBS started with the discovery that the amino acid disorder phenylketonuria (PKU) could be treated by dietary adjustment, and that early intervention was required for the best outcome. Infants with PKU appear normal at birth, but are unable to metabolize the essential amino acid phenylalanine, resulting in irreversible intellectual disability. In the 1960s, Robert Guthrie developed a simple method using a bacterial inhibition assay that could detect high levels of phenylalanine in blood shortly after a baby was born. Guthrie also pioneered the collection of blood on filter paper which could be easily transported, recognizing the need for a simple system if the screening was going to be done on a large scale. Newborn screening around the world is still done using similar filter paper. NBS was first introduced as a public health program in the United States in the early 1960s, and has expanded to countries around the world.

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James Thomas Walsh is an American Republican politician from Syracuse, New York. Currently a government affairs counselor for K & L Gates in Washington, DC, Walsh retired from the United States House of Representatives in 2009 after serving for twenty years. Walsh represented a portion of Central New York, that is now known as the state's 24th Congressional District.

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William Francis Walsh was a Republican-Conservative member of the United States House of Representatives from New York State.

Marion Downs was an American audiologist and Professor Emerita at the University of Colorado Health Sciences Center, Denver, who pioneered universal newborn hearing screening in the early 1960s, then spent more than 30 years trying to convince her peers to adopt the testing in hospitals and to place hearing aids on infants who showed hearing loss. She worked to alert the medical world to the developmental problems associated with childhood deafness. As a result of her efforts, 95 percent of all newborns in America today are screened for hearing loss. She devoted her professional life to the promotion of early identification of hearing loss in newborns, infants, and young children and to helping deaf and hard of hearing individuals lead fulfilling lives.

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<span class="mw-page-title-main">Universal neonatal hearing screening</span> Policy of routinely testing the hearing of babies soon after birth

Universal neonatal hearing screening (UNHS), also known as early hearing detection and intervention (EHDI) programmes in several countries, refer to those services aimed at the early identification, intervention, and follow-up of infants and young children who are deaf or hard-of-hearing. It is a strategy for early detection of permanent congenital hearing loss. It describes the use of objective testing methods to screen the hearing of well newborns in a particular target region. Even among developed countries, until the 1990s, it could take years for hearing-impaired child to be diagnosed and to benefit from a health intervention and amplification. This delay still can happen in developing countries. If children are not exposed to sounds and language during their first years of life because of a hearing loss, they will have difficulty in developing spoken or signed language; cognitive development and social skills could also be affected. This screening separates children into two groups—those with a high index of suspicion and those with a low index of suspicion. Those in the first group are referred for diagnostic testing.

<span class="mw-page-title-main">Henryk Skarżyński</span> Polish surgeon (born 1954)

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Hearing Health Foundation (HHF) is a 501(c)(3) nonprofit organization whose mission is to prevent and cure hearing loss and tinnitus through groundbreaking research, and promote hearing health. In 2011, the Deafness Research Foundation changed its name to Hearing Health Foundation.

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According to The Deaf Unit Cairo, there are approximately 1.2 million deaf and hard of hearing individuals in Egypt aged five and older. Deafness can be detected in certain cases at birth or throughout childhood in terms of communication delays and detecting language deprivation. The primary language used amongst the deaf population in Egypt is Egyptian Sign Language (ESL) and is widely used throughout the community in many environments such as schools, deaf organizations, etc. Ths article focuses on the many different aspects of Egyptian life and the impacts it has on the deaf community.

<span class="mw-page-title-main">Deafness in Italy</span>

Italy is a country, located in the south of Europe. The capital city is Rome. There are about 59 million people in Italy, and about 3.5 million Italians suffer from some form of hearing loss. Among them, around 70,000 people are severely deaf. The European Union for the Deaf reports that the majority of the deaf people in Italy use Italian Sign language (LIS). LIS has been an official sign language in Italy since 2021. Italy among other countries ratified the Convention on the Rights of Persons with Disabilities (CRPD) and is slowly improving conditions for deaf Italians. Many major organizations in Italy fight for deaf rights and spread awareness to ENS and FIADDA. Newborns in Italy also receive universal hearing screenings. Education in Italy is directed towards oralism although sign language is also used. LIS is a stable language and used by 10,000 to 1,000,000,000 users in Italy.

<span class="mw-page-title-main">Deafness in the Philippines</span>

The Philippines is an archipelago comprising over 7,000 islands in southeast Asia. Its capital city is Manila, on the island of Luzon. The Philippines has heavy Spanish and American influence, since Spain and the United States conquered the Philippines. They gained full independence from the United States on July 4, 1946. Over 112,000,000 populate the island country, and around 121,000 Filipinos are Deaf.

References

  1. "Transcripts of Quarterly CHHC meetings" (PDF). SaveOurDeafSchools.org. Retrieved 18 September 2014.
  2. James Walsh' biography, Project Vote Smart, Philipsburg, MT: Project Vote Smart, 2014, Retrieved 13 February 2014.
  3. "Eight Reasons to Get Your Hearing Checked This May - Washingtonian". 20 May 2013.
  4. "Reps. McKinley and Thompson Introduce Resolution to Recognize World Hearing Day". U.S. Representative David B. McKinley, P.E. 2018-02-21. Retrieved 2019-04-01.
  5. 1 2 Congressional Hearing Health Caucus: Background, American Speech-Language-Hearing Association, 2013, Retrieved 19 January 2014.
  6. 1 2 3 4 5 42 USC 280g-1: Early detection, diagnosis, and treatment regarding hearing loss in newborns and infants Archived 2013-12-15 at the Library of Congress Web Archives, United States Code, Washington, DC: United States House of Representatives, Undated, Retrieved 18 January 2014.
  7. 1 2 Congressman James T. Walsh Archived 2014-02-02 at the Wayback Machine , St. Bonaventure University Friedsam Memorial Library archives, St. Bonaventure, NY, Spring 2009, Retrieved 19 January 2014.
  8. 1 2 Biographical profile for James T. Walsh, Vote NY, Reston, VA: Vote USA, Undated, Retrieved 17 January 2014.
  9. NCRA supports Congressional Hearing Health Caucus Archived 2014-02-01 at the Wayback Machine , National Court Reporters Association, Vienna, VA, 23 February 2012, Retrieved 19 January 2014.
  10. Congressional Hearing Health Caucus lunch briefing on tinnitus and hearing loss Archived 2013-12-10 at the Wayback Machine , American Tinnitus Association, 2013, Retrieved 19 January 2014.
  11. 1 2 Congressman James T. Walsh: Newborn and infant hearing screening Archived 2014-02-02 at the Wayback Machine , St. Bonaventure University: Friedsam Memorial Library archives, St. Bonaventure, NY, Spring 2009, Retrieved 19 January 2014.